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littlestarsmom

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Hi - New here and need some help please!!!

My son is 7 years old. At about 1 year old he became extremely picky. His life pretty much consists of eating bread and not much else. I really feel like it is due to a gluten and/or wheat intolerance. About a year ago we did blood testing. All came back negative. We did the small intestine biopsy. That came back negative as well. The only symptom he seems to have is constipation. He doesn't really complain of stomach pains. He barely eats anything. He is tall for his age and his weight seems about normal. When we went through all the testing a year ago our pediatrician sent us to Children's Hospital to a GI specialist. Since the biopsy came back normal that was all the testing that was done. So I just went on with life and let him continue eating his bread. I don't like the fact that he continues to just want bread. I know there is a problem and feel the bread eating is his way of trying to make himself feel better. I have recently tried taking him off gluten but it has been extremely difficult because he just won't eat much. I guess the purpose of this post is to get advice. I just don't know what to do. Do I just completely get him off the gluten and see what happens or do I go back to our pediatrician and see what else can be done? I just feel so frustrated and just want to cry.

Kim

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Wow, that is a head scratcher!! He would be constipated if all he eats is bread! Maybe you could switch out some of his bread products for gluten free. Granted, no gluten-free bread is going to taste good to him, it just doesn't compare. But if you could get him to eat say muffins, you could make them gluten-free and sneak some good stuff in there like zuchinni or pumpkin. There is a good cookbook about just that by Jerry Seinfield's wife. I can't remember the name but your library probably has it, mine did.

If you can sub out some of his food, without him knowing it, you can see how he reacts to a low gluten diet. See if you think it is helpful to him. Actually, he doesn't seem to be showing the average symptoms I hear about from parents. Usually they report failure to thrive, digestive problems, pain and behavior issues. That doesn't mean he isn't gluten intolerant, it just means you are going to have to dig deeper to find that answer. A positive response to the gluten-free diet is something a dr might hang his hat on.

Good luck and let us know how it comes out.

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if he's mostly just eating bread, is he getting much fiber and/or fat?

honestly, it is not quacking like a celiac duck and I might look into what else might be causing the constipation.

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Wow...this sounds familiar to me. My son is 20 months and I suspect celiac disease. He, like your son, started only wanting "carbs" at about 1 years old (he ate all types of food before). He has diarrhea and gas and gets very rashy. Do you or his dad have any gluten issues? That could be a good indication for starters. I've seen the Seinfeld cookbook called "deceptively delicious" recommended by the previous poster, but its got recipes for meatloaf, soups, etc. That he won't even touch. We've been buying V8 splashers to sneak in some veggies if you could get your son to drink that? Just a little off-topic suggestion.

I know that with my issues, I crave carbs. I read somewhere that sometimes, our bodies crave what is making us ill. Sorry I don't have a more difinitive answer, but I've suspected the same with my child if it helps. Keep me updated on what you find and I'll do the same.

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Wow...this sounds familiar to me. My son is 20 months and I suspect celiac disease. He, like your son, started only wanting "carbs" at about 1 years old (he ate all types of food before). He has diarrhea and gas and gets very rashy. Do you or his dad have any gluten issues? That could be a good indication for starters. I've seen the Seinfeld cookbook called "deceptively delicious" recommended by the previous poster, but its got recipes for meatloaf, soups, etc. That he won't even touch. We've been buying V8 splashers to sneak in some veggies if you could get your son to drink that? Just a little off-topic suggestion.

I know that with my issues, I crave carbs. I read somewhere that sometimes, our bodies crave what is making us ill. Sorry I don't have a more difinitive answer, but I've suspected the same with my child if it helps. Keep me updated on what you find and I'll do the same.

I don't personally get that because I can't stand feeling sick so I avoid things that have made me feel sick. I do know of people though who say they crave what their allergens are. I guess we're all different.

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Hi - New here and need some help please!!!

My son is 7 years old. At about 1 year old he became extremely picky. His life pretty much consists of eating bread and not much else. I really feel like it is due to a gluten and/or wheat intolerance. About a year ago we did blood testing. All came back negative. We did the small intestine biopsy. That came back negative as well. The only symptom he seems to have is constipation. He doesn't really complain of stomach pains. He barely eats anything. He is tall for his age and his weight seems about normal. When we went through all the testing a year ago our pediatrician sent us to Children's Hospital to a GI specialist. Since the biopsy came back normal that was all the testing that was done. So I just went on with life and let him continue eating his bread. I don't like the fact that he continues to just want bread. I know there is a problem and feel the bread eating is his way of trying to make himself feel better. I have recently tried taking him off gluten but it has been extremely difficult because he just won't eat much. I guess the purpose of this post is to get advice. I just don't know what to do. Do I just completely get him off the gluten and see what happens or do I go back to our pediatrician and see what else can be done? I just feel so frustrated and just want to cry.

Kim

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Hi - New here and need some help please!!!

My son is 7 years old. At about 1 year old he became extremely picky. His life pretty much consists of eating bread and not much else. I really feel like it is due to a gluten and/or wheat intolerance. About a year ago we did blood testing. All came back negative. We did the small intestine biopsy. That came back negative as well. The only symptom he seems to have is constipation. He doesn't really complain of stomach pains. He barely eats anything. He is tall for his age and his weight seems about normal. When we went through all the testing a year ago our pediatrician sent us to Children's Hospital to a GI specialist. Since the biopsy came back normal that was all the testing that was done. So I just went on with life and let him continue eating his bread. I don't like the fact that he continues to just want bread. I know there is a problem and feel the bread eating is his way of trying to make himself feel better. I have recently tried taking him off gluten but it has been extremely difficult because he just won't eat much. I guess the purpose of this post is to get advice. I just don't know what to do. Do I just completely get him off the gluten and see what happens or do I go back to our pediatrician and see what else can be done? I just feel so frustrated and just want to cry.

Kim

hi, my son is exactly like you say about eating only carbs. loves bread.. we are doing the testing now. he has poop issues also. but he iss o picky on his food. I started him on the gluten free diet yesterday. which i know is going to be hard. I tried the bread.(he did not like so much) . If you get this reply email me at gspoongrl@aol.com . I know no one like my son. and i to am very frusterated.

michelle

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    Thank you so much! and yes, I am aware of other allergies. I have leaky gut as well and have a food allergy to potatoes and corn as well and my mother eats those too. So very stressed out. I went downstairs and found a mini fridge and im going to start using that because like you said, handles, faucets, etc are too much. the stress does not help the body either, ive been getting sick three times a week. its very hard.  I am glad there are people who understand! Sounds like you were concerned too
    The cheese and avocado are fine, the gluten was not aerosolized anything like that. NOW if your allergic to wheat there could be some issues being around it like that (some severe cases of peanut allergies can go off if it is in the room) but you would be anaphylactic.  I get the paranoia, it gets to the point of being almost PTSD. You fear to get sick so bad because the weirdest things have bedridden you. I got glutened touching gluten residue on facets, fridge door handles, etc in my old
Alaskaguy, Here is the research you are looking for they are entitled "Maize prolamins resistant to peptic-tryptic digestion maintain immune-recognition by IgA from some celiac disease patients." and "Maize prolamins could induce a gluten-like cellular immune response in some celiac disease patients." respectively. https://www.ncbi.nlm.nih.gov/pubmed/22298027 https://www.ncbi.nlm.nih.gov/pubmed/24152750 It is like Oats ...Corn can bother a subset of celiac's. ...reintroducing
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