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ozziepuppy

New Member So Please Be Patient With This Question

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:( I have been burned several times recently by foods that were supposed to be gluten-free but were not. I decided to look for an online source for gluten-free food that is reasonably priced and does not have high shipping costs. I live in Kansas. I thought a forum might be a better source of information rather than just googling for "gluten-free groceries." I would really appreciate it if you could recommend some reliable sources.

I know I should search through the forum to find topics that relate to this but to be honest I am just not feeling that great and do not have the patience to do that right now. Please be kind--I have been sick for several days after eating something that clearly triggered a reaction. I would like to go back to feeling better without having to spend an arm and a leg at the local health food store. However, if I have to continue to do that, I will do so.

Thank you for any assistance you can give me. I am relatively new to all of this and I want so much to continue to get my health back.

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I would suggest that for now, you stick to natural, unprocessed foods....meat, fruit, veggies, beans, etc. It 's safer and easier on the pocketbook. When I do eat something processed, I try to stick to things that only have about 3 things listed for ingredients. I rarely buy specific gluten-free items, pretty much only noodles and pizza crust.

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I do try to do that. However, I work at 5 different public schools and I can't eat most school lunches nor do I have time to go out to eat. I need to be able to bring food that is healthy and gluten-free. I have brought hemp milk with protein powder, cheese and gluten-free crackers, canned salmon and beans, fruit, gluten-free soups, and a few other things, but I am getting tired of always eating the same thing--or so it seems. The times I have bought school lunches and only eaten what I thought was gluten-free have been disasters. Once I ate tomato soup (contains wheat) and another time I ate what I thought was hamburger (it had some kind of artificial stuff in it that must have contained wheat--it was not all beef for sure). I am still learning but I do try to be very very careful. I guess I am looking for something I can easily pack into a lunchbox and still have some variety.

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Yeah......I work at a school and won't touch anything there. I usually eat leftovers. However, I don't travel, so I have access to a fridge. Perhaps you could use ice packs, or heat up leftovers and keep in a thermos. I love tortilla chips dipped in peanut butter. :P .....or carrots or celery. Try googling school lunches on this site. A lot of people here have great ideas on what they pack for their kids' school lunches.

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I buy a lot of my gluten-free stuff from this site right here! I buy Ener-G bread straight from them.

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If you are having problems with milk, try Kefir. It's a great product.

As someone else said, in the beginning, it's a lot easier to eat the way we should be anyhow--whole foods. Just think of it like this: We all are now on the "French Women Don't Get Fat" diet. :D

In that book, the French eat a lot of soup, drink a ton of water, and eat whole foods. And walk every where.

For my hubby and kids, I make meat roll-ups with lettuce or meat rolled up. Healthy Valley makes a fantastic vegetable soup. (I wasn't impressed with their cream of chicken though) Pacifica has great tomato soup.

Have you checked into seeing if there are any co-ops in your area. Maybe check with United Natural Foods home and see where they deliver in your area. (UNFI.com)

And don't forget to just go down to your local store and tell the manager what you want--you would be surprised how quickly they can get something in for you.

My local Kroger guy told me that when he put out the Kinnikinnick chocolate sandwich wafers (Oreos) that he never thought in a million years that they would sell because they were $4+ per box. But within days, he had to place another order. I just keep going in and telling him what I want. He has gotten most of the items and trust me, I've asked for a lot!

He said that his entire area started about 25 yrs ago, when 2 grandmothers came into his store looking for food for their grandson.

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    Hi Wade, You areright, there are lots of little gotchas out there in the gluten-filled world.  That's why it is easier/safer to stick with whole foods at the beginning of the gluten-free diet.  The list of ingredients on an apple or an orange or a steak is usually real short.  So you can get out of the grocery store quicker by eating whole foods like those.  Plain frozen veggies or canned are usually safe too.  And fresh produce as long as you give it a quick rinse.
    Why....why would your doctor not follow the standard of care for testing celiac disease?  I think you need to think about  finding another doctor.  If you are in the US, you can “walk” into a lab and order the test and pay cash: https://labtestsonline.org/tests/celiac-disease-antibody-tests No, your result does not significantly lower your odds of getting a celiac disease diagnosis.  She ordered the LEAST commonly used test, especially since she only ordered that one alone.  I think she thinks you do not have celiac disease, but that you may have a gluten sensitivity.  But that is wrong!  There is no test for gluten sensitivity.  http://www.cureceliacdisease.org/screening/ https://www.mayocliniclabs.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ https://www.verywellhealth.com/celiac-disease-blood-tests-562694 https://www.niddk.nih.gov/health-information/diagnostic-tests/celiac-disease-health-care-professionals I am not a doctor though.  Perhaps, you can ask her why she did not order the complete panel or at least the screening tests most often ordered for celiac disease. Know that some celiacs are asymptomatic (no symptoms) Some just have one symptom.  Some have classic symptoms.  I presented with only anemia and no GI symptoms with only a positive on the DGP IgA.    I hope this helps.  
    Got the result today, and it is indeed the IgG only, and it is "negative" with a result of: <10.0 Units I have sent a message to my doctor requesting that she at least also order the TTG IGA test. However, I'm assuming that this result does at least significantly lower the likelihood that I have celiac? This is all just a shot in the dark anyhow... but after 8 years of unsatisfactorily diagnosed mystery joint pain, I don't want to only half-explore an option and then abandon it without a reasonably definitive result.
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