Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Anyone Get Supremely Dizzy When Going gluten-free?


Shalia

Recommended Posts

Shalia Apprentice

I recently (re)started my gluten-free diet (I know, I'm terrible) and suddenly in the last 2 weeks or so I've had MAJOR dizzy spells, to the point I don't feel safe driving anymore and had to call out of work twice.

Has anyone had similar issues? I went to the doctor to complain and got told "sometimes people just get dizzy and we don't know why". <_< Gee, thanks?

I'm wondering if this can be a gluten withdrawl issue, or if I need to go pitch a bigger fit at the VA.

Thanks!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I got dizzy when I was very anemic. Have they checked your iron/ hemoglobin (CBC)? Otherwise, if I need to eat. I find I need a little protein when I start feeling dizzy. I keep some peanuts in my car, hub's car & purse. I like to have a slice or 2 of lunch meat.

Link to comment
Share on other sites
Shalia Apprentice

I got dizzy when I was very anemic. Have they checked your iron/ hemoglobin (CBC)? Otherwise, if I need to eat. I find I need a little protein when I start feeling dizzy. I keep some peanuts in my car, hub's car & purse. I like to have a slice or 2 of lunch meat.

Iron was *slightly* low, but nothing that would make me think that's the cause. And anemia seems to cause more the "I'm light headed and going to faint" type dizzy to me, not the "what do you know, the world DOES revolve around me" type of dizziness I have right now.

Thanks for the suggestion though!

Link to comment
Share on other sites
ravenwoodglass Mentor

Iron was *slightly* low, but nothing that would make me think that's the cause. And anemia seems to cause more the "I'm light headed and going to faint" type dizzy to me, not the "what do you know, the world DOES revolve around me" type of dizziness I have right now.

Thanks for the suggestion though!

Did the doctor check your ears? Fluid build up in the ears can make your dizzy.

Link to comment
Share on other sites
gary'sgirl Explorer

I'm anxious to see if anyone knows what this might be, because I have been haveing the same thing since January. I went gluten free in November, but I haven't seen much improvement if any at all. Some things are worse, this dizzy thing being one of them.

Link to comment
Share on other sites
kareng Grand Master

I second Raven. Get your ears checked. Fluid in the ear doesn't have to hurt but can make you dizzy.

Link to comment
Share on other sites
ravenwoodglass Mentor

One more thought, are you dizzy or are you off balance? Being off balance can be part of the 'gluten experience', I still fall over sideways when I get glutened and have to be always be careful on uneven ground because of the gluten ataxia. If your off balance rather than 'spinning' it may be an indication that your getting gluten somewhere.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,210
    • Most Online (within 30 mins)
      7,748

    Chelsi
    Newest Member
    Chelsi
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms? 
    • Kirbyqueen
      Still dealing with this rash on my legs. I've eliminated ringworm (through use of topical ointments). And I also know it's not shingles, as I've never had chickenpox before and I'm still fairly young. Through a lot of online research, I'm leaning more towards dermatitis herpetiformis, eczema, or psoriasis. I've actually got a doctor's appointment in May (finally got some insurance) and I'm going to bring it up then. I'm feeling really hopeful and excited to maybe be getting some relief soon.   Big thanks to everyone for the suggestions and positive thoughts!
    • trents
      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
    • Bayb
      Hi, I received my labs via email yesterday and have not heard back from my doctor yet. Can anyone tell me if these results indicate I have Celiac?      Endomysial Antibody IgAPositive  Ft-Transglutaminase (tTG) IgA6  H0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10 - Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten-sensitive enteropathy. FImmunoglobulin A, Qn, Serum55  L87-352 (mg/dL) Ft-Transglutaminase (tTG) IgG183  H0-5 (U/mL) - Negative 0 - 5 - Weak Positive 6 - 9 - Positive >9
    • Aussienae
      Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse.  Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and anything that causes inflammation in your body.
×
×
  • Create New...