Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

wasabi092

Disorientation/temporary Amnesia?

Rate this topic

Recommended Posts

Today at work, I was walking down the hallway and suddenly realized I had no idea where I was. This lasted a couple minutes. I just felt like a lost little kid and it took me a bit to figure out where I was at, even though this place was familiar to me. I got severely glutened for the first time this past week and had my first bout of vertigo a couple days before (while driving). Has anyone heard of such bad disorientation as a result of glutening? Is this something worth seeing a physician about?

Share this post


Link to post
Share on other sites

I think that's serious enough to go see a doctor about! I did not have that problem exactly, but I would have seizures/passing out spells and not remember anything that happened in the minutes before I woke up on the floor. Sometimes I would even be talking to my husband in the minutes before it happened and I would never remember what we were talking about when I woke up. My husband got good at spotting the signs of one coming on and he caught me once before I hit the floor. I saw a neurologist, did sleep studies, MRIs, etc. They never figured it out. It got less frequent about 6 months before I went gluten free and I have not had any seizures for over a year now. I still have memory issues though, but not nearly as bad.

Share this post


Link to post
Share on other sites

Ditto to all that's been said!

I've recently been diagnosed, but for a long time I would have episodes when i was feeling confused, even have difficulty in speaking. I knew what I was trying to say but it wouldn't come out that way. The last episode happened three weeks ago before the diagnosis. I woke up from a nap and seriously couldn't remember where I was for like 5 minutes. Since going gluten-free I feel like the fog has lifted. When I went on a gluten free diet I was thinking it would only clear up my stomach pains, I had no idea all the "other" things that were happening to my body were related but the longer I'm on the diet the more things start to improve.

Share this post


Link to post
Share on other sites

Ditto to all that's been said!

I've recently been diagnosed, but for a long time I would have episodes when i was feeling confused, even have difficulty in speaking. I knew what I was trying to say but it wouldn't come out that way. The last episode happened three weeks ago before the diagnosis. I woke up from a nap and seriously couldn't remember where I was for like 5 minutes. Since going gluten-free I feel like the fog has lifted. When I went on a gluten free diet I was thinking it would only clear up my stomach pains, I had no idea all the "other" things that were happening to my body were related but the longer I'm on the diet the more things start to improve.

How long have you been gluten-free? I used to get that way for like 6 months after I first went gluten-free.

lovelove B)

sickchick

Share this post


Link to post
Share on other sites

I get that way when I eat gluten and it's horrible! I just recently went back on gluten so I could maybe get a diagnosis but it looks like I may quit and forget it all because my neurological symptoms are too intense and I cannot function to save my life! Forgetfulness, stuttering, severe chronic fatigue, ADD, OCD, etc. Time lapses and I have NO clue where it went or what I had done the entire time but time just isn't there anymore and it's weird and not OK when I have 6 kids; 4 whom I homeschool so that is NOT meshing!!!!

I feel for ya on this one as I am in the "fog" right now.

Share this post


Link to post
Share on other sites

Could be gluten, could be a mini stroke. See the doc asap to rule out the mini stroke. The ER would be the place for that really. They may not be able to figure anything out, but TIA's can be a warning sign of an impending stroke. Yeah, it's probably the gluten, but why mess around with the brain. They don't heal like a muscle strain.

Share this post


Link to post
Share on other sites

Thanks to everyone who replied! I'll probably get a hold of my doctor and see what she thinks about it. Do you see a primary care physician or to you have a specialist who knows about celiac/gluten related stuff? I had a naturopath diagnose me about the gluten (changed my life) but registered negative on the celiac test (what a surprise)so I'm not sure that my family's primary care physician would take me seriously. @sickchick: I've been off gluten for about 9 months so it sounds similar to you.

Share this post


Link to post
Share on other sites

How long have you been gluten-free? I used to get that way for like 6 months after I first went gluten-free.

lovelove cool.gif

sickchick

I've only been off Gluten for 3 weeks. And although I feel much clearer in the head I'm prepared by all that I've read that the episodes of Amnesia, Stuttering, confusion etc. could happen for a while yetmad.gif

Share this post


Link to post
Share on other sites

Also, I'm 22 so I'm not necessarily in the demographic most prone to strokes, although, the possibility always exists.

I'm 21 and have very similar episodes of disorientation as well as sporadic chest pains, so I thought for sure I was having mini-strokes. But the doctor not finding anything, sent me home and just said I was just "stressed". Of course I was stressed! I'm hurting all over, disoriented and all this came on just 2 years ago without a clue as to why it started. Definately Check with your physician, but talk to a nutritionist that specializes in Celiac, I know there hard to find, but one $100.00 session changed my life.

My heart goes out to you and all you're going through!

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 20, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
It’s so awful isn’t it. Do you ever get dizziness and a numb face? Mines just awful atm and I constantly think oh it must be something more serious   It’s so awful isn’t it. Do you ever get dizziness and a numb face? Mines just awful atm and Iconstantly think oh it must besomething more serious  
  • Blog Entries

  • ×
    ×
    • Create New...