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Gluten-Free Cosmetics

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I have purchased some speciality make-up that was marketed as gluten free, but would still like the option of buying cosmetics at the pharmacy and department store. What are the gluten ingredients commonly used in cosmetics that I need to be wary of when shopping? I know of a few: wheat germ oil, hydrolized wheat protein, and oat fiber. Are there any others?

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Here is a list of some of the things to look for in cosmetics and toiletries. I forget where it came from it may have even been something I found here.

Avena Sativa (Oat) Kernel Flour

Cyclodextrin

Dextrin

Dextrin Palmitate

Hydrolyzed Malt Extract

Hydrolyzed Oat Flour

Hydrolyzed Vegetable Protein

Hydrolyzed Wheat Flour

Hydrolyzed Wheat Gluten

Hydrolyzed Wheat Protein

Hydrolyzed Wheat Protein/PVP Crosspolymer

Hydrolyzed Wheat Starch

Maltodextrin

Secale Cereale (Rye) Seed Flour

Triticum Vulgare (Wheat) Germ Extract

Triticum Vulgare (Wheat) Germ Oil

Triticum Vulgare (Wheat) Gluten

Triticum Vulgare (Wheat) Starch

Wheat Amino Acids

Wheat Germ Glycerides

Wheat Germamidopropalkonium Chloride

Wheat Protein

Wheatgermamidopropyl Ethyldimonium Ethosulfate

Yeast Extract

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Thank you so much for providing that list. Dextrin and maltodextrin are on the safe ingredient list provided by this site. Is this debatable information? I am assuming something would not be considered safe to eat and unsafe for cosmetics.

Thanks again!

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Tocopherol and Tocopheral Acetate can sometimes contain wheat. We usually call if we see that ingredient to see if it was sourced from wheat.

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Thank you so much for providing that list. Dextrin and maltodextrin are on the safe ingredient list provided by this site. Is this debatable information? I am assuming something would not be considered safe to eat and unsafe for cosmetics.

Thanks again!

Food and cosmetics have different labeling regs. If dextrin or maltodextrin are wheat derived in food they must be declared as derived from wheat and are usually from corn in the US. In cosmetics and drugs the source does not not need to be disclosed. That may be why it is on the cosmetics list.

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Great point! I will keep my eye out for it.

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Hi everyone!

I just received this list from Loreal last week - it's pretty recent. Most of the ingredients are the same as the list Ravenwoodglass posted & some are new. Thanks Ravenwood!

I don't know half of what these ingredients are, but here goes... Boy, the price we pay for beauty... it's scary what we put on our bodies! :blink:

Avena Sativa (Oat)

Kernel FlourAvena Sativa (Oat)

Kernel ExtractAvena Sativa (Oat)

Kernel OilAvena Sativa (Oat) Bran

Cocodimonium Hydroxypropyl Hydrolyzed Wheat Protein

Cyclodextrin

Dextrin

Dextrin Palmitate

Disodium Wheatgermamphodiacetate

Hordeum Vulgare Extract

Hydrolyzed Malt Extract

Hydrolyzed Oat Flour

Hydrolyzed Oat Protein

Hydrolyzed Oats

Hydrolyzed Wheat Flour

Hydrolyzed Wheat Gluten

Hydrolyzed Wheat Protein

Hydrolyzed Wheat Protein/PVP Crosspolymer

Hydrolyzed Wheat Starch

Hydroxypropyltrimonium Hydrolyzed Wheat Protein

Laurdimonium Hydroxypropyl Hydrolyzed Wheat Protein

Malt Extract

Maltodextrin

Secale Cereale (Rye) Seed Flour

Sodium C8-16 Isoalkylsuccinyl Wheat Protein Sulfonate

Sodium Lauroyl Oat Amino Acid

Triticum Vulgare (Wheat) Germ Extract

Triticum Vulgare (Wheat) Germ Oil

Triticum Vulgare (Wheat) Gluten

Triticum Vulgare (Wheat) Starch

Wheat Amino Acids

Wheat Germ Glycerides

Wheat Germamidopropalkonium Chloride

Wheat Protein

Wheatgermamidopropyl Ethyldimonium Ethosulfate

Yeast Extract

Hope this helps!

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I just received this email from elf.com cosmetics:

Thank you for your interest in e.l.f. Cosmetics. Our products do not contain gluten or beeswax. Please be aware, however, that we cannot guarantee that the machinery used to process our products are completely gluten free.

Sincerely,

the e.l.f. team

e.l.f. Cosmetics Affordable Luxury

Ph. 212-239-1530

www.eyeslipsface.com

Just thought I'd share.

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Eeeeek! Now I am nervous. The hand sanitizer I use every day has Tocopheryl Acetate (vitamin e) listed in the ingredients. I have tried to research but naturally I am finding conflicting information. I have info that says tocopheryl acetate is derived from soy, a few say it can sometimes be derived from wheat. I have seen online that a TON of gluten free speciality products contain this ingredient. So does anyone know the scoop or have more info on tocopheryl or tocopheryl acetate??

I swear I will never fully grasp this gluten-free lifestyle. Ugh, things are always lurking!

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I am sorry to interfere, I have no answer but related concerns...hope this is ok :)

I was recently wondering about burt's bees products cause I use some, and a lot of them have tocopherol (origin not precised), so I contacted them and they replied I should check the ingredients, but that even for the products not containing gluten ingredients, they can't guaranty the gluten-free status -because of possible cc.

So it leaves me still wondering: not just because the possible cc, but also because they didn't precise the tocopherol thing.

I am sad, I love this brand! (and their honey lip balm!!) but it is too important, I can't overlook the problem (the lip balm is an important question for everyone; and the shampoo in my mouth/ ingesting hand cream because I eat some finger food after can definitely happen to me!)

Anyone has advice on another brand?? I am definitely picky, very dry & sensitive skin here, so I need gluten-free + organic/ no chemicals products...the less ingredients, the best!

I seem to always have problems finding a cream that moisturizes my hands enough (I usually use foot cream :))

...recently began using coconut oil and its great for my body but doesn't really do it for my hands (shampoo shouldn't be too hard, just need something soft on my skin)

Heard of "california baby", any feedback on that ??

Thank you!

Sophie

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I have recently contacted the following companies:

ALOETTE: NOT Gluten-Free

***Thank you for your interest in Aloette! We are sorry for the

inconvenience but, Astral Brands does not currently have a product list

for our products that contain gluten. We would like to explain that most

of our raw materials come from many different suppliers and we use

multiple sources in the manufacture of our products. Due to this, it is

possible that small amounts of a wheat sourced ingredient may remain on

shared manufacturing equipment even after thorough cleaning, causing

concern for cross contamination in our products.Therefore, it is not possible for us to fully guarantee that our

products are completely free of ingredients that may cause an allergic

reaction in sensitive individuals who react to gluten.***

L'OREAL: Gives a gluten ingredient list:

***Avena Sativa (Oat) Kernel Flour

Avena Sativa (Oat) Kernel Extract

Avena Sativa (Oat) Kernel Oil

Avena Sativa (Oat) Bran

Cocodimonium Hydroxypropyl Hydrolyzed Wheat Protein

Cyclodextrin

Dextrin

Dextrin Palmitate

Disodium Wheatgermamphodiacetate

Hordeum Vulgare Extract

Hydrolyzed Malt Extract

Hydrolyzed Oat Flour

Hydrolyzed Oat Protein

Hydrolyzed Oats

Hydrolyzed Wheat Flour

Hydrolyzed Wheat Gluten

Hydrolyzed Wheat Protein

Hydrolyzed Wheat Protein/PVP Crosspolymer

Hydrolyzed Wheat Starch

Hydroxypropyltrimonium Hydrolyzed Wheat Protein

Laurdimonium Hydroxypropyl Hydrolyzed Wheat Protein

Malt Extract

Maltodextrin

Secale Cereale (Rye) Seed Flour

Sodium C8-16 Isoalkylsuccinyl Wheat Protein Sulfonate

Sodium Lauroyl Oat Amino Acid

Triticum Vulgare (Wheat) Germ Extract

Triticum Vulgare (Wheat) Germ Oil

Triticum Vulgare (Wheat) Gluten

Triticum Vulgare (Wheat) Starch

Wheat Amino Acids

Wheat Germ Glycerides

Wheat Germamidopropalkonium Chloride

Wheat Protein

Wheatgermamidopropyl Ethyldimonium Ethosulfate

Yeast Extract

OLAY: Some are (the entire PRO X line), some are not (but they did not resist the temptation to tell me that my inquiry was not necessary, according to their consulted doctors, as the items are applied externally - which seemed to insult the very nature of my inquiry as well as both my experience and intelligence)

***We know Celiac is a serious disease, so we want to give you clear information regarding the use of our beauty care products. If wheat and/or gluten aren't directly added to a product by us, these ingredients won't be listed on our packages. Like many companies, we often purchase the scents for fragranced products from outside suppliers, and the components of these substances are proprietary information belonging to those companies. Therefore it's possible that a very small amount (generally parts per million) of gluten may be present. It may be helpful to know that the entire Pro X line is gluten free.

