• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   04/07/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
JBaby

Fibromyalgia

Rate this topic

Recommended Posts

I am curious how many of you have Fibromyalgia? I am in a flare up from gluten CC, and the aches/pain are in the upper midd and lower back and the left knee. I know these are a few of the tender points. Is there anything I can do to east the pain. Nauseaus too. Exhausted too. I felt fine till right after I ate. Abdominal cramping, then the headache and overwhelming fatigue.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I have fibromyalgia -I was diagnosed after I went gluten free, but it still flares up in response to sugars, nightshades, and pretty much any form of complex carb. I've never really had abdominal/intestinal issues, but I've had the aches for about half my life and confused most of the doctors I've had until I the one I saw this February.

Share this post


Link to post
Share on other sites

I also found nightshades to really bring on joint and muscle pains, which would last for weeks.

As for easing the symptoms, from my experience, magnesium and vitamin B12 have cured it. I no longer experience any of the debilitating pains I had. Completely gone! So in my case it was due to nutrient deficiencies, which I presume allowed the toxic alkaloids in nightshades to have such pronounced effects. I still take the supplements, and have not tried eating nightshades.

Share this post


Link to post
Share on other sites

I was diagnosed with Fibromyalgia in 2006. I needed to loose weight for a bridesmaid's dress recently and I went on a liquid diet. Turns out the shakes I was drinking were gluten-free. I started feeling amazing, I had more energy, I wasn't getting the IBS symptoms associated with FMS, and I was loosing weight. (I had lost 60 lbs. before and I now remember the liquid I was drinking then was gluten-free) After the wedding I started eating normal food again and I was puking, intense pain was back, and I was exhausted. I stumbled across and article about people often being diagnosed with FMS when they really have or also have a gluten-intolerance or Celiac. I spoke with my doctor and I had to return to a gluten diet for 5 weeks. It was horrible but I recently took the test and am back to being gluten free. The test came back negative but while I went back to gluten a rash broke out over my body so I had a biopsy of the rash done this past Monday. It looks like the blood test was wrong.

Anyway, the point I was getting to was that FMS and Gluten-Intolerances seem to mask or complicate the other. I still believe I have FMS because the tender points don't go away. Maybe after a few months of strict gluten-free I'll find I don't have FMS after all but I can definitely say that my FMS symptoms are crazy worse with gluten. Also, after two weeks gluten-free my clothes are looser again.

  • Upvote 1

Share this post


Link to post
Share on other sites
Ads by Google:


I had fibromyalgia pre gluten free and get it back when glutened.

Me too!

Share this post


Link to post
Share on other sites

I have connective tissue and muscle pain - don't know whether it's fibromyalgia or some other unknown disorder :blink:

Share this post


Link to post
Share on other sites

I was diagnosed with Fibromyalgia in 2005 and could hardly walk. I stopped using Aspartame (Equal sweetener) and the symptoms went away almost entirely in 2008. I also started getting sicker with the stomach issues over the last 2 years and it seemed to be coming back.. I've been gluten free for only 10 days now and the aches and pains are gone. I read somewhere (don't recall where) that Fibromyalgia can be a symptom of gluten intolerance.

My 2 cents!!

*Judy :rolleyes:

  • Upvote 1

Share this post


Link to post
Share on other sites

I was officially diagnosed about 11 months ago and I have followed the gluten-free diet since that time. I have known that I have food issues for 30 years. It was 30 years ago that I developed debilitating wrist pain, symmetrical, like with rheumatoid arthritis. An acupuncture Dr. told me he thought I had food allergies. I did the elimination diet and determined that I had an issue with wheat. The wrist pain (and a bunch of other less debilitating pain) went away dramatically--the improvement was just unbelievable and I could do things again. My hands had become useless, and they completely recovered in probably a few weeks. Other pain in various locations became dramatically better as well. Several months later, I reintroduced wheat, and did not have a return of symptoms. The muscle aches, arthritis like symptoms, have not been much of an issue for me over the last 30 years. But, I developed nasal polyps and asthma. I finally decided to get a blood test because of nagging digestive complaints, the breathing, and knowing that I have a history of some issues with wheat. Blood test was clearly positive, and follow-up biopsy was positive. I have been on a gluten free diet for 11 months. My previous wheat free diet was probably not completely gluten free. I feel much better although I continue to take asthma and sinus medication. In answer to your question, I probably would have been considered to have fibromyalgia 30 years ago, but i don't think there was much talk about fibro then.

Share this post


Link to post
Share on other sites


Ads by Google:


I was finally dx'd with fibro 2 years ago, at the age of 44, after having fibro symptoms since I was 8 years old. Went gluten free about 4 months after that. My pain and fatigue eased some but it was when i eliminated the nightshade veggies and soy that it greatly reduced but i'm sorry to say that it han't gone completely away. but i have gone from a pain and fatigue level of about 9 down to 3 1/2 to 4.

