Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Specific Carbohydrate Diet (SCD)


AliB

Recommended Posts

Gobbie Apprentice

Wow, gobbie, what do you eat?

Here is a link to the breaking the vicious cycle website that will give you info on the SCD, including the leagl foods list:

Open Original Shared Link

Thank you so much for the link, checking it out now.

What do I eat.. I know :0

My menu is always the same and very limited if I want to look after my health.

I can only eat a certain amount of varied fresh vegetables and fruits.

Ofcourse not all the kinds as I still have few allergies even to fresh stuff like nuts lol.

Things are alright as long as I am eating at home.

The major problem is dining out cos I can't eat anything lol.

Hard to socialise that way..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 2.4k
  • Created
  • Last Reply
psawyer Proficient

May I ask what IMO is?

It means "In my opinion."
Gobbie Apprentice

It means "In my opinion."

Oh, thank you!

lol.

  • 3 weeks later...
GFMichigan Newbie

Hi, I've been following this thread for quite a while and it helped me finally start the SCD Diet.

I can't say enough about this diet, I have been on it since July of 09. It's not fun at all, but it is so worth it! The gluten-free diet never did the trick and after 7 days on this diet I was feeling like a normal person for once...

I just got the courage to finally sign up to tell everyone that this diet is the one thing that finally allowed me to live a "normal" life and have some decent digestion and health. So I wanted to pass along a couple resources I used to get started last summer (because I know it is tough after reading BTVC... it's sorta confusing).

pecanbread.com is a great resource that helped me answer many questions about the diet, they have been around forever and are more geared towards parents of autistic children, but either way the information is the same.

scdlifestyle.com is a newer community that has a blog and if you look on the sidebar you can download a free chapter from their book on how to start the SCD diet in 24 hours, which is awesome for helping you get started right away. Seems like they have some decent stuff and know what there talking about. Guy has Celiac too!

scddiet.org has some awesome recipes for when you are further down the road on the diet, plus it's a great resource to find some specialty items that are local to your area.

Anyways, I hope this helps someone finally start feeling better like I did. If you have any questions about the diet or anything send me a message or post on this thread, I will be glad to help if I can.

Good luck!

  • 1 month later...
Guest Ellen Martino

Hi, this is my first post! I've just spent a good week researching SCD like crazy and I think I'm finally ready to tackle the diet, slowly but surely. I've been going back and forth about it, my symptoms are not as severe with most of the people I read about, but I have had bloating and gas filling up my stomach every time I eat, no matter what I eat for almost 2 years, and I know I need to clear out my system and heal (and get rid of those nasty grains and starches). I also was very apprehensive at first, because over the past year I have lost about 15 pounds (I was not overweight) so I was scared that I would get to under 80 pounds (i'm 4'11 and female) with the diet. So the question was - should I do the intro and go through the stages slowly or not? I decided that yes, my body needs a reboot, and especially after reading this site that you recommended:

scdlifestyle.com is a newer community that has a blog and if you look on the sidebar you can download a free chapter from their book on how to start the SCD diet in 24 hours, which is awesome for helping you get started right away. Seems like they have some decent stuff and know what there talking about. Guy has Celiac too!

I understand that for true healing to take place I should follow their advice about progressing through the stages very slowly. It seems like the e-book has a lot of great info, and the free chapter kind of sucked me in. Have you downloaded the whole e-book? I'm very tempted to buy it, since it gives a lot of step by step info about how to progress through stages, how to cook food, etc. I know a lot of people say, do whatever is best for you, but I need structure damnit! Anyway, I was wondering if anyone had any success following the advice of the book and would it be worth it to purchase it?

I'm so happy to be finally part of the conversation, I've been reading this forum for a week straight and only got up to page 70! Lots of great people, very interesting info!

~Ellen

jenngolightly Contributor

I've jumped around in this topic, but don't see the answer to this: It seems that there's quite a bit of sugar involved in the diet - even though it's not from simple carbs. The diet really pushes fruit and juice, so I'm worried about how much "crashing" I'll do if I decide to commit to the diet. You know, eat a lot of -ose, then crash a few hours later so I need to eat more -ose. Has anyone had this happen or know of anywhere that I can read about this?

  • 2 weeks later...
Carol Frilegh Enthusiast

Hi, I've been following this thread for quite a while and it helped me finally start the SCD Diet.

I can't say enough about this diet, I have been on it since July of 09. It's not fun at all, but it is so worth it! The gluten-free diet never did the trick and after 7 days on this diet I was feeling like a normal person for once...

I just got the courage to finally sign up to tell everyone that this diet is the one thing that finally allowed me to live a "normal" life and have some decent digestion and health. So I wanted to pass along a couple resources I used to get started last summer (because I know it is tough after reading BTVC... it's sorta confusing).

pecanbread.com is a great resource that helped me answer many questions about the diet, they have been around forever and are more geared towards parents of autistic children, but either way the information is the same.

scdlifestyle.com is a newer community that has a blog and if you look on the sidebar you can download a free chapter from their book on how to start the SCD diet in 24 hours, which is awesome for helping you get started right away. Seems like they have some decent stuff and know what there talking about. Guy has Celiac too!

scddiet.org has some awesome recipes for when you are further down the road on the diet, plus it's a great resource to find some specialty items that are local to your area.

Anyways, I hope this helps someone finally start feeling better like I did. If you have any questions about the diet or anything send me a message or post on this thread, I will be glad to help if I can.

Good luck!