We sought advice from physicians; they told us it would be very unlikely a person with Celiac disease would have a reaction from a trace amount of gluten coming into contact with his skin or hair. This is because wheat, rye, barley and/or gluten generally cause symptoms when they're ingested. Since our beauty care products are designed to be used externally on the skin, their use shouldn't be an issue for someone with this disease.

Since gluten sensitivity can vary among people, it would be best if you consulted with your physician about the use of all types of consumable goods, if you haven't already. You might even consider using one of our fragrance free products that doesn't list gluten or wheat extracts on the label.

Thanks again for getting in touch with us. I hope this response has been helpful to you. For more information about Celiac, you may want to check out http://celiac.com/ and http://celiac.org***

URBAN DECAY: Sent a spreadsheet of their products with the gluten/wheat free question answered in a column.

***LET ME KNOW IF YOU WOULD LIKE ME TO FORWARD THE SPREADSHEET***

SMASHBOX: Sent me a list of their items that CONTAIN Gluten - as most do not.

***The following are products that contain Gluten:

CORE ITEMS THAT CONTAIN GLUTEN:

Bionic Mascara

Brow Tech to Go, Brunette

Brow Tech to Go, Taupe

Layer Lash Primer

Halo Hydrating Perfecting Bronzer

Halo Hydrating Perfecting Powder, Fair

Halo Hydrating Perfecting Powder, Light

Halo Hydrating Perfecting Powder, Medium

Halo Hydrating Perfecting Powder, Dark

Halo Eye Shadow, Peach Cocoa

Halo Eye Shadow, Pewter/Smoke

Halo Eye Shadow, Bisque/Almond

Halo Eye Shadow, Petal/Plum

Try Me Kit Vol. 2

Doubletake Lip Color, Praline

Doubletake Lip Color, Gossamer

Doubletake Lip Color, Sugar Spice

Doubletake Lip Color, Cranberry

Doubletake Lip Color, Amaretto

Doubletake Lip Color, Currant

Reflection High Shine Lip Gloss

Lipstick, Lip Treatment

Lipstick Tinted Treatment, Solar

Lipstick Tinted Treatment, Ray

Lipstick Tinted Treatment, Beam

Lipstick Tinted Treatment, Shine

*be sure to double check the complete ingredients on the unit carton or we can email them to you. This list does not include seasonal items or items that maybe found in kits. ***

This is all I have heard so far.

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I have recently contacted the following companies:

ALOETTE: NOT Gluten-Free

***Thank you for your interest in Aloette! We are sorry for the

inconvenience but, Astral Brands does not currently have a product list

for our products that contain gluten. We would like to explain that most

of our raw materials come from many different suppliers and we use

multiple sources in the manufacture of our products. Due to this, it is

possible that small amounts of a wheat sourced ingredient may remain on

shared manufacturing equipment even after thorough cleaning, causing

concern for cross contamination in our products.Therefore, it is not possible for us to fully guarantee that our

products are completely free of ingredients that may cause an allergic

reaction in sensitive individuals who react to gluten.***

L'OREAL: Gives a gluten ingredient list:

***Avena Sativa (Oat) Kernel Flour

Avena Sativa (Oat) Kernel Extract

Avena Sativa (Oat) Kernel Oil

Avena Sativa (Oat) Bran

Cocodimonium Hydroxypropyl Hydrolyzed Wheat Protein

Cyclodextrin

Dextrin

Dextrin Palmitate

Disodium Wheatgermamphodiacetate

Hordeum Vulgare Extract

Hydrolyzed Malt Extract

Hydrolyzed Oat Flour

Hydrolyzed Oat Protein

Hydrolyzed Oats

Hydrolyzed Wheat Flour

Hydrolyzed Wheat Gluten

Hydrolyzed Wheat Protein

Hydrolyzed Wheat Protein/PVP Crosspolymer

Hydrolyzed Wheat Starch

Hydroxypropyltrimonium Hydrolyzed Wheat Protein

Laurdimonium Hydroxypropyl Hydrolyzed Wheat Protein

Malt Extract

Maltodextrin

Secale Cereale (Rye) Seed Flour

Sodium C8-16 Isoalkylsuccinyl Wheat Protein Sulfonate

Sodium Lauroyl Oat Amino Acid

Triticum Vulgare (Wheat) Germ Extract

Triticum Vulgare (Wheat) Germ Oil

Triticum Vulgare (Wheat) Gluten

Triticum Vulgare (Wheat) Starch

Wheat Amino Acids

Wheat Germ Glycerides

Wheat Germamidopropalkonium Chloride

Wheat Protein

Wheatgermamidopropyl Ethyldimonium Ethosulfate

Yeast Extract

OLAY: Some are (the entire PRO X line), some are not (but they did not resist the temptation to tell me that my inquiry was not necessary, according to their consulted doctors, as the items are applied externally - which seemed to insult the very nature of my inquiry as well as both my experience and intelligence)

***We know Celiac is a serious disease, so we want to give you clear information regarding the use of our beauty care products. If wheat and/or gluten aren't directly added to a product by us, these ingredients won't be listed on our packages. Like many companies, we often purchase the scents for fragranced products from outside suppliers, and the components of these substances are proprietary information belonging to those companies. Therefore it's possible that a very small amount (generally parts per million) of gluten may be present. It may be helpful to know that the entire Pro X line is gluten free.

We sought advice from physicians; they told us it would be very unlikely a person with Celiac disease would have a reaction from a trace amount of gluten coming into contact with his skin or hair. This is because wheat, rye, barley and/or gluten generally cause symptoms when they're ingested. Since our beauty care products are designed to be used externally on the skin, their use shouldn't be an issue for someone with this disease.

Since gluten sensitivity can vary among people, it would be best if you consulted with your physician about the use of all types of consumable goods, if you haven't already. You might even consider using one of our fragrance free products that doesn't list gluten or wheat extracts on the label.

Thanks again for getting in touch with us. I hope this response has been helpful to you. For more information about Celiac, you may want to check out http://celiac.com/ and http://celiac.org***

URBAN DECAY: Sent a spreadsheet of their products with the gluten/wheat free question answered in a column.

***LET ME KNOW IF YOU WOULD LIKE ME TO FORWARD THE SPREADSHEET***

SMASHBOX: Sent me a list of their items that CONTAIN Gluten - as most do not.

***The following are products that contain Gluten:

CORE ITEMS THAT CONTAIN GLUTEN:

Bionic Mascara

Brow Tech to Go, Brunette

Brow Tech to Go, Taupe

Layer Lash Primer

Halo Hydrating Perfecting Bronzer

Halo Hydrating Perfecting Powder, Fair

Halo Hydrating Perfecting Powder, Light

Halo Hydrating Perfecting Powder, Medium

Halo Hydrating Perfecting Powder, Dark

Halo Eye Shadow, Peach Cocoa

Halo Eye Shadow, Pewter/Smoke

Halo Eye Shadow, Bisque/Almond

Halo Eye Shadow, Petal/Plum

Try Me Kit Vol. 2

Doubletake Lip Color, Praline

Doubletake Lip Color, Gossamer

Doubletake Lip Color, Sugar Spice

Doubletake Lip Color, Cranberry

Doubletake Lip Color, Amaretto

Doubletake Lip Color, Currant

Reflection High Shine Lip Gloss

Lipstick, Lip Treatment

Lipstick Tinted Treatment, Solar

Lipstick Tinted Treatment, Ray

Lipstick Tinted Treatment, Beam

Lipstick Tinted Treatment, Shine

*be sure to double check the complete ingredients on the unit carton or we can email them to you. This list does not include seasonal items or items that maybe found in kits. ***

This is all I have heard so far.

