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quincy

Treating Vitamin D Deficiency

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Has anyone had success with Vitamin D therapy through a prescription dose of it? I went to a doctor who said that my numbers won't come up with 2200 IU's of D3 daily, that I need to do a therapy of 50,000 IU's a week for several weeks and then see how the numbers move. Several people I know have taken the prescription dose and have had success

I think this is the key to my healing as I have muscle aches, dizziness, and anxiety which are all signs of low D. I have been gluten free for about 4 weeks despite an accidental glutening which set me back a week.

any feedback would be great.

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Has anyone had success with Vitamin D therapy through a prescription dose of it? I went to a doctor who said that my numbers won't come up with 2200 IU's of D3 daily, that I need to do a therapy of 50,000 IU's a week for several weeks and then see how the numbers move. Several people I know have taken the prescription dose and have had success

I think this is the key to my healing as I have muscle aches, dizziness, and anxiety which are all signs of low D. I have been gluten free for about 4 weeks despite an accidental glutening which set me back a week.

any feedback would be great.

That's what I did, then I switched to once a month, with tablet D every day. Levels are good now.


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

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I've been taking Rx vitamin D (50,000 iu) weekly for over a year. My numbers went from 17 over a year ago to above 60 last month. I'm still taking it at the recommendation of my endocrinologist and gyn.


Me:
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease


DS2(age 9):
celiac disease(positive IgA tTG, no biopsy- 11/2010)


DS1(age 13):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.

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Do you live in an area with sunshine? If so, the best way is to get it naturally from the sun, because you can't overdose on it (of course, you don't want to let yourself get sunburned). I'm very fair skinned so I lay out on my deck for 7-8 minutes each side between the hours of 11-1 when the sun is at it's best (I've gotten all my information from Dr. Mercola). Because I can't always get it the sun, I also supplement with 4,000 IUs each day. The last time I check, my levels were perfect. I'm going next week to check them again. If you take supplements, you'll want to check them frequently because it can build up in your fat and become toxic.


2010- Gluten, Soy, Corn, Dairy, Eggs, Nut free. Sugar, non-gluten grains lite(Yes, still plenty to eat!)

2010-Doctor diagnosed me as Celiac then took diagnoses back, then said avoid gluten for life

2009

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Do you live in an area with sunshine? If so, the best way is to get it naturally from the sun, because you can't overdose on it (of course, you don't want to let yourself get sunburned). I'm very fair skinned so I lay out on my deck for 7-8 minutes each side between the hours of 11-1 when the sun is at it's best (I've gotten all my information from Dr. Mercola). Because I can't always get it the sun, I also supplement with 4,000 IUs each day. The last time I check, my levels were perfect. I'm going next week to check them again. If you take supplements, you'll want to check them frequently because it can build up in your fat and become toxic.

I live in the Northeast and I crave the sun. Summer is when I fill up on D but it goes right back down during the winter. This winter has been especially tough since developing the celiac reactions that I am now seeing.

I knew I was very low on D before they ran the test. The depression and anxiety have been horrible.

thanks for the feedback. I realize that it is D2 rather than D3. I will try it for a few weeks and see if I feel better. I don't think there is a prescription grade D3 to my knowledge.

I use LabCorp and their reference range is 32 to 90 I believe. I came in at 16.4.

My concern is that D is fat soluble, and I am having a hard time digesting anything fatty, even omega 3 fish oil. It gives me extra trips to the restroom.... any thoughts on that would be interesting as well.

John

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I've been dealing with that for two years. Every time I go, I end up with another Rx for 50,000 IUs a week. Usually for 3 months then a recheck. A doctor told me to just start taking 4,000 IUs daily. I do, and haven't had a problem since.

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I've been dealing with that for two years. Every time I go, I end up with another Rx for 50,000 IUs a week. Usually for 3 months then a recheck. A doctor told me to just start taking 4,000 IUs daily. I do, and haven't had a problem since.

thank you for that bit of info as this will be my strategy if the 50,000 Rx is not effectual. most of my GI discomfort comes from the duodenum area. did anyone's GI discomfort subside more readily once the Vitamin D levels came up? I imagine once the inflammation goes down and the villi extend it should subside also..

thanks.

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I live in the Northeast and I crave the sun. Summer is when I fill up on D but it goes right back down during the winter. This winter has been especially tough since developing the celiac reactions that I am now seeing.

