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Luvbeingamommy

How Soon After Gluten Do You React?

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I know this is an old question but I'm new to  Celiac fun.

After reading some of the older replies I am questioning if I accidently ate gluten in some Eckrich Smoked sausage a couple of days ago and the gut reaction just hit me. 

I also had a bad headache the next afternoon after eating it in my red beans and rice dinner made at home the night before.  

I also ate out this afternoon so not sure if there was some cross contamination even if what I had was gluten free. 

I was only diagnosed the end of November and until now haven't had any more gut problems.  I have been really careful about what I eat.  Reading ingredient lists on everything and even staying away from things I can't guarantee are gluten free.

 

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3 hours ago, CJF said:

I know this is an old question but I'm new to  Celiac fun.

After reading some of the older replies I am questioning if I accidently ate gluten in some Eckrich Smoked sausage a couple of days ago and the gut reaction just hit me. 

I also had a bad headache the next afternoon after eating it in my red beans and rice dinner made at home the night before.  

I also ate out this afternoon so not sure if there was some cross contamination even if what I had was gluten free. 

I was only diagnosed the end of November and until now haven't had any more gut problems.  I have been really careful about what I eat.  Reading ingredient lists on everything and even staying away from things I can't guarantee are gluten free.

 

Hard to say.  Everyone has a different glutening experience.  


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

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for me it's 24-48 hours (starts with That Headache) then it lasts for 14 days.  you are new, you might want to try keeping a food journal to figure out if anything else is irritating your guts.  it's a good idea to skip dairy products for awhile until you heal some.  the ends of your (possibly damaged villi) is where the enzyme is produced that breaks down dairy, so that could cause you malaise.  (i think i cut it out for 6 months or so) for eating out (i didn't for about 5 years lolz and even now, it's only at a few trusted places) you might want to try the 'find me gluten free' app and only eat at places with good reviews FROM CELIACS.  when shopping, my brother uses an app called 'gluten free food finder' that will scan the barcode and tell if it's gluten-free  <he cheats lolz  otherwise, read every label.  welcome to the forum :)


arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator

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On 8/28/2010 at 4:06 PM, Luvbeingamommy said:

Is it always instantly??

 

I made a stupid mistake last night and ate some tastee sandwiches, well just the meat, no bread. My grandma thought they were fine, well after this morning I am thinking they were not. I looked up the recipe and there was liption onion soup mix, which pretty positive that is not okay if that is the recipe they used. Guess I can't assume anything, lesson learned.

 

I've been going to the bathroom a lot, stomach cramps, and joint pain....probably gluten, huh?? I didn't know if it had soy sauce (allergic to soy), but I don't think so.

 

I was just curious, I am usually VERY careful.....how long does it last for you??

My symptoms will peak at around 4-5 days, and last for about 2 weeks or so. It can be really tough sometimes when you feel the symptoms coming on and realize what has happened. It's definitely a learning experience to know how careful you need to be. It gets easier with time!

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It usually takes me 5-8 hours after eating and the GI symptoms last into the next day. I haven’t really tracked the joint pain symptoms but usually I have a headache after as well. I was diagnosed in late March, I’ve been glutened about 5 times since and its very obvious when I have by my GI symptoms. Mostly stabbing pains in my left upper quadrant, the urge to use the restroom that keeps me up all night, and a general feeling of being unwell. 

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15 min to 30min sometimes an hour. depends how slight it was. first symptom i feel withdrawn not happy and panic. next feel migraine coming on in eyes. next the stomach pain and tired fatigue.  then i take gluten enzyme asap. it takes the symptoms from a 10 to a 3-4. i don't get a headach but its not a cure.

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I have wheat sensitivity and have for 15+ years.  I am very careful of wheat content.  I invariably have an "episode" (cramps and sudden diarrhea) within a half hour of leaving a restaurant and it continue through the night.  I have come to dread going out for dinner.  I wonder if my extreme stress contributes?

 

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On 8/20/2019 at 6:38 PM, gutpain said:

I have come to dread going out for dinner.  I wonder if my extreme stress contributes?

 

same!  some places I eat at all the time, I don't feel anxious about.  if I feel any sort of doubt I can get a safe meal when i'm out at a strange place, I will eat at home first.  recently on a trip to jersey, everybody wanted to eat at a place I wasn't familiar with and it wasn't on the find me gluten free app.  so, I ate ahead of time.  went to the place, got a menu, ooh so much breaded and fried stuff, just so much gluten....  nah - gave the menu back to the server, saying, "I surrender" lolz got me a beverage and that's how that goes.  so, no stress and I wasn't starving.  maybe this will work for you?  in the beginning, when I thought I could "easy peasy order off the gluten free menu no problem"  yes, indeed, I was stressing enough to make myself sick whether they cc'd me or not.  now, with the fmgf app, I have some info - enough to make an educated decision and most reviewers on there suggest where you might need to pay attention, like:  kitchen is educated, servers are not (so, you would know that the servers need to check with the kitchen as to which meals are safe)  hope this helps!


arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator

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On 8/29/2010 at 7:06 AM, Luvbeingamommy said:

Is it always instantly??

 

I made a stupid mistake last night and ate some tastee sandwiches, well just the meat, no bread. My grandma thought they were fine, well after this morning I am thinking they were not. I looked up the recipe and there was liption onion soup mix, which pretty positive that is not okay if that is the recipe they used. Guess I can't assume anything, lesson learned.

 

I've been going to the bathroom a lot, stomach cramps, and joint pain....probably gluten, huh?? I didn't know if it had soy sauce (allergic to soy), but I don't think so.

 

I was just curious, I am usually VERY careful.....how long does it last for you??

Within 20mins for our master 9 while out for dinner tonight  despite all the correct information being wrote down by waitress. ?Remedies please?

Edited by SarahT

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I am wheat sensitive and I will know it in about 3 hours and it last for about 2 hours.  I can usually figure it out what the food was if I ate something in the restaurant since I don't eat a lot anyhow.  And I avoid that food when I go out to eat again.  It's more difficult when I try eating a new gluten free frozen dinner or desserts at home.  Recently after several episodes and a lot of research, I found out that I also cannot eat anything with sorghum flour as the first ingredient. I get the same stomach and intestinal symptoms as wheat. 

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