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vampkestrel

Celiac's Or Something Else....?

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Have you brought these symotoms to the attention of your doctor and insisted that they do a full work up for other autoimmune diseases? Autoimmune diseases can come more than one at a time. The weakness that goes away in an short time and the blue arm and leg are the most concerning to me. Especially if you already know you are prone to blood clots these symptoms should not be ignored. If possible the next time these occur you should be seen while the symptoms are active.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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well i currently see my gp, a neurolgist, and a rhemalogist (please forgive spelling there) it finally took me insisting my gp to test for celiac disease to even get that diagnosis other then that they say they have no idea and without swelling it's propably not a blood clot. oh for the record i'm a 27 year old female... it's very frustrating over all since none of my docs know what's going on and i have to rely more on diagnosing my self and the demanding the tests to back it up.

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Extreme sensitivity to sunlight and heat intolerance. I had a cousin who started out with these symptoms. Have you been checked for Lupus? That is an autoimmune disease that runs along with Celiac and Thyroid problems.


Lupus, Connective Tissue Disease with Fibro type symptoms, Anemia, Anxiety, Depression, RA, Rynauds Syndrome, Chronic Fatigue Syndrome, Erosive Gastritis, Osteoporosis, Degenerative Disc Disease, Scoliosis, Bulging discs in lower back and neck, Pinched Nerves.

 

Soy free, MSG free, mostly Dairy free. Endoscopy shows blunted Villi which dr states as gluten sensitivity, so goin back to being gluten free

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yes i a few times my ana is always a little off but they said not enough for lupus. I also had a crazy high sed rate but i'm guessing the ana and sed could just be part of celiac disease as well since apparently my doctors have no clue....sigh...my mother does have lupus though but it's not suppose to be hereditary per se

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yes i a few times my ana is always a little off but they said not enough for lupus. I also had a crazy high sed rate but i'm guessing the ana and sed could just be part of celiac disease as well since apparently my doctors have no clue....sigh...my mother does have lupus though but it's not suppose to be hereditary per se

I had a high sed rate and a CRP of 81; neither of these figures budged on a gluten free diet or on the standard DMARD drugs for rheumatoid arthritis. It was only when I started taking Humira, a TNF inhibitor, for my psoriatic arthritis, that my CRP dropped to normal. Sed rate and CRP are both measures of inflammation, and I had been telling myself that my inflammation was coming from my gut and from my other food intolerances that flared into itchy rashes, but t'weren't so.

Your crazy high sed rate needs to be investigated further IMHO.


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

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