Jump to content
Celiac Disease FAQ | This site uses cookies GDPR notice. Read more... ×
  • Sign Up
0
Sparrowing

Test In 2 Weeks, But I've Been gluten-free...

Rate this topic

Recommended Posts

I've cut out gluten for the last few months. A couple of times I reintroduced it as a test, and since there was definitely noticeable digestive reactions (diarrhea, cramps, bloating, etc.) I want to get actually tested for celiac disease. I just got an appointment to go into my student health clinic in two weeks - since I haven't been eating gluten, is that too soon? The test itself may not happen that day, so I could postpone it. If I eat wheat-y, gluten-tastic food between now and then, will that be enough for my body to be producing "high levels of antibodies" or whatever it is that the test detects?

Should I only eat a little bit of gluten in that time? Should I eat more?

Share this post


Link to post
Share on other sites

You really need to get back on a full gluten diet for at least 3 months before testing. The tests are for antibodies and if you haven't been eating gluten you are not producing enough antibodies for the test to have any chance of being positive. Even on a full gluten diet the tests may be a false negative. If your body rebels strongly to gluten that is pretty diagnostic in itself. One other option you have is Enterolab, they do not diagnose celiac but they can look for the antibodies in the stool, your body does not produce antibodies to something it wants in your body.

Share this post


Link to post
Share on other sites

You need to be eating a normal gluten containing diet for the tests to be accurate. If you have been gluten free (generally), the tests decrease in accuracy.

Share this post


Link to post
Share on other sites

You've been gluten free for a couple months, there is no reason to expect blood testing to be accurate.

As noted, you need to be eating plenty of gluten (~3 slices of bread a day, or the equivalent) for quite a while (3 months).

Share this post


Link to post
Share on other sites

I'm currently in the same situation. I've been gluten-free for 7 years, and I'm having blood testing and an endoscopy done this Friday. I've been ordered by my doctor to eat gluten for the next three days. I had a bagel sandwich and chicken noodle soup. This resulted in severe bloating, constipation, vertigo, and severe fatigue. So I would say 2 weeks is enough if you eat a little bit of gluten everyday.

Share this post


Link to post
Share on other sites

I'm currently in the same situation. I've been gluten-free for 7 years, and I'm having blood testing and an endoscopy done this Friday. I've been ordered by my doctor to eat gluten for the next three days. I had a bagel sandwich and chicken noodle soup. This resulted in severe bloating, constipation, vertigo, and severe fatigue. So I would say 2 weeks is enough if you eat a little bit of gluten everyday.

Clearly your gluten challenge is positive however you can fully expect to have negative blood work and endoscopy. You were fully healed and you must redamage yourself enough to destroy your villi for an endoscopic exam. Three days is definately not enough of a challenge for either positive blood work or biopsy if you have been gluten free for 7 years. Your doctor is not well educated about celiac, sorry to say.

Share this post


Link to post
Share on other sites

Clearly your gluten challenge is positive however you can fully expect to have negative blood work and endoscopy. You were fully healed and you must redamage yourself enough to destroy your villi for an endoscopic exam. Three days is definately not enough of a challenge for either positive blood work or biopsy if you have been gluten free for 7 years. Your doctor is not well educated about celiac, sorry to say.

I figured he wasn't very educated on Celiacs from when I met with him, but this is my only option in trying to prove I have it to live off-campus at my college.

Share this post


Link to post
Share on other sites

I figured he wasn't very educated on Celiacs from when I met with him, but this is my only option in trying to prove I have it to live off-campus at my college.

If that is what you need to do I would ask the doctor to schedule the test for August and get back on a full gluten diet until then. If you have been gluten-free for years did you already get diagnosed as a child? Or did you have problems as a child that lead the doctor to advise the diet? If so perhaps your ped already diagnosed you, I would give them a call to find out.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Top Posters +

  • Upcoming Events

    • February 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
  • Member Statistics

    • Total Members
      86,544
    • Most Online
      4,125

    Newest Member
    AlyssaAnn22
    Joined
  • Forum Statistics

    • Total Topics
      111,814
    • Total Posts
      955,906
  • Who's Online (See full list)

  • Forum Discussions

    Hi Wade, You areright, there are lots of little gotchas out there in the gluten-filled world.  That's why it is easier/safer to stick with whole foods at the beginning of the gluten-free diet.  The list of ingredients on an apple or an orange or a steak is usually real short.  So you can get out of the grocery store quicker by eating whole foods like those.  Plain frozen veggies or canned are usually safe too.  And fresh produce as long as you give it a quick rinse.
    Why....why would your doctor not follow the standard of care for testing celiac disease?  I think you need to think about  finding another doctor.  If you are in the US, you can “walk” into a lab and order the test and pay cash: https://labtestsonline.org/tests/celiac-disease-antibody-tests No, your result does not significantly lower your odds of getting a celiac disease diagnosis.  She ordered the LEAST commonly used test, especially since she only ordered that one alone.  I think she thinks you do not have celiac disease, but that you may have a gluten sensitivity.  But that is wrong!  There is no test for gluten sensitivity.  http://www.cureceliacdisease.org/screening/ https://www.mayocliniclabs.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ https://www.verywellhealth.com/celiac-disease-blood-tests-562694 https://www.niddk.nih.gov/health-information/diagnostic-tests/celiac-disease-health-care-professionals I am not a doctor though.  Perhaps, you can ask her why she did not order the complete panel or at least the screening tests most often ordered for celiac disease. Know that some celiacs are asymptomatic (no symptoms) Some just have one symptom.  Some have classic symptoms.  I presented with only anemia and no GI symptoms with only a positive on the DGP IgA.    I hope this helps.  
    Got the result today, and it is indeed the IgG only, and it is "negative" with a result of: <10.0 Units I have sent a message to my doctor requesting that she at least also order the TTG IGA test. However, I'm assuming that this result does at least significantly lower the likelihood that I have celiac? This is all just a shot in the dark anyhow... but after 8 years of unsatisfactorily diagnosed mystery joint pain, I don't want to only half-explore an option and then abandon it without a reasonably definitive result.
  • Blog Entries

  • Blog Statistics

    • Total Blogs
      1,158
    • Total Entries
      2,010
×