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twinkle-toez

Night Sweats?

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Hi, I'm sorry to re-post when there are a couple of other posts on this, but I"m relatively new at this gluten-free stuff and still feeling a bit overwhelmed...

One of my biggest complaints is that I have horrific night sweats - I used to wake up from them in the middle of the night, absolutely drenched to wring out my pjs and put a dry pair on (sleeping in minimal clothes e.g. knickers and a tank top doesn't seem to help at all). I don't wake up from the sweats anymore, I just wake up horrifically cold in the morning, utterly soaked - my hair, my clothes, the sheets, EVERYTHING.

I went gluten free and the night sweats seemed to decrease, and completely go away on some nights. I then had to go to a conference where I accidentally got glutened and the night I was glutened I had raging night sweats again. They continued for a couple of nights after that, but to a much less intense degree.

This past weekend I went to a friend's cottage wherein we drank alot of alochol (I had malibu rum and juice) and ate tonnes of roasted marshmallows. To the best of my knowledge I did not get glutened - I had none of the other symptoms that glutenation causes in me.

Does anyone have any thoughts as to what could be going on here? I've had my thyroid and cholesterol checked (both normal), and my FSH (proving that I'm not menopausal - I'm only 26 and my FSH was normal). I've tried a hypoglycemia explanation early on - but the sweats were the same regardless of what I ate and how close in proximity (time) the food was ingested relative to me going to bed.

I really don't know what could have caused the sweats the past two nights... I'm sorry to be a bother, but I'd be very open to hearing people's thoughts... Thanks!

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Hi, I'm sorry to re-post when there are a couple of other posts on this, but I"m relatively new at this gluten-free stuff and still feeling a bit overwhelmed...

One of my biggest complaints is that I have horrific night sweats - I used to wake up from them in the middle of the night, absolutely drenched to wring out my pjs and put a dry pair on (sleeping in minimal clothes e.g. knickers and a tank top doesn't seem to help at all). I don't wake up from the sweats anymore, I just wake up horrifically cold in the morning, utterly soaked - my hair, my clothes, the sheets, EVERYTHING.

I went gluten free and the night sweats seemed to decrease, and completely go away on some nights. I then had to go to a conference where I accidentally got glutened and the night I was glutened I had raging night sweats again. They continued for a couple of nights after that, but to a much less intense degree.

This past weekend I went to a friend's cottage wherein we drank alot of alochol (I had malibu rum and juice) and ate tonnes of roasted marshmallows. To the best of my knowledge I did not get glutened - I had none of the other symptoms that glutenation causes in me.

Does anyone have any thoughts as to what could be going on here? I've had my thyroid and cholesterol checked (both normal), and my FSH (proving that I'm not menopausal - I'm only 26 and my FSH was normal). I've tried a hypoglycemia explanation early on - but the sweats were the same regardless of what I ate and how close in proximity (time) the food was ingested relative to me going to bed.

I really don't know what could have caused the sweats the past two nights... I'm sorry to be a bother, but I'd be very open to hearing people's thoughts... Thanks!

Have you considered other food intolerances? I started an elimination diet in October of '09 after my multiple symptoms became overwhelming. In addition to numerous gut issues, one of my primary symptoms was horrific night sweats and also a very irregular period (too frequent in my case) I also had my thyroid, cholestrol, and FSH checked and when they all came back normal my doctor told me to "get a fan" and invest in cotton sheets. Needless to say, I was pissed. On my elimination diet (and after ELISA and stool testing) I realized that I was also intolerant to SOY, milk, eggs, and yeast. When I cut soy completely out of my diet (including lecithin and soy oil for me because I seem to be highly reactive) I experienced a near immediate relief from the night sweats. In fact, I can't even remember the last time I had one and my period is returning to a more regular spacing of 26 days instead of 21. I know that this might not be what you want to hear, but it seems to make sense to me especially considering how often companies tout soy-hormones as a benefit for peri and menopausal women. Could be that the hormones in the soy products are overloading your system and causing you to experience the night sweats. Just my two cents. Good Luck!

