0
bincongo

Pain In Upper Legs And Hips

Rate this topic

Recommended Posts

I have a doctors appointment soon and since she is not a specialist I need to know what to tell her. Before my diagnosis of Celiac 2 1/2 months ago I had a feeling of numbness in my upper legs in the early mornings before I got up. Now I am having even more problems in my legs. I have episodes of pain in my groin, hips and upper thighs. It seems to go along with my issues of constipation. I have always been constipated but it has gotten worse going gluten free. I am wondering if Celiac's can have autoimmune nerve problems. My blood work came out normal except for the Celiac panel and vitamin B6 was high. I had taken some vitamin B6 but had stopped 2 weeks before my blood work. I had a BM today but the pain continues. I don't feel I have any weakness with it but it is a odd sensation. The pain kept me from going to sleep last night until I took a Advil.

Ok I am adding my own reply. I know it is hard to diagnose things just by what is said on a computer. I also know that I am more worried about things now that I am a Celiac. I do know that Celiac's can have neuro problems. Maybe what I have is neuro form-itis. Its caused by sitting at my computer for hours a day trying to find answers on this forum.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I have numbness in the thighs also. It comes and goes. I have celiac disease. I have had nerve issues in my thighs for years. I think mine could be from the celiac. I went to a neurologist years ago and he gave me anti-depressants which can help with nerve pain but it didn't help. I take Advil also and it sometimes helps. If I'm walking for long periods of time I get the pain.

Hope you can get some relief from the pain.

Share this post


Link to post
Share on other sites

What you describe sounds all too familiar to me. It eventually got to the point where I could no longer walk at all. The pain became intolerable. Thanks to some posts on this board, I narrowed it down to vitamin B12 and/or magnesium. After about a month of B12, there was some improvement, but I had the sense that there was more too it. Once I added magnesium, I was back on my feet in two weeks. I continue taking both daily, and have no pain, numbness, weakness, nor any other problems with my legs, hips, etc.

Interestingly, magnesium is one of the best things to relieve constipation too. There are different forms though, with different levels of effectiveness for different symptoms. Ever hear of Milk of Magnesia? From what you describe, I'd recommend magnesium oxide, taken with something acidic such as orange juice, lemon juice, a high-dose of vitamin C (ascorbic acid), or citric acid. Start with a low dose, and increase slowly until you find your comfort level. About 200-400mg at most to start off. Increase every few days by maybe 200mg. You'll have to judge based on how you feel. Too much too soon can cause some cramping until your intestines "catch up". The acid greatly magnifies the effectiveness, hence you will also find magnesium citrate is a widely available supplement. These and other forms are available as powders or pills. If you take more than you need, you'll be heading to the bathroom more often than you should. Magnesium can be a hydrating laxative. That is, it draws water into the intestines.

I've read that an estimated 80% of Americans are deficient in magnesium. And, magnesium deficiency is said to be very common among those with Celiac. Vitamin B12 is also commonly deficient for us. For that I recommend a sublingual methylcobalamin tablet. Many have citric acid, which I found to irritate the soft tissues under my tongue. The methylcobalamin from Source Naturals seems quite effective IMO, and does not contain citric acid.

I hope you feel better soon.

Share this post


Link to post
Share on other sites

What you describe sounds all too familiar to me. It eventually got to the point where I could no longer walk at all. The pain became intolerable. Thanks to some posts on this board, I narrowed it down to vitamin B12 and/or magnesium. After about a month of B12, there was some improvement, but I had the sense that there was more too it. Once I added magnesium, I was back on my feet in two weeks. I continue taking both daily, and have no pain, numbness, weakness, nor any other problems with my legs, hips, etc.

Interestingly, magnesium is one of the best things to relieve constipation too. There are different forms though, with different levels of effectiveness for different symptoms. Ever hear of Milk of Magnesia? From what you describe, I'd recommend magnesium oxide, taken with something acidic such as orange juice, lemon juice, a high-dose of vitamin C (ascorbic acid), or citric acid. Start with a low dose, and increase slowly until you find your comfort level. About 200-400mg at most to start off. Increase every few days by maybe 200mg. You'll have to judge based on how you feel. Too much too soon can cause some cramping until your intestines "catch up". The acid greatly magnifies the effectiveness, hence you will also find magnesium citrate is a widely available supplement. These and other forms are available as powders or pills. If you take more than you need, you'll be heading to the bathroom more often than you should. Magnesium can be a hydrating laxative. That is, it draws water into the intestines.

