0
bincongo

Pain In Upper Legs And Hips

Rate this topic

Recommended Posts

I have a doctors appointment soon and since she is not a specialist I need to know what to tell her. Before my diagnosis of Celiac 2 1/2 months ago I had a feeling of numbness in my upper legs in the early mornings before I got up. Now I am having even more problems in my legs. I have episodes of pain in my groin, hips and upper thighs. It seems to go along with my issues of constipation. I have always been constipated but it has gotten worse going gluten free. I am wondering if Celiac's can have autoimmune nerve problems. My blood work came out normal except for the Celiac panel and vitamin B6 was high. I had taken some vitamin B6 but had stopped 2 weeks before my blood work. I had a BM today but the pain continues. I don't feel I have any weakness with it but it is a odd sensation. The pain kept me from going to sleep last night until I took a Advil.

Ok I am adding my own reply. I know it is hard to diagnose things just by what is said on a computer. I also know that I am more worried about things now that I am a Celiac. I do know that Celiac's can have neuro problems. Maybe what I have is neuro form-itis. Its caused by sitting at my computer for hours a day trying to find answers on this forum.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I have numbness in the thighs also. It comes and goes. I have celiac disease. I have had nerve issues in my thighs for years. I think mine could be from the celiac. I went to a neurologist years ago and he gave me anti-depressants which can help with nerve pain but it didn't help. I take Advil also and it sometimes helps. If I'm walking for long periods of time I get the pain.

Hope you can get some relief from the pain.

Share this post


Link to post
Share on other sites

What you describe sounds all too familiar to me. It eventually got to the point where I could no longer walk at all. The pain became intolerable. Thanks to some posts on this board, I narrowed it down to vitamin B12 and/or magnesium. After about a month of B12, there was some improvement, but I had the sense that there was more too it. Once I added magnesium, I was back on my feet in two weeks. I continue taking both daily, and have no pain, numbness, weakness, nor any other problems with my legs, hips, etc.

Interestingly, magnesium is one of the best things to relieve constipation too. There are different forms though, with different levels of effectiveness for different symptoms. Ever hear of Milk of Magnesia? From what you describe, I'd recommend magnesium oxide, taken with something acidic such as orange juice, lemon juice, a high-dose of vitamin C (ascorbic acid), or citric acid. Start with a low dose, and increase slowly until you find your comfort level. About 200-400mg at most to start off. Increase every few days by maybe 200mg. You'll have to judge based on how you feel. Too much too soon can cause some cramping until your intestines "catch up". The acid greatly magnifies the effectiveness, hence you will also find magnesium citrate is a widely available supplement. These and other forms are available as powders or pills. If you take more than you need, you'll be heading to the bathroom more often than you should. Magnesium can be a hydrating laxative. That is, it draws water into the intestines.

I've read that an estimated 80% of Americans are deficient in magnesium. And, magnesium deficiency is said to be very common among those with Celiac. Vitamin B12 is also commonly deficient for us. For that I recommend a sublingual methylcobalamin tablet. Many have citric acid, which I found to irritate the soft tissues under my tongue. The methylcobalamin from Source Naturals seems quite effective IMO, and does not contain citric acid.

I hope you feel better soon.

Share this post


Link to post
Share on other sites

What you describe sounds all too familiar to me. It eventually got to the point where I could no longer walk at all. The pain became intolerable. Thanks to some posts on this board, I narrowed it down to vitamin B12 and/or magnesium. After about a month of B12, there was some improvement, but I had the sense that there was more too it. Once I added magnesium, I was back on my feet in two weeks. I continue taking both daily, and have no pain, numbness, weakness, nor any other problems with my legs, hips, etc.

