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I'm wondering about oxalate in the spinach. Unfortunately, the other greens that are low fructose also have some oxalate. Try a small serving of cooked cauliflower or broccoli if that hasn't bothered you in the past.

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Thanks everyone. I know I'm super sensitive. I dont feel glutened, just side pain, tummy buring and bloat. I feel a little better today, but want to eat some veggies and fruit. Before going gluten-free, I ate so healthy. Salads every day with veggies/fruit/lean meat. I miss that! I rarely ate cookies etc. I ate wheat bread and oatmeal/w honey every morning if you can imagine. No wonder I was hurting so bad. Melba toast with lunch....etc

I cannot eat almonds, peanuts and brazil nuts due to allergy. I don't know what my DQ is. I think that is what was asked, sorry it was a long day in kindedrgarten and on the bus :) I'm tired and my brain is fried! I ate a simple chicken and jasmine rice today, some gastro issues, but not a lot of pain. Until I came home and ate two slices of Hormel chicken gluten-free meat with a mission corn tortila. I'll try the other veggies, thanks for the replies.

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I'm wondering about oxalate in the spinach. Unfortunately, the other greens that are low fructose also have some oxalate. Try a small serving of cooked cauliflower or broccoli if that hasn't bothered you in the past.

oh interesting... i knew oxalates should be avoided if you have kidney stones.. but can they cause a reaction for some??

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I'm getting back into FODMAP after a false start, and it has helped the bloating heaps.

I'm on the yahoo group, it's pretty active, well worth checking out.

Thanks for posting the hedra page - I'm having a look now and it seems great!

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Thanks everyone. I know I'm super sensitive. I dont feel glutened, just side pain, tummy buring and bloat. I feel a little better today, but want to eat some veggies and fruit. Before going gluten-free, I ate so healthy. Salads every day with veggies/fruit/lean meat. I miss that! I rarely ate cookies etc. I ate wheat bread and oatmeal/w honey every morning if you can imagine. No wonder I was hurting so bad. Melba toast with lunch....etc

I cannot eat almonds, peanuts and brazil nuts due to allergy. I don't know what my DQ is. I think that is what was asked, sorry it was a long day in kindedrgarten and on the bus :) I'm tired and my brain is fried! I ate a simple chicken and jasmine rice today, some gastro issues, but not a lot of pain. Until I came home and ate two slices of Hormel chicken gluten-free meat with a mission corn tortila. I'll try the other veggies, thanks for the replies.

I don't know your history or whether you've ever taken any acid blocking drugs, but you could have low stomach acid, which could make you bloat after eating almost anything. Many people with celiac disease have low stomach acid, because gluten antibodies can attack the parietal cells of the stomach. Those cells produce stomach acid, which is necessary for proper digestion of food and absorption of vitamins and minerals from that food. Before I was tested for stomach acid production and started taking HCl supplements, I bloated after EVERY meal, no matter what I ate. (I was also abstaining from all my blood test diagnosed food allergies, but still bloated.)

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oh interesting... i knew oxalates should be avoided if you have kidney stones.. but can they cause a reaction for some??

Yes, not everyone handles oxalates well.

Here's a fairly interesting blog post I turned up on Google about them.

http://mindfullymeandering.blogspot.com/2010/03/not-so-great-oxalate-debate-do.html

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do you know what your DQ genes are??? im starting to wonder if Celiac's degree of sensitivity can be related to what their genes are... OR maybe its only related to amount of damage in the gut.??? it's all so interesting to me.

before i went "gluten lite & mostly carb free" a decade ago- i DID get to the point where i was having the "D" every day. but im not one of those people now who gets the "D" from CC. i definitely have side effects, and the last time i ingested gluten- i had Tacychardia & severe nausea... but i usually get the "C" & painful gas, and strange Bms... LONG BEFORE any "D".

im a double DQ8... i didnt know if the classic "DQ 2.5" was more sensitive than me- or if it's just the damage.

sorry to ramble- i just find it fascinating

I find it really interesting too, but not enough to shell out the $300, or really $1200 for our family of 4. I think it must be genetic because my son is even more sensitive than I am. My husband won't get tested. My daughter had a negative blood test. Lots of people seem to think it has to do with amount of exposure to gluten and it could be that too. My son did eat a lot of vegetarian meat substitute(before diagnosis) which was made from wheat gluten. How could I have done that to him! But he was diagnosed at age 10 and I wasn't diagnosed until age 47.

