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This is a copy of the e-mail sent to me from the makers of Suave products:

Hi,

Thanks for writing!

We do not specifically test our products for the presence of gluten, a sticky protein found in some grains such as wheat. Gluten may be present in products that contain derivatives of wheat, oat, rye, and barley. In labeling our products, our company follows the guidelines established by the International Nomenclature for Cosmetics Ingredients (INCI)process. Therefore, if we use an ingredient derived from a grain such as wheat, oat, rye and / or barley, those names will appear on the label.

Example

One common example is "Hydrolyzed Wheat Protein" If you see this name on the label, the material was derived from wheat, so the product may contain gluten.

We recommend that you consult with your physician as to whether your exposure to grain derivatives from the use of personal care products will cause the symptoms of Celiac-Sprue Disease.

We hope this information is helpful,

Your friends at Suave

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We appreciate your interest in our products.

We cannot guarantee that any of our products are gluten free. Gluten comes from plant sources. We purchase ingredients from various vendors. Our vendors can change the origin for each ingredient at any time and without our knowledge.

Cordially,

Sharon

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I find it sad that so many companies are not willing to find out more about their products and hide behind the "We purchase ingredients from various vendors" line. At least, we can know.

I like how Suave lists the potential allergens next to the ingredient that may contain gluten...at least a few companies try to help.

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Thank you for contacting us.

Aussie obtains its ingredients from different suppliers therefore, we

cannot guarantee that their raw material are free of wheat products.

Since we are unable to guarantee that there's no wheat in our products.

We would advise a consumer that is allergic to wheat unfortunately, not

to use our products.

If you have any additional questions please call 1-800-947-2656, Monday

through Friday between 8:30 AM and 8:30 PM or Saturday between 9:00 AM

and 6:00 PM, Eastern Time.

Thank you again for contacting us.

The Consumer Affairs Team

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Thank you for contacting us.

Our company purchases raw ingredients from different distributors.

Because of this we can not rule out the presence of gluten/wheat in our

products. We apologize that we could be more assistance at this time.

If you have any further questions please call 1-800-382-7833, Monday

through Friday between 8:30 AM and 8:30 PM or Saturday between 9:00 AM

and 6:00 PM, Eastern Time.

The Consumer Affairs Team

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They sent an additional e-mail stating:

"In addition, we would like to assure you that most of the ingredients in our products are derived from palm oils or are synthetically derived."

Does that mean they're okay? Or does that mean anything at all?

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I was using the aussie products up until recently when I read a post about hair products and sure enough, the conditioner and the 3 minute miracle both had wheat protein in them, so I just threw them out. I wouldn't trust their other products to be safe, even though I did like them. I guess this is just another piece to the puzzle!

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We know Celiac is a serious disease, so we want to give you clear information regarding the use of our beauty care products. If wheat and/or gluten aren't directly added to a product by us, these ingredients won't be listed on our packages. Like many companies, we often purchase the scents for fragranced products from outside suppliers, and the components of these substances are proprietary information belonging to those companies. Therefore it's possible that a very small amount (generally parts per million) of gluten may be present.

We sought advice from physicians; they told us it would be very unlikely a person with Celiac disease would have a reaction from a trace amount of gluten coming into contact with his skin or hair. This is because wheat, rye, barley and/or gluten generally cause symptoms when they're ingested. Since our beauty care products are designed to be used externally on the skin, their use shouldn't be an issue for someone with this disease.

Since gluten sensitivity can vary among people, it would be best if you consulted with your physician about the use of all types of consumable goods, if you haven't already. You might even consider using one of our fragrance free products that doesn't list gluten or wheat extracts on the label.

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Thank you for contacting us.

Clairol purchases their materials from different distributors and

because of this we can not rule out the presence of gluten in our

products. We apologize that we could not be of more assistance at this

time.

If you have any further questions please call our toll-free number to

speak with a Consultant at 1-800-CLAIROL. Monday through Friday from

8:30 AM to 8:30 PM Saturday 9:00 AM to 6:00 PM, Eastern Time.

The Consumer Affairs Team

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Hi, Brandy.

Thanks for your interest in Secret. If wheat and/or wheat extract is directly added to the formula, it will be listed in the Ingredient Statement, on the label. If it is not listed on the Ingredient Statement, then no gluten is directly added to the product. If wheat or a wheat extract is added to the perfume it will not be listed separately on the label, but potentially present at a very low level. Since Beauty Care products are used on the hair and skin, it would be very unlikely that a person with Celiac disease would have a reaction from trace amounts of gluten.

Hope this helps.

Kristi

Secret Team

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This was my response:

We greatly appreciate your help, but we feel it's necessary to inform you that many individuals who have Celiac disease also have dermatologic reactions to topical products that contain wheat. This usually presents in rashy, itchy, uncomfortable skin...and is very common in those individuals with Celiac disease.

Thank you,

Brandy

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Hi, Brandy.

We appreciate your interest in Bounty. I'm happy to inform you that there is no gluten in any of our Bounty products.

Thanks for writing and stop by again!

Kristi

Bounty Team

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Hi, Brandy.

