Jump to content
Celiac Disease FAQ | This site uses cookies GDPR notice. Read more... ×
  • Sign Up
0
Twiggy

Well,thats It Then....results Are In!

Rate this topic

Recommended Posts

After nagative endomysil blood tests and negative gastroscopy results the doctor has diagnosed me as gluten intolerant.She advised me that like ceoliac patients i should avoid gluten like the plague.She admited that test results are not always accurate and said that if i wanted to repeat the test i would have to reintroduce gluten into my diet for the next 6 months.There is no way! i would rather boil my own head than eat gluten ever again.So betwean us we decided that if i was going to go gluten free there was no need for further testing as the treatment would just involve what i am already doing anyway.I think i may just accept this and get on with my gluten free life,i cant be bothered persuing a label for my condition,i am just happy i am rid of those horrid symptoms.The reason for this post is to ask all of you more clued up folks if you think i made the right decision?? please respond,i feel your input will calm my thoughs :)

Share this post


Link to post
Share on other sites
After nagative endomysil blood tests and negative gastroscopy results the doctor has diagnosed me as gluten intolerant.She advised me that like ceoliac patients i should avoid gluten like the plague.She admited that test results are not always accurate and said that if i wanted to repeat the test i would have to reintroduce gluten into my diet for the next 6 months.There is no way! i would rather boil my own head than eat gluten ever again.So betwean us we decided that if i was going to go gluten free there was no need for further testing as the treatment would just involve what i am already doing anyway.I think i may just accept this and get on with my gluten free life,i cant be bothered persuing a label for my condition,i am just happy i am rid of those horrid symptoms.The reason for this post is to ask all of you more clued up folks if you think i made the right decision?? please respond,i feel your input will calm my thoughs :)

Hi Twiggy,

My wife had a blood test and endoscopy done recently and the results were negative for celia disease. She has the same symptoms of many people here on this forum and two weeks ago, she decided to go GLUTEN FREE, even though we don't have difinitive answers as to what is causing her symptoms. Its frustrating not getting any answers, however she has been feeling better since she went gluten free and is afraid to even try anything with gluten for fear that her symptoms will return. I think you made the right decision, the diet is not harmful and in many respects better for you. Welcome to the post, there are many people here who are very knowledgeable and have great advice...they have certainly helped me and my wife. Good luck! :)

Share this post


Link to post
Share on other sites

Thanks Rudi,i have to admit i share your wife's fear of gluten containing foods.I cant bear the smell of bread and the smell of cooking pasta either,maybe its a defence mechanism to keep me safe.Nothing tastes as good as i feel since ive stopped eating gluten (6 weeks ago) so i dont feel like i am missing out on anything.I do find it comforting though that if go out to eat and accidently get glutened, the worst i will suffer is a couple of days of gasto probs but its not actually a danger to my long term health like coeliac Desease sufferers.I agree also that the diet is more healthy than a gluten one as it limits processed food and i am a big believer that they cause cancer.Hope your wife continues to feel better too.x

Share this post


Link to post
Share on other sites

I think you are doing the right thing. Many on this forum tested negative But gluten still made them sick. As they say, the proof is in the pudding, and my pudding is thickened with cornstarch. Glad you're feeling better.

Share this post


Link to post
Share on other sites

If gluten makes you sick, then avoiding it is the right thing to do. After one week of being gluten-free, I realized I was scared of gluten, too. I went gluten-free and haven't looked back. I tested negative, too, but my doc is pretty convinced I have celiac and has diagnosed me as such. But you are right, it doesn't really matter if you have the label or not; the treatment is the same.

I hope you continue to feel better!!! :)

Share this post


Link to post
Share on other sites

I never had Celiac officially diagnosed for myself. I have heard people with official diagnoses have had to pay higher life insurance premiums or had problems with "pre-existing" conditions medical coverage.

If gluten free makes you feel better, that is enough of an answer.

Share this post


Link to post
Share on other sites

I am actually amazed at the ammount of people who say to me ''oh i cant tolerate bread either'' it just goes to show how many people are affected even in a slight way by gluten :angry:

Share this post


Link to post
Share on other sites

Dratt! I accidently glutened myself on tuesday and ive been payiong the price for the last 2 days......my tummy sounds like a cauldren.....ouch.My family need gass masks <_<

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Top Posters +

  • Upcoming Events

    • February 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×