Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Rate this topic

Recommended Posts

I just had spinal fusion done, and had an interesting conversation with the anesthesiologist. He said that celiacs do not absorb medications properly. He told me that it makes a tremendous difference in how he preps a person for surgery, since swallowed medicines, even glutenfree, would not work at a properly measurable level. He switched me from swallowed meds for surgery to injections.

I use oral meds for pain and such now, but he said the dosage for surgery had to be exact, and even a healed celiac would not absorb oral meds for something so vital properly. It was interesting to hear about my intestinal issues from the guy that was telling me to breathe deep and count backwards from ten!

I hope my post makes sense. I'm not sure if my spelling is correct or if I worded it correctly.

Share this post


Link to post
Share on other sites

I just had spinal fusion done, and had an interesting conversation with the anesthesiologist. He said that celiacs do not absorb medications properly. He told me that it makes a tremendous difference in how he preps a person for surgery, since swallowed medicines, even glutenfree, would not work at a properly measurable level. He switched me from swallowed meds for surgery to injections.

I use oral meds for pain and such now, but he said the dosage for surgery had to be exact, and even a healed celiac would not absorb oral meds for something so vital properly. It was interesting to hear about my intestinal issues from the guy that was telling me to breathe deep and count backwards from ten!

I hope my post makes sense. I'm not sure if my spelling is correct or if I worded it correctly.

Hi Dessa - Good to see you again.

My bolded, of the quote surprised me. I would like to learn more about "healed" people with Celiac,not being able to absorb crucial meds.

I would have thought, that once healed, the Celiac Disease would be in total remission, unless gluten was re-introduced.

In the case of severe damage, extended damage or refractory sprue, it would make sense that healing would be hindered.

Thanks for posting this.

Share this post


Link to post
Share on other sites

This makes little sense. If we start absorbing foods and other things properly, why not meds?

richard

richard! Sometimes you're like a bull in a china shop! :blink::rolleyes::P

But, I do tend to agree.

Share this post


Link to post
Share on other sites

That's what I thought was interesting. I always thought that, once healed and always glutenfree, I would be just like everyone else. According to him and my PCP, the simple fact of having celiac marks me as having a compromised intestinal tract. They both said that they do not trust a celiac intestine to ever absorb anything properly, since the possibility of gluten contamination always exists. They cannot test to see if I have been contaminated or am lying about being careful of my diet, so they always assume that the absorption ability is compromised.

For things like vitamins and my lexapro, they said it is not an issue. But for surgery, the anesthesiologist has to be absolutely certain that I get enough of the medicine. It sounds to me like they take a better-safe-than-sorry view, since they are able to provide the necessary drugs by iv.

I like being safe, so I am quite willing to go along with them on this issue. I do not want to find myself conscious or feeling pain during surgery!

Thanks for the welcome back! Life has been busy for me, including the addition of a new grandson. I hope to have time again to post!

Share this post


Link to post
Share on other sites

They cannot test to see if I have been contaminated or am lying about being careful of my diet, so they always assume that the absorbtion ability is compromised.

That makes sense to me--in this case, it's better to be safe than sorry.

Welcome back, Dessa :)

Share this post


Link to post
Share on other sites

In that context, it does make total sense. They cannot document full (voluntary) compliance with the diet, when crucial/life saving measures are warranted. Ah, life is complicated, isn't it???

Yes, I understand.

BTW - As a new grandmother, your babies are beautiful.

Share this post


Link to post
Share on other sites

Glad you guys posted this as i'm schedule for surgery on the 12th. I told them all I'm celiac and they said Oh yeah we know -- no problem -- something I've hear way too often at questionable restaurants.

So regardless -- I think i'll bring it up just to pressure them into double checking things...

In that context, it does make total sense. They cannot document full (voluntary) compliance with the diet, when crucial/life saving measures are warranted. Ah, life is complicated, isn't it???

Yes, I understand.

BTW - As a new grandmother, your babies are beautiful.