We appreciate your interest in Charmin. I'm happy to let you know there is no gluten in any of our Charmin products.

Hope this helps. Thanks for contacting us!

Jill

Charmin Team

** I figured this one would be safe, but you never really know...and wouldn't that be a horrible one to have be wheat infested?! :rolleyes:

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Dear Ms. O' Brien:

Thank you for contacting us regarding Church & Dwight Co., Inc. products

as they pertain to your gluten intolerance.

We certify that ARM & HAMMER

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Thanks for contacting Tide, Brandy.

Glad you asked! Tide products do not contain gluten. However, I'm not able to provide you a list of products that do or do not contain gluten. We manufacture over 300 products and ingredients may change from time to time. The best way to determine if a product contains gluten is to check the label. If ingredients aren't listed, then either call or email with the specific product. We'll be happy to check it out for you.

Thanks for visiting.

Christina

Tide Team

** I've e-mailed a response asking for a product list, and I'll get in touch with them asking about each and every product. I'll let you know what I find out.

Brandy

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Hi Brandy,

I answered a message from you earlier. I just wanted to reiterate, none of Procter & Gamble's cleaning products contain gluten. That would include: Bounce, Swiffer, Mr. Clean, Ivory Dishwashing Liquid, Ivory Snow laundry detergent, Dryel, Dreft, etc... I'm not going to answer each of your messages individually since this covers most of them.

Hope this helps.

Mary Lou

P&G Team

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Thanks for contacting us about several of our products, Brandy.

We know Celiac is a serious disease, so we want to give you clear information regarding the use of our beauty care products. If wheat and/or gluten aren't directly added to a product by us, these ingredients won't be listed on our packages. Like many companies, we often purchase the scents for fragranced products from outside suppliers, and the components of these substances are proprietary information belonging to those companies. Therefore it's possible that a very small amount (generally parts per million) of gluten may be present.

We sought advice from physicians; they told us it would be very unlikely a person with Celiac disease would have a reaction from a trace amount of gluten coming into contact with his skin or hair. This is because wheat, rye, barley and/or gluten generally cause symptoms when they're ingested. Since our beauty care products are designed to be used externally on the skin, their use shouldn't be an issue for someone with this disease.

Since gluten sensitivity can vary among people, it would be best if you consulted with your physician about the use of all types of consumable goods, if you haven't already. You might even consider using one of our fragrance free products that doesn't list gluten or wheat extracts on the label.

Thanks for getting in touch with us. I hope this response has been helpful to you. For more information about Celiac, you may want to check out http://celiac.com/ and http://celiac.org

Hope this helps.

Karen

Beauty Care Team

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Hi Brandy.

You'll be glad to know that ThermaCare heat wraps do not contain gluten. The ingredients in the heat cells are charcoal, iron powder, sodium chloride (salt), sodium thiosulfate and water.

Hope this helps.

Gary

ThermaCare Team

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Thanks for writing, Brandy.

While I don't have a list to send you, I can tell you that there is no gluten in any Vicks product!

Hope this helps.

Amy

Vicks Team

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Dear Mrs. O'Brien:

Thank you for contacting the Johnson & Johnson Consumer Companies Information Center. It is always important to hear from our consumers, and we appreciate the time you have taken to contact us.

All of our BAND-AID

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Hello Ms. O'brien,

Thank you for contacting us as to whether or not our products have gluten

derived ingredients. We understand how important this information is for

you.

At Beiersdorf, we strive to offer our consumers the best products

possible, and therefore we may reformulate them when improvement is

possible. The information we give you today regarding our ingredients may

not be true if we reformulate a product next year. We do not maintain a

list of gluten free products as change control is not possible.

If you have concerns about Gluten and its derivatives, we can recommend

that you avoid all products with ingredients derived from wheat, rye,

barley and oats. The ingredient names are:

TRITICUM VULGARE

SECALE CEREALE

HORDEUM VULGARE

AVENA SATIVA

Although our products may not contain the above ingredients, it is always

possible that one of our raw materials may contain traces of gluten

because its presence is not excluded by our raw material specifications.

Please call us at 1-800-227-4703 if you have any other questions or

comments. Our phone lines are open Monday to Friday, 9:30 am to 4:30 pm

EST.

We appreciate your taking the time to contact us.

Cordially,

Sam

Consumer Relations

Beiersdorf Inc.