I've read that an estimated 80% of Americans are deficient in magnesium. And, magnesium deficiency is said to be very common among those with Celiac. Vitamin B12 is also commonly deficient for us. For that I recommend a sublingual methylcobalamin tablet. Many have citric acid, which I found to irritate the soft tissues under my tongue. The methylcobalamin from Source Naturals seems quite effective IMO, and does not contain citric acid.

I hope you feel better soon.

Share this post


Link to post
Share on other sites

I haven't been taking my B12 & magnesium regularly so I'm going to make sure I do.

Thanks for the info.

Share this post


Link to post
Share on other sites
Ads by Google:


Ok I got my labs back and I just wanted to run some things by some of the smart people on this forum. My doctor wasn't concerned about any of it. She will retest me in 4 months. I know I am a new Celiac so my IgG was 102 and my IgA 11.1, Reticulin Abs - positive 1:20, Endomysial Abs - negative.

I also had a few other things tested. I had taken supplements up until about a week before my labs and then decided I wanted to know what my body was doing without supplements so I quit. My vitamin D was normal and so was my B12 but my B6 was elevated 70, in a range of 5-50. I forgot to ask for a magnesium test. I am close to being anemic but not out of range. My WBC is low 3.74, with MCHC of 31.7 and Neutrophils of 1.99.

I have stopped taking any vitamin B's but I am still taking Magnesium Citrate. I have a problem with constipation and I feel it helps but wondering if there is any danger in doing so. I continue to have problems with sleep but don't know if it is related. I take Levothyroxine but will be switching to Synthroid non generic. My T4 was 7.06 and TSH 1.27 on meds.

All in all I came out better than I expected so maybe my Celiac was caught early but I still would like some advice.

Share this post


Link to post
Share on other sites

Ok I got my labs back and I just wanted to run some things by some of the smart people on this forum. My doctor wasn't concerned about any of it. She will retest me in 4 months. I know I am a new Celiac so my IgG was 102 and my IgA 11.1, Reticulin Abs - positive 1:20, Endomysial Abs - negative.

I also had a few other things tested. I had taken supplements up until about a week before my labs and then decided I wanted to know what my body was doing without supplements so I quit. My vitamin D was normal and so was my B12 but my B6 was elevated 70, in a range of 5-50. I forgot to ask for a magnesium test. I am close to being anemic but not out of range. My WBC is low 3.74, with MCHC of 31.7 and Neutrophils of 1.99.

I have stopped taking any vitamin B's but I am still taking Magnesium Citrate. I have a problem with constipation and I feel it helps but wondering if there is any danger in doing so. I continue to have problems with sleep but don't know if it is related. I take Levothyroxine but will be switching to Synthroid non generic. My T4 was 7.06 and TSH 1.27 on meds.

All in all I came out better than I expected so maybe my Celiac was caught early but I still would like some advice.

First, the tests for B12 are known to be inaccurate, and the serum level does not represent intracellular levels. Also, the level which is considered "normal" depends on who you ask. And in Japan, the recognized minimum level is quite a bit higher than in the US. Vitamin B12 is necessary for the production of both serotonin and melatonin, as well as a number of other things, and therefore is a factor in the regulation of sleep/wake cycles. I can tell you that I always had trouble sleeping, but since taking B12, I've had no trouble sleeping, and awaken much more refreshed and can get out of bed far more quickly than I ever could before. I find that I sleep much more deeply as well. Additionally, since there is no known level of overdose for B12, you can safely try a supplement to see how you feel. I'd recommend the 5mg methylcobalamin sublingual tablet from Source Naturals, taken about an hour before bedtime.