Interestingly, magnesium is one of the best things to relieve constipation too. There are different forms though, with different levels of effectiveness for different symptoms. Ever hear of Milk of Magnesia? From what you describe, I'd recommend magnesium oxide, taken with something acidic such as orange juice, lemon juice, a high-dose of vitamin C (ascorbic acid), or citric acid. Start with a low dose, and increase slowly until you find your comfort level. About 200-400mg at most to start off. Increase every few days by maybe 200mg. You'll have to judge based on how you feel. Too much too soon can cause some cramping until your intestines "catch up". The acid greatly magnifies the effectiveness, hence you will also find magnesium citrate is a widely available supplement. These and other forms are available as powders or pills. If you take more than you need, you'll be heading to the bathroom more often than you should. Magnesium can be a hydrating laxative. That is, it draws water into the intestines.

I've read that an estimated 80% of Americans are deficient in magnesium. And, magnesium deficiency is said to be very common among those with Celiac. Vitamin B12 is also commonly deficient for us. For that I recommend a sublingual methylcobalamin tablet. Many have citric acid, which I found to irritate the soft tissues under my tongue. The methylcobalamin from Source Naturals seems quite effective IMO, and does not contain citric acid.

I hope you feel better soon.

Share this post


Link to post
Share on other sites

I haven't been taking my B12 & magnesium regularly so I'm going to make sure I do.

Thanks for the info.

Share this post


Link to post
Share on other sites
Ads by Google:


Ok I got my labs back and I just wanted to run some things by some of the smart people on this forum. My doctor wasn't concerned about any of it. She will retest me in 4 months. I know I am a new Celiac so my IgG was 102 and my IgA 11.1, Reticulin Abs - positive 1:20, Endomysial Abs - negative.

I also had a few other things tested. I had taken supplements up until about a week before my labs and then decided I wanted to know what my body was doing without supplements so I quit. My vitamin D was normal and so was my B12 but my B6 was elevated 70, in a range of 5-50. I forgot to ask for a magnesium test. I am close to being anemic but not out of range. My WBC is low 3.74, with MCHC of 31.7 and Neutrophils of 1.99.

I have stopped taking any vitamin B's but I am still taking Magnesium Citrate. I have a problem with constipation and I feel it helps but wondering if there is any danger in doing so. I continue to have problems with sleep but don't know if it is related. I take Levothyroxine but will be switching to Synthroid non generic. My T4 was 7.06 and TSH 1.27 on meds.

All in all I came out better than I expected so maybe my Celiac was caught early but I still would like some advice.

Share this post


Link to post
Share on other sites

Ok I got my labs back and I just wanted to run some things by some of the smart people on this forum. My doctor wasn't concerned about any of it. She will retest me in 4 months. I know I am a new Celiac so my IgG was 102 and my IgA 11.1, Reticulin Abs - positive 1:20, Endomysial Abs - negative.

I also had a few other things tested. I had taken supplements up until about a week before my labs and then decided I wanted to know what my body was doing without supplements so I quit. My vitamin D was normal and so was my B12 but my B6 was elevated 70, in a range of 5-50. I forgot to ask for a magnesium test. I am close to being anemic but not out of range. My WBC is low 3.74, with MCHC of 31.7 and Neutrophils of 1.99.

I have stopped taking any vitamin B's but I am still taking Magnesium Citrate. I have a problem with constipation and I feel it helps but wondering if there is any danger in doing so. I continue to have problems with sleep but don't know if it is related. I take Levothyroxine but will be switching to Synthroid non generic. My T4 was 7.06 and TSH 1.27 on meds.

All in all I came out better than I expected so maybe my Celiac was caught early but I still would like some advice.

First, the tests for B12 are known to be inaccurate, and the serum level does not represent intracellular levels. Also, the level which is considered "normal" depends on who you ask. And in Japan, the recognized minimum level is quite a bit higher than in the US. Vitamin B12 is necessary for the production of both serotonin and melatonin, as well as a number of other things, and therefore is a factor in the regulation of sleep/wake cycles. I can tell you that I always had trouble sleeping, but since taking B12, I've had no trouble sleeping, and awaken much more refreshed and can get out of bed far more quickly than I ever could before. I find that I sleep much more deeply as well. Additionally, since there is no known level of overdose for B12, you can safely try a supplement to see how you feel. I'd recommend the 5mg methylcobalamin sublingual tablet from Source Naturals, taken about an hour before bedtime.

