Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

South Aussie Seeking Informed Dietician

tarni

By tarni
in Introduce Yourself / Share Stuff

Recommended Posts

tarni Rookie
tarni
Posted

My first post to this down-under sub-forum. I'm Kiwi born, but mainly raised (and currently live) in South Australia. So I guess I'm double OK to chat here? :)

After many symptoms consistent with coeliac, and then a negative endoscopy (went gluten-free anyway), I've recently been diagnosed with Lactose Intolerance from same endoscopy a few weeks later. Thus have been refered to a dietician who (via my information gathered from the telephone-call and her commercial website) seems to specialise in gastro-bands for weight-loss and hasn't heard of Fructose Malabsorbtion...which the Eastern States of Australia/UK/USA seem to have heard about... hello?! I'm quite skinny at the moment, so I'm pretty sure, she'd send me away with her $200 30 minute consultation bill and a cup-cake! Um, cancelled that appointment... and made another with local GP to see if he can recommend a better dietician than the gastro-doc... but I somehow get the feeling that the Adelaide docs are a bit out of the loop.

I would really like to hear if anyone knows about about a South Australian medic/dietician that is good with gluten-intolerance, lactose-intolerance, frucose malabsorption. Or should I just telepone/fly to the Eastern States?

Mnay thanks, tarni (a bit frustrated <_< )

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Cranberry Newbie
Cranberry
Posted

My first post to this down-under sub-forum. I'm Kiwi born, but mainly raised (and currently live) in South Australia. So I guess I'm double OK to chat here? :)

After many symptoms consistent with coeliac, and then a negative endoscopy (went gluten-free anyway), I've recently been diagnosed with Lactose Intolerance from same endoscopy a few weeks later. Thus have been refered to a dietician who (via my information gathered from the telephone-call and her commercial website) seems to specialise in gastro-bands for weight-loss and hasn't heard of Fructose Malabsorbtion...which the Eastern States of Australia/UK/USA seem to have heard about... hello?! I'm quite skinny at the moment, so I'm pretty sure, she'd send me away with her $200 30 minute consultation bill and a cup-cake! Um, cancelled that appointment... and made another with local GP to see if he can recommend a better dietician than the gastro-doc... but I somehow get the feeling that the Adelaide docs are a bit out of the loop.

I would really like to hear if anyone knows about about a South Australian medic/dietician that is good with gluten-intolerance, lactose-intolerance, frucose malabsorption. Or should I just telepone/fly to the Eastern States?

Mnay thanks, tarni (a bit frustrated <_< )

Hi Tarni,

I think you need to speak to Sue Shepherd. She has an office here in Adelaide, I think its rather new, and she has a colleague that works for her. Sue her self is based out of Melbourne I think... and she is extremely well known in the coeliac and fructose communities. Open Original Shared Link

Hope that helps. If you have Facebook perhaps search for some Aussie groups of coeliacs on there. I know there are a lot of groups and so more people in Adelaide will be able to give you their own personal advice.

You could also contact the SA coeliac society who would definately be the best resource to speak to.

  • 2 weeks later...
tarni Rookie
tarni
Posted
  • Author

Hi Tarni,

I think you need to speak to Sue Shepherd. She has an office here in Adelaide, I think its rather new, and she has a colleague that works for her. Sue her self is based out of Melbourne I think... and she is extremely well known in the coeliac and fructose communities. Open Original Shared Link

Hope that helps. If you have Facebook perhaps search for some Aussie groups of coeliacs on there. I know there are a lot of groups and so more people in Adelaide will be able to give you their own personal advice.

You could also contact the SA coeliac society who would definately be the best resource to speak to.

tarni Rookie
tarni
Posted
  • Author

Thank you, and apols for the delay in response. I've just been in such brain-fog etc and can't even get my head around how to track my posts etc.

Am thrilled to hear Sue Shepherd has a base/colleague in Adelaide. I'll contact them.

Again, many thanks, Tarni

georgie Enthusiast
georgie
Posted

Hi Tarni, I am in SA and have a very up to date and knowledgable GP if that is any help. I can PM you her details if you like. She was the one tht dxed GI for me, then did the breath tests and dxed lactose intolerance and FODMAP and now SIBO. I find I can tolerate hard cheeses OK and sheep's milk cheeses. Central Market and Rotolos at Norwood have them. The Sue Shepherd office sounds awesome!

tarni Rookie
tarni
Posted
  • Author

Thanks so much Georgie, I would really appreciate a PM re your GP's contact details. (And please forgive my techie ignorance... but does a PM just arrive at 'My Profile' page? Or should I enable something?)

Many thanks also to Cranberry, I followed your link (above) to the new Sue Shepherd base in Adelaide and am booked in for next Wednesday! As they are so very new here they do not yethave long waiting lists. V friendly and informative too.

I'm walking on sunshine, so good to learn that there are informed medics/dieticians here in lovely Adelaide. And it does feel kind of weird that on this international forum, one can casually mention The Central Market and The Parade (I almost literally live between them). Have you heard of 'Free' cafe/store on Unley Rd?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    2. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    3. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    4. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,151
    • Most Online (within 30 mins)
      7,748
    Travis25
    Newest Member
    Travis25
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      Heat intolerant... Yikes

      By Scott Adams · Posted

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.