0
DoodleDog

About To Give Up On This Diet Because Now I Am Swollen Beyond Belief!

Rate this topic

Recommended Posts

First I have to say I admire all of you and your dedication to gluten free life. It was this forum that made me feel I could try to do this.

I am about ready to give up on this diet I am soooo frustrated. This morning I actually made a list of pros and cons. Of course the pros were much longer with 90% of my symptoms decreasing. But the problem is my belly is swollen to look like 3 months pregnant and no I am not pregnant. I have always been constipated life long but have never had a belly like this consistent for two weeks. I at first thought I was getting gluten but I have gone back to for sure safe foods that are gluten, dairy and soy free and still I am swollen. I am adding no new items. No chance of cross contamination. I even took correctol, had an allergic reaction (throat swelling) and still I am swollen. In addition I have beeen taking Miralax for 7 days and eating a ton of fruits, vegies, beans, water etc... My diet has never been healthier. It's funny that I have lived with IBS (constipated kind)for my whole life, figure out how to treat my constipation with bran, figure out the bran is causing new set problems ie joint and other problems, I yet again adjust my diet by going gluten free and now I am left extreemly uncomforatble with a swollen belly and pressure up to my ribs! Ok I am done venting, thank you for listening. Maybe just writing this is therapy! Any suggestions because I am beginnng to think I have traded my problems for another serious worse problem and my box of raison bran is calling my name!

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I feel exactly the same, and it also makes my emotions swing. I do not understand how I can gain 10lbs when not eating like I used to and feel worse..and this is a new lifestyle change....I feel your pain...hopefully we will learn how to deal with it together! Connie Pridgen, CNC

Share this post


Link to post
Share on other sites

Hi,

Starting the gluten-free diet can be a tough go at first. For some people it involves a complete change in their daily diet. Gluten is a fiber, so removing it means you are getting less fiber. You can add other kinds of fiber to your diet though. Psyillium husks and flax seed meal or both good fibers, and can be added to many foods. Just stir a teaspoon in your foods. Take plenty of water with them too.

Another thing that has helped me in the past with "backups" is sauerkraut. Eat a good size can of sauerkraut and it may help. I don't know if it is the saltiness or what but it does something. Some caffeine might help also.

One thing I think happens when going gluten-free is that your gut bacteria balance changes. And it can take a little while for a new balance to settle in. The pro-biotics may help but many of them have dairy so if you have dairy issues watch out for that.

The diet should get easier after a while. But everything takes time so be patient with your body and yourself. You will learn what works for your body as time goes on. And we are all a little different it seems in our reactions. You might want to try a search on "constipation" and see if there are any other ideas around too.

Share this post


Link to post
Share on other sites

I think sauerkraut is a probiotic as is yogurt (personally I dislike yogurt but love sauerkraut)

Share this post


Link to post
Share on other sites

First I have to say I admire all of you and your dedication to gluten free life. It was this forum that made me feel I could try to do this.

I am about ready to give up on this diet I am soooo frustrated. This morning I actually made a list of pros and cons. Of course the pros were much longer with 90% of my symptoms decreasing. But the problem is my belly is swollen to look like 3 months pregnant and no I am not pregnant. I have always been constipated life long but have never had a belly like this consistent for two weeks. I at first thought I was getting gluten but I have gone back to for sure safe foods that are gluten, dairy and soy free and still I am swollen. I am adding no new items. No chance of cross contamination. I even took correctol, had an allergic reaction (throat swelling) and still I am swollen. In addition I have beeen taking Miralax for 7 days and eating a ton of fruits, vegies, beans, water etc... My diet has never been healthier. It's funny that I have lived with IBS (constipated kind)for my whole life, figure out how to treat my constipation with bran, figure out the bran is causing new set problems ie joint and other problems, I yet again adjust my diet by going gluten free and now I am left extreemly uncomforatble with a swollen belly and pressure up to my ribs! Ok I am done venting, thank you for listening. Maybe just writing this is therapy! Any suggestions because I am beginnng to think I have traded my problems for another serious worse problem and my box of raison bran is calling my name!

Dont give up! I had the same thing happen. I looked like I was going to have a baby at any minute. Here's what I learned:

1. You haven't been digesting things normally for a very long time. Your body "forgets" how to do it right.

2. Now that you've taken the "poison" out of your system, your body can actually realize that things aren't working right and it goes nuts.

3. you may have other intolerances that have shown up only now, because your body has been fighting gluten, and that takes every bit of focus.

