Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Teed073193

Need Help With Symptoms And Test Results, Very Confused

Rate this topic

Recommended Posts

I have been tested for Celiac with blood test and endoscopy with biopsy. I have also had a colonoscopy with biospy. I am not sure what the result mean or what to do next can someone help me?

My dad has Crohn's and I have had stomach problems for a long time. Some of my symptoms are abdominal pain, bloating, extreme diarrhea all within mins of eating (not all the time but sometimes, it comes and goes), most always have diarrhea when I drink coffee, orange juice, tea, and grape juice. I also have very low vitamin D. I am very tired all the time do not sleep well (may be because of working swing shifts but never really slept good), I also get very irritable very easily. I have had hives sometimes when I eat, I can have the same thing to eat two days in a row and have hives one day and not the other. I have joint pain in my knees since I was 14 (I am now 36) and now my lower back hurts alot. My Dr said that I have IBS, is that what it is or something else? After reading about celiac I was sure that I had it but the biopsy was negative, how ever the blood test showed only one anitbody positive for celiac.

The Dr said the my small intestines was inflammed. The biopsy did not show any signs of crohn's, colitis, no aphthous ulcers, they also said I did not have celiac. I had inflamed villi in the terminal ileum which the copy of the test results said suggestive of ileitis. What is this and what do I do about it?

blood test results

Gliadin Antibody IgG <3

reference range <11 negative

11-17 equivocal

>17 positive

Gliadin Antibody IgA (high) 25

reference range <11 negative

11-17 equivocal

>17 positive

Endomysical Ab (IgA) screen negative

tTG-IgG Ab: <3

reference range <7 negative

7-10 equivocal

>10 positive

tTG IgA Ab: <3

reference range <5 negative

5-8 equivocal

>8 positive

IgA: 293

reference range 81 to 463

Please help me find out what this is?!

Thanks

Share this post


Link to post
Share on other sites

I have been tested for Celiac with blood test and endoscopy with biopsy. I have also had a colonoscopy with biospy. I am not sure what the result mean or what to do next can someone help me?

My dad has Crohn's and I have had stomach problems for a long time. Some of my symptoms are abdominal pain, bloating, extreme diarrhea all within mins of eating (not all the time but sometimes, it comes and goes), most always have diarrhea when I drink coffee, orange juice, tea, and grape juice. I also have very low vitamin D. I am very tired all the time do not sleep well (may be because of working swing shifts but never really slept good), I also get very irritable very easily. I have had hives sometimes when I eat, I can have the same thing to eat two days in a row and have hives one day and not the other. I have joint pain in my knees since I was 14 (I am now 36) and now my lower back hurts alot. My Dr said that I have IBS, is that what it is or something else? After reading about celiac I was sure that I had it but the biopsy was negative, how ever the blood test showed only one anitbody positive for celiac.

The Dr said the my small intestines was inflammed. The biopsy did not show any signs of crohn's, colitis, no aphthous ulcers, they also said I did not have celiac. I had inflamed villi in the terminal ileum which the copy of the test results said suggestive of ileitis. What is this and what do I do about it?

blood test results

Gliadin Antibody IgG <3

reference range <11 negative

11-17 equivocal

>17 positive

Gliadin Antibody IgA (high) 25

reference range <11 negative

11-17 equivocal

>17 positive

Endomysical Ab (IgA) screen negative

tTG-IgG Ab: <3

reference range <7 negative

7-10 equivocal

>10 positive

tTG IgA Ab: <3

reference range <5 negative

5-8 equivocal

>8 positive

IgA: 293

reference range 81 to 463

Please help me find out what this is?!

Thanks

Share this post


Link to post
Share on other sites

Sorry about the earlier post - I haven't been on the forum for awhile.

I have no idea precisely what is happening with you but I would suggest doing some kind of rotation elimination diet with a food/symptom log to try to get clarity. To start with I seemed to have so many problems that it was hard for me to sort out, like you.

Initially I did a three day elimination diet with subsequent food challenges - that didn't five me any information. Later, I did a two week elimination diet followed by several days of challenges. I can't find the particular protocol that I used but here's a brief link that talks about a general plan.

http://www.askdrsears.com/html/4/T041800.asp

Anyway, I did feel better on the two week elimination phase then started doing challenges - the idea with my particular protocol is that you eat a small amount of the challenge food in the morning, to see if there's a reaction, then a large amount later if there's no reaction. My doctor had me drink a teaspoon of baking soda in a cup of water to help calm any reactions. Well, when I ate wheat I got horribly dizzy and used the baking soda - which seemed to help (I don't know why). Since then I've noted that I do better if I avoid most grains.

So, you might try an elimination diet and see what happens. I hope you are able to get some clarity and feel better.

Jean

Share this post


Link to post
Share on other sites

I believe that the Gliadin antibody being positive is a positive for Celiac. I know of very few Celiacs who have all the 4 indicators positive. I think you should start the gluten free diet, and probably eliminate all the foods that currently bother you in addition to gluten, then after at least 6 months, then challenge those other foods. I betcha you will feel tons better.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 20, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
  • Member Statistics

    • Total Members
      86,777
    • Most Online
      4,125

    Newest Member
    Sdceliac
    Joined
  • Forum Statistics

    • Total Topics
      112,053
    • Total Posts
      956,602
  • Who's Online (See full list)

  • Forum Discussions

    So i recently had a baby and 3 months postpartum I started celery juicing and after juicing my stomach would be in so much pain. So I stopped it for a while and a whole month no pain or issues. I made an apt with a GI doctor to just get my blood work checked everything came back great except the Ema it was 1:20 he said it was strange because all the other Celiac panel test were negative my Ttg and the genetic screening even. So I made an apt with another doctor for second opinion she stated
    I am celiac and eat gluten-free, DF, SF and sunflower free because I'm highly reactive to all 4. I discovered about a year and a half ago that I would have severe and immediate GI reactions, similar to as if I ate dairy, to anything with sunflower/safflower products in it, but I think that's when using the oil became more prevalent too. Strange because I loved sunflower seeds as a kid. I've also linked it to places I've eaten out where everything was fine and then discovered they started using s
So i recently had a baby and 3 months postpartum I started celery juicing and after juicing my stomach would be in so much pain. So I stopped it for a while and a whole month no pain or issues. I made an apt with a GI doctor to just get my blood work checked everything came back great except the Ema it was 1:20 he said it was strange because all the other Celiac panel test were negative my Ttg and the genetic screening even. So I made an apt with another doctor for second opinion she stated that
  • Blog Entries

  • ×
    ×
    • Create New...