Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seen At Cleveland Clinic For Follow Up


eeskew7282

Recommended Posts

eeskew7282 Rookie

I was diagnosed with Celiac Disease in July after having positive blood work and a positive EDG. I have strictly followed gluten-free diet. I research and constantly read about this disease. I have not once eaten anything that I haven't researched and made sure there was no gluten in it. I do however eat out 3 times a week but order foods from a gluten-free menu. I wanted to get an evaluation from the cleveland clinic digestive clinic. I went there on friday of last week. I felt I got excellent care. I saw two physicians and a dietician. Multiple labs were drawn. The physician contacted me today and said my TTG was higher than before. It was 28 in July and now its 38 and my vitamin D level was 22. I was placed on vit d 50,000 units weekly for 8 weeks. She also said she would recheck my TTg in a few months. The only thing I can think of would be I took Augmentin for a sinus infection last week. I had to stop in the middle of treatment because I was developing the Celiac s/s I had before. I really work hard to eat all of the right foods. Not sure what I am doing wrong???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Did you check with your pharmacist or the company to make sure the drug was gluten free? You have to check all meds, script or OTC. Generic drugs need to be checked at each refill as the binders can change. You also need to check all vitamins and supplements and do be aware that some vitamins labeled gluten free will have barley or wheat grass added and those are not something you want. Do read all labels carefully.

eeskew7282 Rookie
Did you check with your pharmacist or the company to make sure the drug was gluten free? You have to check all meds, script or OTC. Generic drugs need to be checked at each refill as the binders can change. You also need to check all vitamins and supplements and do be aware that some vitamins labeled gluten free will have barley or wheat grass added and those are not something you want. Do read all labels carefully.

Yes, we think it may be related to a course of Augmentin I took.

LDJofDenver Apprentice

Darn, that's so frustrating when you've tried to be so careful.

Did anyone also tell you, when diagnosed, that you need to get a new toaster, your own cutting board, colander, etc.? And also, if you'd been using any teflon coated pans to cook with (pancakes, other wheat flour or breaded items), you should ditch those, too, and get new pans.

Sometimes, even though ordering from a gluten free menu, you can pick up substantial cross contamination at a restaurant. My son and I both got nailed at local restaurant that was touted as really catering to celiacs (I think it's 20-30% of their business). We were both doubled over with belly cramps that evening. Been afraid to go back there after that experience! Anyway, it does happen.

StacyA Enthusiast

Do you really have to get rid of teflon pans?? I'm newly diagnosed and will be having a shared kitchen. I have my own strainer and butter and I'm not using wooden spoons and I won't use the toaster. I thought that was pretty good. My cutting boards are plastic - wouldn't those wash well? And do I have to worry about teflon pans?

ravenwoodglass Mentor
Do you really have to get rid of teflon pans?? I'm newly diagnosed and will be having a shared kitchen. I have my own strainer and butter and I'm not using wooden spoons and I won't use the toaster. I thought that was pretty good. My cutting boards are plastic - wouldn't those wash well? And do I have to worry about teflon pans?

Teflon pans get scratched easily it really is best to get one that is for your use only. The same goes for the cutting boards if they are also scratched.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,943
    • Most Online (within 30 mins)
      7,748

    MichaelBbiff
    Newest Member
    MichaelBbiff
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ognam
      Has anyone had Steatorrhea (oily/fatty poop) as a temporary glutening symptom or should I be concerned I've introduced chronic gluten somewhere (like in meds)? I haven't gotten Steatorrhea since before I went gluten free. However, I moved in the past few weeks and haven't been as careful - I've eaten at restauraunts with cross contamination but only experienced minor symptoms like headache. The past week, I ate only gluten free food at home except I went to Red Robin and got fries (told them gluten-free; allergy). The next day I had Steatorrhea and the day after that.   I know it's a symptom of malabsorption so I was wondering if it was the kind of thing that could be caused by one event or if it was due to a more chronic issue. Of course I will speak to a GI but I recently moved and need to find one.   Thank you for any info
    • plumbago
      A relative has opened another door for me on this issue -- the possibility of menopause raising HDL. Most studies suggest that menopause decreases HDL-C, however, one study found that often it's increased. "Surprisingly, HDL cholesterol was higher (p < 0.001) in postmenopausal women by 11%. Further, the number of women who had low HDL cholesterol was higher in pre vs. postmenopausal women. The range of ages were 26–49 years for pre-menopausal and 51–74 years for postmenopausal women. "This interesting finding has also been observed by other investigators. It is possible that the observed increase in HDL-C in postmenopausal women could be due to a protective mechanism to counterbalance the deleterious effects of biomarkers associated with menopause. However, further studies are needed to confirm this theory. And to the point raised earlier about functionality: "...some patients with elevated HDL-C concentrations could remain at risk for coronary events if HDL is not functional and some authors have suggested that this could be the case for menopausal women." Postmenopausal Women Have Higher HDL and Decreased Incidence of Low HDL than Premenopausal Women with Metabolic Syndrome. By no means to I think this is definitive, rather food for thought.
    • ognam
      Yes, lots of delicious things have barley malt. It also doesn't include rye. And there are a number of grains commonly cross contaminated such as oats.   Additionally, wheat allergies are different from gluten allergies as wheat allergies are a reaction to a wheat protein. So something *could* contain wheat gluten without causing a wheat allergic response (though realistically,  I don't know how likely that is to occur)
    • trents
      Although it is true that FDA regulations don't require gluten to be included in allergy info, it does require wheat and ingredients made from wheat to be listed. Of course, that doesn't preclude gluten from barley being found in a product.
    • ognam
      I had a lot of weird/random symptoms for a few months after going gluten free. But eventually they evened out and I felt SO MUCH BETTER. The person above wrote a very detailed message that looks helpful. I'd add don't forget to check for gluten in places like medicine. Advil liquigels, for example, have gluten. It's very frustrating trying to figure out if things are gluten free as us law doesn't require it to be declared. The only labeling rule is that if the product says gluten free, it must have less than 20ppm gluten.
×
×
  • Create New...