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Hm. Soy intolerance is actually a really good and logical idea that I had not yet considered - it would totally make sense from a hormonal perspective. I've heard people talk about testing for food intolerances, but I"m not very familiar with it. Is it just done on the basis of an elimination diet, and then reintroducing foods to see what one reacts to, or is it something that you can get a blood or skin test for? Do you have to see an alternative health practitioner?

Thanks for your input!!! I'll definitely try to figure out if soy is involved in some manner!

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Hm. Soy intolerance is actually a really good and logical idea that I had not yet considered - it would totally make sense from a hormonal perspective. I've heard people talk about testing for food intolerances, but I"m not very familiar with it. Is it just done on the basis of an elimination diet, and then reintroducing foods to see what one reacts to, or is it something that you can get a blood or skin test for? Do you have to see an alternative health practitioner?

Thanks for your input!!! I'll definitely try to figure out if soy is involved in some manner!

I went through a period of hormonal imbalance that caused night sweats. I also cut of Soy and all estrogenic foods for a while, like flax seeds, etc. I reintroduced the other foods after things evened out, except for Soy. It's out for good. The diet also cleared up a overain cyst I had.

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Good to see this topic - I am having the same problem, and had not considered soy as a culprit. I'm very new to the gluten-free diet - about two days in, actually - so I was hoping it would help this situation as well as the other problems I've been having. I don't think I eat a lot of soy - though I'm learning a lot about label-reading and discovering I'm eating things I had no idea I was eating! - but will definitely keep an eye on that in the future.

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Hi, I'm sorry to re-post when there are a couple of other posts on this, but I"m relatively new at this gluten-free stuff and still feeling a bit overwhelmed...

One of my biggest complaints is that I have horrific night sweats - I used to wake up from them in the middle of the night, absolutely drenched to wring out my pjs and put a dry pair on (sleeping in minimal clothes e.g. knickers and a tank top doesn't seem to help at all). I don't wake up from the sweats anymore, I just wake up horrifically cold in the morning, utterly soaked - my hair, my clothes, the sheets, EVERYTHING.

I went gluten free and the night sweats seemed to decrease, and completely go away on some nights. I then had to go to a conference where I accidentally got glutened and the night I was glutened I had raging night sweats again. They continued for a couple of nights after that, but to a much less intense degree.

This past weekend I went to a friend's cottage wherein we drank alot of alochol (I had malibu rum and juice) and ate tonnes of roasted marshmallows. To the best of my knowledge I did not get glutened - I had none of the other symptoms that glutenation causes in me.

Does anyone have any thoughts as to what could be going on here? I've had my thyroid and cholesterol checked (both normal), and my FSH (proving that I'm not menopausal - I'm only 26 and my FSH was normal). I've tried a hypoglycemia explanation early on - but the sweats were the same regardless of what I ate and how close in proximity (time) the food was ingested relative to me going to bed.

I really don't know what could have caused the sweats the past two nights... I'm sorry to be a bother, but I'd be very open to hearing people's thoughts... Thanks!

If you're drinking alcohol regularly, you may wake up with night sweats, too.

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Have you considered other food intolerances? I started an elimination diet in October of '09 after my multiple symptoms became overwhelming. In addition to numerous gut issues, one of my primary symptoms was horrific night sweats and also a very irregular period (too frequent in my case) I also had my thyroid, cholestrol, and FSH checked and when they all came back normal my doctor told me to "get a fan" and invest in cotton sheets. Needless to say, I was pissed. On my elimination diet (and after ELISA and stool testing) I realized that I was also intolerant to SOY, milk, eggs, and yeast. When I cut soy completely out of my diet (including lecithin and soy oil for me because I seem to be highly reactive) I experienced a near immediate relief from the night sweats. In fact, I can't even remember the last time I had one and my period is returning to a more regular spacing of 26 days instead of 21. I know that this might not be what you want to hear, but it seems to make sense to me especially considering how often companies tout soy-hormones as a benefit for peri and menopausal women. Could be that the hormones in the soy products are overloading your system and causing you to experience the night sweats. Just my two cents. Good Luck!

Night sweats occur from a deficit of estrogen and progesterone and not from an excess of these hormones. Soy would actually help a woman who was having hot flashes and night sweats from menopause/peri-menopause. It may not help everyone but soy is not the bad food that many make it out to be. Japanese women eat tons of soy and hot flashes are not common to their society. Unless you have an intolerance to soy, it can be a beneficial food for many.

