Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Kim27

Ttg Level Drop... Opinions?

Rate this topic

Recommended Posts

Hi All!!

So to reiterate my story quickly, I was diagnosed with Celiac disease in April. In March I had a ttg level of 168. I've been completely gluten-free since 4/28 (biopsy date) (that I know of!!!). My doctor wanted to check some vitamin levels last week and so she said while we're at it we might as well check your ttg-iga level. I protested because I had only been gluten-free for 5 weeks and thought it wouldn't be enough time for my levels to drop really or be normal. She insisted saying let's just see to see if your body is dropping/responding at all. I had read that most people don't get rechecked until 4 to 5 months after being gluten-free. So I heard from the nurse today that as of last Friday my ttg level is at 65. The doctor hasn't had a chance to talk to me about it yet, but the nurse did divulge the level number. So what do you all think??? At 5 weeks gluten-free should it lower??? Should it be closer to normal????!!! The normal range they use it 0-19. I want to be encouraged that it has dropped to 65 and just think my body needs more time, but I also want others opinions to see if they think it should be lower than that by now and gluten might be sneaking in somewhere!

Thanks for any opinions!

Kim

Share this post


Link to post
Share on other sites

You're doing great! It usually takes a few months for Ab levels to drop so seeing results after five weeks is good news.

Share this post


Link to post
Share on other sites

My doctor called later this afternoon & said she's very happy with these results so far & that Im doing good with it. She said normally within 5-6 months, the ttg should be closer to the normal range. Thanks everyone for the encouragement! Knowing that it has dropped by 103 already makes the hassle worth it! ;)

Share this post


Link to post
Share on other sites

My lab uses <19 as normal. I know labs can vary but from what I've read from others on here for the TTG IGA that seems to be pretty typical. 0-19 is normal, 20-30 lowly positive, >30 very positive (at least that's what my Dr. told me)

Share this post


Link to post
Share on other sites

I think it definitely depends on the lab. My lab said:

< 5 Negative

5 - 8 Equivocal

> 8 Positive

My tTG was > 100 (definitely positive followed up with EGD/biopsy - also positive)

Share this post


Link to post
Share on other sites

Hello- my TTG level was 38 and my lab said <5 negative. I have my biopsy Tuesday morning- did you have a lot of intestinal damage? I am so nervous about that. I have this horrible pain in my left side (just under the ribs and wraps around the the lower back).

Does a higher TTG level indicate more intestinal damage?

Share this post


Link to post
Share on other sites
.

Does a higher TTG level indicate more intestinal damage?

Not really. Don't worry. Even if there is damage, it will heal when you go off gluten.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
While traveling out of state,  I managed (once again) to get glutenized (is this a word?) Back home and in crippling migraine pain, I took migraine pills in hopes for relief. It turned out that Advil Migraine pills contain gluten and needless to say, I am now in worse shape. The joint and body pains, headache, neck, shoulders, back, it all hurts. Painful bloating (picture 9 months pregnant), brain fog to a point that my head feels like it's under water. I can't follow the simplest conversat
  • Blog Entries

  • ×
    ×
    • Create New...