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Shortness Of Breath (the "sighs")?

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My GI said he didn't think it was related, but I'm not convinced. When I was 19 I started noticing that I was often having to take deep breaths to feel like I was getting any air. Now at 25 I feel it all the time, every day, and it's more like I have to sigh or yawn in order to feel like my lungs are getting what they need. I know that I'm not suffocating but it's not a comfortable feeling. It's not exactly a chest tightness but it's similar. I've had the pulmonary function and asthma tests, even went to a cardiologist for a while to rule out any heart conditions. Everyone says my lungs are working great but I still feel like it's not getting any better. I did smoke for a long time but I quit a little over 2 years ago (2 years, 9 weeks, 0 days, 14 hours and 12 mins and saved $3,410.79.. .but who's counting?) but doctors have ruled out complications from that. They almost all default to anxiety because I have a prescription for Xanax but I can tell you that it happens all the time, regardless of feeling anxious.

Sound familiar to anyone, or should I keep looking? I'm starting to wonder if another allergy might be the cause.

Haikus are easy

But sometimes they don't make sense

Refrigerator.

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Diagnosed 9/28/09; Gluten free diet started 10/4/09.

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I have had that for a few years, let me know if this is similar to you:

Not chest tightess or pain when breathing, but it feels like each breath in inefficient...like you need a huge gulp of air for your lungs to be satisfied? That's pretty much the only way I can explain it...sound familiar?

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I have had that for a few years, let me know if this is similar to you:

Not chest tightess or pain when breathing, but it feels like each breath in inefficient...like you need a huge gulp of air for your lungs to be satisfied? That's pretty much the only way I can explain it...sound familiar?

Yep, exactly. It's not so bad some days but today it's bad. The bad kind that makes me feel a bit panicked about it.

For a time I thought it was related to seasonal allergies, and thought that Singulair had an effect. I stopped it for a while and now that I'm on it again it doesn't help (though it does help my allergies otherwise).

Haikus are easy

But sometimes they don't make sense

Refrigerator.

-------------------------

Diagnosed 9/28/09; Gluten free diet started 10/4/09.

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Don't know if this helps but i was SOB too but not all the time, turned out to be low iron levels combined with low haemoglobin.........

Believe nothing, no matter where you read it, or who said it, not even if i said it, unless it agrees with your own reason and your own common sense....... Buddha

Minds are like parachutes, they only function when open..... Thomas Dewar

If you want to be someone ... be yourself...

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Don't know if this helps but i was SOB too but not all the time, turned out to be low iron levels combined with low haemoglobin.........

The low iron would make sense, especially considering the timing...

Haikus are easy

But sometimes they don't make sense

Refrigerator.

-------------------------

Diagnosed 9/28/09; Gluten free diet started 10/4/09.

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I've had iron and B12 deficiencies for a while. Last time I had blood work the B12 was back up but no word on the iron. I'm due to have it tested again in a couple of months but in the meantime I'm still taking supplements on top of multi-vitamins.

Haikus are easy

But sometimes they don't make sense

Refrigerator.

-------------------------

Diagnosed 9/28/09; Gluten free diet started 10/4/09.

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Well, prior to going gluten-free, I yawned ALL the time. Since then, its almost ceased entirely. I always assumed I just didn't breathe deeply enough.

My iron levels, etc., are fine according to my last bloodwork.

Amber

Allergic to gluten - or possibly Celiac, testing very soon, and many seasonal environmental allergies. Mom of 2. #1 is anaphylactic to dairy, and allergic to soy and gluten. Dx'd with Autism 1/09, and responding very well to the gluten-free diet. #2 has outgrown all food allergies, but developed seasonal allergies that vary with the season.

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Soulcurrent-

Shortness of breath was one of my symptoms that was getting more and more annoying (though it never became dangerous) in the months before I went gluten-free. I also had pulmonary and cardiac tests to rule out those causes, and no doctor ever had any idea what was going on. They gave me an inhaler, but I never felt it made any difference. But, since the change in my diet, this problem has been steadily dissipating and has now nearly disappeared. It could be, in your case, that it is due to another allergy/intolerance (it's always good to look for those anyway), but there's also a good chance that this will go away on its own the longer you are gluten free.

I've noticed from a couple of your other posts that you and I have suffered many of the same symptoms -- I seem to be healing steadily, and I'm sure you will too :)

My GI said he didn't think it was related, but I'm not convinced. When I was 19 I started noticing that I was often having to take deep breaths to feel like I was getting any air. Now at 25 I feel it all the time, every day, and it's more like I have to sigh or yawn in order to feel like my lungs are getting what they need. I know that I'm not suffocating but it's not a comfortable feeling. It's not exactly a chest tightness but it's similar. I've had the pulmonary function and asthma tests, even went to a cardiologist for a while to rule out any heart conditions. Everyone says my lungs are working great but I still feel like it's not getting any better. I did smoke for a long time but I quit a little over 2 years ago (2 years, 9 weeks, 0 days, 14 hours and 12 mins and saved $3,410.79.. .but who's counting?) but doctors have ruled out complications from that. They almost all default to anxiety because I have a prescription for Xanax but I can tell you that it happens all the time, regardless of feeling anxious.

