Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Can You Go Years Without A Flare?


carecare

Recommended Posts

carecare Enthusiast

I was wondering if you can have a bad flare of DH then have it go away for many years and then come back. My nephew got a rash that my sister was told was papular something or another and that it was a reaction to flea droppings. He had it all over his body at 7 months old. It flared off and on for that year I think and then not again until possibly now. He's 14. He recently had a dr appointment and dr told him to take off his shirt and he had a rash all over his back and chest. Dr asked him about it and he said...oh, it gets worse after a shower. So his dr said to change shampoos and soaps to see if it helps. Didn't I read here that DH can seem worse after a shower? I called my sister yesterday to ask her about the rash as a baby and sent her some pictures of what DH looks like. She said it was exactly what her son had as a baby (it was shortly after she introduced solid food to his system). Then looking at the other pictures said other pictures look just like what he has now. I told her to ask him if it itches.

I really think their family is gluten intolerant/celiac. This same nephew has no enamel on his teeth and his teeth started to basically just fall apart as a young kid...and has had to get caps on all his molars. His father has psoriasis +psoratic arthritis...his mother has Multiple Sclorosis and has felt she's had IBS for years (plus says "I think I have a problem with carbs because they make me feel horrible"...when she eats a high GLUTEN meal. I've been trying to get them both to go gluten free for years but they've refused...but now my sister is more on board after talking to me last night. I'm pushing her to at least do the Enterolab stuff to see if there is a gluten problem with her and her husband.

So I told her to question her son (he's very private and who knows how long he's had this rash...because he wouldn't have ever told his mom about it if she hadn't been there at the dr's with him)...he also recently was eating paleo for a short time and mentioned to her that he actually felt really good...but has since started eating gluten again. I said for her to go right to a dermatologist and request a biopsy of the skin. Told her to make sure they do it properly and to question the derm to make sure he's had experience with DH before making an appointment with them.

What do you think? Can you go years after your initial flare and then have it come back? Do you think this is DH in my nephew?

CC

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

No idea if it's DH - there are SO MANY other skin conditions that look "similar" - but it could be.

An adolescent "honeymoon" is VERY COMMON, so yeah, it wouldn't surprise me if it went away for a while and came back.

(BTW, when they do the biopsy, the doc has to biopsy the right place - which is just outside of the rash itself. If they don't go to a derm who knows how to do a DH biopsy, the results will be worthless.)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Help Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Braver101's topic in Coping with Celiac Disease
      2

      Constant sweating with celiac disease

    2. - Scott Adams replied to Julie Riordan's topic in Traveling with Celiac Disease
      2

      Any ideas for travelling

    3. - trents replied to Julie Riordan's topic in Traveling with Celiac Disease
      2

      Any ideas for travelling

    4. - trents replied to Braver101's topic in Coping with Celiac Disease
      2

      Constant sweating with celiac disease

    5. - Julie Riordan posted a topic in Traveling with Celiac Disease
      2

      Any ideas for travelling


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,489
    • Most Online (within 30 mins)
      7,748

    Ronnieb8675
    Newest Member
    Ronnieb8675
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'm sorry to hear about what you're going through. It must be really frustrating and uncomfortable. Have you talked to your healthcare provider about these sudden sweating episodes? It might be helpful to discuss this with them to rule out any other underlying issues or to see if there are specific strategies or treatments that can help manage this symptom. Additionally, staying hydrated and wearing breathable clothing may provide some relief. 
    • Scott Adams
      I am not sure where you are going, but we have articles in this section which may be helpful: https://www.celiac.com/celiac-disease/gluten-free-travel/ 
    • trents
      There are supplements available that can help breakdown minor amounts of gluten such as you might experience with cross contamination when dining out and you order gluten free items from a menu. But they will not help when larger amounts of gluten are consumed. One such product that many on this forum attest to as having helped them in this regard is GliadinX. The inventor of GlidinX is one our forum sponsors so you should know that.
    • trents
      There is such a thing, believe it or not, called gluten withdrawal. Gluten has addictive properties similar to opiates. I know it sounds bizarre but research it. Also, are you compensating for the loss of vitamins and minerals you were getting from the FDA mandated fortified wheat flour products you were formerly consuming?
    • Julie Riordan
      Just wondering can anyone help me out.heading on holidays and don’t really know what expect.if I get glutened are there tablets that you can take
×
×
  • Create New...