As for the magnesium citrate, you may need to take more of it. There are few safety concerns with it, unless you were to take truly massive amounts. But by then, you'd know it was too much, because you'd probably be running to the bathroom all day. Again, increase the dosage gradually over time. Wait at least three days or more before each increase. That will also help insure that you don't overdose. You may also need to take a different form, such as magnesium oxide, and with that type I'd recommend either citric acid or citrus juice to maximize effectiveness. Magnesium is also known as the calming mineral, so it may assist in other things you are dealing with.

I'm not sure what the meaning of elevated B6 might be, but I suspect it may mean something more than just having taken supplements. I suppose you could do some searches on it.

How's your iodine level? I'm not very familiar with thyroid numbers and such, but one good source of information is this site. There are a number of members of this board who know a considerable amount about thyroid tests and so forth, and can shed some light on the numbers you've posted.

Share this post


Link to post
Share on other sites

First, the tests for B12 are known to be inaccurate, and the serum level does not represent intracellular levels. Also, the level which is considered "normal" depends on who you ask. And in Japan, the recognized minimum level is quite a bit higher than in the US. Vitamin B12 is necessary for the production of both serotonin and melatonin, as well as a number of other things, and therefore is a factor in the regulation of sleep/wake cycles. I can tell you that I always had trouble sleeping, but since taking B12, I've had no trouble sleeping, and awaken much more refreshed and can get out of bed far more quickly than I ever could before. I find that I sleep much more deeply as well. Additionally, since there is no known level of overdose for B12, you can safely try a supplement to see how you feel. I'd recommend the 5mg methylcobalamin sublingual tablet from Source Naturals, taken about an hour before bedtime.

I'm not sure what the meaning of elevated B6 might be, but I suspect it may mean something more than just having taken supplements. I suppose you could do some searches on it.

bincongo reply ---- I was taking a suppliment that had both B6 and B12 together. I will try to find the one you suggested but take only B12. I do take Melatonin at night.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Who's Online   13 Members, 0 Anonymous, 407 Guests (See full list)

  • Top Posters +

  • Recent Articles

    Jefferson Adams
    Celiac.com 06/23/2018 - If you’re looking for a great gluten-free Mexican-style favorite that is sure to be a big hit at dinner or at your next potluck, try these green chili enchiladas with roasted cauliflower. The recipe calls for chicken, but they are just as delicious when made vegetarian using just the roasted cauliflower. Either way, these enchiladas will disappear fast. Roasted cauliflower gives these green chili chicken enchiladas a deep, smokey flavor that diners are sure to love.
    Ingredients:
    2 cans gluten-free green chili enchilada sauce (I use Hatch brand) 1 small head cauliflower, roasted and chopped 6 ounces chicken meat, browned ½ cup cotija cheese, crumbled ½ cup queso fresco, diced 1 medium onion, diced ⅓ cup green onions, minced ¼ cup radishes, sliced 1 tablespoon cooking oil 1 cup chopped cabbage, for serving ½ cup sliced cherry or grape tomatoes, for serving ¼ cup cilantro, chopped 1 dozen fresh corn tortillas  ⅔ cup oil, for softening tortillas 1 large avocado, cut into small chunks Note: For a tasty vegetarian version, just omit the chicken, double the roasted cauliflower, and prepare according to directions.
    Directions:
    Heat 1 tablespoon oil in a cast iron or ovenproof pan until hot.
    Add chicken and brown lightly on both sides. 
    Remove chicken to paper towels to cool.
     