I would love the Urban Decay list!!!! I have emailed them several times and never received a response.

Thanks!!!!!!

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I contacted Estee Lauder regarding the skincare and cosmetic line. I received a pretty comprehensive list below. However, I'm thinking that if it's probably safe to use their eye shadows as long as it doesn't get ingested. Thoughts?

Dear,

Thank you for taking the time to contact us and for your interest in Est

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I have purchased some speciality make-up that was marketed as gluten free, but would still like the option of buying cosmetics at the pharmacy and department store. What are the gluten ingredients commonly used in cosmetics that I need to be wary of when shopping? I know of a few: wheat germ oil, hydrolized wheat protein, and oat fiber. Are there any others?

Here are some more things to look for in cosmetics

*This is not an exhaustive list.

COSMETIC INGREDIENTS THAT MAY CONTAIN GLUTEN*

 AMP-Isostearoyl Hydrolyzed Wheat

Protein

 AMP-Isostearoyl Wheat/Corn/Soy

Amino Acids

 Aspergillus/Saccharomyces/Barley

Ferment Extract Filtrate

 Aspergillus/Saccharomyces/Barley

Seed Ferment Extract

 Aspergillus/Saccharomyces/Barley

Seed Ferment Filtrate Extract

 Aspergillus/Saccharomyces/Wheat Lees

Ferment Filtrate

 Aspergillus/Soybean/Wheat

Germ/Camellia Sinensis Leaf/Job's

Tears Seed/Rice Germ/Sesame Seed

Ferment

 Aspergillus/Soybean/Wheat

Germ/Camellia Sinensis Leaf/Job's

Tears Seed/Rice Germ/Sesame Seed

Ferment Extract

 Avena Sativa (Oat) Bran

 Avena Sativa (Oat) Bran Extract

 Avena Sativa (Oat) Kernel Extract

 Avena Sativa (Oat) Kernel Meal

 Avena Sativa (Oat) Kernel Oil

 Avena Sativa (Oat) Kernel Protein

 Avena Sativa (Oat) Leaf Extract

 Avena Sativa (Oat) Meal Extract

 Avena Sativa (Oat) Peptide

 Avena Sativa (Oat) Protein Extract

 Avena Sativa (Oat) Starch

 Avena Sativa (Oat) Straw Extract

 Bacillus/Wheat Bran/Phaseolus

Angularis Seed/Prunus Armeniaca

Seed/Artemisia Annua

Extract/Xanthium Strumarium Fruit

Extract/Glycine Soja Seed Ferment

Extract

 Barley (Hordeum Distichim) Extract

 Barley (Hordeum Distichum) Flour

 Barley (Hordeum Vulgare) Extract

 Barley (Hordeum Vulgare) Flour

 Barley (Hordeum Vulgare) Juice

 Barley (Hordeum Vulgare) Leaf Juice

 Barley (Hordeum Vulgare) Powder

 Barley (Hordeum Vulgare) Root Extract

 Barley (Hordeum Vulgare) Seed Extract

 Barley Extract

 Barley Juice

 Barley Leaf Juice

 Barley Seed Flour

 Cetearyl Wheat Bran Glycosides

 Cetearyl Wheat Straw Glycosides

 Cocodimonium Hydroxypropyl

Hydrolyzed Wheat Protein

 Cocoyl Hydrolyzed Wheat Protein

 Corn Gluten Amino Acids

 Disodium Wheat Germamido MEA-

Sulfosuccinate

 Disodium Wheat Germamido PEG-2

Sulfosuccinate

 Disodium Wheatgermamphodiacetate

 Ethyl Wheat Germate

 Extract of Barley

 Extract of Barley Root

 Extract of Barley Seed

 Hordeum Distichon (Barley) Extract

 Hordeum Distichon (Barley) Seed Flour

 Hydrogenated Wheat Germ Oil

 Hydrogenated Wheat Germ Oil

Unsaponifiables

 Hydrolyzed Barley Protein

 Hydrolyzed Oat Flour

 Hydrolyzed Oat Protein

 Hydrolyzed Oats

 Hydrolyzed Rye Phytoplacenta Extract

 Hydrolyzed Wheat Bran

 Hydrolyzed Wheat Flour

 Hydrolyzed Wheat Gluten

 Hydrolyzed Wheat Gluten Extract

 Hydrolyzed Wheat Protein

Hydroxypropyl Polysiloxane

 Hydrolyzed Wheat Protein PG-Propyl

Methylsilanediol

 Hydrolyzed Wheat Protein PG-Propyl

Silanetriol

 Hydrolyzed Wheat Protein/Cystine Bis-

PG-Propyl Silanetriol Copolymer

 Hydrolyzed Wheat Protein/Dimethicone

PEG-7 Acetate

 Hydrolyzed Wheat Protein/Dimethicone

PEG-7 Phosphate Copolymer

 Hydrolyzed Wheat Protein/PEG-20

Acetate Copolymer

 Hydrolyzed Wheat Protein/PVP

Crosspolymer

 Hydrolyzed Wheat Starch

 Hydroxypropyltrimonium

Corn/Wheat/Soy Amino Acids

*This is not an exhaustive list.

 Hydroxypropyltrimonium Hydrolyzed

Wheat Protein

 Hydroxypropyltrimonium Hydrolyzed

Wheat Protein/Siloxysilicate

 Hydroxypropyltrimonium Hydrolyzed

Wheat Starch

 Kluyveromyces/Lactobacillus/Lactococ

cus/Leuconostoc/Saccharomyces/Hydro

lyzed Wheat Protein Ferment Filtrate

 Lactobacillus/Oat/Rye/Wheat Seed

Extract Ferment

 Lactobacillus/Rye Flour Ferment

 Lactobacillus/Rye Flour Ferment

Filtrate

 Laurdimonium Hydroxypropyl

Hydrolyzed Wheat Protein

 Laurdimonium Hydroxypropyl

Hydrolyzed Wheat

Protein/Siloxysilicate

 Laurdimonium Hydroxypropyl

Hydrolyzed Wheat

Protein/Siloxysilicate

 Laurdimonium Hydroxypropyl

Hydrolyzed Wheat Starch

 Laurdimonium Hydroxypropyl Wheat

Amino Acids

 Olivoyl Hydrolyzed Wheat Protein

 Palmitoyl Hydrolyzed Wheat Protein

 Pantoea Agglomerans/Wheat Flour

Ferment Extract

 PG-Hydrolyzed Wheat Protein

 Polygonum Fagopyrum (Buckwheat)

Leaf Extract

 Potassium Cocoyl Hydrolyzed Oat

Protein

 Potassium Cocoyl Hydrolyzed Wheat

Protein

 Potassium Lauroyl Wheat Amino Acids

 Potassium Olivoyl Hydrolyzed Wheat

Protein

 Potassium Olivoyl/Lauroyl Wheat

Amino Acids

 Potassium Palmitoyl Hydrolyzed Oat

Protein

 Potassium Palmitoyl Hydrolyzed Wheat

Protein

 Potassium Undecylenoyl Hydrolyzed

Wheat Protein

 Propyltrimonium Hydrolyzed Wheat

Protein

 Quaternium-79 Hydrolyzed Wheat

Protein

 Rye Extract

 Rye Flour

 Rye Seed Extract

 Rye Seed Flour

 Saccharomcyes/Barley Seed Ferment

Extract

 Saccharomyces/Barley Seed Ferment

Filtrate

 Secale Cereale (Rye) Phyto Placenta

Culture Extract Filtrate

 Secale Cereale (Rye) Phyto Placenta

Culture Extract Filtrate

 Secale Cereale (Rye) Seed Extract

 Secale Cereale (Rye) Seed Flour

 Sodium C8-16 Isoalkylsuccinyl Wheat

Sulfonate

 Sodium Capryloyl Hydrolyzed Wheat

Protein

 Sodium Cocoyl Hydrolyzed Wheat

Protein

 Sodium Cocoyl Hydrolyzed Wheat

Protein Glutamate

 Sodium Cocoyl Hydrolyzed Wheat

Protein Glutamate

 Sodium Cocoyl Oat Amino Acids

 Sodium Lauroyl Oat Amino Acids

 Sodium Lauroyl Wheat Amino Acids

 Sodium Palmitoyl Hydrolyzed Wheat

Protein

 Sodium Palmitoyl Hydrolyzed Wheat

Protein

 Sodium Stearoyl Hydrolyzed Wheat

Protein

 Sodium Stearoyl Hydrolyzed Wheat

Protein

 Sodium Stearoyl Oat Protein

 Sodium Wheat Germamphoacetate

 Sodium/TEA-Undecylenoyl

Hydrolyzed Wheat Protein

 Sodium/TEA-Undecylenoyl

Hydrolyzed Wheat Protein

 Soyamidoethyldimonium/Trimonium

Hydroxypropyl Hydrolyzed Wheat

Protein

 Soydimonium Hydroxypropyl

Hydrolyzed Wheat Protein

 Soydimonium Hydroxypropyl

Hydrolyzed Wheat Protein

 Steardimonium Hydroxypropyl

Hydrolyzed Wheat Protein

 Stearyldimonium Hydroxypropyl

Hydrolyzed Wheat Protein

 Streptococcus Zooepidemicus/Wheat

Peptide Ferment

 Tocopherol/Wheat Polypeptides

*This is not an exhaustive list.