Share this post


Link to post
Share on other sites

This makes little sense. If we start absorbing foods and other things properly, why not meds?

richard

Well....here goes the other bull in a china shop!

I agree, Richard, that it makes no sense. I had minor surgery in November and the meds they gave me knocked me on my butt and did everything they were supposed to do. They were oral meds. I have also taken antibiotics since I have healed and they worked very well.

I think what a doctor has to do is grill a patient on how compliant they are and see if there are other associated issues which haven't calmed down. Anyone following a gluten-free diet should see some improvement if they are following the diet as they should. Plus, most meds given in surgery to put you to sleep are given through an IV and that takes care of the problem. You will not have absorption problems with IV meds.

A physician does need to know if you have Celiac but, unless you cheat or don't follow the diet,

it shouldn't make any more difference than someone without Celiac. If the crappy American diet that most people eat doesn't affect their surgery, it shouldn't be a problem for us.

Share this post


Link to post
Share on other sites

They both said that they do not trust a celiac intestine to ever absorb anything properly, since the possibility of gluten contamination always exists. They cannot test to see if I have been contaminated or am lying about being careful of my diet, so they always assume that the absorption ability is compromised.

I think what it boils down to is that doctors figure we will cheat on our diet like many do on other medically needed dietary regimes. I don't think many of them 'get' the severe repercussions that many have from eating gluten. It just isn't a diet that we can simply drop for a day because a yummy chocolate cake is near like someone who is restricting calories. When 'cheating' makes you deathly ill for days or weeks it is not something one does.

My GI doctor asked me before my last procedures how often I cheat. When I told him never he said 'well most people do'. Personally I don't think so but I didn't contradict him.

Share this post


Link to post
Share on other sites

IU see some messages form time to time about cheating and I just cant imagine it.

Purposely putting ourselves into a painful situation like that just doesn't compute.

I think what it boils down to is that doctors figure we will cheat on our diet like many do on other medically needed dietary regimes. I don't think many of them 'get' the severe repercussions that many have from eating gluten. It just isn't a diet that we can simply drop for a day because a yummy chocolate cake is near like someone who is restricting calories. When 'cheating' makes you deathly ill for days or weeks it is not something one does.

My GI doctor asked me before my last procedures how often I cheat. When I told him never he said 'well most people do'. Personally I don't think so but I didn't contradict him.

Share this post


Link to post
Share on other sites

IU see some messages form time to time about cheating and I just cant imagine it.

Purposely putting ourselves into a painful situation like that just doesn't compute.

I agree. Even a tiny slip causes me extreme pain and emotional disturbance. My sister is non-insulin dependent diabetic, and she always cheats on her diet. It makes her sick, but she doesn't care. I use her behavior as an example of why the doc I had chose the methods he did.

Share this post


Link to post
Share on other sites

When I first was giving the possible diagnosis I called a friend because I was so upset. She told me that I could cheat and just have a little discomfort, because that is what another friend of her's did. So there are people out there who cheat. After going gluten free I would never intentionally eat gluten. But I think a lot of people (who don't know what it is really like) think that people can cheat with little consequence. So it would make sense that doctors wouldn't trust that people are gluten free since there are people out there who cheat, they can't know for sure.

Share this post


Link to post
Share on other sites

I can't imagine cheating. Why the heck would I deliberately send myself writhing in pain on the floor for a few moments pleasure of food? That makes all kinds of No Sense!

That said, I've had so many surgeries prior to my diagnosis, I'm now seriously considering having "Celiac" tattoo'd on the inside of one of my wrists, just in case I'm in a car crash or something and they try to feed me that liquid food stuff down my nose. :blink::lol:

Share this post


Link to post
Share on other sites

That said, I've had so many surgeries prior to my diagnosis, I'm now seriously considering having "Celiac" tattoo'd on the inside of one of my wrists, just in case I'm in a car crash or something and they try to feed me that liquid food stuff down my nose. :blink::lol:

If that were the case, I would think that having Celiac Disease would be the least of your worries!