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skylark: thanks! interesting blog

step: my gene test was only 150$ but ya- its not necessary, just interesting... not as important as the blood test or diet. diet may even be MORE evidential- due to common false negative tests.

:)

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I don't know your history or whether you've ever taken any acid blocking drugs, but you could have low stomach acid, which could make you bloat after eating almost anything. Many people with celiac disease have low stomach acid, because gluten antibodies can attack the parietal cells of the stomach. Those cells produce stomach acid, which is necessary for proper digestion of food and absorption of vitamins and minerals from that food. Before I was tested for stomach acid production and started taking HCl supplements, I bloated after EVERY meal, no matter what I ate. (I was also abstaining from all my blood test diagnosed food allergies, but still bloated.)

I lived off of gas meds and acid blocking meds for years due to beginning told I had acid reflux. When I went gluten-free I stopped taking any med. This will go on my list to ask the gastro next month. I'm hoping he will take me seriously. I feel better gluten-free, but would love to have a totally bloat and pain free day. I have no idea what to eat anymore,sigh.....Thanks for the input.

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skylark: thanks! interesting blog

step: my gene test was only 150$ but ya- its not necessary, just interesting... not as important as the blood test or diet. diet may even be MORE evidential- due to common false negative tests.

:)

Where did you get it done?

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I lived off of gas meds and acid blocking meds for years due to beginning told I had acid reflux. When I went gluten-free I stopped taking any med. This will go on my list to ask the gastro next month. I'm hoping he will take me seriously. I feel better gluten-free, but would love to have a totally bloat and pain free day. I have no idea what to eat anymore,sigh.....Thanks for the input.

Many traditional docs believe drug companies' ads about excess stomach acid causing reflux. Actually a weakened lower esophageal sphincter (LES), which can open at inappropriate times, can cause reflux. Food allergies, gluten intolerance, certain foods and beverages like alcohol, caffeine, chocolate, peppermint and onions, as well as some drugs like ibuprofen and demerol can weaken the lower esophageal sphincter. When we swallow food, a normal stomach will produce enough acid to biochemically signal the LES to close until more food comes down the esophagus and then close again. If you have low stomach acid, you can reflux more easily and not digest food as well, which causes bloating and discomfort.

I'm glad you stopped taking acid blocking meds. However continued digestive problems may mean you have low stomach acid or deficient good bacteria in your intestines. Both can cause bloating. For more information, see "Why Stomach Acid is Good for You" by Dr. Jonathon Wright.

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Where did you get it done?

i ordered mine thru Enterolab. people say its controversial & nondiagnostic. but knowing what my genes are really helped motivate me- and go back to my Gi... and now, im trying to get my family to get tested. so frustrating!! since i read about a certain diet i love and will not name here-> most of my family is so gluten lite that a blood test would be inconclusive. my dad is the only one who is eating enough gluten but he's so dang stubborn he wont get a test :angry: but i know now that both my mom AND dad have at least 1 DQ8. my mom has Hashimoto's.. and my Dad has had lymphoma & an arterial blockage & anxiety/behavioral issues. BOTH my parents families have suspicious gluten related issues. i really wish they screened for Celiac in america the way they do in Italy or Finland :(

and- i read the same book as Burdee!!! my doc gave it to me after i did the Heidelberg test. its a great book- and very enlightening.

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My mom died from lymphomia. My dad had a negative blood test but decided to try a gluten free diet due to some annoying symptoms which went away. Now he experiences glutening when he gets accidental gluten. I'm guessing that I got it from both sides. It would be interesting to get the test done.

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