    Cut cauliflower into small pieces and place in the oiled pan.
    Roast in oven at 350F until browned on both sides.
    Remove from the oven when tender. 
    Allow roasted cauliflower to cool.
    Chop cauliflower, or break into small pieces and set aside.
    Chop cooled chicken and set aside.
    Heat 1 inch of cooking oil in a small frying pan.
    When oil is hot, use a spatula to submerge a tortilla in the oil and leave only long enough to soften, about 10 seconds or so. 
    Remove soft tortilla to a paper towel and repeat with remaining tortillas.
    Pour enough enchilada sauce to coat the bottom of a large casserole pan.
    Dunk a tortilla into the sauce and cover both sides. Add more sauce as needed.
    Fill each tortilla with bits of chicken, cauliflower, onion, and queso fresco, and roll into shape.
    When pan is full of rolled enchiladas, top with remaining sauce.
    Cook at 350F until sauce bubbles.
    Remove and top with fresh cotija cheese and scallions.
    Serve with rice, beans, and cabbage, and garnish with avocado, cilantro, and sliced grape tomatoes.

     

    Roxanne Bracknell
    Celiac.com 06/22/2018 - The rise of food allergies means that many people are avoiding gluten in recent times. In fact, the number of Americans who have stopped eating gluten has tripled in eight years between 2009 and 2017.
    Whatever your rationale for avoiding gluten, whether its celiac disease, a sensitivity to the protein, or any other reason, it can be really hard to find suitable places to eat out. When you’re on holiday in a new and unknown environment, this can be near impossible. As awareness of celiac disease grows around the world, however, more and more cities are opening their doors to gluten-free lifestyles, none more so than the 10 locations on the list below.
    Perhaps unsurprisingly, the U.S is a hotbed of gluten-free options, with four cities making the top 10, as well as the Hawaiian island of Maui. Chicago, in particular, is a real haven of gluten-free fare, with 240 coeliac-safe eateries throughout this huge city. The super hip city of Portland also ranks highly on this list, with the capital of counterculture rich in gluten-free cuisine, with San Francisco and Denver also included. Outside of the states, several prominent European capitals also rank very highly on the list, including Prague, the picturesque and historic capital of the Czech Republic, which boasts the best-reviewed restaurants on this list.
    The Irish capital of Dublin, meanwhile, has the most gluten-free establishments, with a huge 330 to choose from, while Amsterdam and Barcelona also feature prominently thanks to their variety of top-notch gluten-free fodder.
    Finally, a special mention must go to Auckland, the sole representative of Australasia in this list, with the largest city in New Zealand rounding out the top 10 thanks to its 180 coeliacsafe eateries.
    The full top ten gluten-free cities are shown in the graphic below:
     

    Jefferson Adams
    Celiac.com 06/21/2018 - Would you buy a house advertised as ‘gluten-free’? Yes, there really is such a house for sale. 
    It seems a Phoenix realtor Mike D’Elena is hoping that his trendy claim will catch the eye of a buyer hungry to avoid gluten, or, at least one with a sense of humor. D’Elena said he crafted the ads as a way to “be funny and to draw attention.” The idea, D’Elena said, is to “make it memorable.” 
    Though D’Elena’s marketing seeks to capitalizes on the gluten-free trend, he knows Celiac disease is a serious health issue for some people. “[W]e’re not here to offend anybody….this is just something we're just trying to do to draw attention and do what's best for our clients," he said. 
    Still, the signs seem to be working. D'elena had fielded six offers within a few days of listing the west Phoenix home.
    "Buying can sometimes be the most stressful thing you do in your entire life so why not have some fun with it," he said. 
    What do you think? Clever? Funny?
    Read more at Arizonafamily.com.

    Advertising Banner-Ads
    Bakery On Main started in the small bakery of a natural foods market on Main Street in Glastonbury, Connecticut. Founder Michael Smulders listened when his customers with Celiac Disease would mention the lack of good tasting, gluten-free options available to them. Upon learning this, he believed that nobody should have to suffer due to any kind of food allergy or dietary need. From then on, his mission became creating delicious and fearlessly unique gluten-free products that were clean and great tasting, while still being safe for his Celiac customers!
    Premium ingredients, bakeshop delicious recipes, and happy customers were our inspiration from the beginning— and are still the cornerstones of Bakery On Main today. We are a fiercely ethical company that believes in integrity and feels that happiness and wholesome, great tasting food should be harmonious. We strive for that in everything we bake in our dedicated gluten-free facility that is GFCO Certified and SQF Level 3 Certified. We use only natural, NON-GMO Project Verified ingredients and all of our products are certified Kosher Parve, dairy and casein free, and we have recently introduced certified Organic items as well! 
    Our passion is to bake the very best products while bringing happiness to our customers, each other, and all those we meet!
    We are available during normal business hours at: 1-888-533-8118 EST.
    To learn more about us at: visit our site.