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    Jefferson Adams
    Celiac.com 06/18/2018 - Celiac disease has been mainly associated with Caucasian populations in Northern Europe, and their descendants in other countries, but new scientific evidence is beginning to challenge that view. Still, the exact global prevalence of celiac disease remains unknown.  To get better data on that issue, a team of researchers recently conducted a comprehensive review and meta-analysis to get a reasonably accurate estimate the global prevalence of celiac disease. 
    The research team included P Singh, A Arora, TA Strand, DA Leffler, C Catassi, PH Green, CP Kelly, V Ahuja, and GK Makharia. They are variously affiliated with the Division of Gastroenterology and Hepatology, Beth Israel Deaconess Medical Center, Boston, Massachusetts; Lady Hardinge Medical College, New Delhi, India; Innlandet Hospital Trust, Lillehammer, Norway; Centre for International Health, University of Bergen, Bergen, Norway; Division of Gastroenterology and Hepatology, Beth Israel Deaconess Medical Center, Boston, Massachusetts; Gastroenterology Research and Development, Takeda Pharmaceuticals Inc, Cambridge, MA; Department of Pediatrics, Università Politecnica delle Marche, Ancona, Italy; Department of Medicine, Columbia University Medical Center, New York, New York; USA Celiac Disease Center, Columbia University Medical Center, New York, New York; and the Department of Gastroenterology and Human Nutrition, All India Institute of Medical Sciences, New Delhi, India.
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    There are many reports in such journals connecting brain and neurological ailments with gluten, so it is not much of a stretch, on that basis alone, to suspect that stuttering may be a symptom of the gluten syndrome. Rodney Ford has even characterized celiac disease as an ailment that may begin through gluten-induced neurological damage (13) and Marios Hadjivassiliou and his group of neurologists and neurological investigators have devoted considerable time and effort to research that reveals gluten as an important factor in a majority of neurological diseases of unknown origin (14) which, as I have pointed out previously, includes most neurological ailments.
    My own experience with stuttering is limited. I stuttered as a child when I became nervous, upset, or self-conscious. Although I have been gluten free for many years, I haven’t noticed any impact on my inclination to stutter when upset. I don’t know if they are related, but I have also had challenges with speaking when distressed and I have noticed a substantial improvement in this area since removing gluten from my diet. Nonetheless, I have long wondered if there is a connection between gluten consumption and stuttering. Having done the research for this article, I would now encourage stutterers to try a gluten free diet for six months to see if it will reduce or eliminate their stutter. Meanwhile, I hope that some investigator out there will research this matter, publish her findings, and start the ball rolling toward getting some definitive answers to this question.
    Sources:
    1. Toft M, Dietrichs E. Aggravated stuttering following subthalamic deep brain stimulation in Parkinson’s disease--two cases. BMC Neurol. 2011 Apr 8;11:44.
    2. Tani T, Sakai Y. Stuttering after right cerebellar infarction: a case study. J Fluency Disord. 2010 Jun;35(2):141-5. Epub 2010 Mar 15.
    3. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    4. Jäncke L, Hänggi J, Steinmetz H. Morphological brain differences between adult stutterers and non-stutterers. BMC Neurol. 2004 Dec 10;4(1):23.
    5. Kell CA, Neumann K, von Kriegstein K, Posenenske C, von Gudenberg AW, Euler H, Giraud AL. How the brain repairs stuttering. Brain. 2009 Oct;132(Pt 10):2747-60. Epub 2009 Aug 26.
    6. Galantucci S, Tartaglia MC, Wilson SM, Henry ML, Filippi M, Agosta F, Dronkers NF, Henry RG, Ogar JM, Miller BL, Gorno-Tempini ML. White matter damage in primary progressive aphasias: a diffusion tensor tractography study. Brain. 2011 Jun 11.
    7. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    8. [No authors listed] Case records of the Massachusetts General Hospital. Weekly clinicopathological exercises. Case 43-1988. A 52-year-old man with persistent watery diarrhea and aphasia. N Engl J Med. 1988 Oct 27;319(17):1139-48
    9. Molteni N, Bardella MT, Baldassarri AR, Bianchi PA. Celiac disease associated with epilepsy and intracranial calcifications: report of two patients. Am J Gastroenterol. 1988 Sep;83(9):992-4.
    10. http://ezinearticles.com/?Food-Allergy-and-Stuttering-Link&id=1235725 
    11. http://www.craig.copperleife.com/health/stuttering_allergies.htm 
    12. https://www.celiac.com/forums/topic/73362-any-help-is-appreciated/
    13. Ford RP. The gluten syndrome: a neurological disease. Med Hypotheses. 2009 Sep;73(3):438-40. Epub 2009 Apr 29.
    14. Hadjivassiliou M, Gibson A, Davies-Jones GA, Lobo AJ, Stephenson TJ, Milford-Ward A. Does cryptic gluten sensitivity play a part in neurological illness? Lancet. 1996 Feb 10;347(8998):369-71.

    Jefferson Adams
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    To that end, a research team recently set out to try to get some information about the frequency and importance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. The research team included Shafinaz Hussein, Tatyana Gindin, Stephen M Lagana, Carolina Arguelles-Grande, Suneeta Krishnareddy, Bachir Alobeid, Suzanne K Lewis, Mahesh M Mansukhani, Peter H R Green, and Govind Bhagat.
    They are variously affiliated with the Department of Pathology and Cell Biology, and the Department of Medicine at the Celiac Disease Center, New York Presbyterian Hospital/Columbia University Medical Center, New York, USA. Their team analyzed results of TCR-GR analyses performed on SB biopsies at our institution over a 3-year period, which were obtained from eight active celiac disease, 172 celiac disease on gluten-free diet, 33 RCDI, and three RCDII patients and 14 patients without celiac disease. 
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    Journal of Clinical Pathologyhttp://dx.doi.org/10.1136/jclinpath-2018-205023

    Jefferson Adams
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