I knew I was very low on D before they ran the test. The depression and anxiety have been horrible.

thanks for the feedback. I realize that it is D2 rather than D3. I will try it for a few weeks and see if I feel better. I don't think there is a prescription grade D3 to my knowledge.

I use LabCorp and their reference range is 32 to 90 I believe. I came in at 16.4.

My concern is that D is fat soluble, and I am having a hard time digesting anything fatty, even omega 3 fish oil. It gives me extra trips to the restroom.... any thoughts on that would be interesting as well.

John

Just thought I would address the problem with digesting fats. It could help you to take a digestive enzyme every time you eat. I would look for one that tells you how many grams of carb, fat, and protein that it will breakdown.

Your doc likely won't know too much about it, but you could ask. It's really common to have problems with your pancreas - which is the organ that helps to produce enzymes to break down food - with celiac diseas/gluten intolerance.

Personally, I was having trouble no matter what I ate and it really helped me to take a digestive enzyme.

I have been having trouble with Vit D too, so I'm going to keep an eye on this thread and see what info people come up with.

Hope you feel better soon!

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My vit D level was a 17 (if I remember correctly). I just finished my 6 weeks of 50,000 IU weekly and now I take 1000 per day. I'll be going next week for blood work to see if the numbers have come up. Mt b12 was fine but in the past that was low requiring b12 shots. My bone density test showed signs of osteopenia so I really need the calcium and vit D to come up. Is there a way to test calcium levels?


40 year old former foodie on a quest to feel better!

-IgE to oats and rye

-Diagnosed with
Colitis
via endoscopy/colonoscopy Oct '10

-Following
FODMAP
diet since June '10, Positve
SIBO
test, July '10

-Diagnosed
non-celiac gluten intolerant
June '10 (celiac in March '10, endocsocopy in Oct '10 shows no signs of celiac)

-
Osteopenia
June '10

-
Gluten free
since July '09 &
Soy free
since December '09

-
Dairy free
since '06

-
IBS & Sjogren's
diagnosed '05

-
RA
diagnosed as a toddler

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kayo,

what i remember from research was that we depended on 24 hour urine collections to see how your body was doing with calcium absorption/release. Go off the supplement for one week, then collect for a full day, and if it's over a certain amount you're either not absorbing or have some hormonal imbalance that causes you to release... PTH and serum calcium can also be checked, I think.

somewhat vague memories.

good luck


2/2010 Malabsorption becomes dramatically noticable

3/2010 Negative IgA EMA; negative IgA TTG

4/2010 Negative biopsy

5/2010 Elimination diet; symptoms begin to resolve on gluten-free diet round two (10 days)

5/2010 Diagnosed gluten sensitive based on weakly positive repeat IgA & IgG TTGs and dietary response; decline capsule endoscopy.

Now, what to do about my cookbook in progress? Make it gluten-free?

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Has anyone had success with Vitamin D therapy through a prescription dose of it? I went to a doctor who said that my numbers won't come up with 2200 IU's of D3 daily, that I need to do a therapy of 50,000 IU's a week for several weeks and then see how the numbers move. Several people I know have taken the prescription dose and have had success

I think this is the key to my healing as I have muscle aches, dizziness, and anxiety which are all signs of low D. I have been gluten free for about 4 weeks despite an accidental glutening which set me back a week.

any feedback would be great.

I get my blood work done every three months. My D was one of the really severe imbalances. After 6 months of 6,000 IU of D3 a day my Dr. upped me to 8,000 as my D level were still below normal, though improving. At 2,000 IU a day my level was at 18. At 6,000 it was 28. 30 is the low end of 'normal'. This has really helped my fatigue.

I'll be getting rechecked in July so it'll be interesting to see where it is then.


Undiagnosed for 20 years since first symptoms.

March 2009 - Negative Blood work

April 24, 2009 - Gluten-free

April 29, 2009 - Notably positive response to gluten-free Diet.

May 2, 2009 Dairy Free

May 6, 2009, Soy Free

May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8

June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)

June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.

July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)

August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

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I get my blood work done every three months. My D was one of the really severe imbalances. After 6 months of 6,000 IU of D3 a day my Dr. upped me to 8,000 as my D level were still below normal, though improving. At 2,000 IU a day my level was at 18. At 6,000 it was 28. 30 is the low end of 'normal'. This has really helped my fatigue.

I'll be getting rechecked in July so it'll be interesting to see where it is then.

very interesting. so at my current 2200 IU's a day I might only maintain my low number of 16. thanks for that. It seems like we need more to get to normal then. Thanks!