There are many reasons women have night sweats, including cancer, so it can be very hard to pinpoint the cause.

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Caffeine can do this to a lot of people...are you a coffee drinker? Caffeine + alcohol could be the culprit

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Night sweats occur from a deficit of estrogen and progesterone and not from an excess of these hormones. Soy would actually help a woman who was having hot flashes and night sweats from menopause/peri-menopause. It may not help everyone but soy is not the bad food that many make it out to be. Japanese women eat tons of soy and hot flashes are not common to their society. Unless you have an intolerance to soy, it can be a beneficial food for many.

There are many reasons women have night sweats, including cancer, so it can be very hard to pinpoint the cause.

Japanese women eat whole soy, not fractured GMO soy like we do here - i.e. soy milk, soy bars, etc. A rise in estrogen can defintely cause hormonal problems, which cause night sweats. Yes, it's true there are many causes, and this is just one of them.

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Hey -- I used to get night sweats, prior to going gluten free. But, the sweats were caused by elevated liver enzymes. I was feeling ill...night sweats..found out I had elevated liver enzymes. My liver specialist tested me for all sorts of things and evenutally I was diagnosed with celiac disease. After several months of going gluten free, my liver got healthy and the night sweats stopped.

Given that you had them after drinking, maybe there is a liver connection for you.

KDawg

Hi, I'm sorry to re-post when there are a couple of other posts on this, but I"m relatively new at this gluten-free stuff and still feeling a bit overwhelmed...

One of my biggest complaints is that I have horrific night sweats - I used to wake up from them in the middle of the night, absolutely drenched to wring out my pjs and put a dry pair on (sleeping in minimal clothes e.g. knickers and a tank top doesn't seem to help at all). I don't wake up from the sweats anymore, I just wake up horrifically cold in the morning, utterly soaked - my hair, my clothes, the sheets, EVERYTHING.

I went gluten free and the night sweats seemed to decrease, and completely go away on some nights. I then had to go to a conference where I accidentally got glutened and the night I was glutened I had raging night sweats again. They continued for a couple of nights after that, but to a much less intense degree.

This past weekend I went to a friend's cottage wherein we drank alot of alochol (I had malibu rum and juice) and ate tonnes of roasted marshmallows. To the best of my knowledge I did not get glutened - I had none of the other symptoms that glutenation causes in me.

Does anyone have any thoughts as to what could be going on here? I've had my thyroid and cholesterol checked (both normal), and my FSH (proving that I'm not menopausal - I'm only 26 and my FSH was normal). I've tried a hypoglycemia explanation early on - but the sweats were the same regardless of what I ate and how close in proximity (time) the food was ingested relative to me going to bed.

I really don't know what could have caused the sweats the past two nights... I'm sorry to be a bother, but I'd be very open to hearing people's thoughts... Thanks!

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Yes, soy intolerance can be a reason, I have a friend who has problems with it. If he eats or drinks soy (accidentally), then he can't sleep at night and his stomach aches. First, even the docs didn't know what the problem was but then they discovered the intolerance. The most important thing is to find out the cause for the problems, food intolerances are often difficult to discover.

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Japanese women eat whole soy, not fractured GMO soy like we do here - i.e. soy milk, soy bars, etc. A rise in estrogen can defintely cause hormonal problems, which cause night sweats. Yes, it's true there are many causes, and this is just one of them.

I think the comparison of whole soy and what you refer to as fractured, GMO soy are apples and oranges. Honestly, it's a wonder people eat at all!

Not all soy sold and consumed here in the States is genetically modified so don't assume people are eating crap. I know I don't and soy will absolutely help with hot flashes and menopausal symptoms, if your estrogen and progesterone levels have tanked. Some women do not respond to soy and use bio-identicals or HRT, which are another viable option.

Estrogen levels generally do not rise, except with pregnancy or an expected cycle. Unless your estrogen ratio is way out of whack with progesterone, and that happens generally ONLY with menopause, night sweats will not occur. They are almost always caused by deficits in hormones and not excesses.

Night sweats are also common with some forms of cancer so if you are too young for menopause to happen, a trip to the doctor might be in order. Severe night sweats should never be ignored unless you are menopausal.