Share this post


Link to post
Share on other sites

Remember, not all people with Celiac has pain and discomfort when exposed to gluten.

This is true, Lisa, very true. My first symptom of being glutened with wheat is sinus congestion. That's all, just sinus congestion. The other symptoms don't hit until a week later. With barley, however, the pain and diarrhea start within an hour. I have also heard that some celiacs can consume small amounts of gluten every now and then without getting sick. My concern is that they still damage their intestines, which is what the doctor and anesthesiologist were concerned about.

I don't cheat on this diet, but I appreciate them taking it seriously.

Share this post


Link to post
Share on other sites

well sure, but who wants to have bloated pain in the guts when you've got a breathing tube down your throat and food tube down your nose? ICK!

I thought of that over the holidays when my Mum was in ICU on a ventilator. They put that liquid food in her and I read the label and said "gee, this stuff would kill me, Mum you're lucky you're not Celiac!" Which made me think of getting a tattoo.

my brain is a strange place. :huh::blink:

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • June 19, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • July 07, 2019 Until August 03, 2019
      0  
      For more information, visit www.kefss.com or call (407) 255-6550. info@kefss.com 

      KEF USA Summer Camps Announces the New KEF Gluten-Free Camp in Orlando, Florida for Youths with Celiac Disease.

      [Orlando, FL February 6, 2019]-KEF USA is excited to announce that we will offer a new 100% gluten-free camp program to give kids and teens with Celiac Disease a safe, exciting and healthy summer. KEF USA programs offer fun and unique experiences that can only be found in Orlando, Florida. Campers explore the theme parks and local attractions, make new friends, discover new interests and create memories that last a lifetime.


    • July 08, 2019 Until July 09, 2019
      0  
      14th Euro-Global Gastroenterology Conference happening in Zürich, Switzerland during July 08-09, 2019. We are expecting more than 300 attendees representing from more than 40 countries who would be sharing their experiences and expertise around the world Theme: “Future Perspectives and shaping trends in Gastroenterology”
      You may learn more about our congress by visiting our website: https://europegastroenterology.gastroconferences.com/
      Tracks
      Microbiota and diseases|Acid Related Diseases|Helicobacter Pylori Treatment|Therapeutics targeting Microbioma|Advanced Nutrition and Dietetics in Gastroenterology|Inflammatory Bowel Diseases|Clinical Advances in Liver Diseases|Gastrointestinal Disorders and Drug Delivery|Obesity and Treatments|Gastrointestinal Pathology|Neuro Gastroenterology and Motility disorders|Pediatric Gastroenterology, Hepatology and Nutrition|Gallbladder and biliary tract Diseases|Latest advances in Gastroenterology treatments|Endoscopic Innovations in Gastroenterology and surgery|Clinical and Radiographic Gastrointestinal Abnormalities|Functional GI Disorders|Changing Trends in Etiology of Liver diseases|Epigenetics of gastrointestinal diseases|Bariatric Surgery|Gastrointestinal Radiology and Imaging|Developing treatment for Viral Hepatitis and Fibrosis of Liver|Emerging Trends in Clinical Research of Liver diseases|Hepatitis B treatment Patterns|Therapies in Pancreatic cancer|Diabetes and hepatocellular carcinoma|Intestinal Metaproteomics and Type 1 Diabetes
      Conference Benefits
      ·         CME Credits  
      ·         CPD Credits
      ·         Research publication in proceeding book
      ·         Abstract publication in associated online journal
      ·         DOI by Cross-Ref
      ·         Online speaker webpage
      ·         Workshops and Symposium
      ·         Certificate for participation and attendance
      ·         Young Researchers Forum and Posters Award for Students
      ·         B2b and Networking meetings
       
      Program Director
      Sophia Williams
      Gastroenterology 2019 | Zürich | Switzerland
      conferenceseries.com https://europegastroenterology.gastroconferences.com/
      E-mail: williams.sophiaa@yandex.com
      Whatsapp us : +442382146717
×
×
  • Create New...