Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

msharnoubi

Conflicting Blood Test Results.

Rate this topic

Recommended Posts

Hi everybody,

I have the following conflicting results from 2 different labs:

Lab 1:

IgA Quantitative 149 Ref. range: 70-400

Anti Gliadin IgG Negative Ref. range: Negative at serum dilution 1/40

Anti ttG IgA Negative 3 Ref. range: Negative<20 ### Weak Positive 20-30 ### Positive>30

Lab 2:

Anti-Gliadin IgA Positive 1/20 Ref. range: Negative

Anti Endomysial IgA Negative Ref. range: Negative

Anti ttG IgA <10 U Ref. range: Negative<20 U ### Weak positive 20-30 U ### Positive>30 U

Notes:

1- I'm not very confident in all the test results because as I've said in an earlier posts, celiac tests are rarely made in Egypt.

2- I think the most accurate test is ttG IgA of lab 2 because they told me they do it in Europe

As you can see, they appear to be all negative except the AG IgA.

Is it possible to have such conflicting results or did some lab do an error?

If it's possible to have such conflicting results, which test should I believe?

Please keep in mind that a previous trial in the past of the gluten free diet for about 7 weeks didn't make feel much better. In addition, the problems I have are not directly related time wise to eating gluten. That is I don't have this direct connection between eating gluten and then having the symptoms a couple of hours later.

Any help would be appreciated.

Thanks

Mohamed

Share this post


Link to post
Share on other sites

Hello Mohamed,

I am by no means an expert on any of this. But, I do know that Celiac can be tricky to diagnose. My blood results were very similar to yours. The ONLY part of the Celiac tests that I tested positive for was the Anti Gliadin IGA--just like you. Everything else came back negative. I even had a biopsy, and my GI doctor stated that she was very confident I didn't have Celiac, because the villi showed no sign of damage. However, she did suggest that I wait a couple of months and take the blood test again. And once again, I tested positive for the Anti Gliadin IGA portion and nothing else. I then decided to go on the gluten-free diet just to see if it helped or not. It was very hard in the beginning. I went through gluten withdrawals, which made me feel even worse than I did when I was eating gluten. But, 3 months later I finally started feeling better and most of my symptoms began disappearing. I took the same blood test again. And guess what. The Anti Gliadin IGA came back negative after being gluten-free. Which means my body really was reacting to the gluten. You may want to just give the diet a try. I'm so glad I did. Good luck!

Share this post


Link to post
Share on other sites

The results aren't actually conflicting - the two labs ran different tests, according to what you have typed there. Between the five blood tests, the labs duplicated one test (tTg test) with the same (negative) result. It's not at all unusual to have some of the tests pop up positive, and some negative. That's why a whole panel of tests is run, as the results should be viewed together.

You've got one positive test (and it's unclear "how" positive, but that's not a real concern). With information like that, I'd say "yeah, I could definitely have celiac" and try the diet. The tests are, IMHO, somewhat inconclusive, but where the line between conclusive and inconclusive is, that is a very subjective thing.

Share this post


Link to post
Share on other sites

I had a negative biopsy and a negative blood test and a negative gene test, yet I am confident it is celiac or gluten sensitivity.

My daughter is a diagnosed celiac, and had a dramatic improvement off gluten.

celiac is very genetic, so I probably have it too by reasoning.

I had this huge fatigue that went away one day after seven months off gluten.

I ahve hashimotos, and that is very much connected to gluten.

I have DH too that breaks out if glutened.

I have gluten ataxia too when glutened, and when I tried to get diagnosed I had been off gluten for a while but before I had the beginnings of gluten ataxia. i did not know where my feet were and I get lots and lots of typos when glutened. I thought the keyboard was broken.

nora

Share this post


Link to post
Share on other sites

Thank you all for your very helpful replies.

I think I'll give the gluten free diet another try.

One last question though.

How long should I try the diet before deciding it's not helping me (i.e. 3, 6, 9 months; or 1,2 ... years)?

Thank you very much

Mohamed

Share this post


Link to post
Share on other sites

Thank you all for your very helpful replies.

I think I'll give the gluten free diet another try.

One last question though.

How long should I try the diet before deciding it's not helping me (i.e. 3, 6, 9 months; or 1,2 ... years)?

My doctor told me that if I was going to try a gluten-free diet that it needed to be for a minimum of 6 weeks, and it needed to be as close to 100% compliant as I could possibly get. Based on much research in last 10 months since I was diagnosed, I would recommend a minimum of 3 months. You may know this already, but you have to consider gluten in medications and other supplements as well as food sources. I know someone who went 5 weeks with no change of symptoms and was going to give up on the diet. She happened to mention in passing some medication she was taking and was asked if it was gluten-free. She replied with amazement and said, "There is gluten in my meds?" After that conversation she went home and went through all her medications, vitamins, and nutritional supplements. Within two weeks and a change in one of her prescription meds she began to notice improvements in her GI symptoms.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 20, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
What did you find out about your daughter ? My son is 6 and has used the exact same sentence!! He feels like there is a bubble in his throat. He has been complaining on and off for the last year and recently it seems he complains more Ans Wants me to make a doctor appt. he had reflux bad as a baby until about 2.5 and allergies to fomula Ans my milk but since then I thought that all went away. 
  • Blog Entries

  • ×
    ×
    • Create New...