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Japanese women eat whole soy, not fractured GMO soy like we do here - i.e. soy milk, soy bars, etc. A rise in estrogen can defintely cause hormonal problems, which cause night sweats. Yes, it's true there are many causes, and this is just one of them.

I think the comparison of whole soy and what you refer to as fractured, GMO soy are apples and oranges. Honestly, it's a wonder people eat at all!

Not all soy sold and consumed here in the States is genetically modified so don't assume people are eating crap. I know I don't and soy will absolutely help with hot flashes and menopausal symptoms, if your estrogen and progesterone levels have tanked. Some women do not respond to soy and use bio-identicals or HRT, which are another viable option.

Estrogen levels generally do not rise, except with pregnancy or an expected cycle. Unless your estrogen ratio is way out of whack with progesterone, and that happens generally ONLY with menopause, night sweats will not occur. They are almost always caused by deficits in hormones and not excesses.

Night sweats are also common with some forms of cancer so if you are too young for menopause to happen, a trip to the doctor might be in order. Severe night sweats should never be ignored unless you are menopausal....and that might be hard to do also!

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I have the night sweats whether I drink or not (I hardly ever drink) and I've had my liver enzymes checked for function so I don't think it's that.

Caffeine - I don't typically do coffee as I can't stand the taste and it makes my stomach and GI tract burn in a most unpleasant way. I do tea, but I've done tea since I was 16 and have never had this problem before. I also used to do diet coke, but I've found that the sweats continued to be a problem even after removal of carbonated beverages from my diet. I don't consume anything else that's high in caffeine.

I've also had my hormone levels checked and I'm not menopausal - in fact, up until this past week I have been on oral contraceptives since last September, so that should have been keeping my estrogen and progesterone pretty much in check (which it was). When I'm not on the pill I do have hormone problems - skewed LH and FSH profiles as my ovaries are polycystic.

Still working on figuring out the cause of the night sweats - at this point, I'm being checked out for MS and neurological problems as I have alot of symptoms consistent with CNS demylenation. Go for my first MRI this Monday (dorsal spine) - I've been told 45ish minutes inside the MRI machine... I'm freaked, but really wanting answers...

Thank you to everyone who has replied, and sorry that it's taken me so long to extend that thanks.

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I think the comparison of whole soy and what you refer to as fractured, GMO soy are apples and oranges. Honestly, it's a wonder people eat at all!

Not all soy sold and consumed here in the States is genetically modified so don't assume people are eating crap. I know I don't and soy will absolutely help with hot flashes and menopausal symptoms, if your estrogen and progesterone levels have tanked. Some women do not respond to soy and use bio-identicals or HRT, which are another viable option.

Estrogen levels generally do not rise, except with pregnancy or an expected cycle. Unless your estrogen ratio is way out of whack with progesterone, and that happens generally ONLY with menopause, night sweats will not occur. They are almost always caused by deficits in hormones and not excesses.

Night sweats are also common with some forms of cancer so if you are too young for menopause to happen, a trip to the doctor might be in order. Severe night sweats should never be ignored unless you are menopausal....and that might be hard to do also!

I do agree that whole, fermented soy is a healthy option for some. I'm merely referring to information published by doctors like Dr. Mercola. Varying opinions are a good way for others to learn, and I agree night sweats should not be ignored. My night sweats were never to the point where I needed to change my clothes.

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Hello Twinkle-toez,

You wrote:

"I'm being checked out for MS and neurological problems as I have alot of symptoms consistent with CNS demylenation" as well as

"I also used to do diet coke..."

You might want to research ASPARTAME and DIET SODAS and HEALTH PROBLEMS they can cause.

Diet Coke Ingredients:

Carbonated Water, High Fructose Corn Syrup, Caramel Color, Phosphoric Acid, Natural Flavors, Aspartame, Potassium Benzoate, Citric Acid

Source: http://www.xomba.com/diet_soda_ingredients

You could Google "excitotoxins, aspartame, myelin" - Maybe find some surprising info.

Although many (including apparently the FDA) maintain that Aspartame is harmless, many others (including doctors/researchers) maintain it is quite dangerous to various organs and cells, such as retinal (eye) cells, brain cells, and myelin sheath.