    Jefferson Adams
    Celiac.com 06/20/2018 - Currently, the only way to manage celiac disease is to eliminate gluten from the diet. That could be set to change as clinical trials begin in Australia for a new vaccine that aims to switch off the immune response to gluten. 
    The trials are set to begin at Australia’s University of the Sunshine Coast Clinical Trials Centre. The vaccine is designed to allow people with celiac disease to consume gluten with no adverse effects. A successful vaccine could be the beginning of the end for the gluten-free diet as the only currently viable treatment for celiac disease. That could be a massive breakthrough for people with celiac disease.
    USC’s Clinical Trials Centre Director Lucas Litewka said trial participants would receive an injection of the vaccine twice a week for seven weeks. The trials will be conducted alongside gastroenterologist Dr. James Daveson, who called the vaccine “a very exciting potential new therapy that has been undergoing clinical trials for several years now.”
    Dr. Daveson said the investigational vaccine might potentially restore gluten tolerance to people with celiac disease.The trial is open to adults between the ages of 18 and 70 who have clinically diagnosed celiac disease, and have followed a strict gluten-free diet for at least 12 months. Anyone interested in participating can go to www.joinourtrials.com.
    Read more at the website for Australia’s University of the Sunshine Coast Clinical Trials Centre.

    Source:
    FoodProcessing.com.au

  • Forum Statistics

    • Total Topics
      110,276
    • Total Posts
      949,862
  • Member Statistics