This is what I did to get better. Take it or leave it on the food advice, because that is different for everyone:

Take enzymes before and after every meal

Take probiotics every day

Get plenty of fiber from veg and fruit sources

Eliminate problem foods. Mine were: dairy, nuts, seeds, legumes, rice, all grains really, broccoli, cauliflower, nightshades

Once I did that, the gas pains and being blown up like a balloon stopped.

Hang in there. PM me if I can help.

Janie

Share this post


Link to post
Share on other sites
Ads by Google:


I hate to break it to you, but while miralax says that it's gluten free, it still isn't safe for those allergic to wheat--therefore, you might still be doing damage to your system. (Sometimes, something has less than 20 parts per million, so the company can say it's gluten free, even if there's still gluten in it.)

And I want reiterate what others have said--I never swelled, but I did have exhaustion to a frightening degree once I committed to being gluten free. And it took awhile for me to feel good again; it's been months, and I'm still getting better slowly. Damage, unfortunately, sometimes has to be fixed the same way it was accrued: slowly.

Share this post


Link to post
Share on other sites

When you changed to a gluten-free diet did you greatly increase the amount of fruits and veggies and beans that you are eating? If they were increased suddenly your body may be having a hard time adjusting. Are you cooking your veggies and fruits? That may help to make them easier to digest. You could also be reacting to CC as once we get the big load of gluten out of our systems we often will react to tiny amounts. If you haven't eliminated gluten from your toiletries, craft supplies etc that could contribute to bloating also. Hang in there, with the improvement you have seen the diet is obviously helping so don't give up on it. Also you may find if you do try to give up on the diet your symptoms that have resolved will come back with a great intensity. It will get better in time.

Share this post


Link to post
Share on other sites

I hate to break it to you, but while miralax says that it's gluten free, it still isn't safe for those allergic to wheat--therefore, you might still be doing damage to your system. (Sometimes, something has less than 20 parts per million, so the company can say it's gluten free, even if there's still gluten in it.)

I was wondering about the safety of Miralax for us also. In addition do make sure that all meds, script and OTC are checked for gluten statis. There are no requirements that gluten be acknowledged in labels for drugs and supplements and in additon if a supplement contains wheat or barley grass they can call it gluten free but they really aren't.

Share this post


Link to post
Share on other sites

How can I say thank you from the bottom of my heart? Thank you so much. Just knowing that what I am going through has happened to others is huge for me. I have been so worried that I have made things worse but your comments make sense. But I am also worried... do I need a doctor to do this correct? For example I did not know that rice could be a problem.

Also If miralax is no good what about mineral oil? I have searched this site for ideas but have not come up with anything excepet for bulking up on veg, water, citracel, and etc...

FYI I am going out tomorrow to find a can of sauerkraut!

Share this post


Link to post
Share on other sites

first, make sure you drink LOTS AND LOTS OF WATER, eat flax meal, coconut oil, probiotics, and take a magnesium supplement.

All the extra fruit and veggies that you're eating could be irritating your IBS if you're eating mostly raw. Cook the veggies, and go light on the fruits for a while. Limit cruciferous veggies as well (broccoli, cauliflower, cabbage, and the like) as they have a tendency to add to gas and bloating problems. And cook them well when you do have them.

Rice always added to my constipation. Refined white rice really isn't much fibre, it's all been washed off. Bananas can also add to constipation, as can Pepto-Bismol (and other bismuth stomach upset remedies).

Share this post


Link to post
Share on other sites


Ads by Google:


I wanted to chime in as another newbie, saying that I felt the same way. In fact, I also posted on here about not understanding feeling worse at first. I really do think there is much to the idea that your system is adjusting. I had terrible bloating and gas pains. They lasted for about the first 3 weeks. I'm happy to report that they have been gone for a few days now. In addition to the good advice given, I'd say time is so helpful, not overcommiting yourself to other things during this transition. Hope you feel better soon!

Share this post


Link to post
Share on other sites

first, make sure you drink LOTS AND LOTS OF WATER, eat flax meal, coconut oil, probiotics, and take a magnesium supplement.

All the extra fruit and veggies that you're eating could be irritating your IBS if you're eating mostly raw. Cook the veggies, and go light on the fruits for a while. Limit cruciferous veggies as well (broccoli, cauliflower, cabbage, and the like) as they have a tendency to add to gas and bloating problems. And cook them well when you do have them.

