Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Wolicki

I Think I Have Hashinotos

Rate this topic

Recommended Posts

I did not have time to read all the threads but I just wanted to share my sister's story. She was hypo for at least 5 years...nobody ever thought to scan her thyroid or even check her antibodies. I finally convinced her to get a scan done and low and behold...Hashimito's! SEVERE! But she went to the Endo Dr. and saw only the medical assistant and FINALLY had to lose it in her office and several visits of trying to level out her hormones. The problem with Hashimoto's is you can't ever really get level. And she wasn't. The medical assistant was saying she wanted to send my sister to a cardiologist and she came unglued!My sister REALLY lost it! The medical assistant got the Dr. in the office right away! My sister really had every symptom of the disease and wanted it out! The Dr. agreed she must have a severe case and agreed to have it out. She has been amazingly better! It does take time to level out the medication but she is doing great! I know there are some Dr's that only take the diseased part out...but he took the entire thyroid because the body will just keep attacking what is left! One other point...before she finally got to the Endo...she was sent to an ENT..which is the Dr. that ended up doing the surgery, but before he had only put my sister on acid reflux meds because of the lump in her throat! After she went to the Endo...then back to him for the surgery consult he did not even mention that he had missed it before! Man...we all really have to fight for our health don't we? I hope your issues are better. Just wanted to share this story! Jodie

Share this post


Link to post
Share on other sites

I got my test results back. Vitamin D in normal range, though seems low at 37. Ref range is >20. Thyrolgloblulin antibodies <20 and peroxidase antibodies <10. So looks like standard run of the mill hypo. I am concerned that the doctor (idiot) only prescribed 75 mcg of Levoxyl, when the package insert clearly states that I should have a much higher dosage, as I weigh 160. Thoughts?

Share this post


Link to post
Share on other sites
lol Gemini -- I also dress well when I fly -- same reason: I get better service. But I usually do business casual. And when it comes to the proverbial power suit at the doctors.....sometimes I just feel to ill to bother (but I still ALWAYS do). I'm in a sort of traditional profession (at least as far as attire goes) and clients expect me to look a certain way (so I do). And I would expect the doctor to be well put together...but when I'm the patient I do wish I could just throw on jeans and a blazer. However, my experience tells me that if I do so, I will not be given good care so...the suit it is. In fact, I just had an endo appointment on my day off and I wore a suit (painful as it was).

NOW -- lets talk about broadway! I was at a show recently (Mary Poppins) and some guy had on flip flops and an undershirt (colloquially known as a 'wife beater' - hate that term). Come on! I'm all for broadway being accessible, but there is no reason to wear underwear as outerwear

Your post cracked me up and I needed a good laugh! :D I could probably name a number of places where the attire nazi's could have a field day. I have traveled to Europe a number of times and you can always tell an American by sight...all by the way they dress, or don't dress, for that matter! Pretty sad and I hope it changes back a bit to when people had some self esteem and knew how to dress for whatever occasion they happen to be at. I haven't seen a show on Broadway, sadly enough, but I can imagine just what you saw. My place of employment recently had to establish a dress code for certain jobs because apparently many of the young people they hired had no idea how to dress for a meeting or to receive visitors they were escorting in. I was just blown away they had to be TOLD! :P

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • June 19, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • July 07, 2019 Until August 03, 2019
      0  
      For more information, visit www.kefss.com or call (407) 255-6550. info@kefss.com 

      KEF USA Summer Camps Announces the New KEF Gluten-Free Camp in Orlando, Florida for Youths with Celiac Disease.

      [Orlando, FL February 6, 2019]-KEF USA is excited to announce that we will offer a new 100% gluten-free camp program to give kids and teens with Celiac Disease a safe, exciting and healthy summer. KEF USA programs offer fun and unique experiences that can only be found in Orlando, Florida. Campers explore the theme parks and local attractions, make new friends, discover new interests and create memories that last a lifetime.


    • July 08, 2019 Until July 09, 2019
      0  
      14th Euro-Global Gastroenterology Conference happening in Zürich, Switzerland during July 08-09, 2019. We are expecting more than 300 attendees representing from more than 40 countries who would be sharing their experiences and expertise around the world Theme: “Future Perspectives and shaping trends in Gastroenterology”
      You may learn more about our congress by visiting our website: https://europegastroenterology.gastroconferences.com/
      Tracks
      Microbiota and diseases|Acid Related Diseases|Helicobacter Pylori Treatment|Therapeutics targeting Microbioma|Advanced Nutrition and Dietetics in Gastroenterology|Inflammatory Bowel Diseases|Clinical Advances in Liver Diseases|Gastrointestinal Disorders and Drug Delivery|Obesity and Treatments|Gastrointestinal Pathology|Neuro Gastroenterology and Motility disorders|Pediatric Gastroenterology, Hepatology and Nutrition|Gallbladder and biliary tract Diseases|Latest advances in Gastroenterology treatments|Endoscopic Innovations in Gastroenterology and surgery|Clinical and Radiographic Gastrointestinal Abnormalities|Functional GI Disorders|Changing Trends in Etiology of Liver diseases|Epigenetics of gastrointestinal diseases|Bariatric Surgery|Gastrointestinal Radiology and Imaging|Developing treatment for Viral Hepatitis and Fibrosis of Liver|Emerging Trends in Clinical Research of Liver diseases|Hepatitis B treatment Patterns|Therapies in Pancreatic cancer|Diabetes and hepatocellular carcinoma|Intestinal Metaproteomics and Type 1 Diabetes
      Conference Benefits
      ·         CME Credits  
      ·         CPD Credits
      ·         Research publication in proceeding book
      ·         Abstract publication in associated online journal
      ·         DOI by Cross-Ref
      ·         Online speaker webpage
      ·         Workshops and Symposium
      ·         Certificate for participation and attendance
      ·         Young Researchers Forum and Posters Award for Students
      ·         B2b and Networking meetings
       
      Program Director
      Sophia Williams
      Gastroenterology 2019 | Zürich | Switzerland
      conferenceseries.com https://europegastroenterology.gastroconferences.com/
      E-mail: williams.sophiaa@yandex.com
      Whatsapp us : +442382146717
×
×
  • Create New...