 Trimethylsilyl Hydrolyzed Wheat

Protein PG-Propyl Methylsilanediol

Crosspolymer

 Triticum Aestivum (Wheat) Flour

Lipids

 Triticum Aestivum (Wheat) Germ

Extract

 Triticum Aestivum (Wheat) Germ Oil

 Triticum Aestivum (Wheat) Leaf

Extract

 Triticum Aestivum (Wheat) Peptide

 Triticum Aestivum (Wheat) Seed

Extract

 Triticum Turgidum Durum (Wheat)

Seed Extract

 Triticum Vulgare (Wheat) Bran

 Triticum Vulgare (Wheat) Bran Extract

 Triticum Vulgare (Wheat) Bran Lipids

 Triticum Vulgare (Wheat) Flour Extract

 Triticum Vulgare (Wheat) Flour Lipids

 Triticum Vulgare (Wheat) Germ

 Triticum Vulgare (Wheat) Germ Extract

 Triticum Vulgare (Wheat) Germ Oil

 Triticum Vulgare (Wheat) Germ Oil

Unsaponifiables

 Triticum Vulgare (Wheat) Germ

Powder

 Triticum Vulgare (Wheat) Germ Protein

 Triticum Vulgare (Wheat) Gluten

 Triticum Vulgare (Wheat) Gluten

Extract

 Triticum Vulgare (Wheat) Kernel Flour

 Triticum Vulgare (Wheat) Protein

 Triticum Vulgare (Wheat) Seed Extract

 Triticum Vulgare (Wheat) Sprout

Extract

 Triticum Vulgare (Wheat) Starch

 Undecylenoyl Wheat Amino Acids

 Wheat Amino Acids

 Wheat Germ Acid

 Wheat Germ Glycerides

 Wheat Germ Oil PEG-40 Butyloctanol

Esters

 Wheat Germ Oil PEG-8 Esters

 Wheat Germ Oil/Palm Oil

Aminopropanediol Esters

 Wheat Germamide DEA

 Wheat Germamidopropalkonium

Chloride

 Wheat Germamidopropyl Betaine

 Wheat Germamidopropyl

Dimethylamine

 Wheat Germamidopropyl

Dimethylamine Lactate

 Wheat Germamidopropyl

Epoxypropyldimonium Chloride

 Wheat Germamidopropylamine Oxide

 Wheat Germamidopropyldimonium

Hydroxypropyl Hydrolyzed Wheat

Protein

 Wheat Protein

 Wheat Protein Hydrolysate

 Wheatgermamidopropyl

Dimethylamine Hydrolyzed Collagen

 Wheatgermamidopropyl

Dimethylamine Hydrolyzed Wheat

Protein

 Wheatgermamidopropyl

Dimethylamine Hydrolyzed Wheat

Protein

 Wheatgermamidopropyl

Ethyldimonium Ethosulfate

 Zea Mays (Corn) Gluten Protein

 Zinc Undecylenoyl Hydrolyzed Wheat

Protein

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After that list - gulp - I feel like just wearing a mask when I leave the house!

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Here are some more things to look for in cosmetics

*This is not an exhaustive list.

COSMETIC INGREDIENTS THAT MAY CONTAIN GLUTEN*

 AMP-Isostearoyl Hydrolyzed Wheat

Protein

 AMP-Isostearoyl Wheat/Corn/Soy

Amino Acids

 Aspergillus/Saccharomyces/Barley

Ferment Extract Filtrate

 Aspergillus/Saccharomyces/Barley

Seed Ferment Extract

 Aspergillus/Saccharomyces/Barley

Seed Ferment Filtrate Extract

 Aspergillus/Saccharomyces/Wheat Lees

Ferment Filtrate

 Aspergillus/Soybean/Wheat

Germ/Camellia Sinensis Leaf/Job's

Tears Seed/Rice Germ/Sesame Seed

Ferment

 Aspergillus/Soybean/Wheat

Germ/Camellia Sinensis Leaf/Job's

Tears Seed/Rice Germ/Sesame Seed

Ferment Extract

 Avena Sativa (Oat) Bran

 Avena Sativa (Oat) Bran Extract

 Avena Sativa (Oat) Kernel Extract

 Avena Sativa (Oat) Kernel Meal

 Avena Sativa (Oat) Kernel Oil

 Avena Sativa (Oat) Kernel Protein

 Avena Sativa (Oat) Leaf Extract

 Avena Sativa (Oat) Meal Extract

 Avena Sativa (Oat) Peptide

 Avena Sativa (Oat) Protein Extract

 Avena Sativa (Oat) Starch

 Avena Sativa (Oat) Straw Extract

 Bacillus/Wheat Bran/Phaseolus

Angularis Seed/Prunus Armeniaca

Seed/Artemisia Annua

Extract/Xanthium Strumarium Fruit

Extract/Glycine Soja Seed Ferment

Extract

 Barley (Hordeum Distichim) Extract

 Barley (Hordeum Distichum) Flour

 Barley (Hordeum Vulgare) Extract

 Barley (Hordeum Vulgare) Flour

 Barley (Hordeum Vulgare) Juice

 Barley (Hordeum Vulgare) Leaf Juice

 Barley (Hordeum Vulgare) Powder

 Barley (Hordeum Vulgare) Root Extract

 Barley (Hordeum Vulgare) Seed Extract

 Barley Extract

 Barley Juice

 Barley Leaf Juice

 Barley Seed Flour

 Cetearyl Wheat Bran Glycosides

 Cetearyl Wheat Straw Glycosides

 Cocodimonium Hydroxypropyl

Hydrolyzed Wheat Protein

 Cocoyl Hydrolyzed Wheat Protein

 Corn Gluten Amino Acids

 Disodium Wheat Germamido MEA-

Sulfosuccinate

 Disodium Wheat Germamido PEG-2

Sulfosuccinate

 Disodium Wheatgermamphodiacetate

 Ethyl Wheat Germate

 Extract of Barley

 Extract of Barley Root

 Extract of Barley Seed

 Hordeum Distichon (Barley) Extract

 Hordeum Distichon (Barley) Seed Flour

 Hydrogenated Wheat Germ Oil

 Hydrogenated Wheat Germ Oil

Unsaponifiables

 Hydrolyzed Barley Protein

 Hydrolyzed Oat Flour

 Hydrolyzed Oat Protein

 Hydrolyzed Oats

 Hydrolyzed Rye Phytoplacenta Extract

 Hydrolyzed Wheat Bran

 Hydrolyzed Wheat Flour

 Hydrolyzed Wheat Gluten

 Hydrolyzed Wheat Gluten Extract

 Hydrolyzed Wheat Protein

Hydroxypropyl Polysiloxane

 Hydrolyzed Wheat Protein PG-Propyl

Methylsilanediol

 Hydrolyzed Wheat Protein PG-Propyl

Silanetriol

 Hydrolyzed Wheat Protein/Cystine Bis-

PG-Propyl Silanetriol Copolymer

 Hydrolyzed Wheat Protein/Dimethicone

PEG-7 Acetate

 Hydrolyzed Wheat Protein/Dimethicone

PEG-7 Phosphate Copolymer

 Hydrolyzed Wheat Protein/PEG-20

Acetate Copolymer

 Hydrolyzed Wheat Protein/PVP

Crosspolymer

 Hydrolyzed Wheat Starch

 Hydroxypropyltrimonium

Corn/Wheat/Soy Amino Acids

*This is not an exhaustive list.

