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Jacky

Cross Contamination Issues

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Hi there. I was diagnosed 2 months ago and went gluten free at that time, however, it seems like all I keep getting sick from hidden gluten or cross contamination. I go about 5 days at a time and then something gets me again! I don't know much about this. Am I being too daring with my food choices? Is it because my gut is not healed?

I ate a Healthy Choice frozen dinner Wednesday pm and am still sick on Saturday. I've learned about hydrolyzed vegetable protein and dextrin and there was none in it.

Please help!

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You could try to only eat gluten free food that is processed in gluten free facilities. That cuts down on CC and is what some celiacs do. Personally, I avoid processed foods in general. I don't think that you need to go that far yet.

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You could try to only eat gluten free food that is processed in gluten free facilities. That cuts down on CC and is what some celiacs do. Personally, I avoid processed foods in general. I don't think that you need to go that far yet.

Thanks! I agree. I've decided to stop with unknown "mainstream" foods for now. I may be trying things too quickly. This whole thing is pretty complicated. Thanks for the feedback.

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so far, my daughter and I are sensitive enough that we've had to make everything from scratch or we get ill. My father and brother, on the other hand, have no trouble at all, so I think a lot depends on individual sensitivity too. good luck!

Thanks! I agree. I've decided to stop with unknown "mainstream" foods for now. I may be trying things too quickly. This whole thing is pretty complicated. Thanks for the feedback.


T.H.

Gluten free since August 10, 2009.
21 years with undiagnosed Celiac Disease

23 years with undiagnosed sulfite sensitivity

25 years with undiagnosed mast cell activation disorder (MCAD) 

 

Daughter: celiac and MCAD positive

Son: gluten intolerant
Father, brother: celiac positive

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I share your angst. I'm feeling pretty awful tonight and I'm not sure if it's something I ate. I had Amy's Low Sodium Lentil with Vegetables (and it tasted really good, I'll give it that) but I started to feel sick afterwards. It felt more like an MSG type feeling but given that I have CFS and Fibro and Gluten issues I sometimes don't know what is causing what. It could also be that it was very spicy. Even spice can make me feel shaky so I just don't know where to start sometimes other than really going simple. Baked Chicken Breast, Veggies, Rice for awhile.

I wonder if stuff that low sodium has something extra in it to make it tasty?

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I can't eat anything from Amy's due to cc. I spoke to the dietitian at a recent gluten free gala and she said a lot of people can't eat Amy's.


Diagnosed with IBS w/ Constipation in July 2005

Diagnosed with Hashimoto

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Did you go through your kitchen and get rid of anything that might have lurking gluten? Like non-stick cookware, colanders and the like? That was the first thing I did when daughter was diagnosed. Also got rid of the obvious foods like wheat flour and scrubbed out the cupboards. I don't use cutting boards except to put under the paper plates that I cut on. So I felt those were safe.

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