Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

kbidarch

What To Expect With Scope

Rate this topic

Recommended Posts

My 3 year old had a positive blood test in April, and will be scoped in 2 weeks. I don't know anything about the procedure, but I'm most curious about how soon we'll know the results. Is this something that we should have near-immediate results on, or is there usually a wait between scope and results? Does anybody know how accurate the scope is?

Also, what are the chances of a false-POSITIVE on blood-test? I just got off the phone with the nurse, getting the actual numbers. I don't know what this means, exactly (or if I'm even spelling things correctly - forgive me), but here's what I have:

IGE level - 196 (normal: 128)

Gliadin antibody - IGG antibody - 42 (normal: 17)

IGA levels were normal.

Share this post


Link to post
Share on other sites

My 5 yr old daughter had her scope done 3 weeks ago. They could visually see the effects Gluten had on her and tell me immediately. I had to wait 4 days (they say 5-10) for the biopsy results.

You CAN get a false negative on blood work, I do not believe you can get a false positive. You CANNOT get a false negative or false positive on a biopsy if they are checking for infection. The scope itself may not conclude if you have celiac disease if your Villi are not affected. Therefore, MAKE sure your child EATS gluten regularly before the test to improve chances of a good identification. YES it's stinks to give it too them but better to give them it short term than a bad diagnosis and problems for long term. If you want details on the scope email me and I'll tell you how it was handled.

Really important to eat Gluten before the scope.

The scope will also show if there are ulcers or other things going on to cause stomach pain and swelling.

Good luck,

Share this post


Link to post
Share on other sites

My 3 year old had a positive blood test in April, and will be scoped in 2 weeks. I don't know anything about the procedure, but I'm most curious about how soon we'll know the results. Is this something that we should have near-immediate results on, or is there usually a wait between scope and results? Does anybody know how accurate the scope is?

Also, what are the chances of a false-POSITIVE on blood-test? I just got off the phone with the nurse, getting the actual numbers. I don't know what this means, exactly (or if I'm even spelling things correctly - forgive me), but here's what I have:

IGE level - 196 (normal: 128)

Gliadin antibody - IGG antibody - 42 (normal: 17)

IGA levels were normal.

Hello and Welcome!

According to what I understand from the research I have read, lab results are not as accurate as we would like, for children under the age of 5. It has something to do with antibody productions in their little bodies??? Hopefully, others could clarify this.

As an adult, the scope was easy (except the the adult anxiety). They put you to sleep and you wake up and it's over. A minor sore throat may be an issue, others say not for them.

We have lots of Moms here, who will be here to answer you questions shortly...

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 20, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
What did you find out about your daughter ? My son is 6 and has used the exact same sentence!! He feels like there is a bubble in his throat. He has been complaining on and off for the last year and recently it seems he complains more Ans Wants me to make a doctor appt. he had reflux bad as a baby until about 2.5 and allergies to fomula Ans my milk but since then I thought that all went away. 
  • Blog Entries

  • ×
    ×
    • Create New...