Sound familiar to anyone, or should I keep looking? I'm starting to wonder if another allergy might be the cause.

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I had forgotten this symptom! I always felt as if I needed more oxygen before going gluten-free so I did a lot of sighs!

1960s-had symptoms-could have been before but don't remember

1970s-told had colitis or nervous stomach-was given phenobarbital, felt great but still had symptoms

Me, dd and ds diagnosed with Lactose Intolerance

2000-osteopenia

2001-had stroke because of medications I was given

June 2003-saw Chiropractor who specialized in nutrition: Celiac Disease not Lactose Intolerance, went gluten free with once in awhile cheating, off soy and dairy for about 6 months

June 2003-found excellent doctor for fibromyalgia (who has found out she has Celiac Disease)

May 2006-went gluten free with NO cheating-excellent! Made all the difference in the world

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Before I was diagnosed, I frequently felt that I needed to take deep breaths and when I would answer the phone people would ask me what I was doing because I sounded out of breath. My doctor told me that was a symptom of anemia (I was quite anemic at the time).

Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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I've noticed from a couple of your other posts that you and I have suffered many of the same symptoms -- I seem to be healing steadily, and I'm sure you will too :)

That's actually quite comforting.. thanks! :)

Haikus are easy

But sometimes they don't make sense

Refrigerator.

-------------------------

Diagnosed 9/28/09; Gluten free diet started 10/4/09.

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I feel like it's getting easier now.. For a few days it was really bad but I'm sure it was worse because I was thinking about it. I took a Xanax at one point so I would calm down. I think it was a mix of anxiety and maybe iron loss (my aunt was in town). I still have the issue but compared to those couple of days I feel much more normalized.

Thanks for the feedback!

Haikus are easy

But sometimes they don't make sense

Refrigerator.

-------------------------

Diagnosed 9/28/09; Gluten free diet started 10/4/09.

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shotness of breath for me is most likely to be anemia. I've even had it so bad, i thought I was having a heart attack.

~Michelle~

Mother to 3 wonderful children. :)

Diagnosed Celiac through bloodwork January 2009. Celiac confirmed through Biopsy August 2009.

Current symptoms include extreme lethargy, headaches, anaemia, severe joint pain, upset stomach, swollen lymph nodes, brain fog and shortness of breath. I have also had all my teeth crowned due to enamel erosion.

DS - Age 19 -diagnosed PDD-NOS. Not willing to be tested as yet.

DD - Age 17 - Negative IGA. Positive HLA DQ2 & HLA DQ5. Not gluten-free outside of home.

DS - Age 6 - diagnosed with ASD. Tested negative to blood tests. Still needs gene testing done. Born 11 weeks early due to severe IUGR.

All pregnancies have been pre-eclamptic.

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It could be you've answered your own question. If your breathing improves when you take the Xanax and if anxiety is an ongoing problem for you, the anxiety could be the issue.

It helps to understand what happens when you breath. You breath in oxygen. The oxygen saturates the little air sacs in your lungs and the oxygen is difused through membranes in the sacs into the blood. The primary waste product in the blood, carbon dioxide difuses through the same membranes back into the sacs and is breathed out when you exhale. So you breath in oxygen and breath out carbon dioxide. The body needs a balance there however, with X amount of carbon dioxide and X amount of oxygen in the blood.

When someone starts to breath rapidly, as people tend to do when they're suffering from anxiety, the process can go haywire. Carbon dioxide can be expelled too rapidly from the body and a person could start to hyperventilate. Someone who is hyperventilating can have trouble catching their breath and may not be able to slow their breathing down, hence the breathing into the bag trick. You exhale into a paper bag and inhale from the same bag repeatedly so that you inhale more carbon dioxide and restore the balance needed to breath normally. Yawning or sighing can have the same effect.

Symptoms of hyperventilation can include chest tightness, numbness or tingling, balance issues, racing heartbeat and lightheadedness.

Also remember that anxiety is a symtom of Celiacs for many people here so I wouldn't be surprised if many Celiacs have a problem with hyperventilation at some point.

I feel like it's getting easier now.. For a few days it was really bad but I'm sure it was worse because I was thinking about it. I took a Xanax at one point so I would calm down. I think it was a mix of anxiety and maybe iron loss (my aunt was in town). I still have the issue but compared to those couple of days I feel much more normalized.

Thanks for the feedback!

"My mother always told me, it's okay to play with a man's mind

as long as you put it back where you got it when you're done with it."

