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Stylo

Label Says Wheat But No Reaction?

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I've been living gluten free since April, and I feel great. I have lost 30 pounds, I feel good.

I have had some issues where I've reacted and had diarrhea, this was from usually cross contamination or having something that I would assume was gluten free but wasn't. I believe mine is more of an intolerance then a alergy because my reactions are nothing compared to my friends.

My friend is a Celiac, who will vomit and get diarrhea at the same time. He also reacts to whiskey when I don't.

We have both eaten hot dogs that say they have wheat on them on the label, but neither of us react. We didn't know about the wheat at the time either.

We can also get away with eating chicken strips without reactions (for the most part). A friend of mine says it has something to do with the deep fry process, but I'm not sure I believe that as I haven't heard that elsewhere.

I'm curious if anyone has any information on this? Why do some foods have no reaction with us?

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Sounds like you girls are experimenting. Everyone reacts differently. What you might not react, your friends might react terribly too. Nothing is exact, when you are dealing with Celiac.

The variations can come from time healed, time exposed, extend of damage, how strict you are and many times there are secondary intolerances which may come into play.

I am a firm believer that Celiac can go into remission and then appear when you let you guard down. So please choose carefully. ;)

AND, "deep-frying process" is a no-brainer - don't even go there, with your friend. :)

(frying cannot kill the gluten)


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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You may not have an immediate reaction to something with a very small amount of gluten, but that doesn't mean that it isn't doing damage. You could also have a delayed reaction. I very rarely react immediately to small amounts or cc. I always feel sick the next day or sometimes even two days later. Large amounts or certain foods I will know right away, though.


A simple meal with love is better than a feast where there is hatred. Proverbs 15:17 (CEV)

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I am a firm believer that Celiac can go into remission and then appear when you let you guard down. So please choose carefully. ;)

This is found in some young people and doctors call it the 'Honeymoon Effect' and it is why they used to think kids would outgrow celiac. However, and the however is a biggie, they now know that celiac can not be 'outgrown'. The symptoms may lessen but damage is still being done. GI symptoms may seem to resolve but the autoimmune attack will continue sometimes working on different organs like the brain and liver. IMHO playing with not being gluten free after a firm diagnosis is playing with fire. Eventually you will get burned and when you do it may be in a way you can't go back from, like lymphoma.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Thanks for all the information guys!

Yeah, I think my friend is full of c**p when she said the thing about the deep fryer making it okay. It's her boyfriend who is my friend as well who has celiac. She doesn't, but I think she trys to stay knowledgeable for his sake because he doesn't always think before he eats. Him and I both had negative blood test results but positive reaction to diet, as well as our mom's both have cut out gluten due to constant stomach issues.

My doctor never had much information so I go based off of what Mike has learnt and I learn myself by doing my own research.

Knowing this, I'll be careful going forward. Just because I don't react to those hot dogs they may still do damage which is good to know.

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