 Hydroxypropyltrimonium Hydrolyzed

Wheat Protein

 Hydroxypropyltrimonium Hydrolyzed

Wheat Protein/Siloxysilicate

 Hydroxypropyltrimonium Hydrolyzed

Wheat Starch

 Kluyveromyces/Lactobacillus/Lactococ

cus/Leuconostoc/Saccharomyces/Hydro

lyzed Wheat Protein Ferment Filtrate

 Lactobacillus/Oat/Rye/Wheat Seed

Extract Ferment

 Lactobacillus/Rye Flour Ferment

 Lactobacillus/Rye Flour Ferment

Filtrate

 Laurdimonium Hydroxypropyl

Hydrolyzed Wheat Protein

 Laurdimonium Hydroxypropyl

Hydrolyzed Wheat

Protein/Siloxysilicate

 Laurdimonium Hydroxypropyl

Hydrolyzed Wheat

Protein/Siloxysilicate

 Laurdimonium Hydroxypropyl

Hydrolyzed Wheat Starch

 Laurdimonium Hydroxypropyl Wheat

Amino Acids

 Olivoyl Hydrolyzed Wheat Protein

 Palmitoyl Hydrolyzed Wheat Protein

 Pantoea Agglomerans/Wheat Flour

Ferment Extract

 PG-Hydrolyzed Wheat Protein

 Polygonum Fagopyrum (Buckwheat)

Leaf Extract

 Potassium Cocoyl Hydrolyzed Oat

Protein

 Potassium Cocoyl Hydrolyzed Wheat

Protein

 Potassium Lauroyl Wheat Amino Acids

 Potassium Olivoyl Hydrolyzed Wheat

Protein

 Potassium Olivoyl/Lauroyl Wheat

Amino Acids

 Potassium Palmitoyl Hydrolyzed Oat

Protein

 Potassium Palmitoyl Hydrolyzed Wheat

Protein

 Potassium Undecylenoyl Hydrolyzed

Wheat Protein

 Propyltrimonium Hydrolyzed Wheat

Protein

 Quaternium-79 Hydrolyzed Wheat

Protein

 Rye Extract

 Rye Flour

 Rye Seed Extract

 Rye Seed Flour

 Saccharomcyes/Barley Seed Ferment

Extract

 Saccharomyces/Barley Seed Ferment

Filtrate

 Secale Cereale (Rye) Phyto Placenta

Culture Extract Filtrate

 Secale Cereale (Rye) Phyto Placenta

Culture Extract Filtrate

 Secale Cereale (Rye) Seed Extract

 Secale Cereale (Rye) Seed Flour

 Sodium C8-16 Isoalkylsuccinyl Wheat

Sulfonate

 Sodium Capryloyl Hydrolyzed Wheat

Protein

 Sodium Cocoyl Hydrolyzed Wheat

Protein

 Sodium Cocoyl Hydrolyzed Wheat

Protein Glutamate

 Sodium Cocoyl Hydrolyzed Wheat

Protein Glutamate

 Sodium Cocoyl Oat Amino Acids

 Sodium Lauroyl Oat Amino Acids

 Sodium Lauroyl Wheat Amino Acids

 Sodium Palmitoyl Hydrolyzed Wheat

Protein

 Sodium Palmitoyl Hydrolyzed Wheat

Protein

 Sodium Stearoyl Hydrolyzed Wheat

Protein

 Sodium Stearoyl Hydrolyzed Wheat

Protein

 Sodium Stearoyl Oat Protein

 Sodium Wheat Germamphoacetate

 Sodium/TEA-Undecylenoyl

Hydrolyzed Wheat Protein

 Sodium/TEA-Undecylenoyl

Hydrolyzed Wheat Protein

 Soyamidoethyldimonium/Trimonium

Hydroxypropyl Hydrolyzed Wheat

Protein

 Soydimonium Hydroxypropyl

Hydrolyzed Wheat Protein

 Soydimonium Hydroxypropyl

Hydrolyzed Wheat Protein

 Steardimonium Hydroxypropyl

Hydrolyzed Wheat Protein

 Stearyldimonium Hydroxypropyl

Hydrolyzed Wheat Protein

 Streptococcus Zooepidemicus/Wheat

Peptide Ferment

 Tocopherol/Wheat Polypeptides

*This is not an exhaustive list.

 Trimethylsilyl Hydrolyzed Wheat

Protein PG-Propyl Methylsilanediol

Crosspolymer

 Triticum Aestivum (Wheat) Flour

Lipids

 Triticum Aestivum (Wheat) Germ

Extract

 Triticum Aestivum (Wheat) Germ Oil

 Triticum Aestivum (Wheat) Leaf

Extract

 Triticum Aestivum (Wheat) Peptide

 Triticum Aestivum (Wheat) Seed

Extract

 Triticum Turgidum Durum (Wheat)

Seed Extract

 Triticum Vulgare (Wheat) Bran

 Triticum Vulgare (Wheat) Bran Extract

 Triticum Vulgare (Wheat) Bran Lipids

 Triticum Vulgare (Wheat) Flour Extract

 Triticum Vulgare (Wheat) Flour Lipids

 Triticum Vulgare (Wheat) Germ

 Triticum Vulgare (Wheat) Germ Extract

 Triticum Vulgare (Wheat) Germ Oil

 Triticum Vulgare (Wheat) Germ Oil

Unsaponifiables

 Triticum Vulgare (Wheat) Germ

Powder

 Triticum Vulgare (Wheat) Germ Protein

 Triticum Vulgare (Wheat) Gluten

 Triticum Vulgare (Wheat) Gluten

Extract

 Triticum Vulgare (Wheat) Kernel Flour

 Triticum Vulgare (Wheat) Protein

 Triticum Vulgare (Wheat) Seed Extract

 Triticum Vulgare (Wheat) Sprout

Extract

 Triticum Vulgare (Wheat) Starch

 Undecylenoyl Wheat Amino Acids

 Wheat Amino Acids

 Wheat Germ Acid

 Wheat Germ Glycerides

 Wheat Germ Oil PEG-40 Butyloctanol

Esters

 Wheat Germ Oil PEG-8 Esters

 Wheat Germ Oil/Palm Oil

Aminopropanediol Esters

 Wheat Germamide DEA

 Wheat Germamidopropalkonium

Chloride

 Wheat Germamidopropyl Betaine

 Wheat Germamidopropyl

Dimethylamine

 Wheat Germamidopropyl

Dimethylamine Lactate

 Wheat Germamidopropyl

Epoxypropyldimonium Chloride

 Wheat Germamidopropylamine Oxide

 Wheat Germamidopropyldimonium

Hydroxypropyl Hydrolyzed Wheat

Protein

 Wheat Protein

 Wheat Protein Hydrolysate

 Wheatgermamidopropyl

Dimethylamine Hydrolyzed Collagen

 Wheatgermamidopropyl

Dimethylamine Hydrolyzed Wheat

Protein

 Wheatgermamidopropyl

Dimethylamine Hydrolyzed Wheat

Protein

 Wheatgermamidopropyl

Ethyldimonium Ethosulfate

 Zea Mays (Corn) Gluten Protein

 Zinc Undecylenoyl Hydrolyzed Wheat

Protein

Could you post a link to this list? Some of the items appear to be soy, corn (which does have gluten but is not an issue celiac wise), and coconut derived.

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I am sorry to interfere, I have no answer but related concerns...hope this is ok :)

I was recently wondering about burt's bees products cause I use some, and a lot of them have tocopherol (origin not precised), so I contacted them and they replied I should check the ingredients, but that even for the products not containing gluten ingredients, they can't guaranty the gluten-free status -because of possible cc.

So it leaves me still wondering: not just because the possible cc, but also because they didn't precise the tocopherol thing.

I am sad, I love this brand! (and their honey lip balm!!) but it is too important, I can't overlook the problem (the lip balm is an important question for everyone; and the shampoo in my mouth/ ingesting hand cream because I eat some finger food after can definitely happen to me!)

Anyone has advice on another brand?? I am definitely picky, very dry & sensitive skin here, so I need gluten-free + organic/ no chemicals products...the less ingredients, the best!

