Jump to content
Celiac Disease FAQ | This site uses cookies GDPR notice. Read more... ×
  • Sign Up
0
SLB5757

Anyone Else With...

Rate this topic

Recommended Posts

OMG...

I went to the ER once doubled over in severe pain. The curtain on my bed was open a bit and I could see the doctor across the way looking at my xrays. It was quiet in there so I knew they were mine. He said "Oh my God!!" and called the nurses over. They were all pointing at my x ray and one nurse said "Whoa!"

Sandsurfgirl, this story will haunt my nightmares forever! I'm so sorry about that. Pre-this diet, I'd have bad spells where I wouldn't go for over a week. I'd think, "Is this normal?" But I never pictured this scenario.

How long did you "not" go till this happened?

Its almost as if my bowels completely shut down for four days (sometimes three), followed by a day or two of going to the bathroom three times or more, and then it returns to normal again. It is a very noticeable pattern. Of course I get very anxious, extremely tired, almost feel like I have a "mask" over my eyes, and get severe stomach pains as well following any accidental consumption.

My symptoms EXACTLY! When I'm glutened, it's shut-down mode, no BM for 3-4 days, then "pebbles" or stuff with white tissue (sooooorry, too much information. I'm even grossed out writing that), and "mask over eyes" and general crankiness.

Glad I'm not the only one!

Btw, as far as the mis-interpretation of Reba32 and SLB, it's one of the curses of the internet...people have different styles of communicating, and trying to appear warm over a machine can be difficult. But I love this board!

Share this post


Link to post
Share on other sites

Same for me. My aunt put out many options for Easter brunch which were safe for me, but my grandma bought a pie with a bit of a meringue layer and a thin, crispy crust. I have not yet told her about my new gluten-free diet and decided that a large family get-together already just a little tense was not the time to announce the change and the pie was the safest of all the dessert options. I will definitely be discussing the diet with a few family members at a time asap because within 10 minutes of swallowing the last bite of pie crust, I started noticing discomfort and pain and felt my intestines first go hyperactive and then shut down. For the last two days I've been fluctuating between the extremes of that spectrum, but mostly feel like my insides have shut down and every time I eat or drink any amount it just becomes worse.

Share this post


Link to post
Share on other sites

So you can see constipation on an x-ray? What can you see? I did a google image search, and I'm not sure what I'm looking for. Does it just look like bigger intestines? Or more visible than normal?

Also... where does it all go? I mean, that time I was backed up for 10 days, I was big, but not 30 meals big.

Share this post


Link to post
Share on other sites

I guess this would be one of my main symptoms after I eat wheat. Its almost as if my bowels completely shut down for four days (sometimes three), followed by a day or two of going to the bathroom three times or more, and then it returns to normal again. It is a very noticeable pattern. Of course I get very anxious, extremely tired, almost feel like I have a "mask" over my eyes, and get severe stomach pains as well following any accidental consumption. Just wondered if others are completely constipation predominant. I really feel like my system goes into 'shut down' mode rather than "get it out" mode as most celiacs suffer from.

I have been diagnosed with celiac six months ago, and I am trying very hard "to get it right"..Once in awhile I eat something and I notice it had gluten..As far as the constipation, I have had it for a few years. A friend of mine, who is a nurse came over, and I was telling her how tired I am..she said to try flax seed oil, she does, and feels great..so I went to the pharmacy and talk w/ the pharmacist..it helps w/ constipation! Along with arthritis, cardio and vascular..The constipation is not entirely gone, but makes things ALOT better. I dont know if it is the flax seed oil or not, but since I started I dont feel nauseated most of the time either. But my question is..before I was diagnosed I had problems w/ difference food, the skin problems, etc., but I could eat certain foods and it wouldnt bother me, but now that Im diagnosed, I can tell if there is gluten or not, and get symptoms right away. Sometimes I wonder if this is in my head..

Share this post


Link to post
Share on other sites

Yeah bad. Not to go into to much details but I've had it to the point where I ended up really ill. So yeah -the last thing they think is celiac even though judging from this thread its fairly common :rolleyes:

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Top Posters +

  • Upcoming Events

    • February 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×