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Just thought I would address the problem with digesting fats. It could help you to take a digestive enzyme every time you eat. I would look for one that tells you how many grams of carb, fat, and protein that it will breakdown.

Your doc likely won't know too much about it, but you could ask. It's really common to have problems with your pancreas - which is the organ that helps to produce enzymes to break down food - with celiac diseas/gluten intolerance.

Personally, I was having trouble no matter what I ate and it really helped me to take a digestive enzyme.

I have been having trouble with Vit D too, so I'm going to keep an eye on this thread and see what info people come up with.

Hope you feel better soon!

thank you. I appreciate it. I bought some Enzymes from Lame Advertisement.com a few months ago when I didn't know I had celiacs. I purchased the NOW brand of enzymes. I read somewhere that the Betain can be a little harsh on your stomach. My Endoscopy showed inflammation in the stomach and lower part fo esophagus, so if you have any further input on a particular brand of enzymes I will look into this further. I really need the omega fats because my HDL/LDL ratio is inverted to the bad side....

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I just had mine checked, and it was 15.7 (32-100). The dr ordered 50,000 IU three times a week for the next six months. That seems like a lot in comparison to some of you.

Trillum - I had mine checked and it was 18. My doc put me on 50,000 IU once a week for 8 weeks, then 2000 iu/day for a few months, which is what I'm doing right now. Haven't rechecked levels yet.

50,000 three times a week sounds extraordinarily high... :blink:

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I've done the D3 50,000 IU weekly treatments and they weren't as helpful as the 5,000 IU daily treatments. We didn't know I was Celiac until 5 weeks ago (although it was suspected), so now that I'm gluten free, hopefully my numbers will increase.

In case anyone needs this info: You don't need an RX for 50,000 IU D3. You can order directly from BioTech at 800-345-1199.


Diagnosed with Celiac Disease, July 2010, after 20 years of chronic low blood sugar and GI issues. I blame undiagnosed Celiac Disease for not becoming a professional marathon runner and being such a pathetic athlete in college. I was robbed :)

Gluten Free 04/2010

Dairy Free 06/2010

Soy Free 05/2010

Legume Free 05/2010

Caffeine Free 05/2007

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I just had mine checked, and it was 15.7 (32-100). The dr ordered 50,000 IU three times a week for the next six months. That seems like a lot in comparison to some of you.

Wow. It is, but perhaps he is concerned about osteo issues since low D not only inhibits calcium uptake but actually can accelerate bone mass loss.


Undiagnosed for 20 years since first symptoms.

March 2009 - Negative Blood work

April 24, 2009 - Gluten-free

April 29, 2009 - Notably positive response to gluten-free Diet.

May 2, 2009 Dairy Free

May 6, 2009, Soy Free

May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8

June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)

June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.

July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)

August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

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I just mailed the script off this am. I think I'll double check with her before I start it.

It's funny. I've been asking for a bone scan since I was diagnosed, but they keep refusing because they say insurance won't pay.

And to think they told me "just don't eat gluten and everything will be fine." :rolleyes:

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And to think they told me "just don't eat gluten and everything will be fine." :rolleyes:

HAHA! <_< *sigh* Yeah..... totally understand. Good luck... Let us know how it goes. I recently finished up 6 weeks of 50,000 once per week. Brought my levels up from 18 to 59. Just trying to figure out my maintenance dose now. Going to try 2500/day and get retested soon. Now I'm thinking I want to be closer to 80. Still have struggles with fatigue...

Make sure they test your calcium too.


Diagnosed 2/12/09 by biopsy after years of anemia, neuropathy, dizziness, brain fog, pain and more.

Negative blood tests (following gluten light diet)

Still healing with time, harmony, and good food.

Grain-free 1/11/11

Blogging Gluten-Free

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HAHA! <_< *sigh* Yeah..... totally understand. Good luck... Let us know how it goes. I recently finished up 6 weeks of 50,000 once per week. Brought my levels up from 18 to 59. Just trying to figure out my maintenance dose now. Going to try 2500/day and get retested soon. Now I'm thinking I want to be closer to 80. Still have struggles with fatigue...

Make sure they test your calcium too.

may I ask which RX of D you were taking? this one doctor prescribed the D2 but I understand the D3 is the better one to take...

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may I ask which RX of D you were taking? this one doctor prescribed the D2 but I understand the D3 is the better one to take...

Good question. We have had a couple of discussions on this. See, for example:

The cholecalciferol seems to be the preferred choice.


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

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