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Christina98

Food Avoidance And What To Do About My Situation

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Im curious what others think would be the best decision right now for me. Just looking for advice.

I have suffered forever with some form of not feeling well throughout life. Either bouts of sore throats, pneumonia, bronchitis, and other "itis"s unknown. I went through teen years with severe acne that i had to take an antibiotic long term to get rid of it and it eventually did. Depression has been present through my whole life its just getting worse now as I get older. I am 31 now. I have never medicated the depression ever. I was too scared to try it ( not sure of all the reasons why but I didnt) Now I am becoming desperate and need to get my self together these days because it is all escalating. I was told 9 months ago buy enterolabs that I too have a gluten intolerance and casein, Those were all I tested for. So there might be more. I never did faithfully stick to it because I am a doubter and cant hang to a restricted lifestyle to long.

Thats scary because I am desperate and want to be better more than anything in the world but I am so highly addicted to this food. I also tried The Body ecology Diet 1 year before these diagnosis and it was where you give up all sugar, gluten, dairy, and some others and you combine your food acid/alkaline categories.....she says its proper food combining.Plus she highly emphasisis kefir from milk or coconut water if allergic to milk and raw cultered veggies. She says these are the healers that will heal the gut and intestines and that this is why we have food sensitivites in the first place -froma leaky gut and bad bacteria. I did have gut issues clear with that but couldnt continue. I was 125 pounds and went to 105 and it wasnt stopping. Anyhow I will get to my questions and point. I do have money issues but went into a small savings last year just to pay for a Integrative Dr to go to who is suppose to be excellent. Needless to say i spent 1,000 cash and went home being told to do the same thing before that I did before and gave up wich was go Gluten, casein, dairy, sugar and yeast free. I was given Opti Cleanse, grapefruit seed extract and told to take probiotics. I ddidnt go back because I was told to do again much of what i could have and have done some of that on my own already. I have another appt at a New office Dec 21 it is cheaper there but still money, I am afraid if I go there gonna say we really dont know how to proceed with you until you go home and go gluten, casein, sugar and yeast free

I feel maybe I shouldnt go there til I did all those things for a few weeks so I can report back to them and be one step ahead so i am not repeating stuff to do. What do any of you think? Should I do that and just push the appt a few weeks ahead so I can have a few weeks of being completely clean of those things in my diet? Not sure why they are so adimant about seeing me after I do those things I did them before with no real improvement. I didnt do it too long but I tried :( I am very confused as to what to do. Sometimes I think I have to do alot of the main work myself. I am also thinking if I do have other food sensitivities they wont be able to find them if I avoid all of this stuff before being tested. SOOOOOOOOO Confused!

sorry so long and thank you for any advice any of you may have

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I think you know what most of us are going to say- you're not going to know if it makes you feel better until you give it a fair chance. You know that you don't feel good. You know you're depressed. You said that you would give anything to feel better- you've been diagnosed with food intolerances and that COULD be your answer right there.

I know it's hard to give up foods- especially those you feel addicted to. But if you really want to feel better you need to give it a fair chance. You can do it!

If you think that the doctor (and spending more $) will give you with the same advice again, then I would wait and eliminate those things that I had been diagnosed intolerant to, keep a food journal and go after you've eliminated those foods for awhile (maybe 3 months).

The most important thing you can do in my opinion is give those foods up and keep a journal of what you do eat and how it makes you feel mentally and physically.

There is a lot of support and good information on this site- people WILL support you. But, we can't do it for you. I hope this doesn't sound harsh, it's just that when I had lost over 40 pounds and was feeling very, very ill (and being tested for every disease under the sun including cancer) and very very scared I was willing to do anything. My doctor finally figured it out based on my symptoms and I went gluten-free that day and never looked back.

It was hard, there was a lot to learn and I had trying times. But I have absolutely no regrets! Here's to your health- think how wonderful it would be to feel good, look good, be in a good mood and have energy!

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I think you know what most of us are going to say- you're not going to know if it makes you feel better until you give it a fair chance. You know that you don't feel good. You know you're depressed. You said that you would give anything to feel better- you've been diagnosed with food intolerances and that COULD be your answer right there.

I know it's hard to give up foods- especially those you feel addicted to. But if you really want to feel better you need to give it a fair chance. You can do it!

If you think that the doctor (and spending more $) will give you with the same advice again, then I would wait and eliminate those things that I had been diagnosed intolerant to, keep a food journal and go after you've eliminated those foods for awhile (maybe 3 months).

The most important thing you can do in my opinion is give those foods up and keep a journal of what you do eat and how it makes you feel mentally and physically.

There is a lot of support and good information on this site- people WILL support you. But, we can't do it for you. I hope this doesn't sound harsh, it's just that when I had lost over 40 pounds and was feeling very, very ill (and being tested for every disease under the sun including cancer) and very very scared I was willing to do anything. My doctor finally figured it out based on my symptoms and I went gluten-free that day and never looked back.

