Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

Can Dh Come Later? Do You Treat It?


Libby08

Recommended Posts

Libby08 Newbie

Our daughter was dxed with celiacs a few weeks ago. She has gone through periods of what I thought was diaper rash. But nothing major.

I know she got gluten yesterday (Bad mommy) and today she has a rash all over her bottom. It like tiny blister. She hasnt complained about itching though...

If it is DH does it matter...like should I call a dr?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MacieMay Explorer

Our daughter was dxed with celiacs a few weeks ago. She has gone through periods of what I thought was diaper rash. But nothing major.

I know she got gluten yesterday (Bad mommy) and today she has a rash all over her bottom. It like tiny blister. She hasnt complained about itching though...

If it is DH does it matter...like should I call a dr?

I would definitely call the GI to see what they have to say.

I have the same thing going on with my 18 mos old. Her rashes are terrible and they are definitely influenced by gluten. We are struggling with a diagnosis (negative panel and negative scope). Wednesday she had skin biopsy (we had to beg the Derm to do it). It started as the diaper rashes but she now has had the blisters on the face, elbows, hands and knees (all the typical DH places) the diaper rashes come and go but the elbows, hands, and knees are now scarred and are not healing, this has been going for 6 months. If you don't mind if I ask....how old is your daughter and how did she get her diagnosis?

Link to comment
Share on other sites
ravenwoodglass Mentor

I would definitely call the GI to see what they have to say.

I have the same thing going on with my 18 mos old. Her rashes are terrible and they are definitely influenced by gluten. We are struggling with a diagnosis (negative panel and negative scope). Wednesday she had skin biopsy (we had to beg the Derm to do it). It started as the diaper rashes but she now has had the blisters on the face, elbows, hands and knees (all the typical DH places) the diaper rashes come and go but the elbows, hands, and knees are now scarred and are not healing, this has been going for 6 months. If you don't mind if I ask....how old is your daughter and how did she get her diagnosis?

Hopefully the doctor biopsied the area next to the lesions not the lesions themselves. If the doctor biopsied the lesion expect it to come back negative.

For the Original Poster:

There isn't much they can do about DH. If a person has celiac and is firmly diagnosed the best thing to do is to be strictly gluten free. There is a med called dapsone that can be given but since it does have some nasty side effects and risks I don't think they would give it to a young child.

In some cases a short term dose of prednisone may help but your doctor would be the one to ask. As a child they would only give it to me once a year. I would then have a month or so rash free but since I wasn't yet diagnosed celiac the rash would of course come right back.

Be as strict as possible with the diet and the lesions will heal in time. It can take a pretty long time for the antibodies to leave the skin layers and even a small amount of gluten will reactivate the lesions. Be patient and be strict.

Link to comment
Share on other sites
Libby08 Newbie

I would definitely call the GI to see what they have to say.

I have the same thing going on with my 18 mos old. Her rashes are terrible and they are definitely influenced by gluten. We are struggling with a diagnosis (negative panel and negative scope). Wednesday she had skin biopsy (we had to beg the Derm to do it). It started as the diaper rashes but she now has had the blisters on the face, elbows, hands and knees (all the typical DH places) the diaper rashes come and go but the elbows, hands, and knees are now scarred and are not healing, this has been going for 6 months. If you don't mind if I ask....how old is your daughter and how did she get her diagnosis?

My daughter will be 3 in Oct. When she was about 12 months they tested her blood for all sorts of things. Celiacs came back negative. The next time they tested about a yr later, again just running a full panel, she doesnt exhibit the "classic symptoms" she was still negative but borderline. They decided to scope her not for celiacs but more looking for polyps or other issues...and her villi were blunted. So they took blood again...about a month ago and it was positive.

So I know in our case at your childs age she was negative..but is now positive. And since making her gluten free and learning more I see how she did have symptoms I just had no idea what to look for. Hugs its so hard to not have the answer for why things are wrong with your child

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,466
    • Most Online (within 30 mins)
      7,748

    CtoThaE
    Newest Member
    CtoThaE
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hannah24
      I've not heard of the DNA test I will definitely look into that. And I did not know that the neuropathy was symptoms of vitamin deficiency. I have been trying to get on a good vitamin regimen. Thank you!  
    • Hannah24
      My GI Doctor took blood work and said my Iron levels were actually high. But they took my blood a couple weeks after my infusion so I'm thinking that's why they were showing so high, but they knew I had the infusions. The infusions did help greatly but I am also on an Iron pill that I can instantly notice if I have not taken it for a few days.  Yes, I have read up on that! Thank you so much! I sure that will be fun! Hahaha
    • trents
      @shadycharacter, did you mean to reply to another post about sourdough bread? The present thread isn't about that.
    • Moodiefoodie
      Thanks for your response. It seems to be only with gluten, illness, or vaccination. 
    • knitty kitty
      Welcome to the forum, @LimpToeTheTimeless Bone growth plates close in the late teens to early twenties, so it's doubtful you'll grow much taller, but you may start to bulk up in muscle.  Remember to boost your absorption of vitamins and minerals needed to build muscle by eating a nutritionally dense diet and supplementing with essential vitamins and minerals, especially Thiamine B1, to counteract the malabsorption caused by Celiac Disease. Keep us posted on your progress! References: The effects of endurance training and thiamine supplementation on anti-fatigue during exercise https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4241913/ A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10542023/
×
×
  • Create New...