Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wow!


camprunner

Recommended Posts

camprunner Apprentice

I've never had positive test results to Celiac and my doctor said that I "probably have a gluten intolerance". Anyway, I eliminated gluten from my diet (for the second time in my life) a little over three months ago. I've lost a grand total of 7 pounds this time because I know how to eat on the diet so my eating habits didn't change as much as one might think this time.

I was just looking at my facebook profile pictures and it's amazing to me. I have four.

1. Taken when I thought I was ADHD (quit medicine before seeing a more natural doctor and symptoms disappear everytime gluten is eliminated). You can tell I don't weigh much but there is obvious swelling in my face.

2. Taken this summer when not on a gluten free diet. My face is very swollen.

3. Taken 3 weeks into gluten free diet. Swelling in face has obviously gone down but still there.

4. Taken 3 months into gluten free diet, I don't even look like the same person! The swelling in my face has gone down significantly. I don't know if there is more swelling or not as I have not been well for the last 19 years so it's possible....

Also I am able to wear my contacts that started bothering me 3 years ago. For three years, I've only been able to wear them on special occaions until now. My night vision is also better.

There is more, but honestly, I forget about the other symptoms unless I'm looking at a list because they've been gone so long!

I know that everyone has these stories but I am truly amazed how one food might be doing this to me! I truthfully think I also need to eliminate chocolate for a little while and that will be happening very soon!

On the down side, in the event that I accidentally consume gluten I am showing the gastrointestinal symptoms that have never shown themselves before such as feeling like the whole middle part of my body is on fire and painful constipation. This however, is only reinforcing my need to stay off of gluten.

I think I will keep referring back to my facebook pictures everytime I think that it might be ok to consume gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

The changes can be amazing. Glad you are recovering well.

still tiredofdoctors Rookie

I agree with Ravenwood Glass -- sometimes the changes ARE amazing. I think you may find, as time goes on, that you will recognize that more of these "subtle" side-effects of celiac resolve. Best of luck to you!

camprunner Apprentice

Thanks. I look forward to seeing more improvements. I've been sick to some extent for the last 19 years so this is very exciting.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      New Guy Here...

    2. - knitty kitty replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      27

      Can food allergies like milk and soy flatten villi?

    3. - trents replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      New Guy Here...

    4. - TerryinCO posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      New Guy Here...

    5. - Scott Adams replied to Sicilygirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Enegy level extremely low


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,225
    • Most Online (within 30 mins)
      7,748

    KmaF
    Newest Member
    KmaF
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @TerryinCO, Have you been checked for nutritional deficiencies?  Damage to the intestines like your doctor found affects the absorption of essential nutrients.  Supplementing with B Complex, Vitamin D, and minerals like magnesium help ensure you are absorbing vitamins your body needs to heal.  Weight loss is often seen in the malnutrition that accompanies Celiac Disease.  Weight loss, Barret's esophagus, and hypothyroidism are related to Thiamine Vitamin B1 insufficiency.  Talk to your doctor and nutritionist about supplementing with Thiamine in the form Benfotiamine and other vitamins and minerals. Best wishes for your new journey with Celiac.  Keep us posted on your progress.
    • knitty kitty
      Pancreatic elastase is a digestive enzyme that requires Thiamine Vitamin B 1 to be produced.  Thiamine is needed to make insulin, too.  Thiamine, Niacin B 3, and Pyridoxine B6 are needed to make digestive enzymes and turn carbohydrates, fats and proteins into energy for the body, and for repair and healing of the body.  The Gluten free diet can be low in the eight essential B vitamins.  Gluten free processed foods are not enriched with vitamins and minerals like their gluten containing counterparts.  Supplementing with the water soluble B vitamins can ensure you're absorbing sufficient amounts of B vitamins to keep the body healthy.  Benfotiamine is a form of thiamin that helps heal the digestive tract.  Benfotiamine and Vitamin D help to reduce inflammation and calm immune responses, so if you are accidentally exposed, your autoimmune response might not be so bad. Supplementing with the B Complex vitamins is beneficial while healing.  Have you talked to a nutritionist?
    • trents
      Welcome to the forum, @TerryinCO! Do you know what blood tests were ordered? Was it for like you would have done for an annual physical (CBC/CMP) or celiac disease specific antibody tests? I find it interesting that your GI doc did the endoscopy and biopsy before he/she ordered blood tests to check for celiac disease, assuming the blood tests ordered were indeed specific for celiac disease. Normally, the sequence is the other way around. Was the GI doc doing the endoscopy for some other reason in the first place? The endoscopy/biopsy is considered the gold standard for celiac diagnosis so I also find it interesting that the doc reflexively felt a need to order blood work as well.  Just a heads up in case the bloodwork ordered was not specific for celiac antibodies: Going on a gluten-free diet before the blood draw for celiac antibody testing is done will likely invalidate the testing. You probably know this already but hypothyroidism (Hashimoto's disease) is common in the celiac population and there is a statistical correlation. And then there is the weight loss. And I assume you have suffered with GERD for a long time and that is what led to the Barret's. All symptoms of celiac disease.
    • TerryinCO
      ...so lotsa questions and unknowns for me.  Gastro Doc did an endoscopy and found villi damaged so Celiac is suspect/known.  Subsequent blood work done and am awaiting evaluation from  NP or Doc. I've started gluten free diet and that's going well.  I don't have any real symptoms but have lost ~ 10# over last year or so....180 down to 170 ( I'm about 6'0 and always been on the scrawny side).  I'm 76 and up to now have not  had Celiac/gluten issues, but do take hypothyroid meds, and diagnosed/treated for Barret's Esophigus. I'm exploring the site here - looks like a lot of info available.  Talk with you later. Make yourself a great day! Terry    
    • Scott Adams
      @EricaFilpi, please tell us more about your recovery...did you need to take iron infusions or supplements? What other supplements are you taking? I'll assume you've been gluten-free since August.
×
×
  • Create New...