Jump to content
Celiac Disease FAQ | This site uses cookies GDPR notice. Read more... ×
  • Sign Up
0
itsallgood

Please Help Interpret Results

Rate this topic

Recommended Posts

Can you help interpret these?

Endomysial Antibody Screen IgG POSITIVE*

The IgG class Endomysial Antibody screen is positive and a titer performed.

ENDOYMYSIAL ANTIBODY -IGG TITER 1:10* (REFERENCE RANGE: <1:5)

Tissue Transglutiminase Ab, IgA/IgG

Tissue 2.6 (Ref. Range: <4)

Transglutiminase Ab, IgA,S

Tissue 3.8 (Ref. Range: <6.0)

Gliadin Ab, IgA, S

3.4 (Ref. Ranges: <20 Negative, 20.0-30.0 Weak Positive, > 30.0 Positive) this one I'm curious about. Seems like 3.4 is very low? Is that something to consider?

The Dr. from Mayo wrote:

(EMA-G is detected in this patient's serum by indirect immunoflourescence microscopy). Presence of EMA-G in individuals with congenital IgA deficiency is specific for Celiac Disease. EMA-G may also be positive in celiac disease patients who are not IgA deficient; such patients generally have higher titers of EMA-A than EMA-G. celiac disease patients usually do not lose EMA-G on a gluten-free diet; therefore, this test cannot be used to monitor dietary compliance. I personally reviewed this study and this report represents my interpretation of the findings.

Immunopathologist (his name)

*=abnormal

Share this post


Link to post
Share on other sites

Your test results were postive for celiac. You don't have a total IGA listed so I don't know if you are IGA defiecient but with the other test being postive that doesn't really matter. If you are not going to have an endo than go ahead and go gluten free asap. If you're having the endo then wait till that is done before starting the diet.

Share this post


Link to post
Share on other sites
Your test results were postive for celiac. You don't have a total IGA listed so I don't know if you are IGA defiecient but with the other test being postive that doesn't really matter. If you are not going to have an endo than go ahead and go gluten free asap. If you're having the endo then wait till that is done before starting the diet.

The only thing I can find is: Immunoglobulin 98. This one was on a separate page. Anyway, these results are for one of my kids, and this is why doctors frustrate me:

We asked for Celiac panel cuz other son diagnosed (went gluten-free the day after blood taken)

Doctor reported back that he was negative

A couple weeks later the nurse called with results and said he was positive.

I asked her, "are you sure you've got the right kid? The Dr. said he was negative?" put me on hold...

She came back and said the Dr. said that he was "marginally positive and that he would not use this test to confirm Celiac."

After calling twice for the specific name of the test, number and range, I showed up to get a copy myself. I looked at the dates of the labs as they came in to the dr.

He reported that he was negative when there were still three tests pending! Seriously, this makes me want to get another dr. I really think he realized his snafoo and is covering his ***. We declined an endo referral, because my other son has had such a positive response and the biopsy is so invasive. I can tell that the pediatrician is not up to speed on the latest Celiac info., which is scary because my other son, Type 1 diabetic and Celiac sees him as well. The thought of Dr. hunting again is daunting. There are really only two that I can find near here that they can both see. I really wanted them to have the same dr. because of the diabetes and family history element...someone to see the big picture. In my experience, gastros just want to do test after test and call everything IBS. Sorry, I'm bitter.

Share this post


Link to post
Share on other sites

Your frustration is certainly understandable. Doctors really need to get up on celiac in this country so many are so uneducated. Fortunately we can do the only thing that can be done, the diet, without doctors help. It is nice to get a clear cut diagnosis but sometimes that is just beyond today's medicine. The body knows the answer though. I think your doing the right thing putting him on the diet. With more than one gluten sensitive person in the home it might be a good idea to just have a gluten free house.

Share this post


Link to post
Share on other sites

Thanks for replying. Sometimes it helps just to know people understand. We have just made it through our first gluten-free Christmas and it was good. Only a couple of hiccups, but otherwise more doable than I had imagined when we first started. We do have a gluten-free house now, and everybody feels better. Thanks again .

Share this post


Link to post
Share on other sites

Itsallgood,

Have you posted under 'Doctors' a requested for a doctor in your town/area? If you post your town and state there you might find other celiacs in your area that know of a doctor who understand celiac disease. Much easier hunting there.

So glad to hear your gluten free Christmas went well!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Top Posters +

  • Upcoming Events

    • February 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
  • Member Statistics

    • Total Members
      86,551
    • Most Online
      4,125

    Newest Member
    celiac85364
    Joined
  • Forum Statistics

    • Total Topics
      111,822
    • Total Posts
      955,922
  • Who's Online (See full list)

  • Forum Discussions

    Report on Gluten Free Foods & Beverages Market (2019) gives complete outlook of ... non-celiac patients with more number of new product introductions in ... Awareness of Celiac Disease and Gluten – Intolerance Consumers 3.1.2 ... View the full article
    Okay, thanks. Re: MTHFR - I don't really know yet... I only started reading about it yesterday and it is pretty overwhelming. But it does seem to be common advice that if you have a close relative with it you should be tested, and I guess having 2 copies of the "C" variant, as my sister has, is the "worst" variety of it.  It came to light for her when she was going through infertility and miscarriages.  They discovered that her homocysteine was high, which led to the MTHFR testing. So that is one thing I know I would then want to proceed to do, if I do have it - get my homocysteine tested. My dad died of early-onset Alzheimer's, and apparently there is a link between high homocysteine as well as the MTHFR mutation and Alzheimer's. It also seems like it would be worth knowing if I have it since it could be the cause of my lower levels of B12. And I guess maybe I would need to start taking methyl-folate? I mean, to answer your question, I am not entirely sure what I will do if I do have it.   Probably read a lot more about it... and take supplements like methyl-folate if I really think I need to.  Check my homocysteine & control that if I need to, hopefully to lower my risk of Alzeheimer's.  It seems like a frustrating area because there appear to be limited official medical websites that really even talk much about it (so far).  I have found one article on the NIH that focuses on the link with high homocysteine. I already eat a very healthy diet.  Whole grains, lots of fruit & veg, mostly organic.  I am a vegetarian except for very rare seafood. I avoid processed food and, above all, foods with added sugar...  To me, sugar is by far the worst culprit in the SAD.  I think RA has been ruled out by my 2 negative Rheumatoid Factor tests (one done several years ago, one just this year at my physical).  Also, the way this started in my elbows, and was really only there for years, is just... weird... and definitely doesn't really fit with arthritis.  And there is no swelling to speak of, just mild pain - sometimes aching, sometimes burning, sometimes sharp...  It may or may not fit with any systemic diagnosis versus a mechanical one, but nowadays I do also have pain in my hands, feet, and knees.  So then I think, well maybe it is/was something systemic, but it was worse in my elbows for some mechanical reason but now has progressed elsewhere.  I thought Crohn's was just digestive?  (Of course, many people think that of celiac.)  So I haven't really investigated that one much. My ANA was retested and is back down to "negative," so I think that pretty much rules out lupus.  I believe fibromyalgia is still on the table. Anyhow....  Your point is nonetheless taken.  I do want to rule out celiac and go from there.  At this point I'd sure love to find out it is something I could control through my diet!
  • Blog Entries

  • Blog Statistics

    • Total Blogs
      1,158
    • Total Entries
      2,010
×