As for the magnesium citrate, you may need to take more of it. There are few safety concerns with it, unless you were to take truly massive amounts. But by then, you'd know it was too much, because you'd probably be running to the bathroom all day. Again, increase the dosage gradually over time. Wait at least three days or more before each increase. That will also help insure that you don't overdose. You may also need to take a different form, such as magnesium oxide, and with that type I'd recommend either citric acid or citrus juice to maximize effectiveness. Magnesium is also known as the calming mineral, so it may assist in other things you are dealing with.

I'm not sure what the meaning of elevated B6 might be, but I suspect it may mean something more than just having taken supplements. I suppose you could do some searches on it.

How's your iodine level? I'm not very familiar with thyroid numbers and such, but one good source of information is this site. There are a number of members of this board who know a considerable amount about thyroid tests and so forth, and can shed some light on the numbers you've posted.

Share this post


Link to post
Share on other sites

First, the tests for B12 are known to be inaccurate, and the serum level does not represent intracellular levels. Also, the level which is considered "normal" depends on who you ask. And in Japan, the recognized minimum level is quite a bit higher than in the US. Vitamin B12 is necessary for the production of both serotonin and melatonin, as well as a number of other things, and therefore is a factor in the regulation of sleep/wake cycles. I can tell you that I always had trouble sleeping, but since taking B12, I've had no trouble sleeping, and awaken much more refreshed and can get out of bed far more quickly than I ever could before. I find that I sleep much more deeply as well. Additionally, since there is no known level of overdose for B12, you can safely try a supplement to see how you feel. I'd recommend the 5mg methylcobalamin sublingual tablet from Source Naturals, taken about an hour before bedtime.

I'm not sure what the meaning of elevated B6 might be, but I suspect it may mean something more than just having taken supplements. I suppose you could do some searches on it.

bincongo reply ---- I was taking a suppliment that had both B6 and B12 together. I will try to find the one you suggested but take only B12. I do take Melatonin at night.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Who's Online   8 Members, 0 Anonymous, 957 Guests (See full list)

  • Top Posters +

  • Recent Articles

    Jefferson Adams
    Celiac.com 06/16/2018 - Summer is the time for chips and salsa. This fresh salsa recipe relies on cabbage, yes, cabbage, as a secret ingredient. The cabbage brings a delicious flavor and helps the salsa hold together nicely for scooping with your favorite chips. The result is a fresh, tasty salsa that goes great with guacamole.
    Ingredients:
    3 cups ripe fresh tomatoes, diced 1 cup shredded green cabbage ½ cup diced yellow onion ¼ cup chopped fresh cilantro 1 jalapeno, seeded 1 Serrano pepper, seeded 2 tablespoons lemon juice 2 tablespoons red wine vinegar 2 garlic cloves, minced salt to taste black pepper, to taste Directions:
    Purée all ingredients together in a blender.
    Cover and refrigerate for at least 1 hour. 
    Adjust seasoning with salt and pepper, as desired. 
    Serve is a bowl with tortilla chips and guacamole.

