Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Internal-Disaster

Can Any 1 Tell Me What Symptoms Cleared After Going Gluten And Or Casein Free?

Rate this topic

Recommended Posts

I have lots of lifetime issues that have never been resolved. I am nervous about some of the issues resemble lyme. I am just now being told to go gluten and casein free and will be doing so but I am finding myself saying " is is really possible that all these strange lifelong symptoms can be from gluten and casein or both"

Can anyone give me a list of symptoms they had that cleared after going either gluten or casein free or both?

1)swollen glands throughout my whole life on and off sometimes chronic but sometimes it doesnt come for months

2)I have headaches every day I wake

when I sit down tingling in my foot (but may be a back issue thats unknown)

swollen glands throughout my whole life on and off sometimes chronic but sometimes it doesnt come for months

3) hormone issues

4)insomnia

5) specks of white stuff that comes and goes in my throat in the tonsils

6) DEPRESSION

7) chronic extrem fatigue especially after eating

8) dark under eye circles and often wake with puffiness-dr sayd adrenal related but unsure about that but I do have adrenal issues

9) sinus mucus all the time

well there is more but I will leave these for now

Thanks

Share this post


Link to post
Share on other sites

For me the first improvement was no more bloating...just prior to diagnosis I was severely bloated every afternoon/evening -- looked about 8 months pregnant that would deflate by the next morning.

Other improvements were all digestive - gas, constipation, heartburn.

I still have many other symptoms -

stiff/sore upon rising in the AM - improves once moving

3-4pm extreme fatigue/fog/joint pain/stiffness - basically can't function after 4pm

insomnia

severe heat intolerance

I was recently diagnosed with Fibromyalgia, but am hopeful for more improvement as more time passes gluten-free.

Good Luck and best wishes for quick healing.

-Lisa

Share this post


Link to post
Share on other sites

When I got my enterolab results back I was shocked to see I had a soy intolerance as well as gluten. I didn't know anything about soy intolerance so I searched for symptoms. This is when I had a big aha! moment.

I stopped gluten the end of July and while I felt some great improvements I still had inexplicable weight gain (after loosing initially when going gluten-free), big D, cramps, brain fog, insomnia, headaches, dehydration, rashes, tingles in my hands and feet. Plus a persistent sore/scratchy throat, raspy voice, a voice that would disappear, and mucusy sinus issues. This one is weird: sometimes my tongue just can't make words. It feels weak. The fatigue is awful. My RA has been acting up as well.

Search for soy intolerance and see if it describes your issues, I think it does but you would obviously know best. :)

The other Aha! moment for me is how soy can mess up your menstrual cycle. My periods are 7-10 days long and it's been this way for 5+ years. Docs kept telling me, this is just you. Well, it looks like it may be soy related as well.

Good luck!

Share this post


Link to post
Share on other sites

So my boys are the gluten-free ones. My test came back negative though now that I'm mostly gluten free too (they're young and most processed gluten-containing foods that I would eat has soy or dairy in it). But I'm starting to notice reactions to the times I eat gluten. Like when we order pizza after the kids go to bed. :)

But casein free, that I can address. I actually found out about my intolerance or whatever you want to call it - nothing's official - when I had to take it out for my baby girl. I've been casein (and soy) free since July and I most definitely react to casein. Soy I'm not sure as my daughter reacted so strongly I'm not ready for a challenge. But once the dairy was gone I realized how much it affected me. The big symptoms? Migraines, sinuses/throat filled with mucous, fatigue, some bloating/gas but the worst thing for me was the constant cramping. I felt like I was on my period or ovulating ALL the time. I felt so yucky. Also caused a bit of discharge. And cravings? Completely gone. Amazing!

Share this post


Link to post
Share on other sites

Check out my signature, below. All symptoms improved - except for white cell count which I have not had checked. :)

Also, years back, I suffered from almost a full year's worth of chronic fatigue with swollen glands every day and a strep-like sore throat every morning and night. I don't know if gluten-sensitivity had anything to do with it, but since you mentioned the swollen glands, I thought I'd mention it, too.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 20, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
  • Member Statistics

    • Total Members
      86,745
    • Most Online
      4,125

    Newest Member
    emma121
    Joined
  • Forum Statistics

    • Total Topics
      112,045
    • Total Posts
      956,555
  • Who's Online (See full list)

  • Forum Discussions

    It’s so awful isn’t it. Do you ever get dizziness and a numb face? Mines just awful atm and I constantly think oh it must be something more serious   It’s so awful isn’t it. Do you ever get dizziness and a numb face? Mines just awful atm and Iconstantly think oh it must besomething more serious  
    Vomiting, passing out, abdominal pain that occurs as soon as my stomach empties into the small intestine (I consume mushy, well-cooked foods then), hives, allergic reactions are way more severe, indigestion, anxiety, irrtability, fatigue, achy body, tingling, become lactose intolerant, constipation, diarrhea.  Yep, many things.  Symptoms can change too.  Celiac disease is like a chameleon.  Symptoms for me can last for about six months.  Most severe the first week and gradually getting better.  
What symptoms do you get?
  • Blog Entries

  • ×
    ×
    • Create New...