Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Rate this topic

Recommended Posts

Gluten Free Mom

I read this on a gluten free blog and am so disheartened a company would say these things. Just wanted to share.

Thank you.

the link did not work for me, sorry.

Share this post


Link to post
Share on other sites

This seems to work. Just omitted the 2nd http://

That link is simply to this thread. I tried reposting, got the same result. I suspect some moderator editing is going on here, perhaps because the link is to a "competing" site. How nice. Here's the text of the page:

I received the following from someone who I really respect in the gluten free community. Jules is completely dedicated to making this a better gluten free world. Please read the following:

Are you willing to be poisoned?  For profit?

I apologize for the alarm, but where food safety and our health are concerned, silence is not an option. I hope you agree.

This month I met a senior executive of a food company that is launching a new gluten-free product. When I asked why their product was not certified gluten-free, I was discouraged (because I usually only eat products that are certified). As we discussed their reasons, and their casual and dangerous interpretation of what "gluten free" means, my stomach knotted, by blood pressure rose and I was moved to write a letter to their CEO.

Please read the letter, and join me and thousands of gluten-free consumers who will not be taken advantage of for profit

Share this post


Link to post
Share on other sites

http://glutenfreemom.typepad.com/gluten_free_mom/2010/03/gluten-free-call-to-action.html

we have no trouble with competing sites. perhaps you just copied the wrong URL?

I'm pretty proficient with computers, no, I pasted the correct URL & it was changed back to the one for this thread. Don't know why.

I'm glad to hear there was no censorship :)

Share this post


Link to post
Share on other sites

I'm pretty proficient with computers, no, I pasted the correct URL & it was changed back to the one for this thread. Don't know why.

Very weird. I've had occasional trouble with quotes since they upgraded the site. Maybe there are a still a few bugs.

Share this post


Link to post
Share on other sites

Thanks for posting this. I will be avoiding their new 'gluten-free' products. Hopefully they will at least do what Lay's does. Ya know put in little letters at the end of their long list of gluten-free products the disclaimer that the products are produced in a shared facility. I wouldn't touch those pretzels anymore than I will eat Doritos. I never did like playing roulette and won't start now.

The FDA needs to get off their butt and make companies declare shared facilities on the package, that is still voluntary, and set legal limits for how much gluten can be in a product and still have the label. Why can't they give us the same protections they do for folks with a peanut allergy. Oh wait it's because we don't drop dead immediately, it takes years to kill us. Many painful years. And what about the folks just starting the diet and how sick they will become by eating gluten free stuff that isn't really gluten free? It is hard enough to begin the healing journey without supposedly gluten free items making us sick and leaving us wondering if the diagnosis was correct or if we have something else going on.

Share this post


Link to post
Share on other sites

I'm glad y'all got the computer glitches figured out so we could read the letter! What a completely disturbing revelation by Snyders!! I'd like to send them a letter telling them about the letter and WHY I'll never try their gluten-free products... AND to write a letter to Glutino thanking them for their efforts that can be trusted.

Share this post


Link to post
Share on other sites

Thanks for posting. I gave up Glutino pretzels because they have soy. Looks like the Snyders will never make it to the starting gate.

Share this post


Link to post
Share on other sites

The FDA needs to get off their butt and make companies declare shared facilities on the package, that is still voluntary, and set legal limits for how much gluten can be in a product and still have the label. Why can't they give us the same protections they do for folks with a peanut allergy. Oh wait it's because we don't drop dead immediately, it takes years to kill us. Many painful years.

I agree that the FDA DOES need to force companies to disclose manufacturing processes on labels. I just have to clarify that, as it stands right now, companies only have to label for the top 8 allergens when they are an actual ingredient. Any companies that include wording about "made in the same facility as tree nuts," or "may contain tree nuts," are doing so either to be helpful or to cover themselves. In dealing with my son's peanut and tree nut allergies, I also have had to learn to decipher what the absence of that wording means. Is it safe? Did they just not care enough to label it?

I have felt since beginning this gluten-free journey recently that reading labels for nut ingredients is actually easier than for gluten. It wasn't always this way. When we started our journey with our son's allergies, companies could hide nut ingredients in vague ingredient names, kind of like they do with gluten! I'm hoping that, with time, labeling laws will be expanded to included gluten and also the possibility of CC. Only an informed consumer can make an informed decision.

