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butterfl8

Hypothyroidism Or Super Sensitive Gluten Reaction?

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Okay, enough muddling though on my own--I'm turning to the experts!

So last Monday I went to my friend's house with a great deal of apprehension. I did not eat anything!! But she had made her daughter's birthday cake, and pizza crusts earlier that day, from scratch. So there was most likely flour floating around in the air. I did not spend much time in the kitchen. By the next morning, total blah. Brain fog, sleepy, minimal intestinal involvement, but I could tell I was in trouble. Week goes on, and my muscles are sore, hurting like I want/need a massage, but also feeling as if I will scream if someone touches me. The reason I think of hypothyroidism is because I have been COLD even worse since I was diagnosed in July. I've never had the muscle pain from glutening before, but it also feels like every time is a different response. My thyroid was tested in March, before I got really sick, and was normal then. My doctors seem to think that means everything is fine. Any input? Help?

Thanks in advance!

-Daisy

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Okay, enough muddling though on my own--I'm turning to the experts!

So last Monday I went to my friend's house with a great deal of apprehension. I did not eat anything!! But she had made her daughter's birthday cake, and pizza crusts earlier that day, from scratch. So there was most likely flour floating around in the air. I did not spend much time in the kitchen. By the next morning, total blah. Brain fog, sleepy, minimal intestinal involvement, but I could tell I was in trouble. Week goes on, and my muscles are sore, hurting like I want/need a massage, but also feeling as if I will scream if someone touches me. The reason I think of hypothyroidism is because I have been COLD even worse since I was diagnosed in July. I've never had the muscle pain from glutening before, but it also feels like every time is a different response. My thyroid was tested in March, before I got really sick, and was normal then. My doctors seem to think that means everything is fine. Any input? Help?

Thanks in advance!

-Daisy

Hi Daisy,

I think breathing in gluten dust takes longer to get rid of than eating it. At least it has for me. I am now loathe to do into certain restaurants if you get my drift as well as houses at certain holidays if there is a bunch of home baked goods if they aren't all gluten-free. It took me 3 weeks before I could function last year after Thanksgiving, 5 before I was fully well.

I think exercise and saunas could help when you are up to it. Of course drink massive amounts of water and do all the usual things--enterically coated probiotics, bromelain/papain enzymes, detox herbs (dandelion and yellow gentian), eat tons of vegetables and blend a brew of fresh veggies each day too. Its a slow trek however, or was for me anyway. The massage(s) sounds like an excellent idea!! maybe it won't last as long for you. I was in a real bad way... Good luck!

Bea

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I found inhaled gluten bothered me for longer too. I think that it gets stuck in the hairs (villi) between your nose and stomach and gets absorbed by the mucous membranes and brought down to the stomach for a long time. I got sick for three weeks from inhaled gluten. At that time my normal gluten reaction lasted only a week.

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I am wondering now if a quick use of a neti pot with salt in warm water to clean out the sinuses would help??

Have just read too taking L-glutamine is excellent against being glutened. Might be worth trying.

Bea

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Thanks everyone! I do love my l-glutamine. Apparently it is supposed to focus on healing the intestine. . . it does seem to help mine. All my typical gluten reactions are better now. But the cold and muscle soreness are still hanging on. Of course it doesn't help at all that Denver is in deep freeze mode with a high today of 12 degrees. Driving to work this morning it was an entire -2. But time goes on and so must I!!!

-Daisy

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Thanks everyone! I do love my l-glutamine. Apparently it is supposed to focus on healing the intestine. . . it does seem to help mine. All my typical gluten reactions are better now. But the cold and muscle soreness are still hanging on. Of course it doesn't help at all that Denver is in deep freeze mode with a high today of 12 degrees. Driving to work this morning it was an entire -2. But time goes on and so must I!!!

-Daisy

Butterfl8, I just saw this post and realize it is a month old but wanted to tell you I am having the same kind of issue. If I am exposed to airborne gluten I have serious neurological issues and severe fatigue then the neuro symptoms pass after a few hours but I am left with severe fatigue and the next day I have severe hypothyroid type symptoms. I am beginning to suspect that an airborne exposure is causing my body to start attacking my thyroid now. My Dr is baffled but we cannot seem to regulate my thyroid and it is making me nuts!!

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Yes, breathing it in seems to hurt me worse too! Ugh... its awful. Terrifying. I won't be somewhere with flour in the air. Period.

Good news is the thyroid thing DOES heal! I used to be so sick... literally shivering and unable to get warm at 70 degrees... I spent an entire winter sore all over my body from the constant shivering and having to soak in 2-3 hot baths throughout the day just to survive. No amount of blankets or sweaters helped... among other "broke down thyroid" symptoms like depression, exhaustion, etc.

I've healed a lot! I walked to the gym the other day in 50 degree weather in only a t shirt and light sweater! I can tolerate the cold so much more and my sleep, mood, and other things are much, much better now. I feel my thyroid works now. The longer you are away from gluten and other foods that bother you the more and more you heal, it just is a slow process.

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Yes, breathing it in seems to hurt me worse too! Ugh... its awful. Terrifying. I won't be somewhere with flour in the air. Period.

Good news is the thyroid thing DOES heal! I used to be so sick... literally shivering and unable to get warm at 70 degrees... I spent an entire winter sore all over my body from the constant shivering and having to soak in 2-3 hot baths throughout the day just to survive. No amount of blankets or sweaters helped... among other "broke down thyroid" symptoms like depression, exhaustion, etc.

I've healed a lot! I walked to the gym the other day in 50 degree weather in only a t shirt and light sweater! I can tolerate the cold so much more and my sleep, mood, and other things are much, much better now. I feel my thyroid works now. The longer you are away from gluten and other foods that bother you the more and more you heal, it just is a slow process.

So how long did it take for your thyroid to start functioning well enough for you to start functioning?? I am not functioning well at all right now and would soooo love to know that this was a temporary thing. Also as I said my Dr seems to be baffled about how to fix my thyroid if airborne gluten keeps impacting it so are you saying after a while your body stopped attacking it because of airborne gluten?? I am desperate for help right now but don't know who exactly can help me since my Dr seems shocked by my degree of sensitivity.

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