Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any 1 Know About Adrenal Function And Acth Stim Test


Christina98

Recommended Posts

Christina98 Explorer

I was wondering if anyone knows about this stuff.

I had a test done (a saliva test) to check the adrenals and was told I have adrenal insufficiency.

This was through a naturopathic Dr. My primary care Dr office (well endocrinologist) wants me to do a test for the adrenals called acth stim test. This is something where Synthetic cortisol is injected and they measure something with the response of the adrenals.

This is too see how bad off the adrenals are she said. The only thing is that I hear that they are only checking for the worse case scenario like (addisons)

They do not recognize any other result.

Anyone had this and can explain. Also is IT SAFE?

The Dr says yes but I really dont trust too much of what they say anymore.

Was just curious what the test will say and its covered by Insurance but I am scared if its going to put me in a kinda "fight ot flight mode" kinda like when you are experiencing something for real that raises cortisol your heart pounds and you feel scared. Panicky.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



georgie Enthusiast

I have had a Stim Test and it was a breeze. It was the best I had felt in ages :)

They take a blood test to check baseline numbers. Is ACTH , aldosterone and renin being tested ? Then they inject ACTH and wait 30 mins and take another blood test, and then another 30 mins later. If you have adrenal failure ie Primary Addisons - your levels don't rise in response to the ACTH injection.

Open Original Shared Link

If you have Secondary Adrenal Insufficiency ( caused by a damaged Pituitary) then this is not the best test. You need an Insulin Stress Test where Insulin is injected in and cortisol and Growth Hormone are measured. Its not often done as its a fairly dangerous test.

Open Original Shared Link

Are you on cortisone at the moment ? You need to be off it at least 2 weeks before the test. If you can't manage that - switch to Dexamethasone for 2 weeks.

Good luck!

Christina98 Explorer

I have had a Stim Test and it was a breeze. It was the best I had felt in ages :)

They take a blood test to check baseline numbers. Is ACTH , aldosterone and renin being tested ? Then they inject ACTH and wait 30 mins and take another blood test, and then another 30 mins later. If you have adrenal failure ie Primary Addisons - your levels don't rise in response to the ACTH injection.

Open Original Shared Link

If you have Secondary Adrenal Insufficiency ( caused by a damaged Pituitary) then this is not the best test. You need an Insulin Stress Test where Insulin is injected in and cortisol and Growth Hormone are measured. Its not often done as its a fairly dangerous test.

Open Original Shared Link

Are you on cortisone at the moment ? You need to be off it at least 2 weeks before the test. If you can't manage that - switch to Dexamethasone for 2 weeks.

Good luck!

So when u had this test done was that when you found you have an adrenal issue?

I dont know what else she would be testing (alsterone or not) she said acth test to check how my adrenals function.

She did mention the other test (insulin one) and she did say it is dangerous.

I am scared of this one too though because there injecting something to make my adrenals work (or respond) I dont do well with bodily things that are induced I get scared and anxiety.What exactly did u feel when u had it done? are your adrenals ok now? did they find addisons or any other adrenal stuff?

Oh and no I am not on cortisone or anything just ambien for sleep (wich I HATE)

georgie Enthusiast

No - the Stim Test did not show my adrenal problem. I needed the ITT but it was too dangerous for me to have it. Based on my other hormone deficiencies and how they looked - the dx of Secondary Adrenal Insufficiency was made. Some places call it Secondary Addisons. There is no cure. I am on cortisone for life. I also take Florinef to help the sodium balance and blood pressure. I used to sleep very badly before but now I have cortisone I sleep like a log again. I used to wake at 4am with shakes and headaches - which is when the circadian cortisol day starts. I don't now. I am almost back to normal but have had to learn about cortisone a lot. Endos are usually clueless re adrenals. It is good that yours has mentioned the ITT as you may need to have that done as well. Do you think you have Primary Addisons ? ( tanned skin, salt cravings , weight loss) or Secondary ( multiple hormone failures, history of head injury/tumour ). Make sure you get fasting serum ACTH tested before the test starts. And that the Stim Test is done in the morning - pref about 8am.

Ahorsesoul Enthusiast

I always ask the doctor how the second test will change the treatment I am going to be given. If there is no change in treatment I decline the test unless it's to check for something else.

Christina98 Explorer

I always ask the doctor how the second test will change the treatment I am going to be given. If there is no change in treatment I decline the test unless it's to check for something else.

thanks

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    2. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    4. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,151
    • Most Online (within 30 mins)
      7,748

    Travis25
    Newest Member
    Travis25
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.