Sorry for the tangent. Just offering my experience. I don't have much experience in the gluten-free world but nut allergies...I have some there.

BTW, I would be horrified if a company said "nut free" on their label and was so cavelier about what that means!

Share this post


Link to post
Share on other sites

Thanks for posting. I gave up Glutino pretzels because they have soy. Looks like the Snyders will never make it to the starting gate.

I had to give up the Glutino pretzels for the same reason. Then I found the Wylde ones. They are great. You may have already discovered them but thought I would mention in case you are missing pretzels as much as I was.

Share this post


Link to post
Share on other sites

I can't wait to try these! :) Does anyone know when they will be coming out and whether they will be available in the various flavors?

Share this post


Link to post
Share on other sites

I can't wait to try these! :) Does anyone know when they will be coming out and whether they will be available in the various flavors?

You are kidding aren't you!!!! With that companies idea of how to make safe gluten free food I can't imagine anyone wanting to risk it when so many safe snack foods are around.

Share this post


Link to post
Share on other sites

I had to give up the Glutino pretzels for the same reason. Then I found the Wylde ones. They are great. You may have already discovered them but thought I would mention in case you are missing pretzels as much as I was.

Thanks Ravenwood, I think I will look for the Wylde pretzels. They would go good with some guacamole on a Friday night. Sounds good! :)

Share this post


Link to post
Share on other sites

You are kidding aren't you!!!! With that companies idea of how to make safe gluten free food I can't imagine anyone wanting to risk it when so many safe snack foods are around.

Actually I'm not kidding. I liked Snyder's pretzels so one made without gluten products might be good. I'm certainly not going to base my opinion on hearsay. I have celiac disease and I do eat products made in facilities that also process wheat - and I am now testing normally via bloodwork. Last endoscopy was better, too. Are you seriously going to ban this company just because of something someone you don't know wrote on a blog about something they say they heard?

Share this post


Link to post
Share on other sites

Thanks for posting that link, Jestgar.

I had a mini-meltdown recently because my kids sat down and ate an entire bag of Glutino pretzels while I was gone for about an 1.5 hours. :angry: This was right after I had fed them a full breakfast. I really wanted pretzels and a Dr Pepper that evening.

Share this post


Link to post
Share on other sites

Wow. I will stick with Glutino. I do hope however that Snyders (if the story is a true one) gets their head out of their arse and really does make a truely gluten-free product. Otherwise, they are going to kill their product before it's even known with the gluten-free community. Dumb Dumbs... :blink:

Share this post


Link to post
Share on other sites

Actually I'm not kidding. I liked Snyder's pretzels so one made without gluten products might be good. I'm certainly not going to base my opinion on hearsay. I have celiac disease and I do eat products made in facilities that also process wheat - and I am now testing normally via bloodwork. Last endoscopy was better, too. Are you seriously going to ban this company just because of something someone you don't know wrote on a blog about something they say they heard?

I am not someone who can risk stuff 'made in the same facility' that may or may not be for sure gluten free. I get too sick and it just isn't worth it for a snack food when so many good safe alternatives are around.

I am glad for you that you can consume them with no issues but not all of us can take that risk.

The choice is up to an individual to take that chance and you certainly are free to do so. I'll stick with the Wylde pretzels that I know are from a dedicated facility.

Share this post


Link to post
Share on other sites

I fired off my own whitty email to them, I was just diagnosed with celiacs in feb so this info helps me tremendously and it really makes me mad to find out company;s do things like what snyders is doing :D

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
Just wanted to chime in. During my 2 plus years of healing I had joint pain and muscle pain with some of the nightshade mainly peppers and tomato. I stopped them. I can now eat them again. My theory is when my gut gets cc my holey gut dumps some of my food in my blood stream and my already ticked off immune system let's me know what is allowed. Apparently for a time nightshades  of potato, tomatos, and peppers were an issue. I was able to gradually introduce potatoes first and then tomatos, then
  • Blog Entries

  • ×
    ×
    • Create New...