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There's no such thing as a silly question on this board!!! ;)

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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Mpost. I've been a nurse for many years, if I can answer any questions I will but I am not allowed to recommend medications or supplements. There's never a silly question, don't be afraid to ask....Judy :)


The one resolution, which was in my mind long before it took the form of a resolution, is the key-note of my life. It is this,always to regard as mere impertinences of fate the handicaps which were placed on my life almost at the beginning. I resolved that they should not crush or dwarf my soul, but rather be made to blossom, like Aaron's rod, with flowers-Helen Keller

Judy- Gluten Intolerant

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Well, I am disappointed again . . . I just came back from my doctor's appointment. He went over the lab results and everything came back negative. I was just about to ask him about the celiac panel when I saw him writing it in my chart. I was surprised to find out that he had done a celiac panel on my initial labwork and that was part of the negative results. I have not gone gluten-free so I know that didn't confuse the results.

He scheduled me for a colonoscopy and still says that he thinks it is Krohn's or Ulcerative Colitis. I told him that I didn't understand how either of those could be my diagnosis since my only "like symptom" was the chronic "D" and he said that was all it took. This just doesn't seem right to me.

The colonoscopy will include biopsies so we will see what that brings. I don't understand the negative celiac panel results when I met so many of the symptoms described.

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From what I have read, Chron's can also give you all kinds of trouble. Go for the colonoscopy - it will at the very least rule out a few more things and make you feel better knowing that your colon is ok (hopefully). Sounds like it is doubtful that you have celiac if you bloodwork was negative, but if the colonoscopy comes back fine too, I would push for an endoscopy. By that time they will have either found something out or ruled everything out but food allergies.


Blood work positive

Dx with IBS 5 years ago

Dx with Celiac and gluten-free since 6/17/05

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