Just a thought. Good luck--and by the way, I'm also plagued with sporadic night sweats, from unknown cause--but it definitely is NOT Aspartame causing them!

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Hello Twinkle-toez,

You wrote:

"I'm being checked out for MS and neurological problems as I have alot of symptoms consistent with CNS demylenation" as well as

"I also used to do diet coke..."

You might want to research ASPARTAME and DIET SODAS and HEALTH PROBLEMS they can cause.

Thank you Tidings for the heads up. I used to put TONNES of artificial sweetener in my tea (or in the rare occasions that I drank it - coffee) and I did get raised eyebrows from some people, but I always just told them that "I had bigger fish to fry, and when I was done with those I'd move onto the tinier ones"... I am aware about the high controversy over whether aspartame is detrimental or safe - and quite aware of the bias of alot of the studies that claim it to be safe. I truly just thought that my eating disorder was the first and foremost thing I needed to take care of, and that artificial sweeteners really weren't that big of a deal... I have since re-examined things. I am trying my best to cut all artificial sweeteners out of my diet - replacing them in my tea with stevia, which has a bit of a peculiar taste that I'm still adjusting to. Every once in awhile I cave and have a diet coke or put splenda or something in my tea, but I'm doing reasonably well with it... But thank you for the advice. It is greatly appreciated.

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I'm sure there could be many causes, but personally my nightsweats seemed to increase whenever I drank alcohol, didn't seem to take very much at all.

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My night sweats have about stopped. YEAH :P

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Hi Twinkle-Toes,

Thanks for posting, this is great information. I've had horrific night sweats on and off for years. When they come, just like you mentioned, I wake up and my head is soaked like someone threw a bucket of water on me. I haven't been able to correlate with food, but I only just found out about gluten/coeliac today, surprisingly, by an accidental web search which led me to a few wiki entries and this blog. I can stand the night sweats, but, akk, the GI issues are just horrific, so bad I can't stand it any longer. Ive had many useless trips to GI doctors, none even mentioned that I could possibly have coeliac or gluten allergies. Thanks to everyone, and also for suggesting elimination diets to find out if some other food is helping to cause the problems.

Im calling my GI doctor tomorrow morning and pushing hard for gluten/coeliac tests, hoping to get to the bottom of 20 years of very awful GI issues.

Best luck to everyone to get back on the road to good health!

Regards,

Mike

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    The boulangerie is the work of Narhaniel Doboin and his business partner, Thomas Teffri-Chambelland. They use flour made of grains including rice, buckwheat and sorghum to make delicious gluten-free baked goods. Doboin says that customers queued in the rain on the first day, hardly believing their eyes, some began to cry. 
    For gluten-free Parisians, there was a time before Chambelland, and the time after. If you find yourself in Paris, be sure to search them out for what is sure to be a gluten-free delight.
    Or maybe book your ticket now.
    Read more at: Independent.co.uk

    Jefferson Adams
    Celiac.com 07/10/2018 - As part of its 50th Anniversary activities, Celiac UK has launched a research fund and accompanying fundraising appeal to support new research and development. The fund has already received an injection of £500k from Innovate UK, in addition to £250k from the charity. 
    Together, Coeliac UK and Innovate UK have opened applications for grants from the £750,000. Researchers and businesses can apply for a grants ranging from £50k to £250k for healthcare diagnostics, digital self-care tools and better gluten free food production. 
    Food businesses can receive grants by developing more nutritious and affordable gluten free food, by using new ingredients, improving nutritional value, flavor and/or texture, and creating better methods of preservation.
    The three main goals of the program are: To improve celiac disease diagnostics; to improve the quality of gluten-free foods, and to promote digitally supported self-care for people with celiac disease. 
    The matching industry funds will bring spending for new research on the growing global gluten-free foods market to nearly £1m.
    Ultimately, Coeliac UK is looking to raise £5 million to improve understanding and treatment of celiac disease and gluten related autoimmune conditions. 
    Sarah Sleet, Chief Executive of Coeliac UK said: “With the global diagnosis for coeliac disease increasing year on year, this is a chance for UK business and researchers to get ahead and develop competitive advantages in innovation which will be of benefit to a badly underserved patient group.
    Read more at: NewFoodMagazine.com