Rice always added to my constipation. Refined white rice really isn't much fibre, it's all been washed off. Bananas can also add to constipation, as can Pepto-Bismol (and other bismuth stomach upset remedies).

Ok, I was told rice was good, I eat white or brown rice or rice noodles, rice crackers...and I have always eating salads and steamed vegetables for 20+ years without problem for example, last nights dinner did not affect me it was steamed zucchini, mushrooms, summer squash, chicken with coconut oil served over brown rice with a side salad with omega oil and apple cider vinegar and goat cheese..enzymes before and after and no problems....but I am eating bananas because they are portable to eat, as well as grapefruits..constipation is my problem and of course malabsorption when I thought I was doing soo well..this forum is helpful and educational..thank you...

Share this post


Link to post
Share on other sites

How can I say thank you from the bottom of my heart? Thank you so much. Just knowing that what I am going through has happened to others is huge for me. I have been so worried that I have made things worse but your comments make sense. But I am also worried... do I need a doctor to do this correct? For example I did not know that rice could be a problem.

Also If miralax is no good what about mineral oil? I have searched this site for ideas but have not come up with anything excepet for bulking up on veg, water, citracel, and etc...

FYI I am going out tomorrow to find a can of sauerkraut!

Rice isn't a problem for everyone--so you should experiment to see if that's one of your issues.

As for Miralax substitutes, one thread suggested benefiber. (I did a simple google search on miralax; it would probably be wise to do the same on benefiber. I'm too wiped today to do it for you.)

Share this post


Link to post
Share on other sites

I second the suggestion of magnesium supplementation. It's the same idea behind Milk of Magnesia. This vital mineral will relieve constipation, and it is quite safe. It also plays a vital role in many other bodily processes. Magnesium deficiency happens to be one of the most common amongst Celiac sufferers. Just start with a small dose, and work up over a period of several days, to find the right dose for you. There are several forms to choose from, with varying degrees of effectiveness at relieving constipation. Some experimentation will help you find one which works best for you.

Share this post


Link to post
Share on other sites

Thanks again everyone. I have taken many suggestions, cut out everything except for meat, vegies and fruit. Don't even miss my yummy food. The fruit I am eating is apples and pears baked in the oven. Vegies which include celery, carrots, peas, onions so far and I am cooking before I eat except for salad...that I am cutting up fine. I also am eating apple sauce with flax seed. This is a very boring diet but when you are so bloated it doesn't matter. I started some enzymes yesterday and just got a probiotic today. I am still bloated and have a lumpy belly today after eating but I see a nice improvement, actually this morning my belly was looking somewhat normal before I ate (go figure I should have eaten before seeing the doctor this morning!). I feel very hopeful even though I am still uncomfortable. Anyway, OB doctor wants me to do an ultrasound soon, see a GI and Rheumatologist. He suggested my problems could be celiac among other things and when I told him it was to late for me to get tested he said there are blood tests the GI can do that wont be affected by my giving up gluten. Is that correct? Because I am not about to put gluten back in my body and go through all of this again. I also fear the cost factor involved with all of this just to have everyone tell me nothing is wrong.

Share this post


Link to post
Share on other sites

Many people say that the blood test can show false negatives, but by not eating gluten you will increase the chances of a false negative. If you are feeling better just stick with it, unless you feel that you need an official diagnosis for other reasons. If you still seek to have official diagnosis I have read that many people are diagnosed simply by proving that the diet has improved their health, regardless of what the blood test or biopsy reports show. That maybe something you can discuss with your GI when you see them.

Good Luck!!

Share this post


Link to post
Share on other sites

Thanks again everyone. I have taken many suggestions, cut out everything except for meat, vegies and fruit. Don't even miss my yummy food. The fruit I am eating is apples and pears baked in the oven. Vegies which include celery, carrots, peas, onions so far and I am cooking before I eat except for salad...that I am cutting up fine. I also am eating apple sauce with flax seed. This is a very boring diet but when you are so bloated it doesn't matter. I started some enzymes yesterday and just got a probiotic today. I am still bloated and have a lumpy belly today after eating but I see a nice improvement, actually this morning my belly was looking somewhat normal before I ate (go figure I should have eaten before seeing the doctor this morning!). I feel very hopeful even though I am still uncomfortable. Anyway, OB doctor wants me to do an ultrasound soon, see a GI and Rheumatologist. He suggested my problems could be celiac among other things and when I told him it was to late for me to get tested he said there are blood tests the GI can do that wont be affected by my giving up gluten. Is that correct? Because I am not about to put gluten back in my body and go through all of this again. I also fear the cost factor involved with all of this just to have everyone tell me nothing is wrong.

