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Guest Doct.Giggles

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celiac3270 Collaborator

Oh, I see, cool. I thought there would be some simple meaning behind it, but I didn't know what it was . Thanx for answering.

Nobody's asking me to do anything, but I'm inserting all the "emoctions" anyway, lol

:mellow::huh:^_^:o;):P:D:lol:B):rolleyes:-_-<_<:):wub::angry::(:unsure::wacko::blink::ph34r:

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jazzyjess Newbie

hello everybody

i just wondered can we eat emulsifiers llike soya lechitin?

does anyone know

:P thanks!

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celiac3270 Collaborator
hello everybody

i just wondered can we eat emulsifiers llike soya lechitin?

does anyone know

:P thanks!

Yea...soy lecthin (spelling?) is fine...gluten-free.

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jazzyjess Newbie

thanks

im so bad at reading the labels i usually just end up not eating things cos im not sure wether there ok or not and its safer so its great that i can find out some things i didnt know :lol:

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celiac3270 Collaborator

When in doubt, check the forbidden list: https://www.celiac.com/st_prod.html?p_prodi...-46105547579.c5

or the safe list: https://www.celiac.com/st_prod.html?p_prodi...-46105547579.c5

and if you are searching for something, do ctrl and f, pulling up a "find" box. Then you can type in the word you're looking for and if you're not sure of the spelling, just do, for example, "soy L"

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jazzyjess Newbie

thats reli good i just visited it thanks so much when ever labels have long ingredients i never know whether there all right or not thats going to be very useful

im jess btw im 14 i became coeliacs around easter :P

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Carriefaith Enthusiast
Nobody's asking me to do anything, but I'm inserting all the "emoctions" anyway, lol
I don't have all those smilies as an option, like the bashful one with hearts above its head and the sleepy one. Do you have to do something special to get those?
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gf4life Enthusiast

Carrie, at the bottom of the emoticon box there is a Show All option. Click on that and it will open up the whole box in a separate window. :)

God bless,

Mariann

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celiac3270 Collaborator

Yes...I anticipated I would get that question :lol:

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melly Rookie

hello my name is melly I technicaly wont be a teenager till the sixtenth of october i found out that i had celiac disease 2 weeks a go im still not felling well and still getting used to it some times it makes me sad seeing all i cant have and i think it would be really nice to talk to someone my age thats going through the same thing if you are please message me

ps is everyone here named tifany

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celiac3270 Collaborator

no I responded to your other topic.

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melly Rookie
I feel really young!!!! I am still 13 and won't be 14 untill October!!!!! :( But it is nice to find people close to my age!!! :huh:

-Tiffany

lol tiffany I am still 12 and i wont be 13 till october and i feel really young

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PrincessLEah Rookie

turned 13 a month ago :D

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PrincessLEah Rookie

I need some candy. BRB

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Guest gliX

I'm too old for this section B)

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  • 1 month later...
Thyraxeon Newbie

Hey, i'm new to the board. I'm 18 and wondering if anyone would like to chat. if so you could reach me at Thyraxeon on YIM and E-mail me at Thyraxeon@yahoo.com, anyway i kind of feel alone in this Celiac thing, did since i was diagnosed in July 2002, since then i came on and off my diet for certaint reasons, dont feel like mentioning them right now. Anyway i'm more or less looking for some one around my age to talk to, like from 17-19.

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KaitiUSA Enthusiast
Hey, i'm new to the board. I'm 18 and wondering if anyone would like to chat. if so you could reach me at Thyraxeon on YIM and E-mail me at Thyraxeon@yahoo.com, anyway i kind of feel alone in this Celiac thing, did since i was diagnosed in July 2002, since then i came on and off my diet for certaint reasons, dont feel like mentioning them right now. Anyway i'm more or less looking for some one around my age to talk to, like from 17-19.

<{POST_SNAPBACK}>

Hey I am also 18. You can email me anytime to chat.

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petlover Newbie

I am 11 and very new to this whole thing. Don't know if I have celiac disease, just had a blood test and it takes 2 weeks to come back. My mom tested negative but can't eat anything with gluten in it. I feel the same way she does when I eat it. So I will probably never eat it again even if the test is negative. It is nice to know there are other kids like me. :P . Most kids dont understand. It is hard when someone offers me something I can't eat but want to :(

Asia

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KaitiUSA Enthusiast
I am 11 and very new to this whole thing.  Don't know if I have celiac disease, just had a blood test and it takes 2 weeks to come back.  My mom tested negative but can't eat anything with gluten in it.  I feel the same way she does when I eat it.  So I will probably never eat it again even if the test is negative.  It is nice to know there are other kids like me. :P  . Most kids dont understand.  It is hard when someone offers me something I can't eat but want to :(

Asia

<{POST_SNAPBACK}>

Were you gluten free at the time of testing? If you were not on gluten then the results may not come back right. I am glad that you feel better on the diet so you should continue to stick to it. There is so much stuff that you can have that your friends can have too so it won't be as hard when you get used to it and find things :D

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2Boys4Me Enthusiast

Not a teenager ( :o since too long to mention) and my son Ty who was just diagnosed with celiac disease won't be a teenager for almost 7 years!

I'm just posting to say there are young celiac disease kids out there, we don't know any of them though ;)

Linda, mom to Ty my 5.5 year old Celiac kid.

