Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

msharnoubi

How Long Eating Gluten Before Testing?

Rate this topic

Recommended Posts

Hello everyone,

Great site with a wealth of information.

I had some symptoms that persisted for serveral years and were never cleared even after seeing several physicians.

The main ones are chronic fatigue, poor memory, conentration and the brain fog. I also have some GI problems with chronic constipation but they are rather mild and have no problem living with them. In fact, I must admit that thank GOD my overall condition is pretty mild and much better than a lot of conditions celiac or other that one sees and/or hears about. Thank GOD.

Doing some research for myself, I found about celiac and gluten intolerance (or maybe some other intolerance) and thought that may be that's what I have.

However, where I live, these conditions are not very well know (with the exception of the standard celiac for infants). I even think that if I told my physician I think I may have gluten intolerance or some other food allergy, he'll probably think that I should see a psychiatrist :).

After some more research, I found about the tests and found that the blood tests are available here but they are quite expensive. Since, I don't have insurance (I don't think inusrance would pay for these tests anyway), I decided to try the diet and see if it works.

Six weeks now, and I've noticed some minor improvements. However, they are very minor that they could be caused by placeboo, the B12 and other vitamins that I've self prescribed or I could even be fooling myself. In fact that's what my wife tells me. :D

So, I decided to do the tests to be certain.

My question is how long should I eat gluten before doing the blood tests?

Thank you

Share this post


Link to post
Share on other sites

Thank you for your answer.

I rechecked the dates, it is actually less than 5 weeks.

If I do the tests before the end of week 6, that is without eating gluten again, would they be accurate?

Thank

Share this post


Link to post
Share on other sites

I have often heard approximately 3 months of at least 3 slices of bread a day (or the equivalent).

Problem is, there is NO cut and dry answer for how long after going gluten free you can get an accurate test, or how long you have to be eating gluten again to get an accurate test. It varies from person to person, from damage level to damage level, and from presentation to presentation. It even varies from lab to lab depending on how much damage or how many antibodies they want to see.

The longer you can eat gluten, and the less time off it, the more accurate the testing.

Share this post


Link to post
Share on other sites
Thank you for your answer.

I rechecked the dates, it is actually less than 5 weeks.

If I do the tests before the end of week 6, that is without eating gluten again, would they be accurate?

Thank

It depends on how long and how strictly you were off gluten before. I was gluten-light before, not strict and even then my doctor recommended to wait just to make sure I'd consume enough of it for the tests.

If I were you and if I could, I would push the dates by anther 2 wks or so.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
  • Member Statistics

    • Total Members
      86,786
    • Most Online
      4,125

    Newest Member
    Shaun Wong
    Joined
  • Forum Statistics

    • Total Topics
      112,057
    • Total Posts
      956,627
  • Who's Online (See full list)

  • Forum Discussions

    Well, TDZ, I certainly hope that your husband is able to get some Dapsone to quickly ameliorate his DH (and that it does not have too many adverse effects on him, either).  It sounds like your husband's DH is worse than mine ever was, so I can only imagine the ongoing agony that he's been dealing with.  To call DH "just an itch" would be like calling am amputation "just a scratch", i.e., probably nobody who has not experienced it can imagine how frustrating, distracting, maddening and depre
    Yeah, I think the only reason to bother with trying to get a diagnosis is if it's needed in order to get the Dapsone, which would be a lifesaver for him in stopping or helping the itching while he gets his diet more in order. He's had continuous rash and lesions and blisters over large to larger parts of his body for a couple of years, and the itching is driving him insane.  We do have an appointment with his PCP this afternoon, to try and talk him into trying the Dapsone -- seems it would
Alaskaguy,  Sorry to interrupt, but I wanted to put in my two cents. I prefer the Autoimmune Protocol diet because it helps heal the gut so quickly.  It's a bit more strict than the Fasano diet but the results are striking.   https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5647120/#!po=43.7500 People with Celiac and DH have a problem with leaky guts.  The AIP diet helps heal this problem. https://www.ncbi.nlm.nih.gov/pubmed/3934051 Nightshade vegetables are not allowed
  • Blog Entries

  • ×
    ×
    • Create New...