It was hard, there was a lot to learn and I had trying times. But I have absolutely no regrets! Here's to your health- think how wonderful it would be to feel good, look good, be in a good mood and have energy!

Thanks for your response. I know that I should be avoiding this stuff, I do also have other issues that I was going to direct to the Dr too wich is I dont sleep and if I happen to It is unrestful sleep and also have adrenal issues. I am a little scared that maybe i damaged my sleep more because I have been on Ambien long term and I am trying to detox myself from it now. It has been 8 days but its been hell off of it. I had had Dr;s personally tell me thid drug is BAD and to get off of it but sleeplessness is no joke and doesnt give me the strength to make it through all of this nonsense on top of it. So I hear you with the diet thing.I wonder if they can get me on track with sleep. Melatonin doesnt work for me either.

So about you, you had a lot wrong and now your fine? all from avoiding gluten?

Thanks

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Thanks for your response. I know that I should be avoiding this stuff, I do also have other issues that I was going to direct to the Dr too wich is I dont sleep and if I happen to It is unrestful sleep and also have adrenal issues. I am a little scared that maybe i damaged my sleep more because I have been on Ambien long term and I am trying to detox myself from it now. It has been 8 days but its been hell off of it. I had had Dr;s personally tell me thid drug is BAD and to get off of it but sleeplessness is no joke and doesnt give me the strength to make it through all of this nonsense on top of it. So I hear you with the diet thing.I wonder if they can get me on track with sleep. Melatonin doesnt work for me either.

So about you, you had a lot wrong and now your fine? all from avoiding gluten?

Thanks

You need to listen to the doctors and get yourself on the diet. The sleep issues the depression, the adrenal issues may all very well be due to your continueing to consume the stuff you are reacting to.

I do hope when you say your 'detoxing' from the Ambien that you mean you are stepping down the dose and not that you just cut it out all together suddenly. Talk to your doctor. They should be able to give you something that can help you sleep or give you some guidance as to how to step down your dose. Going off any drug that you have been on long term should be done with a doctors supervision.

Do get yourself at least gluten and dairy (casien) free to start. You will likely feel awful for a few days as you withdraw from the gluten but that you do need to go cold turkey on. You need to stop those antibodies.

Your in a good place for support and guidance, read as much here as you can. You can do this and all the trouble is worth it.

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Have you thought of Overeaters anonymous? They have phone meetings if you have an unlimited long distance plan.

look for oapp, not HOW oa primary purpose says your diet is between you, your HP and your doctor. They are helping me with the issues that I have. Write me if you would like more information.

information about phone meetings can be found here

oa phone meeting

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    Jefferson Adams
    Celiac.com 06/19/2018 - Could baking soda help reduce the inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease? Scientists at the Medical College of Georgia at Augusta University say that a daily dose of baking soda may in fact help reduce inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease.
    Those scientists recently gathered some of the first evidence to show that cheap, over-the-counter antacids can prompt the spleen to promote an anti-inflammatory environment that could be helpful in combating inflammatory disease.
    A type of cell called mesothelial cells line our body cavities, like the digestive tract. They have little fingers, called microvilli, that sense the environment, and warn the organs they cover that there is an invader and an immune response is needed.
    The team’s data shows that when rats or healthy people drink a solution of baking soda, the stomach makes more acid, which causes mesothelial cells on the outside of the spleen to tell the spleen to go easy on the immune response.  "It's most likely a hamburger not a bacterial infection," is basically the message, says Dr. Paul O'Connor, renal physiologist in the MCG Department of Physiology at Augusta University and the study's corresponding author.
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    Jefferson Adams
    Celiac.com 06/18/2018 - Celiac disease has been mainly associated with Caucasian populations in Northern Europe, and their descendants in other countries, but new scientific evidence is beginning to challenge that view. Still, the exact global prevalence of celiac disease remains unknown.  To get better data on that issue, a team of researchers recently conducted a comprehensive review and meta-analysis to get a reasonably accurate estimate the global prevalence of celiac disease. 
    The research team included P Singh, A Arora, TA Strand, DA Leffler, C Catassi, PH Green, CP Kelly, V Ahuja, and GK Makharia. They are variously affiliated with the Division of Gastroenterology and Hepatology, Beth Israel Deaconess Medical Center, Boston, Massachusetts; Lady Hardinge Medical College, New Delhi, India; Innlandet Hospital Trust, Lillehammer, Norway; Centre for International Health, University of Bergen, Bergen, Norway; Division of Gastroenterology and Hepatology, Beth Israel Deaconess Medical Center, Boston, Massachusetts; Gastroenterology Research and Development, Takeda Pharmaceuticals Inc, Cambridge, MA; Department of Pediatrics, Università Politecnica delle Marche, Ancona, Italy; Department of Medicine, Columbia University Medical Center, New York, New York; USA Celiac Disease Center, Columbia University Medical Center, New York, New York; and the Department of Gastroenterology and Human Nutrition, All India Institute of Medical Sciences, New Delhi, India.
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    Source:
    Clin Gastroenterol Hepatol. 2018 Jun;16(6):823-836.e2. doi: 10.1016/j.cgh.2017.06.037.