    • Total Members
      77,899
    • Most Online
      3,093

    Newest Member
    Ezy1
    Joined
  • Popular Now

  • Topics

  • Posts

    • The full celiac panel includes: TTG IGA
      TTG IGG
      DGP IGA
      DGP IGG
      EMA
      IGA A positive on any one blood test should lead to a gastroenterologist doing an endoscopy /biopsies to see if you have celiac. It looks like you are missing the DGP tests. Perhaps you can get them done while you are waiting for your gastro appointment. You could possibly have a more definitive result from them.  
    • Hi everyone, I'm currently in the process of getting tested for celiac and have been so stressed about it, it would be amazing to hear from other people who have gone through a similar process to mine. Does this sound like Celiac? Sorry in advance for the following novel! Basic backstory: I went from ages 10-22 without seeing a medical doctor except in emergencies due to being poor. I'm 23 now, and just recently (in February) got health insurance for the first time in my life ever. I always thought I had IBS (frequent diarrhea) which made sense because I was pretty severely abused as a child and would often have to have diarrhea after experiencing those "episodes." My girlfriend's parents paid for me to see a therapist and psychiatrist beginning at age 20 when I was severely depressed and anxious, and they thought it was IBS too. I'm no longer seeing the therapist but wish I was now that this is a problem. The diarrhea details (lmao sorry): I almost never get diarrhea anymore because I was convinced it was IBS and started eating more slowly, taking care to not eat heavy meals when anxious, moving around less after eating, and cutting out dairy and red meat. I will occasionally get diarrhea for no known reason but who knows? It goes like this when I do have it: somewhat sudden pain in my lower abdomen, same area as period cramps. In fact I often mistake the two. I have diarrhea (a lot...), then the pain vanishes. No other stomach or abdominal pains. I never get abdominal pain without diarrhea, and I never continue to feel ill after having diarrhea. I also had a scary incident last August (2017) where I noticed a um...clear stringy substance in my stool. I thought it was a tapeworm, went running panicking to urgent care and gave them a stool sample. They ran a full culture on it (took two weeks) and it was negative. I insisted on doing a second test and it was negative again. So the urgent care doctor said it was probably mucus in my stool. I got the full celiac blood work panel a few weeks ago and all my vitamins, minerals, nutrients etc. were perfect. So I am absorbing my nutrients well enough. BUT the metabolic Celiac test was iffy. I got one "weak positive." I will copy in my test results, excluding the vitamins/nutrients bits. It definitely seems to me that it indicates Celiac but my primary care doctor said she would "interpret it as negative." However she gave me a referral to a gastro specialist who I have an appointment with on July 13. It will be an initial consultation; I can't get an endoscopy unless that specialist agrees to it. So the actual endoscopy may not happen until late July or even August, September... Full list of symptoms: Diarrhea, persistent rash on my chest (little red bumps, always flares up when taking a hot shower or getting extremely anxious--went to a dermatologist for this when I was 9 and he just said it would go away but it never did), occasional small mouth ulcer (haven't had one in about a year and a half), and often feeling fatigued and irritable. I also feel very cold easily, much more easily than the average person. I've also ruled out the following with previous tests: anemia, diabetes, and thyroid issues. Basically every blood test I've ever done has come out perfect until this one weak positive! I should also note here that I have a second cousin with Celiac (my mother's first cousin). I can accept it if it's Celiac. In fact I hope it is because I would love to do away with diarrhea and the rash!!! My BIG fear is that it's Chrohns instead. But I have never had any bleeding in that region. Overall Celiac Disease Panel results (all results just said "normal"): WBC, RBC, Hemoglobin, Hematocrit, MCV, MCH, MCHC, Neutrophils, Immature Granulocytes, Lymphs, Monocytes, Eos, Basos, Platelets, Neutrophils (Absolute), Immature Grans (Abs), Lymphs (Absolute), Monocytes (Absolute), Eos (Absolute), Baso (Absolute), RDW. Metabolic Celiac Test results attached as an image... Thanks all. x Edit: Forgot to mention that I am currently still eating plenty of gluten, and even have been known to eat an entire baguette by myself in one sitting haha. I do not get diarrhea after this. If my diarrhea is connected to gluten, it's certainly very delayed.  