Interesting, I was told once I went off of gluten you couldn't have a blood test. I have been gluten-free for 2 months now and feel great. I can tell when I have been glutened. Introducing broccoli back into my diet has given me gas but not bad. Diagnosed with IBS 10 yrs ago I am enjoying all the foods that I had cut out before. I have bloating every once in a while but I am also suffering from pain since surgery 3 months ago. My suggestion is to keep on with the diet and try different things. I have notice that what works for one doesn't always work for the other. Good luck on this journey..

Share this post


Link to post
Share on other sites

That is not correct. If you are gluten free, the tests will not be accurate. Even a few days off gluten can cause a negative result.

Share this post


Link to post
Share on other sites

Have you ever looked at this?

Fructose Malabsorption

It's a condition that can be caused by whole grains, fruits, veggies, beans, etc... And it seems more likely to develop in people who have had previous gut issues. Both gut symptoms and mood symptoms can be present. And there are varying levels of it, so it can be mild or severe.

Diet correction is needed to correct this, as well....it's just eating certain veggies and fruits instead of ones that have a higher fructose load, eating more refined flours, etc... Oh, and typically, no yogurt or probiotics, as these actually make the condition worse, typically. (bacteria in the gut consume excess fructose and cause the problems, so more bacteria = worse reaction).

Don't know that this would be it, but I figure it probably couldn't hurt to check it out, eh?

First I have to say I admire all of you and your dedication to gluten free life. It was this forum that made me feel I could try to do this.

I am about ready to give up on this diet I am soooo frustrated. This morning I actually made a list of pros and cons. Of course the pros were much longer with 90% of my symptoms decreasing. But the problem is my belly is swollen to look like 3 months pregnant and no I am not pregnant. I have always been constipated life long but have never had a belly like this consistent for two weeks. I at first thought I was getting gluten but I have gone back to for sure safe foods that are gluten, dairy and soy free and still I am swollen. I am adding no new items. No chance of cross contamination. I even took correctol, had an allergic reaction (throat swelling) and still I am swollen. In addition I have beeen taking Miralax for 7 days and eating a ton of fruits, vegies, beans, water etc... My diet has never been healthier. It's funny that I have lived with IBS (constipated kind)for my whole life, figure out how to treat my constipation with bran, figure out the bran is causing new set problems ie joint and other problems, I yet again adjust my diet by going gluten free and now I am left extreemly uncomforatble with a swollen belly and pressure up to my ribs! Ok I am done venting, thank you for listening. Maybe just writing this is therapy! Any suggestions because I am beginnng to think I have traded my problems for another serious worse problem and my box of raison bran is calling my name!

Share this post


Link to post
Share on other sites

Thanks again everyone. I have taken many suggestions, cut out everything except for meat, vegies and fruit. Don't even miss my yummy food. The fruit I am eating is apples and pears baked in the oven. Vegies which include celery, carrots, peas, onions so far and I am cooking before I eat except for salad...that I am cutting up fine. I also am eating apple sauce with flax seed. This is a very boring diet but when you are so bloated it doesn't matter. I started some enzymes yesterday and just got a probiotic today. I am still bloated and have a lumpy belly today after eating but I see a nice improvement, actually this morning my belly was looking somewhat normal before I ate (go figure I should have eaten before seeing the doctor this morning!). I feel very hopeful even though I am still uncomfortable. Anyway, OB doctor wants me to do an ultrasound soon, see a GI and Rheumatologist. He suggested my problems could be celiac among other things and when I told him it was to late for me to get tested he said there are blood tests the GI can do that wont be affected by my giving up gluten. Is that correct? Because I am not about to put gluten back in my body and go through all of this again. I also fear the cost factor involved with all of this just to have everyone tell me nothing is wrong.

Share this post


Link to post
Share on other sites


Ads by Google:


Hi,have you ever heard of The Beverly Hills Diet, from the 1980s? The premise is that fruits will only digest with certain enzymes, veggies take different enzymes, and proteins take altogether different enzymes. Therefore, eating one fruit at a time, as much as you want, then waiting two hours to switch to another fruit or food, will speed up your digestion. Once you quit fruits, don't go back until the next day.