    Dr. Ron Hoggan, Ed.D.
    Celiac.com 06/15/2018 - There seems to be widespread agreement in the published medical research reports that stuttering is driven by abnormalities in the brain. Sometimes these are the result of brain injuries resulting from a stroke. Other types of brain injuries can also result in stuttering. Patients with Parkinson’s disease who were treated with stimulation of the subthalamic nucleus, an area of the brain that regulates some motor functions, experienced a return or worsening of stuttering that improved when the stimulation was turned off (1). Similarly, stroke has also been reported in association with acquired stuttering (2). While there are some reports of psychological mechanisms underlying stuttering, a majority of reports seem to favor altered brain morphology and/or function as the root of stuttering (3). Reports of structural differences between the brain hemispheres that are absent in those who do not stutter are also common (4). About 5% of children stutter, beginning sometime around age 3, during the phase of speech acquisition. However, about 75% of these cases resolve without intervention, before reaching their teens (5). Some cases of aphasia, a loss of speech production or understanding, have been reported in association with damage or changes to one or more of the language centers of the brain (6). Stuttering may sometimes arise from changes or damage to these same language centers (7). Thus, many stutterers have abnormalities in the same regions of the brain similar to those seen in aphasia.
    So how, you may ask, is all this related to gluten? As a starting point, one report from the medical literature identifies a patient who developed aphasia after admission for severe diarrhea. By the time celiac disease was diagnosed, he had completely lost his faculty of speech. However, his speech and normal bowel function gradually returned after beginning a gluten free diet (8). This finding was so controversial at the time of publication (1988) that the authors chose to remain anonymous. Nonetheless, it is a valuable clue that suggests gluten as a factor in compromised speech production. At about the same time (late 1980’s) reports of connections between untreated celiac disease and seizures/epilepsy were emerging in the medical literature (9).
    With the advent of the Internet a whole new field of anecdotal information was emerging, connecting a variety of neurological symptoms to celiac disease. While many medical practitioners and researchers were casting aspersions on these assertions, a select few chose to explore such claims using scientific research designs and methods. While connections between stuttering and gluten consumption seem to have been overlooked by the medical research community, there is a rich literature on the Internet that cries out for more structured investigation of this connection. Conversely, perhaps a publication bias of the peer review process excludes work that explores this connection.
    Whatever the reason that stuttering has not been reported in the medical literature in association with gluten ingestion, a number of personal disclosures and comments suggesting a connection between gluten and stuttering can be found on the Internet. Abid Hussain, in an article about food allergy and stuttering said: “The most common food allergy prevalent in stutterers is that of gluten which has been found to aggravate the stutter” (10). Similarly, Craig Forsythe posted an article that includes five cases of self-reporting individuals who believe that their stuttering is or was connected to gluten, one of whom also experiences stuttering from foods containing yeast (11). The same site contains one report of a stutterer who has had no relief despite following a gluten free diet for 20 years (11). Another stutterer, Jay88, reports the complete disappearance of her/his stammer on a gluten free diet (12). Doubtless there are many more such anecdotes to be found on the Internet* but we have to question them, exercising more skepticism than we might when reading similar claims in a peer reviewed scientific or medical journal.
    There are many reports in such journals connecting brain and neurological ailments with gluten, so it is not much of a stretch, on that basis alone, to suspect that stuttering may be a symptom of the gluten syndrome. Rodney Ford has even characterized celiac disease as an ailment that may begin through gluten-induced neurological damage (13) and Marios Hadjivassiliou and his group of neurologists and neurological investigators have devoted considerable time and effort to research that reveals gluten as an important factor in a majority of neurological diseases of unknown origin (14) which, as I have pointed out previously, includes most neurological ailments.
    My own experience with stuttering is limited. I stuttered as a child when I became nervous, upset, or self-conscious. Although I have been gluten free for many years, I haven’t noticed any impact on my inclination to stutter when upset. I don’t know if they are related, but I have also had challenges with speaking when distressed and I have noticed a substantial improvement in this area since removing gluten from my diet. Nonetheless, I have long wondered if there is a connection between gluten consumption and stuttering. Having done the research for this article, I would now encourage stutterers to try a gluten free diet for six months to see if it will reduce or eliminate their stutter. Meanwhile, I hope that some investigator out there will research this matter, publish her findings, and start the ball rolling toward getting some definitive answers to this question.
    Sources:
    1. Toft M, Dietrichs E. Aggravated stuttering following subthalamic deep brain stimulation in Parkinson’s disease--two cases. BMC Neurol. 2011 Apr 8;11:44.
    2. Tani T, Sakai Y. Stuttering after right cerebellar infarction: a case study. J Fluency Disord. 2010 Jun;35(2):141-5. Epub 2010 Mar 15.
    3. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    4. Jäncke L, Hänggi J, Steinmetz H. Morphological brain differences between adult stutterers and non-stutterers. BMC Neurol. 2004 Dec 10;4(1):23.
    5. Kell CA, Neumann K, von Kriegstein K, Posenenske C, von Gudenberg AW, Euler H, Giraud AL. How the brain repairs stuttering. Brain. 2009 Oct;132(Pt 10):2747-60. Epub 2009 Aug 26.
    6. Galantucci S, Tartaglia MC, Wilson SM, Henry ML, Filippi M, Agosta F, Dronkers NF, Henry RG, Ogar JM, Miller BL, Gorno-Tempini ML. White matter damage in primary progressive aphasias: a diffusion tensor tractography study. Brain. 2011 Jun 11.
    7. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    8. [No authors listed] Case records of the Massachusetts General Hospital. Weekly clinicopathological exercises. Case 43-1988. A 52-year-old man with persistent watery diarrhea and aphasia. N Engl J Med. 1988 Oct 27;319(17):1139-48
    9. Molteni N, Bardella MT, Baldassarri AR, Bianchi PA. Celiac disease associated with epilepsy and intracranial calcifications: report of two patients. Am J Gastroenterol. 1988 Sep;83(9):992-4.
    10. http://ezinearticles.com/?Food-Allergy-and-Stuttering-Link&id=1235725 
    11. http://www.craig.copperleife.com/health/stuttering_allergies.htm 
    12. https://www.celiac.com/forums/topic/73362-any-help-is-appreciated/
    13. Ford RP. The gluten syndrome: a neurological disease. Med Hypotheses. 2009 Sep;73(3):438-40. Epub 2009 Apr 29.
    14. Hadjivassiliou M, Gibson A, Davies-Jones GA, Lobo AJ, Stephenson TJ, Milford-Ward A. Does cryptic gluten sensitivity play a part in neurological illness? Lancet. 1996 Feb 10;347(8998):369-71.

