Jump to content
Celiac Disease FAQ | This site uses cookies GDPR notice. Read more... ×
  • Sign Up
0
schicker45

Gluten Free Diet And Relief Of Chronic Joint Pain

Rate this topic

Recommended Posts

Hi,

I was diagnosed at the end of August and have started the gluten free diet on August 18th (about 2 months on the diet). I had thyroid cancer which may or may not be related to my celiac disease other then that my worst problems have been fatigue and joint pain. Since starting the diet I have experienced a huge improvement for the fatigue but the joint pain is still be unbareable. I take a steady dose of Lodene (anti-inflamatory) help manage the pain. I love playing hockey and the continued pain is very discourageing. I'm trying to be patient and and stay positive. If you have had a similiar experience to mine, how long did it take for your joint pain to improve?

Thanks,

Steve

Share this post


Link to post
Share on other sites

My joint pain improved - went away, but it took a long while. I can't remember exactly how long anymore. It's been two years now. Hang in there.

Share this post


Link to post
Share on other sites

I had chronic joint pain, to the pornt wheres ometimes it hurt too much to get out of bed. I had immediate improvement(within a couple of days). iT's much better now at 4 months gluten-free, but it still hurts some. A contact sport like Hockey can really put a lot of pressure on your joints. Perhaps you could do something else for a bit til you improve more?

Share this post


Link to post
Share on other sites
Hi,

I was diagnosed at the end of August and have started the gluten free diet on August 18th (about 2 months on the diet). I had thyroid cancer which may or may not be related to my celiac disease other then that my worst problems have been fatigue and joint pain. Since starting the diet I have experienced a huge improvement for the fatigue but the joint pain is still be unbareable. I take a steady dose of Lodene (anti-inflamatory) help manage the pain. I love playing hockey and the continued pain is very discourageing. I'm trying to be patient and and stay positive. If you have had a similiar experience to mine, how long did it take for your joint pain to improve?

Thanks,

Steve

Hello. I used to have horrible joint pain all the time. It was almost to the point sometimes where I could hardly walk or use my hands to do anything because it just hurt so bad to put any pressure at all on them. I would just lay awake in bed a lot of nights just crying because my knees and shoulders and wrists and fingers and ankles hurt so bad. I know exactly how you feel with that. After starting the gluten free diet (March 2009) I did notice a little improvement almost within a week. Then it kind of plateued and I was still experiencing a lot of pain probably 5 days a week or so. Now that I've been on the gluten free diet for almost 8 months now, I would say I only have one of those extreme pain episodes maybe once a month, if that. I haven't had one for over a month now. The last one I had was because I accidently glutened myself. Just so you know, though, the couple times I have accidently ingested gluten since going gluten free, the first three things I notice with my reaction to the gluten is 1) headache 2) brain fog 3) my joints start aching...(then comes all the fun stomach pain and other issues....). But, it DEFINITELY got better for me. It took months of diligently following the gluten free diet, but I can clearly tell a difference. Hopefully you start noticing also!

Share this post


Link to post
Share on other sites

Many people with rheumatoid arthritis react not only to gluten but to dairy: http://www.allergyconsumerreview.com/rheum...-arthritis.html

In addition, many celiacs find that their intestines do not heal until they stop consuming dairy as well as gluten. Apparently, the casein (the protein in dairy products) irritate the damaged villi (which are supposed to produce lactase, the enzyme that digests lactose, the sugar in milk), and then the damaged villi don't heal.

Share this post


Link to post
Share on other sites
Hello. I used to have horrible joint pain all the time. It was almost to the point sometimes where I could hardly walk or use my hands to do anything because it just hurt so bad to put any pressure at all on them. I would just lay awake in bed a lot of nights just crying because my knees and shoulders and wrists and fingers and ankles hurt so bad. I know exactly how you feel with that. After starting the gluten free diet (March 2009) I did notice a little improvement almost within a week. Then it kind of plateued and I was still experiencing a lot of pain probably 5 days a week or so. Now that I've been on the gluten free diet for almost 8 months now, I would say I only have one of those extreme pain episodes maybe once a month, if that. I haven't had one for over a month now. The last one I had was because I accidently glutened myself. Just so you know, though, the couple times I have accidently ingested gluten since going gluten free, the first three things I notice with my reaction to the gluten is 1) headache 2) brain fog 3) my joints start aching...(then comes all the fun stomach pain and other issues....). But, it DEFINITELY got better for me. It took months of diligently following the gluten free diet, but I can clearly tell a difference. Hopefully you start noticing also!

Thanks... For giving me an idea of what to expect. Hopefully, my body reacts similiarly to yours as if it's another 3-4 months the end is in sight.

Share this post


Link to post
Share on other sites
Hi,

I was diagnosed at the end of August and have started the gluten free diet on August 18th (about 2 months on the diet). I had thyroid cancer which may or may not be related to my celiac disease other then that my worst problems have been fatigue and joint pain. Since starting the diet I have experienced a huge improvement for the fatigue but the joint pain is still be unbareable. I take a steady dose of Lodene (anti-inflamatory) help manage the pain. I love playing hockey and the continued pain is very discourageing. I'm trying to be patient and and stay positive. If you have had a similiar experience to mine, how long did it take for your joint pain to improve?

Thanks,

Steve

I recently posted on a similar subject.

Started in 08 with an unexplained pain ON my knee, or rather on the bone it seemed. Very weird and was gone the next day.

Then the next one was my elbow.

Next it was my right hip just like 4 months ago and appeared overnight and so intense I fell to the floor when I got out of bed and cried. I could put NO pressure at all on my right leg all day long. I don't cry from pain unless I'm really hurt. I took an anti-inflammatory which made the constant pains subside...the only pain I would feel is if I had to walk or lay or move my leg.

Then I had it in my neck. It hurt SOOOO bad.

Then again in my hip. I was thinking it was migratory arthritis which is arthritis that literally migrates from one joint to the next. But since I have been MORE careful in my food intake I've had no more painful joint issues.

Share this post


Link to post
Share on other sites

So Steve, do still have your thyroid? I have a few thyroid issues and earlier this year found my joints were aching/sore. I ended up taking thyroid pills and my sore joints got a better after a little while. Hypothyroid can cause joint pain per the Mayo Clinic dudes:

Mayo Clinc answers

Share this post


Link to post
Share on other sites
So Steve, do still have your thyroid? I have a few thyroid issues and earlier this year found my joints were aching/sore. I ended up taking thyroid pills and my sore joints got a better after a little while. Hypothyroid can cause joint pain per the Mayo Clinic dudes:

Mayo Clinc answers

Thyroid gland has been completely removed... Don't think it's thyroid related.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Top Posters +

  • Upcoming Events

    • February 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×