Low starch veggies will digest well with rice, beans, soy, etc. and with proteins, but the rice, beans & soy and high starch veggies take different enzymes than the protein, so mixing them will probably cause problems.

It is quite an easy combination to remember once you use this system awhile, and it means that your food digests easily and moves through your system more quickly. Weight loss, of course, could be a result, so if you're trying to GAIN weight, do just the opposite. Here is the concept:

1. Eat fruit first thing in the morning, and wait 2 hours before switching to another fruit. Pineapples, strawberries, papaya, mangoes, kiwi, etc. are great for digestion. You can eat fruit all day if you want.

2. Once you switch to veggies or other foods, don't go back to fruits. You can eat a variety of veggies together, but don't mix high starch veggies (corn, potatoes, rice, beans, lentils, etc.) with protein. Green salads & low starch veggies mix with protein and allow the foods to digest more quickly.

I now eat fruit until noon, then have a day of veggies (both low & high starch, along with beans, rice, lentils, etc.). Another day I will eat fruit, then have a day of low starch veggies with protein. Alternating gives me variety and it becomes easy to do, especially when the food digests and you feel better. Hope this helps. Welda

Share this post


Link to post
Share on other sites

I read somewhere that a nice warm epsom salt bath was rather effective at getting things... ahem... moving.

Share this post


Link to post
Share on other sites

Thanks again everyone. I have taken many suggestions, cut out everything except for meat, vegies and fruit. Don't even miss my yummy food. The fruit I am eating is apples and pears baked in the oven. Vegies which include celery, carrots, peas, onions so far and I am cooking before I eat except for salad...that I am cutting up fine. I also am eating apple sauce with flax seed. This is a very boring diet but when you are so bloated it doesn't matter. I started some enzymes yesterday and just got a probiotic today. I am still bloated and have a lumpy belly today after eating but I see a nice improvement, actually this morning my belly was looking somewhat normal before I ate (go figure I should have eaten before seeing the doctor this morning!). I feel very hopeful even though I am still uncomfortable. Anyway, OB doctor wants me to do an ultrasound soon, see a GI and Rheumatologist. He suggested my problems could be celiac among other things and when I told him it was to late for me to get tested he said there are blood tests the GI can do that wont be affected by my giving up gluten. Is that correct? Because I am not about to put gluten back in my body and go through all of this again. I also fear the cost factor involved with all of this just to have everyone tell me nothing is wrong.

the only test that isn't messed up by going gluten free is the genetic test- however 30% of people will test positive for this adn only 1-4% will actually have or develop celiac. Unfortunately the test captures even the people who are gluten sensitve (like people with lupus and MS). However, if it comes back negative, it is 99.9 % sure you won't have a gluten issue- so that is the good part. The other negative is that the test isnt always covered by insurance / or the lab that does it isn't- and it can be costly. I know just what you mean though- I'm 14 weeks into this and no change yet- celiac can mimic ms and lupus too-which they think I have but they had me do a gluten free trial to be sure and 14 weeks of no change! I had the constipation as well and bought a multiseed gluten free bread from a local bakery but got major gas.. magnesium and prune juice are good! Adn my doc told me the same thing- that all the starches are constipating!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Who's Online   12 Members, 1 Anonymous, 349 Guests (See full list)

  • Top Posters +

  • Recent Articles

    Jefferson Adams
    Celiac.com 06/23/2018 - If you’re looking for a great gluten-free Mexican-style favorite that is sure to be a big hit at dinner or at your next potluck, try these green chili enchiladas with roasted cauliflower. The recipe calls for chicken, but they are just as delicious when made vegetarian using just the roasted cauliflower. Either way, these enchiladas will disappear fast. Roasted cauliflower gives these green chili chicken enchiladas a deep, smokey flavor that diners are sure to love.
    Ingredients:
    2 cans gluten-free green chili enchilada sauce (I use Hatch brand) 1 small head cauliflower, roasted and chopped 6 ounces chicken meat, browned ½ cup cotija cheese, crumbled ½ cup queso fresco, diced 1 medium onion, diced ⅓ cup green onions, minced ¼ cup radishes, sliced 1 tablespoon cooking oil 1 cup chopped cabbage, for serving ½ cup sliced cherry or grape tomatoes, for serving ¼ cup cilantro, chopped 1 dozen fresh corn tortillas  ⅔ cup oil, for softening tortillas 1 large avocado, cut into small chunks Note: For a tasty vegetarian version, just omit the chicken, double the roasted cauliflower, and prepare according to directions.
    Directions:
    Heat 1 tablespoon oil in a cast iron or ovenproof pan until hot.
    Add chicken and brown lightly on both sides. 
    Remove chicken to paper towels to cool.
     