    Jefferson Adams
    Celiac.com 06/14/2018 - Refractory celiac disease type II (RCDII) is a rare complication of celiac disease that has high death rates. To diagnose RCDII, doctors identify a clonal population of phenotypically aberrant intraepithelial lymphocytes (IELs). 
    However, researchers really don’t have much data regarding the frequency and significance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. Such data could provide useful comparison information for patients with RCDII, among other things.
    To that end, a research team recently set out to try to get some information about the frequency and importance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. The research team included Shafinaz Hussein, Tatyana Gindin, Stephen M Lagana, Carolina Arguelles-Grande, Suneeta Krishnareddy, Bachir Alobeid, Suzanne K Lewis, Mahesh M Mansukhani, Peter H R Green, and Govind Bhagat.
    They are variously affiliated with the Department of Pathology and Cell Biology, and the Department of Medicine at the Celiac Disease Center, New York Presbyterian Hospital/Columbia University Medical Center, New York, USA. Their team analyzed results of TCR-GR analyses performed on SB biopsies at our institution over a 3-year period, which were obtained from eight active celiac disease, 172 celiac disease on gluten-free diet, 33 RCDI, and three RCDII patients and 14 patients without celiac disease. 
    Clonal TCR-GRs are not infrequent in cases lacking features of RCDII, while PCPs are frequent in all disease phases. TCR-GR results should be assessed in conjunction with immunophenotypic, histological and clinical findings for appropriate diagnosis and classification of RCD.
    The team divided the TCR-GR patterns into clonal, polyclonal and prominent clonal peaks (PCPs), and correlated these patterns with clinical and pathological features. In all, they detected clonal TCR-GR products in biopsies from 67% of patients with RCDII, 17% of patients with RCDI and 6% of patients with gluten-free diet. They found PCPs in all disease phases, but saw no significant difference in the TCR-GR patterns between the non-RCDII disease categories (p=0.39). 
    They also noted a higher frequency of surface CD3(−) IELs in cases with clonal TCR-GR, but the PCP pattern showed no associations with any clinical or pathological feature. 
    Repeat biopsy showed that the clonal or PCP pattern persisted for up to 2 years with no evidence of RCDII. The study indicates that better understanding of clonal T cell receptor gene rearrangements may help researchers improve refractory celiac diagnosis. 
    Source:
    Journal of Clinical Pathologyhttp://dx.doi.org/10.1136/jclinpath-2018-205023

