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LqrMan

Any Other Tall Celiacs Out There?

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I couldn't find the best place to make this topic, so I put it into the health section. I am 6'2'' and remarkably continued to grow even though I was malnourished/anemic/had osteoperosis before being diagnosed with celiac disease! I was just wondering if there are any other tall celiacs that can relate because I always thought celiac could stunt your growth if not dealt with properly.


Rob

27yrs old

Astoria, NY

Gluten-free since May 1999-- My 10 yr anniversary is coming up!

Lactose Intolerant since March 2006

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I haven't been officially diagnosed as Celiac but I am gluten intolerant and have had symptoms most of my life. BUT I am 5'10", have great teeth (no cavities) and as far as I know, no osteoperosis.

Stephanie


Diagnosed by food challenge, 10/04

Gluten-free since 10/04

Gluten-sensitive genes: HLA-DQ 1,3 (Subtype 6,9)

Interstitial Cystitis, 7/07

Fibromyalgia, 6/11

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Guest BellyTimber

I'm 50 so this story goes back.

My parents who are now elderly have been unburdening themselves of the odd matter that they had kept to themselves or even just plain forgotten about, as is normal I'm sure.

My experience was that I was seriously emaciated, underweight and weak from age about 5 to well past 20, but never stopped putting on height and in fact was almost the tallest in the class bar one or two until most of the rest caught up with me at around age 16. I have been 6ft since about age 16, which would have been tall earlier in the century but is perhaps near average among my contemporaries.

Am now 15st due to middle age spread which further confuses doctors.

What my folks just told me is, they were almost in trouble because I was so emaciated. This was after coeliac disease was heard of but evidently insight hadn't spread.

I had lots of symptoms that later (but not very well known) science has associated with celiac disease-like conditions.

HTH :)

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darn... I wish I put on height after I went on the diet... 5"2' is tough to shop for - but hey, I can fit the cheaper childrens clothing. ;-)


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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Guest imsohungry

Hey there! B)

Interesting topic! I'm 5'8" and have been thin my entire life. Of course, I fight multiple chronic disabilities...so I can't necessarily blame my blood probs. and thinness on celiac disease alone.

Hee hee...I was 5'6" by the end of elementary school with a whopping size nine foot. Doctors thought I would be closer to six feet, but I got sick and quit growing remarkably early.

Could be a blessing in disquise...I could be a giant! :P

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Guest imsohungry

Hi Smith...I didn't mean that being tall means you are a giant (in any negative way)...Like you, I also appreciate my height. B)

Well, all you tall ladies and gents out there have a good day! -Julie ;)

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I wanted to be six feet tall. Was a goal. I had a size 10 shoe at the end of 6th grade. Still wear size 10 shoes. I met a second cousin of mine about 10 years ago and she wears size 12, for some reason I was envious of this!

Funny anyway, I guess there is no one way to look/be with gluten intolerance.

Stephanie


Diagnosed by food challenge, 10/04

Gluten-free since 10/04

Gluten-sensitive genes: HLA-DQ 1,3 (Subtype 6,9)

Interstitial Cystitis, 7/07

Fibromyalgia, 6/11

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Hey all...thanks for the replies!

I guess our bodies are quite amazing if they are able to still grow with health problems. We are quite the diverse group of celiacs! My goal growing up was to be taller than my father and be 6'1'' but then I said the heck with that, might as well be 6'2''. I have size 12/13 feet too...


Rob

27yrs old

Astoria, NY

Gluten-free since May 1999-- My 10 yr anniversary is coming up!

Lactose Intolerant since March 2006

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I'm 5'8" but I stopped growing a couple years before I was diagnosed so I don't know if celiac disease affected my growth that much. I have always been thin, but not underweight. My dad is really tall (6'6") so I think I reached my "natural" height.

Bre


Bre

Age 29

Diagnosed (blood and biopsy) in 4/01.

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I'm 5'9", and I am the shortest one in my family..... People used to call my dad an "ex-mountain", he's huge......

My daughter (who so far is not celiac) is only 11 and she is already 5'7" with a ladies size 9 foot!!!! I am still waiting for her growth to level off a bit...... Interestingly, my younger daughter who is 6 is the cutest, tiniest, petite little pixie you ever saw. Go figure, eh? Two children, same parents, opposite ends of the spectrum.....

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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I'm 5'8 -5'9ish, I guess that is kind of tall. I think I only developed celiac disease about two years ago (I'm 20 now), which was when I stopped growing. Its hard to tell if I stopped growing because of celiac or just because of my age.

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We suspect my dh has had celiac disease since childhood,always extremely thin,now at 6ft at 110 pounds.

Oddly enough most of his family are on the small side(one brother is only 5ft 4inches-no celiac disease)

It seems that children grow-even if they're malnourished-but I think you pay the price in your health in later years.


It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki

Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

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I'm 6'1" and I went through a huge growth spurt my junior and senior year in

High school. I still have knee and back pain! I think I developed Celiac a little bit later in life.


Diagnosed January 2004

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This is an interesting topic. Celiacs do come in all shapes and sizes.....

I'm 173 cm, I think that's 5'9. Looking back, have had celiac disease symptoms all my life. My sister is exactly the same height, and both my brother and father are tall people. But I was always the very slim one, even though I ate HUGE amounts of food all day long.

Misa :D

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