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    Dr. Ron Hoggan, Ed.D.
    Celiac.com 06/15/2018 - There seems to be widespread agreement in the published medical research reports that stuttering is driven by abnormalities in the brain. Sometimes these are the result of brain injuries resulting from a stroke. Other types of brain injuries can also result in stuttering. Patients with Parkinson’s disease who were treated with stimulation of the subthalamic nucleus, an area of the brain that regulates some motor functions, experienced a return or worsening of stuttering that improved when the stimulation was turned off (1). Similarly, stroke has also been reported in association with acquired stuttering (2). While there are some reports of psychological mechanisms underlying stuttering, a majority of reports seem to favor altered brain morphology and/or function as the root of stuttering (3). Reports of structural differences between the brain hemispheres that are absent in those who do not stutter are also common (4). About 5% of children stutter, beginning sometime around age 3, during the phase of speech acquisition. However, about 75% of these cases resolve without intervention, before reaching their teens (5). Some cases of aphasia, a loss of speech production or understanding, have been reported in association with damage or changes to one or more of the language centers of the brain (6). Stuttering may sometimes arise from changes or damage to these same language centers (7). Thus, many stutterers have abnormalities in the same regions of the brain similar to those seen in aphasia.
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    My own experience with stuttering is limited. I stuttered as a child when I became nervous, upset, or self-conscious. Although I have been gluten free for many years, I haven’t noticed any impact on my inclination to stutter when upset. I don’t know if they are related, but I have also had challenges with speaking when distressed and I have noticed a substantial improvement in this area since removing gluten from my diet. Nonetheless, I have long wondered if there is a connection between gluten consumption and stuttering. Having done the research for this article, I would now encourage stutterers to try a gluten free diet for six months to see if it will reduce or eliminate their stutter. Meanwhile, I hope that some investigator out there will research this matter, publish her findings, and start the ball rolling toward getting some definitive answers to this question.
    Sources:
    1. Toft M, Dietrichs E. Aggravated stuttering following subthalamic deep brain stimulation in Parkinson’s disease--two cases. BMC Neurol. 2011 Apr 8;11:44.
    2. Tani T, Sakai Y. Stuttering after right cerebellar infarction: a case study. J Fluency Disord. 2010 Jun;35(2):141-5. Epub 2010 Mar 15.
    3. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    4. Jäncke L, Hänggi J, Steinmetz H. Morphological brain differences between adult stutterers and non-stutterers. BMC Neurol. 2004 Dec 10;4(1):23.
    5. Kell CA, Neumann K, von Kriegstein K, Posenenske C, von Gudenberg AW, Euler H, Giraud AL. How the brain repairs stuttering. Brain. 2009 Oct;132(Pt 10):2747-60. Epub 2009 Aug 26.
    6. Galantucci S, Tartaglia MC, Wilson SM, Henry ML, Filippi M, Agosta F, Dronkers NF, Henry RG, Ogar JM, Miller BL, Gorno-Tempini ML. White matter damage in primary progressive aphasias: a diffusion tensor tractography study. Brain. 2011 Jun 11.
    7. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    8. [No authors listed] Case records of the Massachusetts General Hospital. Weekly clinicopathological exercises. Case 43-1988. A 52-year-old man with persistent watery diarrhea and aphasia. N Engl J Med. 1988 Oct 27;319(17):1139-48
    9. Molteni N, Bardella MT, Baldassarri AR, Bianchi PA. Celiac disease associated with epilepsy and intracranial calcifications: report of two patients. Am J Gastroenterol. 1988 Sep;83(9):992-4.
    10. http://ezinearticles.com/?Food-Allergy-and-Stuttering-Link&id=1235725 
    11. http://www.craig.copperleife.com/health/stuttering_allergies.htm 
    12. https://www.celiac.com/forums/topic/73362-any-help-is-appreciated/
    13. Ford RP. The gluten syndrome: a neurological disease. Med Hypotheses. 2009 Sep;73(3):438-40. Epub 2009 Apr 29.
    14. Hadjivassiliou M, Gibson A, Davies-Jones GA, Lobo AJ, Stephenson TJ, Milford-Ward A. Does cryptic gluten sensitivity play a part in neurological illness? Lancet. 1996 Feb 10;347(8998):369-71.

    Jefferson Adams
    Celiac.com 06/14/2018 - Refractory celiac disease type II (RCDII) is a rare complication of celiac disease that has high death rates. To diagnose RCDII, doctors identify a clonal population of phenotypically aberrant intraepithelial lymphocytes (IELs). 
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    Source:
    Journal of Clinical Pathologyhttp://dx.doi.org/10.1136/jclinpath-2018-205023