    Jefferson Adams
    Celiac.com 06/13/2018 - There have been numerous reports that olmesartan, aka Benicar, seems to trigger sprue‐like enteropathy in many patients, but so far, studies have produced mixed results, and there really hasn’t been a rigorous study of the issue. A team of researchers recently set out to assess whether olmesartan is associated with a higher rate of enteropathy compared with other angiotensin II receptor blockers (ARBs).
    The research team included Y.‐H. Dong; Y. Jin; TN Tsacogianis; M He; PH Hsieh; and JJ Gagne. They are variously affiliated with the Division of Pharmacoepidemiology and Pharmacoeconomics, Department of Medicine, Brigham and Women's Hospital and Harvard Medical School in Boston, MA, USA; the Faculty of Pharmacy, School of Pharmaceutical Science at National Yang‐Ming University in Taipei, Taiwan; and the Department of Hepato‐Gastroenterology, Chi Mei Medical Center in Tainan, Taiwan.
    To get solid data on the issue, the team conducted a cohort study among ARB initiators in 5 US claims databases covering numerous health insurers. They used Cox regression models to estimate hazard ratios (HRs) and 95% confidence intervals (CIs) for enteropathy‐related outcomes, including celiac disease, malabsorption, concomitant diagnoses of diarrhea and weight loss, and non‐infectious enteropathy. In all, they found nearly two million eligible patients. 
    They then assessed those patients and compared the results for olmesartan initiators to initiators of other ARBs after propensity score (PS) matching. They found unadjusted incidence rates of 0.82, 1.41, 1.66 and 29.20 per 1,000 person‐years for celiac disease, malabsorption, concomitant diagnoses of diarrhea and weight loss, and non‐infectious enteropathy respectively. 
    After PS matching comparing olmesartan to other ARBs, hazard ratios were 1.21 (95% CI, 1.05‐1.40), 1.00 (95% CI, 0.88‐1.13), 1.22 (95% CI, 1.10‐1.36) and 1.04 (95% CI, 1.01‐1.07) for each outcome. Patients aged 65 years and older showed greater hazard ratios for celiac disease, as did patients receiving treatment for more than 1 year, and patients receiving higher cumulative olmesartan doses.
    This is the first comprehensive multi‐database study to document a higher rate of enteropathy in olmesartan initiators as compared to initiators of other ARBs, though absolute rates were low for both groups.
    Source:
    Alimentary Pharmacology & Therapeutics

    Jefferson Adams
    Celiac.com 06/12/2018 - A life-long gluten-free diet is the only proven treatment for celiac disease. However, current methods for assessing gluten-free diet compliance are lack the sensitivity to detect occasional dietary transgressions that may cause gut mucosal damage. So, basically, there’s currently no good way to tell if celiac patients are suffering gut damage from low-level gluten contamination.
    A team of researchers recently set out to develop a method to determine gluten intake and monitor gluten-free dietary compliance in patients with celiac disease, and to determine its correlation with mucosal damage. The research team included ML Moreno, Á Cebolla, A Muñoz-Suano, C Carrillo-Carrion, I Comino, Á Pizarro, F León, A Rodríguez-Herrera, and C Sousa. They are variously affiliated with Facultad de Farmacia, Departamento de Microbiología y Parasitología, Universidad de Sevilla, Sevilla, Spain; Biomedal S.L., Sevilla, Spain; Unidad Clínica de Aparato Digestivo, Hospital Universitario Virgen del Rocío, Sevilla, Spain; Celimmune, Bethesda, Maryland, USA; and the Unidad de Gastroenterología y Nutrición, Instituto Hispalense de Pediatría, Sevilla, Spain.
    For their study, the team collected urine samples from 76 healthy subjects and 58 patients with celiac disease subjected to different gluten dietary conditions. To quantify gluten immunogenic peptides in solid-phase extracted urines, the team used a lateral flow test (LFT) with the highly sensitive and specific G12 monoclonal antibody for the most dominant GIPs and an LFT reader. 
    They detected GIPs in concentrated urines from healthy individuals previously subjected to gluten-free diet as early as 4-6 h after single gluten intake, and for 1-2 days afterward. The urine test showed gluten ingestion in about 50% of patients. Biopsy analysis showed that nearly 9 out of 10 celiac patients with no villous atrophy had no detectable GIP in urine, while all patients with quantifiable GIP in urine showed signs of gut damage.
    The ability to use GIP in urine to reveal gluten consumption will likely help lead to new and non-invasive methods for monitoring gluten-free diet compliance. The test is sensitive, specific and simple enough for clinical monitoring of celiac patients, as well as for basic and clinical research applications including drug development.
    Source:
    Gut. 2017 Feb;66(2):250-257.  doi: 10.1136/gutjnl-2015-310148.

