Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Encouraging New Celiac Disease Drug - Celiac.com


Scott Adams

Recommended Posts

Scott Adams Grand Master

Open Original Shared Link

Open Original Shared Link

Celiac.com

Even with the proof in the pudding (or gluten) my doctors now want me to ingest gluten to test for celiac-no can do. Celiac.com 03/12/2010 - According to ...

Open Original Shared Link

Open Original Shared Link

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jackay Enthusiast

It would be so nice to be able to eat out and not worry about getting glutend. But wouldn't this drug make us want to eat gluten all the time?

Link to comment
Share on other sites
Takala Enthusiast

Well, yes, ingesting small amounts of gluten all the time is not going to stop the auto immune reaction and all its side effects, including craving more gluten, <_< and maybe that is the point- creating a drug that has to be taken all the time.

Like you can't be just a little bit alcoholic.

Read the link, this drug is only reducing negative reactions from "50% to 15% in intestinal damage. " Well, it's not defining what the 15% means, because Celiac and gluten intolerance is not just intestinal damage but a complete auto immune reaction that damages many other systems in the body. That is just crazy to think that you can deliberately damage a person only 15% of the time and play eating poison roulette if only you take a pill, and keep a disease under control, when you can easily really control the disease just by eating properly- avoiding gluten. .

From the other link, it says this drug is being developed by a Univ of Alberta doctor who has done one of three trials. Yet the other article says "this drug has been proven in clinical trial (s) to greatly reduce the negative reactions.... "

that's bunk. One trial so far. Nothing "proven." And certainly the long term effects have not been studied.

If this pill is being falsely hyped and marketed to do what it doesn't, (we aren't "extremely limited" when it comes to eating, just limited at eating out in restaurants that have no idea what is really in their food, and don't care. And we are the canaries in the coal mine when it comes to food cross contamination issues in general, and we need MORE strict labeling and manufacturing in the United States and worldwide, not less !!! ) it is going to encourage people to damage themselves by being careless with what they eat.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,176
    • Most Online (within 30 mins)
      7,748

    a-ball
    Newest Member
    a-ball
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • awright24
      I have my endoscopy on Thursday, has anyone had the procedure done with a cough? I don't have a continuous cough, but every now and then throughout the day I have sort of coughing episodes. They are a lot better than they were but I called endoscopy and they said to speak to my gp and my gp got back to me and said I need to ask endoscopy if its ok if I have it done still.  Help!
    • MMH13
      Thank you so much, everyone. For the moment my doctor just has me taking iron but hopefully we can reconnect soon. I'm going to look into genetic testing, too. Great advice all around and I appreciate it--and you can bet I'm going off the PPIs!
    • Eldene
      I walk fast for fitness, 4 to 6 km per day. I am also 74 years old. Apart from the Celiac challenge, my lifestyle is healthy. I had a sciatiac nerve pinching under my one foot, with inflamation in my whole shin. It was almost cured, when the other shin started paining and burning. I do stretches, use a natural cooling gel and rest my feet. Can Celiac cause muscle pains/inflamation, or is it just over-excercising?
    • LovintheGFlife
      I recently started shopping at a nearby Trader Joe's store. I was surprised at the number and variety of (healthy) gluten-free options sold there. I must admit their low prices are also quite tempting. However, I am curious as to the labeling on all their packages. While none of their products are certified as gluten-free, many are identified as 'GLUTEN FREE' on the packaging. Are these items safe for celiacs? Has anyone tried Trader Joe's products and have there been any adverse reactions?
    • Beverley Ann Johnson
      HI, my doctor suggested one week of consuming gluten before blood tests.  I have been gluten free for 3 years.  Has anyone been through this and will I get exact results after one week of consuming gluten?  I don't even know if I can do this, if I get sick I am not sure if I can continue, any suggestions??  Thanks in advance.  
×
×
  • Create New...