Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

How Soon After Gluten Do You React?


Luvbeingamommy

Recommended Posts

Felisha Newbie

I have a gluten reaction within 1-2 hours of eating anything with wheat...and its not pretty at all. :wacko:

  • 4 years later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CJF Rookie

I know this is an old question but I'm new to  Celiac fun.

After reading some of the older replies I am questioning if I accidently ate gluten in some Eckrich Smoked sausage a couple of days ago and the gut reaction just hit me. 

I also had a bad headache the next afternoon after eating it in my red beans and rice dinner made at home the night before.  

I also ate out this afternoon so not sure if there was some cross contamination even if what I had was gluten free. 

I was only diagnosed the end of November and until now haven't had any more gut problems.  I have been really careful about what I eat.  Reading ingredient lists on everything and even staying away from things I can't guarantee are gluten free.

 

cyclinglady Grand Master
3 hours ago, CJF said:

I know this is an old question but I'm new to  Celiac fun.

After reading some of the older replies I am questioning if I accidently ate gluten in some Eckrich Smoked sausage a couple of days ago and the gut reaction just hit me. 

I also had a bad headache the next afternoon after eating it in my red beans and rice dinner made at home the night before.  

I also ate out this afternoon so not sure if there was some cross contamination even if what I had was gluten free. 

I was only diagnosed the end of November and until now haven't had any more gut problems.  I have been really careful about what I eat.  Reading ingredient lists on everything and even staying away from things I can't guarantee are gluten free.

 

Hard to say.  Everyone has a different glutening experience.  

notme Experienced

for me it's 24-48 hours (starts with That Headache) then it lasts for 14 days.  you are new, you might want to try keeping a food journal to figure out if anything else is irritating your guts.  it's a good idea to skip dairy products for awhile until you heal some.  the ends of your (possibly damaged villi) is where the enzyme is produced that breaks down dairy, so that could cause you malaise.  (i think i cut it out for 6 months or so) for eating out (i didn't for about 5 years lolz and even now, it's only at a few trusted places) you might want to try the 'find me gluten free' app and only eat at places with good reviews FROM CELIACS.  when shopping, my brother uses an app called 'gluten free food finder' that will scan the barcode and tell if it's gluten-free  <he cheats lolz  otherwise, read every label.  welcome to the forum :)

at1992 Apprentice
On 8/28/2010 at 4:06 PM, Luvbeingamommy said:

Is it always instantly??

 

I made a stupid mistake last night and ate some tastee sandwiches, well just the meat, no bread. My grandma thought they were fine, well after this morning I am thinking they were not. I looked up the recipe and there was liption onion soup mix, which pretty positive that is not okay if that is the recipe they used. Guess I can't assume anything, lesson learned.

 

I've been going to the bathroom a lot, stomach cramps, and joint pain....probably gluten, huh?? I didn't know if it had soy sauce (allergic to soy), but I don't think so.

 

I was just curious, I am usually VERY careful.....how long does it last for you??

My symptoms will peak at around 4-5 days, and last for about 2 weeks or so. It can be really tough sometimes when you feel the symptoms coming on and realize what has happened. It's definitely a learning experience to know how careful you need to be. It gets easier with time!

  • 5 months later...
Sdbo22 Newbie

It usually takes me 5-8 hours after eating and the GI symptoms last into the next day. I haven’t really tracked the joint pain symptoms but usually I have a headache after as well. I was diagnosed in late March, I’ve been glutened about 5 times since and its very obvious when I have by my GI symptoms. Mostly stabbing pains in my left upper quadrant, the urge to use the restroom that keeps me up all night, and a general feeling of being unwell. 

bad casper Rookie

15 min to 30min sometimes an hour. depends how slight it was. first symptom i feel withdrawn not happy and panic. next feel migraine coming on in eyes. next the stomach pain and tired fatigue.  then i take gluten enzyme asap. it takes the symptoms from a 10 to a 3-4. i don't get a headach but its not a cure.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 year later...
Josette Newbie

Does anyone get massive adominal swelling when you accidentally eat something with gluten?  I just get this huge stomach and pain.

 

Scott Adams Grand Master

This is a very common symptom. A bloated abdomen is very common. This article might be helpful:

 

  • 1 month later...
gutpain Newbie

I have wheat sensitivity and have for 15+ years.  I am very careful of wheat content.  I invariably have an "episode" (cramps and sudden diarrhea) within a half hour of leaving a restaurant and it continue through the night.  I have come to dread going out for dinner.  I wonder if my extreme stress contributes?

 

notme Experienced
On 8/20/2019 at 6:38 PM, gutpain said:

I have come to dread going out for dinner.  I wonder if my extreme stress contributes?

 

same!  some places I eat at all the time, I don't feel anxious about.  if I feel any sort of doubt I can get a safe meal when i'm out at a strange place, I will eat at home first.  recently on a trip to jersey, everybody wanted to eat at a place I wasn't familiar with and it wasn't on the find me gluten free app.  so, I ate ahead of time.  went to the place, got a menu, ooh so much breaded and fried stuff, just so much gluten....  nah - gave the menu back to the server, saying, "I surrender" lolz got me a beverage and that's how that goes.  so, no stress and I wasn't starving.  maybe this will work for you?  in the beginning, when I thought I could "easy peasy order off the gluten free menu no problem"  yes, indeed, I was stressing enough to make myself sick whether they cc'd me or not.  now, with the fmgf app, I have some info - enough to make an educated decision and most reviewers on there suggest where you might need to pay attention, like:  kitchen is educated, servers are not (so, you would know that the servers need to check with the kitchen as to which meals are safe)  hope this helps!

  • 6 months later...
SarahT Newbie
(edited)
On 8/29/2010 at 7:06 AM, Luvbeingamommy said:

Is it always instantly??

 

I made a stupid mistake last night and ate some tastee sandwiches, well just the meat, no bread. My grandma thought they were fine, well after this morning I am thinking they were not. I looked up the recipe and there was liption onion soup mix, which pretty positive that is not okay if that is the recipe they used. Guess I can't assume anything, lesson learned.

 

I've been going to the bathroom a lot, stomach cramps, and joint pain....probably gluten, huh?? I didn't know if it had soy sauce (allergic to soy), but I don't think so.

 

I was just curious, I am usually VERY careful.....how long does it last for you??

Within 20mins for our master 9 while out for dinner tonight  despite all the correct information being wrote down by waitress. ?Remedies please?

Edited by SarahT
  • 2 weeks later...
kanucme2019 Apprentice

I am wheat sensitive and I will know it in about 3 hours and it last for about 2 hours.  I can usually figure it out what the food was if I ate something in the restaurant since I don't eat a lot anyhow.  And I avoid that food when I go out to eat again.  It's more difficult when I try eating a new gluten free frozen dinner or desserts at home.  Recently after several episodes and a lot of research, I found out that I also cannot eat anything with sorghum flour as the first ingredient. I get the same stomach and intestinal symptoms as wheat. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,196
    • Most Online (within 30 mins)
      10,442

    Spider2026
    Newest Member
    Spider2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Hi @Ginger38, By now you know that these things improve without gluten. I once saw an interview with a corporation executive where he proudly declared that his wheat products are more addictive than potato chips. Dr Fuhrman (Eat to Live) said find foods that are friendly to you to be friends with.  
    • cristiana
      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
×
×
  • Create New...