Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Would Love To Hear Your Stories...

momof4inla

Recommended Posts

momof4inla Newbie
momof4inla
Posted

What were your symptoms before you went gluten free?

What was your abdominal pain/cramping like? Was it severe every day? Did it come and go? Were some times more severe than others?

Did you notice a reaction immediately after eating gluten or did it linger in your system before making itself known?

I would just like to read more about other people's experiences. :)

I will be starting a gluten free diet and if it helps I will put my 4 year old on it as well to try it on her... she complains of belly aches and has alternating diarrhea/constipation as well.

It's nice to have something to compare ourselves with.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


luvs2eat Collaborator
luvs2eat
Posted

My only two symptoms about 8 years ago were unrelenting diarrhea (like getting up a few times a night and all day) and belly noises that sounded like wolverines were trying to fight their way out of my intestines! I had no pain at all. I only had the diarrhea for about 2 months before I saw a GI doc who treated me for giardia (parasites) while waiting for blood work. My blood work was so positive, my doc told me, that he didn't even recommend endoscopy. I went gluten free right then.

About a year later... I made beautiful (regular wheat) loaves of bread for a party (one of my fave things to do) and cut off a hunk, buttered it, and ATE it!! It was so danged good!! And guess what? NOTHING happened!! I was so excited and thought maybe I could "plan" a cheat from my gluten-free diet... maybe once a month. Well... the next time I tried it I was as sick as a dog... nausea, diahhrea. So... I've never eaten gluten intentionally since.

Middle daughter was diagnosed about 4 years later and youngest daughter was diagnosed this past fall. Oldest daughter is scarfing up all the gluten she can... ha. None of my siblings or any extended relatives have Celiac.

ravenwoodglass Mentor
ravenwoodglass
Posted

For a long time my upset tummy didn't have any pattern and could hit without warning at any time. Then for the last 5 years before I was diagnosed I would be sick every night, all night in addition after eating and in addition to all the other problems you see in my signature.

I was very hard to diagnose as I don't show up in blood work. After I was finally diagnosed my reactions from gluten were delayed reactions. I would have the neuro symptoms right away but the GI issues didn't become severe until 3 days after consumption. My allergist said this was common and one of the reasons we are sometimes hard to diagnose.

michelley65 Rookie
michelley65
Posted

As I havent been diagnosed with celiac(still waiting the results)I am without a doubt that I am gluten sensitive.My symptoms are bloating,gas and loose stools,and stomach noises that totally embarrass me because they are sooooo loud!Ive been having these symptoms for 5 or more years,along with a lactose intolerance.I get so bloated that I look pregnant!I also have muscle and jiont pain,and was just diagnosed with Fibromyalgia,dry skin,fatigue,and headaches(migraines)since I was 11...UGH!

momof4inla Newbie
momof4inla
Posted
  • Author

please keep them coming!

I was not sure if delayed reactions were typical!

Sometimes my cramping and pain and diarrhea are immediate (after I eat pasta) and other times it seems to come out of nowhere.

I googled celiac stories and read a few but this is better. For some reason I find this so interesting. A lot of times when I'm reading I'm thinking "me too!!!" :o

:lol:

So I just like to read about it. Thank you all.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,016
    • Most Online (within 30 mins)
      7,748
    Chloelouise04
    Newest Member
    Chloelouise04
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.