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petlover Newbie

I have not eaten gluten for only 2-3 weeks but have had a few accidents. Some how now when I have an accident it hurts so much more

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dragonzzz Newbie

I'm 10 but i'm almost 11. My mom can't have gluten and neither can my sister. I got tested and the results haven't come back yet but i can't eat anything with gluten in it for the time being :( . i hate it cause half the things i eat have gluten in them and i luv them soo much. I have been feeling better since ive stopped eating it. One of my symtoms was gas. Sometimes it was so painful i had to stay home from school. I had diarrhea with it and was doubled over when it was really bad. But since i went gluten-free i havent had any gas! I ws wondering do any of u guys have the same symptoms as me? Or any other symptoms...

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dragonzzz Newbie
I have not eaten gluten for only 2-3 weeks but have had a few accidents.  Some how now when I have an accident it hurts so much more

<{POST_SNAPBACK}>

I luv your avatar!!! Is it u? :D

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celiac3270 Collaborator
    I have not eaten gluten for only 2-3 weeks but have had a few accidents. Some how now when I have an accident it hurts so much more

Absolutely. As your intestines heal they become more sensitive to gluten...and are less accustomed to it, yielding a more painful reaction when you do accidentally ingest gluten.

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dragonzzz Newbie

I know ur not talking to me but that is really cool!

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    • knitty kitty
      @Allias, Do you have low magnesium levels?   "The serum levels of parathyroid hormone and magnesium depend on each other in a complex manner. The secretion of parathyroid hormone by the parathyroid is physiologically controlled by the serum calcium level, but magnesium can exert similar effects. While low levels of magnesium stimulate parathyroid hormone secretion, very low serum concentrations induce a paradoxical block. This block leads to clinically relevant hypocalcemia in severely hypomagnesiemic patients. The mechanism of this effect has recently been traced to an activation of the alpha-subunits of heterotrimeric G-proteins. This activation mimicks activation of the calcium sensing receptor and thus causes inhibition of parathyroid hormone secretion. In addition to the effects of magnesium on parathyroid hormone secretion, parathyroid hormone in turn regulates magnesium homeostasis by modulating renal magnesium reabsorption. The distal convoluted tubule is of crucial importance for parathyroid hormone-regulated magnesium homeostasis." Magnesium and the parathyroid https://pubmed.ncbi.nlm.nih.gov/12105390/  
    • Wheatwacked
      I'm guessing it was Manic Depression. I was depressed for 30 years.  It did not go away until I increased vitamin D3 to 10,000 IU (250 mcg) a day.  Three days after going from 8000 IU to 10,000 IU a great dark cloud lifted. Unless you are deficient in Calcium intake from food, don't supplement with calcium.  A high Parathyroid Hormone PTH blood test would indicate insufficient vitamin D causing calcium absorption problems..  High intakes of calcium can be associated with coronary artery calcification. In one study, calcium and vitamin D supplementation accelerated vascular calcification. Thousands of studies of vitamin D supplementation without Calcium have shown that vitamin D is safe even as much as 20,000 IU a day. Vitamin D Is Not as Toxic as Was Once Thought That is confusing. Many gluten processed foods are fortified with vitamins that you no longer get with gluten-free foods.  Doctors don't recognize this as Knitty Kitty mentions. Sorry for the loss of your friend.   I see a pattern where a person with low vitamin D has a stressful situation, mentally or physically like Covid or a cold even allows the immune system to get out of control.  Low vitamin D is common in Celiac Disease.  You seem to fit the pattern. Low choline (eggs and meat) can cause problems digesting fat and Low Thiamine can cause gastrointestinal beriberi.  Iodine deficiency is a growing concern.  Low B12 can be the cause of anemial is you are vegan.
    • Wheatwacked
      high levels of parathyroid hormone (PTH) can indicate a vitamin D deficiency. The "normal level" of 25(OH) D is 80 ng/ml (200 nmol/L). That is the level our body sets as it's normal limit when we don't limit sunshine.  For some people like me it takes 10,000 IU a day to maintain that.  Lack of enough sun and malabsorption of vitamin D orally.  
    • Allias
      No, all this is related to calcium. Why would I then have a low ionized calcium level and a high PTH (hormone that controls the balance of blood calcium)? Your thiamine story doesn't hold up.
    • knitty kitty
      Welcome to the forum, @Allias, For the growth and maintenance of bones, more vitamins and minerals are needed than those you are taking.   Bones need calcium, as well as magnesium and iron, but also trace elements like zinc, copper, selenium, manganese, and boron.   Bones need vitamins like Vitamin D and Folate (not synthetic Folic Acid which the body doesn't utilize well), but bones also need Vitamin A,  Vitamin K, Cobalamine B12, Pyridoxine B6, Riboflavin B2, Choline B4, and Thiamine B1.   High PTH and high alkaline phosphatase (ALP) levels may indicate a deficiency in Thiamine B1.  The enzyme Alkaline phosphotase combines with Thiamine to make Adenosine Triphosphate (ATP), the "energy coinage" used in the body which is required to build bones or perform any body function.  Increased levels of ALP and PTH are produced when there's not sufficient Thiamine to meet the demands.  Bones, the liver, the thyroid and the gastrointestinal tract can all make ALP when there's a shortage of Thiamine in each of those organs.  The gastrointestinal tract makes ALP when increased thiamine absorption is required.  Thiamine is needed to attach to calcium so it can be absorbed.   Thiamine deficiency disorders include muscle spasms in muscles like the neck muscles, and neuropathy.   What is your Vitamin D level? Do talk to your doctor and nutritionist about supplementing with essential nutrients while recovering.   References: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7914453/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7352179/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/ https://pubmed.ncbi.nlm.nih.gov/4003329/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10568373/ https://pubmed.ncbi.nlm.nih.gov/36428888/ https://pubmed.ncbi.nlm.nih.gov/1156856/ https://pubmed.ncbi.nlm.nih.gov/38034619/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10398819/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/
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