    Cut cauliflower into small pieces and place in the oiled pan.
    Roast in oven at 350F until browned on both sides.
    Remove from the oven when tender. 
    Allow roasted cauliflower to cool.
    Chop cauliflower, or break into small pieces and set aside.
    Chop cooled chicken and set aside.
    Heat 1 inch of cooking oil in a small frying pan.
    When oil is hot, use a spatula to submerge a tortilla in the oil and leave only long enough to soften, about 10 seconds or so. 
    Remove soft tortilla to a paper towel and repeat with remaining tortillas.
    Pour enough enchilada sauce to coat the bottom of a large casserole pan.
    Dunk a tortilla into the sauce and cover both sides. Add more sauce as needed.
    Fill each tortilla with bits of chicken, cauliflower, onion, and queso fresco, and roll into shape.
    When pan is full of rolled enchiladas, top with remaining sauce.
    Cook at 350F until sauce bubbles.
    Remove and top with fresh cotija cheese and scallions.
    Serve with rice, beans, and cabbage, and garnish with avocado, cilantro, and sliced grape tomatoes.

     

    Roxanne Bracknell
    Celiac.com 06/22/2018 - The rise of food allergies means that many people are avoiding gluten in recent times. In fact, the number of Americans who have stopped eating gluten has tripled in eight years between 2009 and 2017.
    Whatever your rationale for avoiding gluten, whether its celiac disease, a sensitivity to the protein, or any other reason, it can be really hard to find suitable places to eat out. When you’re on holiday in a new and unknown environment, this can be near impossible. As awareness of celiac disease grows around the world, however, more and more cities are opening their doors to gluten-free lifestyles, none more so than the 10 locations on the list below.
    Perhaps unsurprisingly, the U.S is a hotbed of gluten-free options, with four cities making the top 10, as well as the Hawaiian island of Maui. Chicago, in particular, is a real haven of gluten-free fare, with 240 coeliac-safe eateries throughout this huge city. The super hip city of Portland also ranks highly on this list, with the capital of counterculture rich in gluten-free cuisine, with San Francisco and Denver also included. Outside of the states, several prominent European capitals also rank very highly on the list, including Prague, the picturesque and historic capital of the Czech Republic, which boasts the best-reviewed restaurants on this list.
    The Irish capital of Dublin, meanwhile, has the most gluten-free establishments, with a huge 330 to choose from, while Amsterdam and Barcelona also feature prominently thanks to their variety of top-notch gluten-free fodder.
    Finally, a special mention must go to Auckland, the sole representative of Australasia in this list, with the largest city in New Zealand rounding out the top 10 thanks to its 180 coeliacsafe eateries.
    The full top ten gluten-free cities are shown in the graphic below:
     

    Jefferson Adams
    Celiac.com 06/21/2018 - Would you buy a house advertised as ‘gluten-free’? Yes, there really is such a house for sale. 
    It seems a Phoenix realtor Mike D’Elena is hoping that his trendy claim will catch the eye of a buyer hungry to avoid gluten, or, at least one with a sense of humor. D’Elena said he crafted the ads as a way to “be funny and to draw attention.” The idea, D’Elena said, is to “make it memorable.” 
    Though D’Elena’s marketing seeks to capitalizes on the gluten-free trend, he knows Celiac disease is a serious health issue for some people. “[W]e’re not here to offend anybody….this is just something we're just trying to do to draw attention and do what's best for our clients," he said. 
    Still, the signs seem to be working. D'elena had fielded six offers within a few days of listing the west Phoenix home.
    "Buying can sometimes be the most stressful thing you do in your entire life so why not have some fun with it," he said. 
    What do you think? Clever? Funny?
    Read more at Arizonafamily.com.

