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Ok so my doctor was 25 if he was a day old. The interesting thing (person) was the triage nurse. She was all of 20, but when I got there she asked me what I'd eaten and I told her what I had for breakfast then I told her a frozen chicken breast and bbq sauce and she said "oh, you're a celiac?" :o

So they gave me an IV and drew a lot of blood. Then they came in and shot liquid valium into that iv and took me down for a CT scan of the brain and guess what? NORMAL! :lol:

So the doctor said that he wants me to come on back in tomorrow and get all the other tests run as scheduled by my own doctor. He said "with the acuity - ? meaning how acute the vertigo is, he said, "with all your tests being negative, I think the tests your doctor scheduled are in order, as it seems dietary changes are in order".

Then the triage nurse (who said I smell soooo good LOL - I told her it's something I bought on ebay for $2.79) she took my iv out and she says "here's yours papers, you've got acute vertigo - sounds pretty celiactic to me" then laughed and asked if we liked the new word she made up. I think she must be a celiac or related to a celiac, cuz she seemed to know more about it than he did.

So I'm going back tomorrow for my tests, they couldn't do them then because ER costs three times as much and I wasn't fasting. And he asked if I needed an RX for Antivert or Valium, and I said I have a bottle of both in my purse and he said the valium might work better for now because of the increased anxiety. Before I stopped eating gluten, this is the reaction I always had. And when I was sitting there waiting for my daughter to pick me up, my stomach sounded like there was a live elephant in their just roaring it's head off, the sweet baby ray's I was eating was honey something flavor.


Be kind to each person that you meet, for everyone is fighting a great battle

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I said I have a bottle of both in my purse and he said the valium might work better for now because of the increased anxiety. Before I stopped eating gluten, this is the reaction I always had. And when I was sitting there waiting for my daughter to pick me up, my stomach sounded like there was a live elephant in their just roaring it's head off, the sweet baby ray's I was eating was honey something flavor.

That loud tummy is something that happens to me now only when glutened. IMHO it sounds like something 'got' you. As to the BBQ sauce I wonder if maybe you are one of those rare celiacs like myself that react to distilled gluten grains. Not a definate as I don't know what their distilled vinegar is derived from but I have never been brave enough to try it since Wegmans has a couple that are for sure safe for me.

Glad they were knowledgable and hope your feeling better.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Connie, Glad to know your brain is "normal" and you are feeling better.

This may cause me to lose my Celiac Club membership but: is it possible that Celiac may not be the problem? Just something to ponder while you are going thru all the blood sugar type tests.

Yes, everyone, I know you can have Celiac and other illnesses. :).


 

 

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. . . and took me down for a CT scan of the brain and guess what? NORMAL! :lol:

Say it isn't so!!!!! :lol::lol:

Hope you get some answers with your testing tomorrow!!

I like that "Celiactic" . . . I shall have to incorporate that into my vocabulary.


Janet

Experience is what you get when you didn't get what you wanted.

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I remember new years day, sweetie and I took my mom out for New years day dinner.

Next morning I woke up with a very bad headache and dizzy, Then it progressed into heart palpatations, then my left arm and shoulder stated alternating from hurting to numbness, started having trouble breathing. I thought I was having a heart attack. Finally went to the ER and after extensive tests. Ekg was normal, checked for blood clots in the lungs, gallbladder was fine, no brain hemorrages. Everything came back normal. According to the ER dr, who thankfull knew about Celiac told me it was either cc or I managed to get glutened somehow. I know I definitely don't want to experience that ever again.

I hope you figure out what it is.


Lupus, Connective Tissue Disease with Fibro type symptoms, Anemia, Anxiety, Depression, RA, Rynauds Syndrome, Chronic Fatigue Syndrome, Erosive Gastritis, Osteoporosis, Degenerative Disc Disease, Scoliosis, Bulging discs in lower back and neck, Pinched Nerves.

 

Soy free, MSG free, mostly Dairy free. Endoscopy shows blunted Villi which dr states as gluten sensitivity, so goin back to being gluten free

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I wasn't thinking that I actually have celiac. I was thinking that I'm gluten intolerant. I thought that's what the blood tests I'm getting are for - ? I'm so confused at this point .....


Be kind to each person that you meet, for everyone is fighting a great battle

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Say it isn't so!!!!! :lol::lol: I like that "Celiactic" . . . I shall have to incorporate that into my vocabulary.

Yeah, my family got a big kick outta that one! Your brain is normal - ? girl, please! :D


Be kind to each person that you meet, for everyone is fighting a great battle

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My understanding is the blood test will be for Celiac antibodies. If you haven't been eating gluten, these tests may not find anything. Seems that some docs call Celiac gluten intolerance or an alllergy. Its not, techically, but some either don't know the difference or say that to make it easier to understand. Go get your blood sugar stuff done. Relax and use the time to read or do a crossword. When you get that figured out, you will feel better.


 

 

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I wasn't thinking that I actually have celiac. I was thinking that I'm gluten intolerant. I thought that's what the blood tests I'm getting are for - ? I'm so confused at this point .....

If you are already gluten light or gluten free those blood tests for celiac/GI will be negative. I consider both celiac and gluten intolerance to be the same thing, while some others consider gluten intolerance to be what shows up before full blown celiac appears. Both are autoimmune but with GI sometimes other organs are affected before the gut is. Since both have to be just as strict with the diet to me it is a moot point which label you put on it. Just my opinion. And yes it is confusing.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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