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    • Hi, I was diagnosed with celiacs after extreme stomach pain, irregular bowel movements and diarrhea. The extreme stomach pain was the main reason I really needed to find out what this was, and finally I had a doctor let me know i probably had Celiacs after a blood test. An endoscopy came back positive for celiacs as well. The extreme burning in my stomach went away within a week, however the pain persisted. Whenever I ate, it became really bad, even though i was extremely careful and made everything from scratch. I even are only fruit for a whole week to make sure I wasn't screwing up. Now its been over a year, and I still have the stomach pain come back after eating almost anything other than juicy fruit like watermelon/melons/grapes.  I got tested for H pylori a year ago, came back negative. Got tested for blood in stool: negative. Went to doctors, they say they have no clue what it is.  I have tested with different things. If I eat very fatty food it hurts a lot more than other food. If I have alcohol, the pain turns into a very dull ache the next day after waking up, and it goes away the day after completely without fail.  If I fast for a day, the pain does not exist. It used to hurt, but in the last few months not anymore. If I dont eat after 6, the pain is completely gone until I eat the next day, and it can be anything, even a no fat food.  If I eat something at it starts hurting more, drinking a lot of water makes it usually go away almost completely. But that uncomfortable feeling is still there, just the major pain goes away. Im going crazy here trying to figure this out. Im 22 years old, I want to enjoy my life. It also seems to go away with exercise.    Any help would be great, thank you!
    • Found this study that looked at Sjogren's syndrome and food sensitivities. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4676776/#!po=28.2609
    • I just checked and it seems that they don't distribute in the US, which is unfortunate (though predictable given the political/economic context of dairy). If you ever come to Canada, you'll have good luck in almost any big box grocery store or convenience store - it's a pretty basic/cheap brand of ice cream. Breyer's has a lot of gluten-free products (in Canada at least). You might try those? I'd be more inclined to trust a larger company with stuff like this - they have the volume to run dedicated gluten-free ice cream/dessert products.
    • It seems as though the more I research, and dedicate myself to becoming gluten free(only 6-8 weeks now), the worse my dh is getting! I know I am probably missing some things, but my diet compared to several weeks ago, is hugely improved! I have learned that humility, and always remaining teachable will be one of my best allies in this battle. Just this morning, after making a dreaded assumtion that what I heard earlier about coffee, was not all inclusive, and that I might very well been poisening myself, with about 40 - 60 ounces of instant coffee every morning! Plus relying on a cheap variety(great value) of hazelnut creamer( just because it said gluten free, not certified! ) So off to the store for a new coffee maker, ground Folgers, and...we'll see! I am sorry to be so lengthy, but if I can save anyone, or only one person from dh of this magnitude, I will be at least a happier camper!  As I stated earlier, it seems my outbreaks have only been getting worse. I (so far) have only experienced dh, but don't know how much more I can tolerate, and find it impossible to believe that I am using "only" and "dermatitis herpediformus" in the same sentence!!! I still have two months to go in a new job, until my insurance kicks in, and in the meantime will have to see a dermatologist, instead of a gastro-intestinal dr. Believe me, I can ill afford to not tell this dr. that I had a preliminary diagnosis via, skin biopsy, that indicated celiac. This is hideous. Please, any ideas???????? Thank you for the posts I've read so far, and hopefully, if anyone is doing the instant coffee thing.... it might be wise to reconsider!   
    • similar issue with stomach ache.  I usually do not eat out much and can have a little sensitivity towards greasy food.  But an hour after eating Lays Kettle Cooked Jalapeno chips about 1/2 bag of the 8oz., I had the worst stomach ache I have ever had in my life.  Extremely painful.  I never get stomach aches.  When food doesn't agree, maybe diarrhea, but not stomach ache.  I am not lactose in tolerate or sensitive to gluten. After the stomach ache started I didn't need to urgently poop.  throwing up seemed like a possibly but never came out naturally and I wasn't about to force it.  There is something in those chips that disrupted my stomach and many other people after doing research.  Possibly inflammation in one of our organs due to one of the ingredients.  It has been 39 hours and my stomach still has a little pain.  I have already reached out to Lays today , probably will not get far with them, but maybe gain more knowledge
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