I seem to always have problems finding a cream that moisturizes my hands enough (I usually use foot cream :))

...recently began using coconut oil and its great for my body but doesn't really do it for my hands (shampoo shouldn't be too hard, just need something soft on my skin)

Heard of "california baby", any feedback on that ??

Thank you!

Sophie

Hi Sophie,

I know you posted this a while ago, but I found Ecco Bella online and they are great. The lotion is great and they also have an entire line of cosmetics that are gluten free, organic and cruelty free. They all work great!

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This is very helpful information! Thank you to those of you who have researched this! I am wondering about the coloring:

FD & C Red No. 4, Red No. 33, Blue No. 1, and Yellow No. 5 in lotions and soaps? Does anyone know if these are things to stay away from? Thank you.

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I recently ordered from Afterglow Cosmetics...their products are all gluten free, sulfate and paraben free! I am waiting for my order to arrive but the reviews are wonderful! Also Burt's Bees has a gluten free list that is fairly extensive. I don't have the list currently as my grocery store lists the gluten free products.

I am sorry to interfere, I have no answer but related concerns...hope this is ok :)

I was recently wondering about burt's bees products cause I use some, and a lot of them have tocopherol (origin not precised), so I contacted them and they replied I should check the ingredients, but that even for the products not containing gluten ingredients, they can't guaranty the gluten-free status -because of possible cc.

So it leaves me still wondering: not just because the possible cc, but also because they didn't precise the tocopherol thing.

I am sad, I love this brand! (and their honey lip balm!!) but it is too important, I can't overlook the problem (the lip balm is an important question for everyone; and the shampoo in my mouth/ ingesting hand cream because I eat some finger food after can definitely happen to me!)

Anyone has advice on another brand?? I am definitely picky, very dry & sensitive skin here, so I need gluten-free + organic/ no chemicals products...the less ingredients, the best!

I seem to always have problems finding a cream that moisturizes my hands enough (I usually use foot cream :))

...recently began using coconut oil and its great for my body but doesn't really do it for my hands (shampoo shouldn't be too hard, just need something soft on my skin)

Heard of "california baby", any feedback on that ??

Thank you!

Sophie

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Ok so what are the safe cosmetc brands? Department store, drugstore? Thanks.

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Ok so what are the safe cosmetc brands? Department store, drugstore? Thanks.

You may need to check each product you use with the company. Or you can post your favorites here and folks might know if the item is safe. Most department and drugstore brands will have some items that are safe and some that aren't so it isn't ususaly possible to give a 'blank' company is gluten-free.

Some companies will have a list of safe items on their website or will send you a list if you call their 800 numbers.

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I'm sorry I'm not answering your question about drugstore brands, but I just recently found this company - http://www.everydayminerals.com.

I contacted them, and they said all their products are gluten free, vegan based, and free of carmine, nuts, lake dyes, fragrance, bismuth oxychloride and parabens.

Their products are SERIOUSLY reasonably priced (and I'm cheap!), plus they offer FREE samples of their foundation to help you choose your coverage/color.

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I'm sorry I'm not answering your question about drugstore brands, but I just recently found this company - http://www.everydayminerals.com.

I contacted them, and they said all their products are gluten free, vegan based, and free of carmine, nuts, lake dyes, fragrance, bismuth oxychloride and parabens.

Their products are SERIOUSLY reasonably priced (and I'm cheap!), plus they offer FREE samples of their foundation to help you choose your coverage/color.

I have to agree their products are great and the samples make it inexpensive to try and see if you like it. Well worth waiting a few days for it to come in the mail.

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Ok so what are the safe cosmetc brands? Department store, drugstore? Thanks.

After calling Neutrogena, Revlon, L'Oreal, Maybelline, etc. I started to pick up a pattern. Will they put their assurances in WRITING. Many will not. From some companies, I got a positive answer from the call line, and a we cannot comment or assure you of that in an e-mail when I sent a separate e-mail request to the same company. I repeatedly got answers that referred me to the call line, where I would get a representative where everything (or most everything) I asked about was magically "gluten-free." But the company would put nothing in writing (a Neutrogena rep even informed me that they don't have e-mail so she could not send me the list in writing).

After a while, I got suspicious.

And really, when a company gets as large as some of these are they get their product components from bidding for the lowest price possible from multiple vendors. The company has not overseen every component of their products from start to finish; many times(or even most of the time) they cannot guarantee the exact sourcing or lack of contamination of the products.

Maybe, just maybe, they are too big to really care about little ole us.

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I've used products from Neutrogena, Revlon, L'Oreal and Maybelline without issue. Since I don't ingest them nor do I have DH, I've had no problems using them. I think personal care products are generally more difficult to verify the gluten-free status. Most companies give a standard CYA response.

Edit: I should qualify that to say that obviously lipsticks or lip balms do need to be gluten-free.

Edited by sa1937

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    It’s worth noting that for all his accomplishments, Rogers is neither a doctor, nor a PhD. Rogers' LinkdIn page lists his education as: Bsc (Hons), Microbiology, University of Wales, Aberystwyth. A Bachelor of Science degree may not necessarily make an expert in this subject, yet he is presented as one.
    Rogers also seems to have a potential conflict of interest that was omitted in Thompson’s press release. Directly from Rogers’ LinkdIn site:
    “Romer Labs®, Inc. developed an immunochromatographic lateral flow assay for the qualitative detection of gluten in raw ingredients, processed foods, finished food products, and environmental surfaces, using the G12 antibody developed by Belén Morón. The G12 antibody targets a 33-mer peptide which is resistant to enzymatic digestion and heat denaturation, as well as being the fragment of the gliadin protein to which celiac disease sufferers react, making it a reliable analytical marker.” The company Rogers works for, Romer Labs, makes its own gluten testing kits. It seems a bit disingenuous for Gluten Free Watchdog to use a spokesperson from a potentially competing company to try to counteract a peer-reviewed scientific publication for a device which is made by a potential competitor.
    Nima’s Scientific Advisory Board includes some of the most highly respected celiac disease researchers and scientists in the world. They include: Peter HR Green, MD Phyllis and Ivan Seidenberg Professor of Medicine. Director, Celiac Disease Center at Columbia University; Jody Puglisi, PhD Stanford University Professor of Structural Biology; Lucille Beseler, MS, RDN, LDN, CDE, FAND Family Nutrition Center of South Florida; Benjamin Lebwohl, MD, MS Director of Clinical Research Celiac Disease Center at Columbia University; John Garber, MD Gastroenterology, Mass General; and Thanai Pongdee, MD Consultant, Division of Allergic Diseases, Mayo Clinic.
    Nima says that Gluten Free Watchdog’s view of their recently published validation is incomplete and misleading. Nima wrote:
    “All the studies show Nima is highly sensitive across a range of both low and high levels of gluten." "The Nima third party data accurately reported gluten found at 20 ppm and above between 93.3% for food as prepared (a food item that is spiked with an intended quantity of gluten) and 97.2% for food as quantified by an ELISA lab kit (used to determine the exact ppm of gluten in the food)." "The Nima peer reviewed study published in the Food Chemistry Journal reported gluten found at 20 ppm and above at 96.9% accuracy." The statement that:
    “'Nima will fail to detect gluten at 20 ppm 20% of the time' is almost entirely driven by 1 specific food out of 13 tested. That sample, when quantified, was actually below 20 ppm." "In real life, people get glutened at many different ppm levels, not just 20 ppm. Nima has been shown to detect gluten at levels below, at and above 20 ppm across a variety of foods in a number of studies.” Reading the peer reviewed data provided by Nima, and reading Gluten Free Watchdog’s complaints, it becomes clear that Gluten Free Watchdog’s complaints sound serious and authoritative, but ring a bit hollow. 
    Consider the Following Analogy
    Imagine a gluten-sniffing dog that performed as well as Nima in scientific trials; same performance, same exact data. 
    You can give this dog a sniff, or a small bite of food, and he can signal you if the food’s got gluten in it with 97% accuracy at 20ppm or below. Nearly 100% accuracy at 40ppm or above (as stated by Gluten Free Watchdog).
    People would think that the dog was not only cute and fluffy, but wonderfully helpful and everyone would love it, and everyone with celiac disease would want one. And it would be a great big gushing warm and fuzzy feel-good story. Pretty much no one would be arguing that the dog was potentially dangerous, or somehow unfit for people with celiac disease. Such dogs would also be far more expensive to own and maintain than the Nima device. Apparently such dogs can cost upwards of $16,000, not including the cost of food, vet bills, etc.
    So, what’s the accuracy rate of a gluten-sniffing dog, anyway? From Mercola.com: Willow, a German shorthaired pointer, is another gluten-sniffing dog, in this case living in Michigan. Her owner, Dawn Scheu, says she can detect gluten with 95 percent to 98 percent accuracy. She worked with a trainer (the same one who trained Zeus) to teach her own dog to detect gluten, with excellent results.
    Gluten-sniffing dogs may detect gluten in amounts as small as .0025 parts per million with 95 percent to 98 percent accuracy. So, will Gluten Free Watchdog be warning against gluten-sniffing dogs anytime soon?
    Somehow, because Nima is a mechanical device made by a company, it's not so warm and fuzzy, not so feel-good. Maybe Nima needs to shape their device like a cute little doggy, or a Pez candy dispenser?
    But the data remains, as does the fact, whatever its drawbacks, anything that detects gluten like Nima does, as well as it does, is potentially very helpful for celiac disease in numerous situations. And it is extremely unlikely to do them any harm.
    Nima seems very much committed to transparency, scientific excellence, and continual product improvement. These are noble goals and generally a win for people with celiac disease. Think of it, just ten years ago, a portable gluten-sensor with the kind of accuracy Nima is reliably achieving would have been the stuff of fantasy. Yet here it is. More accurate than any gluten-sniffing dog, and for a couple hundred bucks. People with celiac disease are living in a very different world than just a few years ago.
    Nima did not have to publish its data, but it chose to do so, and in a reputable, peer-reviewed scientific journal. Nima conducted its research using solid scientific standards, and reported those results publicly. They explained their methodology and results, they acknowledged product limitations and expressed a commitment to improvement. How is this remotely controversial?
    The celiac disease community is fortunate to have companies committed to investing time and money into products and devices that help to improve the lives of people with celiac disease. We feel strongly that the perfect should not be the enemy of the good. Devices like the Nima gluten sensor can be helpful for numerous people with celiac disease.  
    Disclosure: Nima is a paid advertiser on Celiac.com. Celiac.com's advertisers do not influence our editorial content. 
    Read Nima’s full report on test data at: Food Chemistry.com Read Gluten Free Watchdog’s Statement on the Nima device at: Glutenfreewatchdog.org Read Nima’s Reply to Gluten Free Watchdog at: Nimasensor.com