    Advertising Banner-Ads
    Bakery On Main started in the small bakery of a natural foods market on Main Street in Glastonbury, Connecticut. Founder Michael Smulders listened when his customers with Celiac Disease would mention the lack of good tasting, gluten-free options available to them. Upon learning this, he believed that nobody should have to suffer due to any kind of food allergy or dietary need. From then on, his mission became creating delicious and fearlessly unique gluten-free products that were clean and great tasting, while still being safe for his Celiac customers!
    Premium ingredients, bakeshop delicious recipes, and happy customers were our inspiration from the beginning— and are still the cornerstones of Bakery On Main today. We are a fiercely ethical company that believes in integrity and feels that happiness and wholesome, great tasting food should be harmonious. We strive for that in everything we bake in our dedicated gluten-free facility that is GFCO Certified and SQF Level 3 Certified. We use only natural, NON-GMO Project Verified ingredients and all of our products are certified Kosher Parve, dairy and casein free, and we have recently introduced certified Organic items as well! 
    Our passion is to bake the very best products while bringing happiness to our customers, each other, and all those we meet!
    We are available during normal business hours at: 1-888-533-8118 EST.
    To learn more about us at: visit our site.

    Jefferson Adams
    Celiac.com 06/20/2018 - Currently, the only way to manage celiac disease is to eliminate gluten from the diet. That could be set to change as clinical trials begin in Australia for a new vaccine that aims to switch off the immune response to gluten. 
    The trials are set to begin at Australia’s University of the Sunshine Coast Clinical Trials Centre. The vaccine is designed to allow people with celiac disease to consume gluten with no adverse effects. A successful vaccine could be the beginning of the end for the gluten-free diet as the only currently viable treatment for celiac disease. That could be a massive breakthrough for people with celiac disease.
    USC’s Clinical Trials Centre Director Lucas Litewka said trial participants would receive an injection of the vaccine twice a week for seven weeks. The trials will be conducted alongside gastroenterologist Dr. James Daveson, who called the vaccine “a very exciting potential new therapy that has been undergoing clinical trials for several years now.”
    Dr. Daveson said the investigational vaccine might potentially restore gluten tolerance to people with celiac disease.The trial is open to adults between the ages of 18 and 70 who have clinically diagnosed celiac disease, and have followed a strict gluten-free diet for at least 12 months. Anyone interested in participating can go to www.joinourtrials.com.
    Read more at the website for Australia’s University of the Sunshine Coast Clinical Trials Centre.

    Source:
    FoodProcessing.com.au

  • Forum Statistics

    • Total Topics
      110,276
    • Total Posts
      949,865
  • Member Statistics

