Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Vs. Gluten Intolerance - Interpreting Test Results


termcder

Recommended Posts

termcder Newbie

I am a 56 year old male and after nearly three years of terrible digestive issues I finally abandoned mainstream medical and went to a holistic practitioner. He ordered lab tests and the results indicate a severe gluten intolerance. I had been tested for Celiac a few months ago and it was negative.

I have been on a liver detox diet which is gluten free and have felt terrific. But this is all new to me and there is just the slightest skepticism about the result. I've been thinking that the fruits and vegetables I am consuming were putting things back in order.

My symptoms were constipation, fatigue, queasy stomach, lightheadedness, weakness, brain fog, etc. Essentially I was wiped out head to foot. Felt like I was coming down with flu. I often described at as feeling "poisoned." Would come on over a couple of days and last for a couple weeks then go away.

The lab tests were based on saliva analysis and the result indicated a 65 (not sure what that relates to). The doctor said that my results were the highest he had ever seen. Also indicated a milk intolerance.

Is this sort of result compatible with a negative Celiac result?

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BettyinMD Newbie

wow, interesting!

What did your natural doctor have to say about the negative celiac test? Also, do you remember what kind of tests you got done to detect a gluten intolerance? Im only asking because Im considering asking for similar tests.

Are you going to pursue it more, or just stay off the gluten?

momxyz Contributor
wow, interesting!

What did your natural doctor have to say about the negative celiac test? Also, do you remember what kind of tests you got done to detect a gluten intolerance? Im only asking because Im considering asking for similar tests.

Are you going to pursue it more, or just stay off the gluten?

yes, can you provide us with the specific names of the tests performed, their results, and normal ranges?

termcder Newbie

Thanks. I don't have a copy of the test results but it was performed at Diagnos-Techs. I'll get more details.

He said 17 was the highest he had seen and that 12 was considered a positive indicator. But I'm really not sure what I'm talking about!

ang1e0251 Contributor

I'd really like to learn more about the test as I have never heard of a difinitive test for GI.

curiousgeorge Rookie

I had a saliva test from diagnos-techs before I had the traditional celiac testing. My DT test was blatantly negative yet my traditional blood work (ttg anti gliadin) were wildly positive. IMHO, I'd take that test with a grain of salt.

termcder Newbie

That's what I'm concerned about. It almost sounds like an erroneous reading. I'll get more info.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Here is some information:

https://www.celiac.com/articles/21677/1/Sim...ease/Page1.html

The research team concluded that it is possible to measure salivary tTG-Abs with a high level of accuracy; both at initial diagnosis for celiac disease, and also while patients are following a gluten-free diet.

ang1e0251 Contributor

So the way I read this, this is an antibody test and if he is positive that indicates celiac disease not GI. Is that correct?

termcder Newbie

Here is what the actual test result reads:

Gliadin Ab, SigA (Saliva) 65 Positive Borderline 13-15 U/ml Positive >15 U/ml

I am going to get the results from the Gastro MD blood panel for Celiac also.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.