    Edward R. Arnold
    To HAIT and Back: The Musings of a Thyroid Patient on the Vagaries of Medical Diagnosis and Treatment in America
    Celiac.com 09/14/2018 - If it is really true that nobody really wants to see a grown man cry, then certainly nobody would have wanted to hang around me near the onset of a long illness whose mystery would take 14 years to solve.
    It began subtly and mildly in 1989, my 43rd year. I had just finished a long and exhausting malpractice suit on behalf of my daughter, an attractive, genetically-normal child who had contracted quadriplegic cerebral palsy in a completely avoidable incident of post-natal asphyxia which had radically changed the nature of life for my spouse and I. By the time 1989 rolled around, I was thoroughly exhausted and carrying a toxic load of anger directed at an incompetent member of the medical profession who had never learned the importance of state-of-the-art skills in a profession that literally has the power of life, death, and disability.
    From late 1989 on through 1990, I experienced strange episodes of profound sadness, usually of one to two hours duration, that became increasingly disruptive to my ability to handle a job and child-care duties. Initially, these episodes seemed to come from nowhere. Later on, I found that playing certain pieces of music of which I was fond, would send me into such intense sobbing that I would be forced to pull over if this occurred while driving.
    By the time 1991 rolled around, something was to be added to these periodic bouts of intense sadness. Early in that year, my daughter became very ill, keeping both my spouse and I awake at night for weeks on end. By the time the problem was diagnosed to be a dental infection and dental surgery was done, I had begun to have a sensation of “hollowness”, as though I really weren’t part of this world, most of the time. In late summer of that year, a series of events in which my subconscious had informed me that a friend had a serious illness, sent me into a final “dive”: I simply stopped sleeping more than about two hours per night. When I first stopped sleeping, I soon noticed that even low-level use of alcoholic beverages would further interrupt sleep and throw me into a state in which I couldn’t think of anything but how terrible I felt. This state of pronounced alcohol intolerance would continue for 14 years.
    The final blow came in November 1991, when I went into a completely disabling panic/anxiety attack that sent me to bed, cowering. I had no alternative but to seek treatment from the psychiatric profession. Unfortunately, the first two psychiatrists prescribed drugs which either had no effects, or had effects that seemed worse than the problem they were supposed to solve. The third psychiatrist, whom I stuck with for about six months, came up with a treatment plan that was partially effective (but certainly not restorative). I stayed with this psychiatrist until it became clear that his treatment was equivalent to Jefferson Airplane singing “one pill makes you larger, and one pill makes you small”. I was being jacked up every morning by a toxic, activating SSRI anti-depressant so I could semi-function, and then dropped by benzodiazepenes every night into a non-restorative twilight sleep state.
    In retrospect, the most amazing thing about these first three psychiatrists was that not one of them ordered any tests of my endocrine function. Treatment consisted solely of a series of benzodiazepenes, anti-depressants, mood stabilizers, and anti-psychotics, administered in a trial-and-error fashion that yanked my psyche and body chemistry around like a manic pit bull on a two-foot leash.
    Throughout the latter part of 1992, I transitioned to care with my primary-care physician, mostly because I trusted him more than any of the psychiatrists I had seen up to that time. He was able to stabilize me with one of the old tri-cyclic anti-depressants, doxepin, along with low doses of valium. Although doxepin packs a big morning hangover for many who use it, and has very strong anti-cholinergic effects, its ability to put me out at night helped me function satisfactorily for much of the 1990s, even at doses as low as 10mg, once daily in the evening.
    In 1993 I consulted a highly-recommended psychiatrist, who was the first psychiatrist who actually looked at my thyroid function. When my TSH was measured at 3.5, without also checking my FT3 and FT4, that doctor concluded that thyroid was not my problem. Of course, standards of thyroid diagnosis and treatment have changed radically in the 12 years since. Under the new AACE guidelines, a TSH of 3.5 would now be suspect, because studies of patients with TSH over 3.0 have shown that most progress to hypothyroidism (i.e., TSH greater than 5.5). The new AACE guidelines would mean that further testing and evaluation should be done.
    Until the fall of 1997, I continued treatment with doxepin and intermittent valium, adding the practice of meditation to help calm myself. At that time, I came back to my primary-care physician with the symptom of profound exhaustion on top of the symptoms of insomnia, anxiety, and depression I had suffered for years. Fortunately, my GP was suspicious of thyroid function, and found that my TSH was floating above 8. Since this was well above the old/traditional limit of 5.5, he was ready to start treatment, with (as would be expected of most GPs) T4-only replacement.
    I began taking thyroxine (T4) shortly thereafter with high hopes. Initially, the treatment was successful: getting the added thyroxine into my system caused an immediate improvement in quality of sleep.
    However, the use of T4 did not turn out to be an unqualified success. After use of T4 for about a month, it was apparent that use of thyroxine alone did not produce a full recovery—I still suffered from anxiety, which the medication seemed to be increasing.
    In the meantime, hair loss became an issue. Several years earlier, I had noticed that running my fingers through my hair would produce an unpleasant sensation, almost as though the hair roots were tender. By the time of my 50th birthday, in 1996, I had noticed that my pillow was virtually coated with hair by the time I would remove it for washing. Unfortunately, nobody, including my GP, reminded me that hair loss is a prime symptom of hypothyroidism; and, like most males, I was ready to assume it was plain old male pattern baldness. By the time I was treated correctly and the hair loss stopped, I had pronounced thinning on the crown which was too advanced to be reversed in response to the treatment of the thyroid problem.
    In about 1998, I began experimentation with amino acids which was to last for almost seven years. I found that use of tryptopan, 5-HTP, and GABA could reduce (but not correct) the worst of my symptoms. In retrospect, though, use of amino acids is a poor substitute for a well-functioning thyroid, as well as being expensive and inconvenient.
    By the summer of 1999, I had reached a paradoxical situation. Experimentation had shown that my body needed on the order of 100 micrograms of thyroxine (T4) to keep my TSH down to a reasonable level; yet taking that much T4 was causing intense anxiety, requiring me to use strong sleeping medications. By late summer 1999, I had noticed another distressing symptom—my acute sense of hearing was being increasingly impacted by tinnitus. Evidently, the root cause that drove me into hypothyroidism, could also impact hearing.
    It was soon after a household move in the spring of 2000, that I had a partially-disabling attack of severe epicondylitis (more commonly known as tennis elbow). It was obvious that my body was no longer able to handle the short-term stresses of the hard physical work required by a move. This obvious physical symptom, accompanied by increasing periodontal issues and continuing mental issues, prompted me to seek other treatment.
    In September 2000, I began seeing a prominent “metabolic” doctor (M.D.) who is well known for his treatment of the metabolic disorders of diabetics. This doctor has written a number of books related to dietary changes and supplements needed to stave off metabolic degeneration as one ages. I was switched to Armour thyroid, and began treatment with other hormones (primarily hydrocortisone in low doses to supplement adrenal function, and pregnenolone). I took an enormous range of nutritional supplements recommended by this doctor, and also made radical changes in diet, which I maintained for nearly two years. Unfortunately, nothing seemed to really work—I did not obtain substantial relief of my symptoms. A thyroid test in Sep 2001 still showed unsatisfactory results—my TSH was 4.7, and my FT3 was below the bottom of the normal range.