    • Total Members
      77,901
    • Most Online
      3,093

    Newest Member
    Wheat deprived
    Joined
  • Popular Now

  • Topics

  • Posts

    • Posterboy, thank you sooooo much. I can’t tell you how greatful I am for your long and detailed answer. I have many additional questions (I asked you few more additional questions in my other post about celiac and reflux) I am just trying to find my underlying condition. I am afraid I’ll have to stay with ppi for two additional months, since I have esophagitis grade b, confirmed with biopsy a week ago. It was first time that I have inflamed esophagus. Last endoscopies showed only nonfunctional LES. I think this inflamarion is because od a panic attack after drinking coffee with a lot of sugar and nausea after that. Some coffees make me sick and some don’t. I would just like to find out what relaxes my LES and what is my underlying condition.  Ppis obviously don’t help, since my problema with bloating and gases and reflux are continuing. Please if you have any additional idea what could it be, tell me!!! Best, aya
    • Oh, wow, thanks, I was told by my doctor that I had the "full" panel but I guess not. Unfortunately I have the type of insurance that means I have to see her again before I can do anything else and she is out on vacation until July 10 so there is almost no point in trying to make another appointment before the specialist one. I doubt urgent care would do it?
    • Thank you all for your help!!! It’s a bit clearer now.  I had problems with gases and bloating and reflux a year ago and doc prescribed Lansoprazol. He said my lower esophageal sphiincter doesn’ t work properly.  I was taking lansoprazol 30mg for half a year with huge problems with nausea and even more bloating. Than I lowered the dose to 15 for next half a year and felt better and than stopped taking them. I’ve been off for a months when I started noticing numb tongue and reflux again. So I started taking ppi again. And it’s worse again. I know I have to stop using ppi, but I think I have underlying condition that is making my bloating and reflux and I have to solve it first so that reflux, which is my biggest concern, will go away. I have been anemic long years before taking ppi, now I have low vitamin d, and quite high result IGA 16 (celiac is >20). Can be reason for low vitamin d in ppi too or is more likely because of celiac? Doctors don’t want to make any additional test because they say celiac disease can’t be the reason since this test is negative. And so I am still searching what could be my primary problem. They just want to operate my LES and that’s it for them. But I know this won’t solve my problem since the reason has to be somewhere else. The problem is that the highest dose of lansoprazole is helping me for 12 hours and not 24 like it should. It’s just making my nausea worse and doesn’t help like it should I get bloated with reflux gases, burping 1 hour after eating. My last meal of the day is at 8 p.m. And the worst reflux attac is usually around midnight and 1 a.m. Aya
    • The full celiac panel includes: TTG IGA
      TTG IGG
      DGP IGA
      DGP IGG
      EMA
      IGA A positive on any one blood test should lead to a gastroenterologist doing an endoscopy /biopsies to see if you have celiac. It looks like you are missing the DGP tests. Perhaps you can get them done while you are waiting for your gastro appointment. You could possibly have a more definitive result from them.  
    • Hi everyone, I'm currently in the process of getting tested for celiac and have been so stressed about it, it would be amazing to hear from other people who have gone through a similar process to mine. Does this sound like Celiac? Sorry in advance for the following novel! Basic backstory: I went from ages 10-22 without seeing a medical doctor except in emergencies due to being poor. I'm 23 now, and just recently (in February) got health insurance for the first time in my life ever. I always thought I had IBS (frequent diarrhea) which made sense because I was pretty severely abused as a child and would often have to have diarrhea after experiencing those "episodes." My girlfriend's parents paid for me to see a therapist and psychiatrist beginning at age 20 when I was severely depressed and anxious, and they thought it was IBS too. I'm no longer seeing the therapist but wish I was now that this is a problem. The diarrhea details (lmao sorry): I almost never get diarrhea anymore because I was convinced it was IBS and started eating more slowly, taking care to not eat heavy meals when anxious, moving around less after eating, and cutting out dairy and red meat. I will occasionally get diarrhea for no known reason but who knows? It goes like this when I do have it: somewhat sudden pain in my lower abdomen, same area as period cramps. In fact I often mistake the two. I have diarrhea (a lot...), then the pain vanishes. No other stomach or abdominal pains. I never get abdominal pain without diarrhea, and I never continue to feel ill after having diarrhea. I also had a scary incident last August (2017) where I noticed a um...clear stringy substance in my stool. I thought it was a tapeworm, went running panicking to urgent care and gave them a stool sample. They ran a full culture on it (took two weeks) and it was negative. I insisted on doing a second test and it was negative again. So the urgent care doctor said it was probably mucus in my stool. I got the full celiac blood work panel a few weeks ago and all my vitamins, minerals, nutrients etc. were perfect. So I am absorbing my nutrients well enough. BUT the metabolic Celiac test was iffy. I got one "weak positive." I will copy in my test results, excluding the vitamins/nutrients bits. It definitely seems to me that it indicates Celiac but my primary care doctor said she would "interpret it as negative." However she gave me a referral to a gastro specialist who I have an appointment with on July 13. It will be an initial consultation; I can't get an endoscopy unless that specialist agrees to it. So the actual endoscopy may not happen until late July or even August, September... Full list of symptoms: Diarrhea, persistent rash on my chest (little red bumps, always flares up when taking a hot shower or getting extremely anxious--went to a dermatologist for this when I was 9 and he just said it would go away but it never did), occasional small mouth ulcer (haven't had one in about a year and a half), and often feeling fatigued and irritable. I also feel very cold easily, much more easily than the average person. I've also ruled out the following with previous tests: anemia, diabetes, and thyroid issues. Basically every blood test I've ever done has come out perfect until this one weak positive! I should also note here that I have a second cousin with Celiac (my mother's first cousin). I can accept it if it's Celiac. In fact I hope it is because I would love to do away with diarrhea and the rash!!! My BIG fear is that it's Chrohns instead. But I have never had any bleeding in that region. Overall Celiac Disease Panel results (all results just said "normal"): WBC, RBC, Hemoglobin, Hematocrit, MCV, MCH, MCHC, Neutrophils, Immature Granulocytes, Lymphs, Monocytes, Eos, Basos, Platelets, Neutrophils (Absolute), Immature Grans (Abs), Lymphs (Absolute), Monocytes (Absolute), Eos (Absolute), Baso (Absolute), RDW. Metabolic Celiac Test results attached as an image... Thanks all. x Edit: Forgot to mention that I am currently still eating plenty of gluten, and even have been known to eat an entire baguette by myself in one sitting haha. I do not get diarrhea after this. If my diarrhea is connected to gluten, it's certainly very delayed.  
  • Blog Entries

  • Upcoming Events