  • Forum Statistics

    • Total Topics
      110,231
    • Total Posts
      949,622
  • Member Statistics

    • Total Members
      77,229
    • Most Online
      3,093

    Newest Member
    nowlandfam
    Joined
  • Topics

  • Posts

    • Grief is natural and something we have to get through and it was a few years for me. First i just stopped seeing fast food joints. To me they were empty lots. I stopped watching tv with commercials. Thank you Roku, Netflix, Amazon and HBO. Those helped. Dietitian didnt give me anything i didnt know. Read some Celiac and Nutrition books.  Things got easier when the hubby agreed the house should be gluten free. No cross contamination and no temptation. Love my crock pot and rice cooker ( going to buy an instant pot next). Hate to cook. Love fresh fruit. Steam veggies in glass bowls in microwave. Boil up dozen eggs always on hand. Found gluten free crackers and popcorn on Amazon. Just search gluten free. Key is to make a bunch of food then freeze it in meal sizes. Always having food cooked or fresh on hand helps cravings. And find favorite snacks to look forward to. All said and done the gluten-free non processed food diet has reversed my heat disease and lowered my diabeties risk. All bad numbers are normal and being 50 that is great.
    • You really do need to get tested. The earlier you catch it the less likely serious and permanent damage to your body will occur. One of the Celiac associated medical problems is osteopenia/osteoporosis because of poor mineral absorption. 
    • Yeah here you can read into getting diagnosed, if celiac then you can rest assured you know hte cure and it will just take time with the gluten free diet. The newbie 101 thread will have many of your answers. Might be worth keeping a food diary just for references for now, and if you intend to get tested you need to be eating gluten sadly.
      https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/screening/
      https://www.celiac.com/forums/topic/91878-newbie-info-101/

      I used to get sick more often when eating gluten...but if you immune system is fighting one enemy on the front line it gives way for something else to sneak past it and hit you hard. So yes I would say so.....I hardly ever get sick now days with a virus.....food intolerance, reaching my personal tolerances for ceratin types of foods in a meal, or some other random quirk normally makes me sick...but these are normally just purge and go on sick....not painful for hours.  
    • I have zero energy. And headaches  
    • Well I respond really bad to sugar, starches, and carbs a few years after my celiac diagnosis with UC ....not diagnosed diabetic, but when I tried cheating and eating some hashbrowns...I started feeling like I was on drugs, and my glucose monitor showed 419........

      SO I now eat low carb with a high fat/protein diet (keto/atkins) and have developled sugar free treats...bit high in subsitutes but I do have recipes for several and have posted some here, like my Almond Butter Pecan Pie, Lemon Ricotta Scones...been playing with almond butter/sunbutter cookies and have 3 versions...still not quite satisfied to sell them yet. I have also came up with low carb flat bread recipe and a vegan grain free cheezy bread recipe I can share.
      PS both my parents are diabetic......adopted not celiac...they were well....carby bread lovers and sort of brought it on. But I cook for them now often with paleo meals low on carbs.
      IF YOUR son get a craving for low carb pizza, English Muffins, Tortillas, Pasta, Rice, etc. Look at the following companies.
      Miracle Noodles, Makes pasta, noodles, read to eat meals, rice...all low carb diabetic safe
      Mikeys Muffines makes tortills, english muffins, etc low carb
      Califlour Foods makes pizza crust....bit like a flat bread pizza but better then nothing I use the plant base crust....you can even make them in to chips.
      Protes Makes low carb Nacho chips, BBQ Chips, Chili and Lime chips that are great....avoid the salted caramel ones they burn them.
      Zevia Makes a type of knock of soda that works best with a tiny bit of splenda zero in it.
      Lakanto makes sugar free maple syrup, and some of the best sugar free chocolate bars.
      Anything else I can help point you through. I know the frustrations and spend most my life trying to invent and find foods that are safe. I also have recipes I post that are often low carb and gluten free on the reicpe blog here. Good luck and glad you and your family are working this out together.



       
  • Blog Entries

  • Upcoming Events