    • Aya, GFinDC has given you good advice.  Watch your CARBS they ferment and can cause bloating. This can be more pronounced after starting PPIs in some people because you have temporarily lowered your stomach acid which can make things worse for some people.  It is called Acid Rebound when people try to stop PPIs and why (at least) for short period of a couple weeks to a month your body begins to produce it's own stomach acid again.. ..things seem to get much worse. Here is a research link about it entitled "Gastric hypochlorhydria (low stomach acid) is associated with an exacerbation of dyspeptic symptoms in female patients" Dyspectic (dyspepsia) is the medical term for indigestion commonly known as acid reflux/bloating etc. https://link.springer.com/article/10.1007%2Fs00535-012-0634-8 In fact if stomach acid was not the cause your heartburn  and instead say from stress then taking PPIs can make it worse. See this fox news article from 5+ years ago that explains it well. http://www.foxnews.com/health/2012/11/13/gerd-or-nerd-new-type-acid-reflux-doesnt-respond-to-drugs.html quoting from the article "It used to be thought that all GERD was the same—you give patients PPIs and they'll all respond," says Prateek Sharma, a gastroenterologist at the University of Kansas School of Medicine. "But we're finding that a subset of these patients don't have acid as a cause of their symptoms." and they note this in their article on NERD not GERD. quoting again. "Another guess is psychological stress. A 2004 study of 60 patients conducted at the University of California, Los Angeles, found that those with severe, sustained stress in the previous six months were more likely to have heartburn symptoms during the next four months." the standard treatment for acid reflux is to take PPIs and that is troubling for many who start them and cant' get off of them. they actually note this fact. quoting again. "The ones we worry about are the ones who don't respond to standard therapy," he says. "Then we have to figure out why they don't respond." and might actually be making thing worse for many people. quoting again. Aya read the whole article and links provided in this thread when you get  chance. "One 2004 study cited a 46 percent increase in GERD-related visits to primary-care physicians over a three-year period alone." sadly if they had just tested your stomach acid levels before putting you on PPIs many of your acid reflux symptom's might of have been avoided. they are now beginning to realize PPI's don't work for everybody and can make it (heartburn) worse in many patients. quoting again. "Gastrointestinal experts now estimate that 50 percent to 70 percent of GERD patients actually have NERD, and studies show they are more likely to be female—and younger and thinner—than typical acid-reflux sufferers. They are also about 20 percent to 30 percent less likely to get relief from acid-blocking drugs. But their episodes of heartburn are just as frequent, just as severe and just as disruptive of their quality of life, studies show." Ground braking research really but we have a long memory when it comes to treatment regimens.  And it will take a while for the medical field to catch up to this new research. even though this new research recognizes this is real phenomena doctor's are stumped about how to treat it. quoting again. "New research suggests that in many people, heartburn may be caused by something other than acid reflux. But gastroenterologists are often stumped as to what it is and how to treat it." Because they think it is too high to  begin with it doesn't fit their paradigm to think stress or low stomach acid could really be the trigger and never test your stomach acid before beginning you on PPIs. If you were tested you would of remembered because it traditionally involved swallowing a pill retrieved with  string know as Heidelberg Gastric acid test or similar test like the EpH test where a thin tube is inserted through your nose for 24 hours. here is a medline article about the esophageal pH test. https://medlineplus.gov/ency/article/003401.htm because it makes or effects our gag reflex most people feel uncomfortable doing it. so this step (test) is typically bypassed. . . .and the real pH of your stomach is never tested/measured. But we know it is low stomach acid (being misdiagnosed I think) really because we have studied this phenom before see early link posted  here again for convenience sake entitled "Gastric hypochlorhydria (Low Stomach Acid) is associated with an exacerbation of dyspeptic symptoms in . . . patients" https://link.springer.com/article/10.1007%2Fs00535-012-0634-8 the article focuses on the results for women (I am/was not sure (can't remember) if you are women or not but men were also studied in this research. I hope this is helpful. ***this is not medical advice but I have found often when your stomach acid is truly NOT high enough is when we have most of our/your GI problems. I just try and encourage others to get tested. . . because if you don't test you'll never know. We have the endoscopy test for many of our other GI problems we also need to test our pH as well to rule out if is contributing to our other GI problems. ***this is not medical advice but I hope it is helpful. ******Maybe someone else can answer this??? Can you do pH testing with an Endoscopy and if so why is not typically done?? when an Endoscopy is performed thus killing two birds (proverbially with one stone (test). 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
    • Yeah you have to eat it til they are done with all the testing, backward part of this disease is the dia.

