Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Celiac Vs. Gluten Intolerance - Interpreting Test Results


termcder

Recommended Posts

termcder Newbie

I am a 56 year old male and after nearly three years of terrible digestive issues I finally abandoned mainstream medical and went to a holistic practitioner. He ordered lab tests and the results indicate a severe gluten intolerance. I had been tested for Celiac a few months ago and it was negative.

I have been on a liver detox diet which is gluten free and have felt terrific. But this is all new to me and there is just the slightest skepticism about the result. I've been thinking that the fruits and vegetables I am consuming were putting things back in order.

My symptoms were constipation, fatigue, queasy stomach, lightheadedness, weakness, brain fog, etc. Essentially I was wiped out head to foot. Felt like I was coming down with flu. I often described at as feeling "poisoned." Would come on over a couple of days and last for a couple weeks then go away.

The lab tests were based on saliva analysis and the result indicated a 65 (not sure what that relates to). The doctor said that my results were the highest he had ever seen. Also indicated a milk intolerance.

Is this sort of result compatible with a negative Celiac result?

Thanks.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BettyinMD Newbie

wow, interesting!

What did your natural doctor have to say about the negative celiac test? Also, do you remember what kind of tests you got done to detect a gluten intolerance? Im only asking because Im considering asking for similar tests.

Are you going to pursue it more, or just stay off the gluten?

Link to comment
Share on other sites
momxyz Contributor
wow, interesting!

What did your natural doctor have to say about the negative celiac test? Also, do you remember what kind of tests you got done to detect a gluten intolerance? Im only asking because Im considering asking for similar tests.

Are you going to pursue it more, or just stay off the gluten?

yes, can you provide us with the specific names of the tests performed, their results, and normal ranges?

Link to comment
Share on other sites
termcder Newbie

Thanks. I don't have a copy of the test results but it was performed at Diagnos-Techs. I'll get more details.

He said 17 was the highest he had seen and that 12 was considered a positive indicator. But I'm really not sure what I'm talking about!

Link to comment
Share on other sites
ang1e0251 Contributor

I'd really like to learn more about the test as I have never heard of a difinitive test for GI.

Link to comment
Share on other sites
curiousgeorge Rookie

I had a saliva test from diagnos-techs before I had the traditional celiac testing. My DT test was blatantly negative yet my traditional blood work (ttg anti gliadin) were wildly positive. IMHO, I'd take that test with a grain of salt.

Link to comment
Share on other sites
termcder Newbie

That's what I'm concerned about. It almost sounds like an erroneous reading. I'll get more info.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Here is some information:

https://www.celiac.com/articles/21677/1/Sim...ease/Page1.html

The research team concluded that it is possible to measure salivary tTG-Abs with a high level of accuracy; both at initial diagnosis for celiac disease, and also while patients are following a gluten-free diet.

Link to comment
Share on other sites
ang1e0251 Contributor

So the way I read this, this is an antibody test and if he is positive that indicates celiac disease not GI. Is that correct?

Link to comment
Share on other sites
termcder Newbie

Here is what the actual test result reads:

Gliadin Ab, SigA (Saliva) 65 Positive Borderline 13-15 U/ml Positive >15 U/ml

I am going to get the results from the Gastro MD blood panel for Celiac also.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,226
    • Most Online (within 30 mins)
      7,748

    NYKaren
    Newest Member
    NYKaren
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...