I have been following the SCD for ten years and probably will follow it for life. I have been able to add a few things after all this time but don't do it often. Please be aware the blog you mention is written by people who have not been on the SCD diet for a long time and all the information may not be applicable to a strict version of SCD. The gentlemen have written a book which claims to tell you what Elaine Gottschall left out. Elaine researched the SCD for nearly four decades and it is presumptuous to assume one knows what she left out. The authors certainly seem very enthused and sincere and deserve praise for their extensive and interesting articles. If you want to verify authenticity on SCD foods supplements and instructions, refer to:

www,breakingtheviciouscycle.info

www.pecanbread.com

Some of the SCDLifestyle information has been gleaned from these two websites above in addition to the book on SCD, "Breaking the Vicious Cycle." Use extreme caution with store bought foods and know you are using them at your own risk even if the ingredients have been verified.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carol Frilegh Enthusiast

I've jumped around in this topic, but don't see the answer to this: It seems that there's quite a bit of sugar involved in the diet - even though it's not from simple carbs. The diet really pushes fruit and juice, so I'm worried about how much "crashing" I'll do if I decide to commit to the diet. You know, eat a lot of -ose, then crash a few hours later so I need to eat more -ose. Has anyone had this happen or know of anywhere that I can read about this?

https://www.celiac.com/authors/143/Carol-Frilegh

  • 2 weeks later...
Katie B Apprentice

Hi there,

just wondering if anyone has had success going off of the diet? I believe in its validity but don't want to restrict myself forever.

Any advice would be appreciated!

  • 2 weeks later...
kannne Explorer

I have been on 100% SCD doing the stages since august 09.

Now I am able to tolerate 8 vegetable (boiled to death..) and lean meat + white fish :)

  • 3 months later...
gary'sgirl Explorer

It looks like no one has been on this thread for a while, but I was hoping that maybe some of you who have tried the SCD would tell your story. That is if it worked for you or not and if you have any advice about it.

I am going to buy the book today and I think this is the most hopeful thing I have come across since I have not had any improvement from going gluten free.

I was diagnosed with Celiac November 2009 and have been gluten free for 11 months.

Along with taking gluten out of my diet I have also taken out many many other food groups including all the top problematic ones.

Thanks for any replies!

~Sarah

ClevelandRocks Newbie

I am wondering if this diet helps Candida issues and if not, how I can also kill the Candida while on the SCD diet? Anyone have experience with this?

  • 1 month later...
jess7396 Newbie

Hello, I am new here. My daughter has recently become ill with what we will only be able to assume is (partly) Celiac or severe gluten intolerance. Prior to July, she was a fairly healthy (though very thin) child (age 10), with her only major complaint over the years being horrible canker sores that would take over her mouth on a regular basis (I have always suffered them as well, as did my father).

In July she suddenly became very ill with many digestive symptoms. To make the long story short, we know that she carried the HLA DQ-2 and HLA DQ-1 alleles, and that she now reacts violently to gluten with digestive symptoms as well as horrible migraines and peripheral neuropathy.

She is 100% gluten-free and will remain so, so we decided to forgo biopsy as it seems to be a risk with little benefit, since she clearly needs to be gluten-free either way.

The only other thing we know is that she shows evidence of a prior EBV infection, perhaps that was what started this whole mess?

On to my point in posting on this thread. I've read quite a bit about GAPS and SCD over the months she has been sick (she is not completely better, though much improved on the gluten-free diet).

What I am wondering, as we consider this option and discuss going through such a diet with her- has anyone here actually been "cured" of celiac disease with this diet? I understand that by nature these diets are gluten-free and very easy on the digestive system, so I understand that she may well benefit from the diet in making her "all better", but I am curious about the idea that after a couple of years, perhaps she might be able to all things, simply being sure grains are "properly prepared" and a small part of her diet, etc.

I'd welcome any thoughts on this, thank you for your time.

~Patty

  • 7 months later...
taysic Rookie

I can tell you from my experience -- this WORKS. completely, completely works. I have Celiac and IC... and every day I would experience sharp, jolting pain in my abdomen... like someone was taking a knife to it and scratching. For over a year, I've been Gluten free and it's helped but not insanely... I've always been waiting for the symptoms to go away while eating cereals and grains and flax and roots.. all kinds of foods I thought I shouldn't be suspicious of.

I'm just beginning out on this... but anything to make the pain go away.. I don't mind at all being on this for life. It's not life unless you're healthy! And I've never had more energy, clarity, ease within my body than on this diet. If you are thinking about... you should definitely try it!!! :)

jenngolightly Contributor

I can tell you from my experience -- this WORKS. completely, completely works. I have Celiac and IC... and every day I would experience sharp, jolting pain in my abdomen... like someone was taking a knife to it and scratching. For over a year, I've been Gluten free and it's helped but not insanely... I've always been waiting for the symptoms to go away while eating cereals and grains and flax and roots.. all kinds of foods I thought I shouldn't be suspicious of.

I'm just beginning out on this... but anything to make the pain go away.. I don't mind at all being on this for life. It's not life unless you're healthy! And I've never had more energy, clarity, ease within my body than on this diet. If you are thinking about... you should definitely try it!!! :)

Happy to hear that you're feeling better. I had the same reaction! I didn't have to stay on the diet forever. I started adding other foods back in at about 11 months. I'm still mostly SCD, but not completely. I feel great now!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,015
    • Most Online (within 30 mins)
      7,748

    Rockette47
    Newest Member
    Rockette47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.