      There are 100s of symptoms with this disease, you probably have a few you have considered "Normal" for years, and after a year or so you will like a new you.

      Go ahead and read over the newbie 101 thread for now and prehaps start cleaning out the cabinets, tossing the CCed condiment jars, scratched pans, and getting some new ones.
      https://www.celiac.com/forums/topic/91878-newbie-info-101/

      A whole foods diet starting off is best, avoiding dairy, oats, for awhile, but I do have a list of gluten free products I update a few times a year with a new one.
      https://www.celiac.com/forums/topic/121802-gluten-free-food-alternative-list-2018-q3/  
    • Aya, I think your PPIs are triggering your dyspepsia medical term for indigestion etc. Often when our stomach acid get's too low we will have issues with CARBS. They ferment and cause bloating. Here is a couple article/links about it. You need to get off the PPIs if at all possible.  Try taking a H2 blocker for two weeks and then stepping off it two weeks between reduction in dosages all the while watching your trigger foods. Here is a link about "Gastric hypochlorhydria (low stomach acid) is associated with an exacerbation of dyspeptic symptoms in female patients" https://link.springer.com/article/10.1007%2Fs00535-012-0634-8 taking betaineHCL can also help your digestion if your stomach acid is already too low from taking lansoprazol. see this topic in the pharmaceutical journal about it. https://www.pharmaceutical-journal.com/learning/learning-article/question-from-practice-management-of-hypochlorhydria/11120379.article?firstPass=false as to whether you have Celiac disease or not . ..you might not yet but if you keep taking PPIs you might develop it if you keep taking them for years and years. PPI's increase your risk of developing celiac disease in the future. that is over 4 years old that studied this topic of PPIs use and subsequent Celiac disease diagnosis. https://www.celiac.com/articles.html/celiac-disease-gluten-intolerance-research/do-proton-pump-inhibitors-increase-risk-of-celiac-disease-r2860/ they (the researchers) concluded  quoting "The data clearly show that patients who use anti-secretory medications are at much greater risk for developing celiac disease following the use of these medicines. The fact that this connection persisted even after the team excluded prescriptions for anti-secretory medicines in the year preceding the celiac disease diagnosis suggests a causal relationship." and why this is novel research we didn't know why this was so too recently. see this article as reported by Jefferson Adams on celiacdotcom.  It is good research. https://www.celiac.com/articles.html/celiac-disease-gluten-intolerance-research/could-drinking-baking-soda-fight-celiac-and-other-autoimmune-diseases-r4479/ I am also including the medical news today article link on this topic because I think it summarizes these findings well. https://www.medicalnewstoday.com/articles/321624.php the articles about about what controls (switches on) inflammation (autoimmune reactions) in the body. we have microvilli (not villi) that line our organs (especially  the spleen) that alarm our body when proteins are in the body and not in the GI tract. the spleen is critical is here because it acts like a general of sorts directing our immune system and when gluten or other proteins tricks it --- it attacks our body (villi) by mistake. And this new research explains why this happens. quoting from the the summary on celiacdotcom ( again I think the MNT article) goes into more details. " A type of cell called mesothelial cells line our body cavities, like the digestive tract. They have little fingers, called microvilli, that sense the environment, and warn the organs they cover that there is an invader and an immune response is needed." to continue quoting "The team’s data shows that when rats or healthy people drink a solution of baking soda, the stomach makes more acid, which causes mesothelial cells on the outside of the spleen to tell the spleen to go easy on the immune response." Which explains perfectly how PPI's could cause someone to develop Celiac disease because it lowers our stomach acid.  And this study points out how raising our pH (lowering the pH) cause the spleen to settle down and stop attacking the bodies own organs (villi) in the case of Celiacs'. And it 's not just the Villi the body attacks they note it happens in other organs too when the "general" the spleen gets confused the whole body suffers inflammation. quoting again from the article Jefferson Adams "That message, which is transmitted with help from a chemical messenger called acetylcholine, seems to encourage the gut to shift against inflammation, say the scientists. In patients who drank water with baking soda for two weeks, immune cells called macrophages, shifted from primarily those that promote inflammation, called M1, to those that reduce it, called M2. "The shift from inflammatory to an anti-inflammatory profile is happening everywhere," O'Connor says. "We saw it in the kidneys, we saw it in the spleen, now we see it in the peripheral blood." so getting off the PPI by taking BetaineHCL or if you can believe this research baking soda to raise your stomach acid to natural healthy levels of a pH of 3.0 or less should help your indigestion and help control you GI inflammation from too low a stomach acid. you can have this tested by doing an Esophageal pH Test or just take betaineHCL and go low CARB and try the Baking Soda in the meantime to see if it helps your indigestion (if it is going to be a while before you can see the doctor again.) https://www.healthline.com/health/esophageal-ph-monitoring If it is truly low stomach acid (from taking PPI's) and too many CARBS in your diet then taken BetaineHCL will improve your digestion.  Be sure to always take BetaineHCL wtih food and plenty of water.  Water activates the stomach acid and the food dilutes the Stomach acid to ensure you don't get too much. If you get a "warm sensation" in your abdomen it is working. ******this is not medical advice but I hope this is helpful. I had a similar problem with my low stomach acid being misdiagnosed. Sorry the explanation is so long but you got a lot going on inside.. . and it takes some time to try and explain it. 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the Grace of God,
  • Blog Entries

  • Upcoming Events