Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?


I Want To Complain!

Rate this topic

Recommended Posts

boy, it is kind-of complex... hmmm. sorry girl. ! you going to go back to the dr? feel better today?

i did know one girl, through a friend, who had lupus. stress and lack of rest were huge factors for her, that much i know...

Share this post

Link to post
Share on other sites

I have an unrelated doctor appointment tomorrow. It's just with my family doctor and I already had a few things I wanted to talk about, then this happened and I guess I'll talk about this too. I don't know what they'll do though. If I call my rheumatologist and try to make an appointment they won't be able to get me probably til August and my symptoms will be gone. That's what happen last time. I called in December and said my ankles are swollen and purple and so are my hands and I'm having trouble breathing and I can hardly stand up for more than a few seconds. And they said "We have a opening in February." By then my symptoms were gone so we just talked about my symptoms. They really should leave a couple appointments open a week for stuff like that. <_< It would be better if she could actually see what's happening.

Share this post

Link to post
Share on other sites
I want to complain to people who understand about how much this disease sucks. Just when I think I'm getting used to all the ways my life is going to change I find out something else that I'm no longer going to be able to enjoy. We went to a music festival this weekend where they have a bunch of food booths and I had to pack a lame pb&j sandwich while my husband sat there and enjoyed all his yummy food. There's no way I could have found anything gluten-free because every place was so busy it would have been extremely difficult to ask any questions. I'm just depressed because now I'm thinking about all the fun places we used to go and just eat anything and now I won't be able to do that. For example, we have a large fair in my town every year and now that will be a pain. And depressing. It's hard to think that you are going to have to be this way for the rest of your life. And it's not like a diet that you can cheat on when you have a special occasion. I know this is kind of stupid to complain about when so many other illnesses you can't solve just by avoiding certain foods. But I'm depressed about these things.  :(


Share this post

Link to post
Share on other sites

I just thank God I am not allergic to chocolate. Now that would REALLY suck :rolleyes:

Wow, do I hear you on this one!!! As I said to my friends, I can still have chocolate and wine, life is still good!

I'm pretty new at this, but I know what you mean already. Local amusement park today, left home in a rush, no time to pack a salad. Ended up eating popcorn for lunch, (hope that was ok), because there just were not a lot of options for me! My kids wanted Those Little Donuts, I swear I must have been salivating like Pavlov's dog! I am *not* looking forward to the Stampede next summer!

Share this post

Link to post
Share on other sites

Another interesting thread - even if a bit off topic, including this post.

Looks like we guys are in the minority here, but I thought it might be worth sharing some experience on getting spouses to help with the cooking - what the hexx, when you're my age...

When my wife and I got married after college 37+ yrs ago, I was the one with some cooking experience and ended up teaching her the basics. Needless to say she has far exceeded my rudimentary capabilities since, but I can still do ok. From our earliest days when we both worked long hours, we had a rule: whoever cooks doesn't clean - that can be very motivating. Over the years more and more of our cooking has been done outside on the grill - prep often by her, grilling by your truly. One reason: I worked in a very complex technical field where projects usually took at least a couple of yrs and by the end no one could remember who contributed what, much less get a lot of satisfaction from personal accomplishment - cooking/grilling was a great theruputic(sp) endeavor for me with lots of relative instant gratification. Some of the other attractions for me, the guy, was that grilling didn't heat up the kitchen and run up the AC bill in summer, and it didn't coat the windows with an oily film that required washing windows (I still don't like to do windows). Maybe some of you can exploit some of this to get some help.

P.S. We have lived in the Sierra's for many yrs and think nothing of grilling year around - I do hate to shovel the snow off the deck to get to the grill, but that comes with territory.

P.S.S. We typically grill 4-5 nights a week, year around - lots of fish, shellfish, pork chops, vegetables, and the occasional beef. When we decide on a really gourmet meal, my wife does a great job inside - and I have to clean. :-)


Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • May 22, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • June 01, 2019 Until June 02, 2019
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
    • July 07, 2019 Until August 03, 2019
      For more information, visit www.kefss.com or call (407) 255-6550. info@kefss.com 

      KEF USA Summer Camps Announces the New KEF Gluten-Free Camp in Orlando, Florida for Youths with Celiac Disease.

      [Orlando, FL February 6, 2019]-KEF USA is excited to announce that we will offer a new 100% gluten-free camp program to give kids and teens with Celiac Disease a safe, exciting and healthy summer. KEF USA programs offer fun and unique experiences that can only be found in Orlando, Florida. Campers explore the theme parks and local attractions, make new friends, discover new interests and create memories that last a lifetime.

  • Create New...