    By the spring of 2002, I had decided I would have to take my care elsewhere if there were to be progress. After doing a brief telephone consult with a naturopath outside my home state, I began seeing a naturopath in my home town for whom I had obtained very positive recommendations via a web search. By March 2002, the naturopath had informed me that testing showed my hypothyroidism was due to anti-thyroid antibodies, i.e., my body was attacking its own thyroid gland. This condition is officially known as Hashimoto’s Autoimmune Thyroiditis (HAIT—as I now know, HAIT is the leading cause of hypothyroidism). I found this discovery quite amazing; how come the three endocrinologists I had seen between 1998 and 2002, had not given me this information? I was started on Thyrolar (synthetic combination T3/T4) by the naturopath, because she said that my body’s ability to make T3 may have been compromised by HAIT.
    Soon after beginning to see the naturopath, I learned that Dr. Stephen Langer of Berkeley, CA might have additional information on the problem I had been having with thyroid hormone causing anxiety in a hypothyroid patient. I had searched for information about this syndrome in a number of places but found nothing; for instance, the well-known book “Thyroid Solution”, by Ridha Arem M.D., contains no information on the condition. So, I consulted with Dr. Langer and learned that a small percentage of people with Hashimoto’s are exquisitely sensitive to even low doses of Thyrolar. In fact, the condition is rare enough that virtually no GPs, and only a few endocrinologists, know of its existence. Apparently, it does not have an official name attached to it. I decided to refer to it as “HAIT anxiety syndrome”, although there are a few doctors who prefer to refer to any neurological symptoms accompanying HAIT as “Hashimoto’s Encephalopathy”.
    I began to feel a little better between March 2002 and June 2003. I’m not sure why the message about gluten grains had not penetrated before, but by June 2003, the naturopath reminded me again that she had seen a positive result to a test for antibodies to gliadin (one of the two major proteins in gluten grains) in 2002, and that I really should consider removing gluten grains from my diet. This recommendation was based on three factors:
    I had antibodies to the protein gliadin found in wheat and other gluten grains such as rye and barley; I had anti-thyroid antibodies which were over the threshold that defines HAIT; Medicine really is an experimental science, and this experiment, in spite of its inconvenience, appeared to be worth a try. In a numbers sense, the response of my anti-thyroid antibodies to the removal of gluten grains from my diet was slow, but gratifying. My thyroperox test started off at 25, dropped to 19 within 6 months, 7 within 10 months, and became zero in less than 2 years. I eventually concluded that the removal of gluten grains from my diet was not all that difficult, partly because I wasn’t a celiac who had to worry about that last 1%. I also concluded that removal of gluten would have a positive health effect in terms of the reduced glycemic index of the foods I consumed.
    My symptomatic improvement thereafter was not immediate. It soon became obvious that T3/T4 treatment is not an exact science, and the proportion of T3 to T4 needs to be closer to the human body’s need, not the pig’s need (Both Armour and Thyrolar have the T3/T4 ratio of one part T3 for every four parts T4, typical of the pig’s biochemistry). For instance, in late 2003, my TSH had dropped very low, i.e. I had become clinically hyperthyroid due to excess T3 as revealed by a free T3 test. I have since gone through a couple more of these “yo-yo” episodes while being treated, which is a not uncommon event—thyroid treatment is as much art as science.
    Cost of treatment also became a problem. By June 2004, I began seeing a highly-recommended Physician’s Assistant (P.A.), who was known locally to be very good at thyroid treatment, and whose clinic would accept my health insurance. I continued to see the naturopath, although at less frequent intervals, since my insurance (like most) would pay nothing for naturopathy. The P.A. and the naturopath did not completely agree on treatment methods, particularly the use of adrenal supplements (hydrocortisone and DHEA in low/biologic doses) along with thyroid supplements; but they were both in agreement that I should continue to pursue combination T3/T4 therapy. So, I blended recommendations from the two for awhile, transitioning to T3 and T4 in separate tablets of Cytomel and Synthroid, so the percentage of T3 could be altered.
    I gradually transitioned off adrenal supplements during 2005, and very gradually increased my T3/T4 supplementation over the course of the year. Finally, by September 2005, I began to realize that I truly had recovered my health—I had episodes of feeling really good again! Still, my sleep was not perfect—I had discovered what Ridha Arem M.D. has documented in the book Thyroid Solution: a return to the euthyroid state may not immediately eliminate all symptoms. After going to a small dose of the atypical anti-depressant mirtazapine, I finally could feel, every day, like I had in my 30s. Unfortunately, it had taken an agonizing 14 years to get there.
    Today, I religiously take my 10 micrograms T3, and 75 micrograms T4, split into two doses each day. I also religiously avoid all traces of gluten grains in my diet because I now understand that the gluey, hard-to-digest proteins in them are a substance which can cause major metabolic disruption. Like the co-author of the book “Dangerous Grains”, Ron Hoggan, with whom I have corresponded, I have come to realize that our society’s over-use of a potentially toxic substance isn’t just dangerous to the 1 in 133 people who have full-blown celiac disease—it can cause a very poor quality of life for the approximately 1 in 5 who have gluten intolerance. I have also come to the realization that, to those few who are unlucky enough to encounter the HAIT Anxiety Syndrome, you may require combination T3/T4 therapy to feel better; and, you may never feel as well as you did when you were young, unless you find a way to stop your immune system from waging war on your thyroid.
    Most of all, 14 years after it started, I feel as though a significant part of my life has been taken from me. I was unable get joy or pleasure from life, I was unable to work effectively, and I was unable to be the kind of parent I could have been between my 45th and 59th years of life.
    I never imagine that I would be looking forward to the relatively advanced age of 60. However, given that I now feel better than I did at anytime between the ages of 43 and 59, 60 looks like a good place to be.
    Summary:
    In retrospect, the most important things I ended up learning from 14 years of very unpleasant experience are:
    If you have psychiatric symptoms, e.g., depression, anxiety, panic disorder, etc., make sure your endocrine system is evaluated, with thyroid testing as the cornerstone. Beware of doctors who offer an antidepressant first thing, without endocrine evaluation. The emotional/psychiatric effects of hypothyroidism are just as important, and just as damaging, as the physical ones. Unfortunately, many MD’s focus on the physical. If you want to get well, you have to apply all your skills and intelligence to investigating your problem, which most MD’s may not understand. You may also have to turn to “alternative” practitioners. If your TSH is above 3.0, or maybe even 2.5, and your doctor will not do more comprehensive testing (e.g. FT3/FT4), and/or try a test run of thyroid supplementation, find another doctor. If your doctor diagnoses you as hypothyroid, demand that a test for anti-thyroid antibodies be done. If you have any antibodies, even if they are under the threshold where HAIT is considered to start, get testing for allergy to foods, and testing for allergy to common environmental toxins if food testing reveals nothing. You may find, as did I, that you won’t feel as well as possible until you free your body from antibodies.

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