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I think anxiety just made the problem worse for a day, but I'm convinced it's not the underlying problem. It's been going on since I was 18 and it happens day or night, no matter what I've got going on. The day I posted this topic it was worse than normal but that could've been because of allergies or something.. it was enough for me to notice it had increased. But from that point the more I thought about it the worse it got so I know *that* bit was caused by anxiety.

Haikus are easy

But sometimes they don't make sense

Refrigerator.

-------------------------

Diagnosed 9/28/09; Gluten free diet started 10/4/09.

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Wow I'm blown away by how many people have written in and share these symptoms that my daughter (undiagnosed) and I (diagnosed 17 years ago) both have. I call it air hunger, a deep longing for more oxygen. Now that I think about it, my bloated stomach would take up quite a bit more room than it's designed to. This wouldn't leave as much room for my lungs to function. I was always a thin, muscular girl growing up but my ribs are really big. Doctors would ask if I was a swimmer. They said it looked like I had great lung capacity. I don't and I wasn't. I just had a bloated gut most of my life so my ribs accommodated it. Even though I was diagnosed with Celiac Disease 17 years ago this particular condition never really changed.

My 17 year old has deep, sudden, unexpected breaths that are not controlled by her consciously. Her heart rate was thought to be fast for someone who was in shape and so young. No doctor has been able to figure out the weird breathing thing. Do these type of breaths happen to anyone else?

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My 17 year old has deep, sudden, unexpected breaths that are not controlled by her consciously. Her heart rate was thought to be fast for someone who was in shape and so young. No doctor has been able to figure out the weird breathing thing. Do these type of breaths happen to anyone else?

I, too, have these deep, sudden, unexpected breaths that I have no control over. I am not aware at the time of being short of breath (although I am chronically upon exertion because of COPD), but it seems like every ten minutes or so it "just happens" out of the blue. I once talked to my PCP about it, and she (she was a jerk) just kind of sneered/smirked and said "we don't consider that to be medically significant". :o:rolleyes: (This was before I had a pulmonary function test--which she would not order--and I have never explored it further, figuring it was just COPD which I subsequently found out I have).

Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

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I oftn feel like I just can't get enough breath and have to do a really big breath in but put this down to anemia.

~Michelle~

Mother to 3 wonderful children. :)

Diagnosed Celiac through bloodwork January 2009. Celiac confirmed through Biopsy August 2009.

Current symptoms include extreme lethargy, headaches, anaemia, severe joint pain, upset stomach, swollen lymph nodes, brain fog and shortness of breath. I have also had all my teeth crowned due to enamel erosion.

DS - Age 19 -diagnosed PDD-NOS. Not willing to be tested as yet.

DD - Age 17 - Negative IGA. Positive HLA DQ2 & HLA DQ5. Not gluten-free outside of home.

DS - Age 6 - diagnosed with ASD. Tested negative to blood tests. Still needs gene testing done. Born 11 weeks early due to severe IUGR.

All pregnancies have been pre-eclamptic.

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I oftn feel like I just can't get enough breath and have to do a really big breath in but put this down to anemia.

Is it a conscious big breath, or does it just happen??

Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

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Share on other sites
Wow I'm blown away by how many people have written in and share these symptoms that my daughter (undiagnosed) and I (diagnosed 17 years ago) both have. I call it air hunger, a deep longing for more oxygen. Now that I think about it, my bloated stomach would take up quite a bit more room than it's designed to. This wouldn't leave as much room for my lungs to function. I was always a thin, muscular girl growing up but my ribs are really big. Doctors would ask if I was a swimmer. They said it looked like I had great lung capacity. I don't and I wasn't. I just had a bloated gut most of my life so my ribs accommodated it. Even though I was diagnosed with Celiac Disease 17 years ago this particular condition never really changed.

My 17 year old has deep, sudden, unexpected breaths that are not controlled by her consciously. Her heart rate was thought to be fast for someone who was in shape and so young. No doctor has been able to figure out the weird breathing thing. Do these type of breaths happen to anyone else?

I am also surprised by how many people have shortness of breath or feelings of not being satisfied with breath. It is comforting to know that others have the same symptoms because my Doctors are not aware of this symptom and thought that I was putting to much emphasis on the "Breathing" because I am a Yoga teacher...well, wouldn't that make it easier for me to breathe? I am also very anemic and have malnurishment from not being diagnosed until 8 weeks ago. The breathing has improved, however, it will come back if I eat something with dairy or have something else that I am sensitive to.

Nette

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I, too, have had this symptom for most of my life. It started when I was just a kid, around 10 years old. It comes and goes, but when it's present, can last for weeks, or even MONTHS. In my case, it had been written off as anxiety. I've been anemic off and on my whole life, so it could be related to that - nobody ever mentioned the possibility.

Either way it'd be great if it improved or went away with a gluten-free diet!

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