  • Upvote 1

Share this post


Link to post
Share on other sites

I have had fibro for over 20 years and celiac was confirmed almost 3 years ago. The pain is better but my body has been in so much pain for so many years that it is really not flexible or strong any more. I am trying to rehabilitate myself and I keep over-doing it....I tried a low key yoga class last week and was in bed for the last 4 days. Anyone else working with issues like this? I use to teach ballet so I want to dance again!

  • Upvote 1

Share this post


Link to post
Share on other sites

I have had fibro for over 20 years and celiac was confirmed almost 3 years ago. The pain is better but my body has been in so much pain for so many years that it is really not flexible or strong any more. I am trying to rehabilitate myself and I keep over-doing it....I tried a low key yoga class last week and was in bed for the last 4 days. Anyone else working with issues like this? I use to teach ballet so I want to dance again!

My fibro can be so debilitating. I have eliminated soy and aspartame but have not noticed any difference, nor have I noticed any difference eliminating gluten. Even eliminating nightshades for a month did not do a single thing (perhaps I must try for longer). I also have tons of trigger and tender points, myofascial pain, costochondritis, herniated discs and FMS really exacerbates this pain. It is constant and it is nearly impossible to get comfortable to sleep at night. It feels as though someone has taken a baseball bat and beaten me repeatedly. All the time. Believe me, I understand about being in bed for several days at a time. It is a horrible, horrible illness.

We are preparing for a long-haul flight tomorrow and I am T E R R I F I E D because the pain last time was so intense and unbearable. Yet I have a hard time having my pain control me and what I do/do not do.

As a former ballet dancer it must be supremely difficult for you as you are used to being flexible. I feel for you and really hope you find something that helps. Supplements help some - I take mega doses of magnesium glycinate, Vitamin D3, B12, Zinc, etc. but have not noticed that helps, either. I need to continue taking them, of course, but am still looking for the answer. I recently tried Cymbalta which was a huge mistake. At first it was ok - I felt very ill from side effects but then when my dose was increased immediately had severe arrythmia and high BP so I had to wean off. That is very rare. It does help some people tremendously, though, and is one of the very few drugs approved specifically for FMS. Sometimes you get desperate enough to try anything, including prescription drugs!

Share this post


Link to post
Share on other sites

I was dx'd with fibro in 1993, after suffering without a diagnosis since 1988. I wish I had something positive to say about it, but for me at least, it's only got worse with age. I used to have periods of tolerable activity, when I could go out and do stuff with minimal (not ever none!) painful affect, but lately, it's been difficult to even stand up and wash my dishes, or cook myself something to eat. Which of course causes a vicious cycle of inactivity, which makes any activity more painful, etc etc etc ad nauseum.

The only thing I can suggest is don't be afraid to take whichever pain killers work for you, and if you have problems sleeping, talk to your doctor about a low dose sleep aid, or anti-depressant. There are several on the market that are known to specifically help people with fibro sleep. And try to be as active as possible, without causing too much pain. Even just a walk around the block every day can help.

  • Upvote 1

Share this post


Link to post
Share on other sites

I have had fibro for over 20 years and celiac was confirmed almost 3 years ago. The pain is better but my body has been in so much pain for so many years that it is really not flexible or strong any more. I am trying to rehabilitate myself and I keep over-doing it....I tried a low key yoga class last week and was in bed for the last 4 days. Anyone else working with issues like this? I use to teach ballet so I want to dance again!

Yoga can be great for fibro (and this has been well documented in research, as well), but you need to find a teacher/class that is a good match for you. "Low key" doesn't necessarily get at whether or not it's going to be beneficial for you. Was the teacher helping you with modifications and props to make it easy? Were the instructions simple to follow so it wasn't mentally stressful? Were there a number of resting poses that were really resting *for you*? And do you feel that YOU were able to balance the amount of effort you put in, regardless of what the teacher asked for?

I teach yoga, and it takes time to learn to teach to those with chronic conditions, read how they are doing by watching their bodies, make modifications and adjustments, and communicate to them how to regulate their own input. I also have fibromyalgia, so I know that it can be hard on the end of the student as well.

If you haven't tried a yoga therapist, you might start there. Also, a meditation class, pranayama class, or yoga nidra class are other good options for places to start.

  • Upvote 1

Share this post


Link to post
Share on other sites

I was diagnosed with Fibromyalgia...and was told I wouldn't get any better. Just to learn to live with it. Many long years until I found this place. 6 months into being gluten free and I no longer had any symptoms of Fibromyalgia...at all...But give me some trace gluten or CC and Wham...I'm back on the couch and unable to move without pain, painful muscles and joints and migraines. I have no tricks to make it easier to endure the attacks, just time and water and rest. Without gluten...everything works fine now...muscles returned to normal functioning finally. I am constantly amazed by that.

  • Upvote 1

Share this post


Link to post
Share on other sites

I've noticed that fibro symptoms seem to be popping up for me now that I'm gluten free. Take this weekend for example. I live in Michigan, so the weather is basically bi-polar. We went from cold and snowing, to 60 degrees and sunny, so 45 degrees and it sounding like a hurricane blowing outside for an entire day, all within a 3 day span. My body is aching like crazy, and I just feel drained. I was coming off of being glutened, as had just started feeling better again. All my gluten symptoms are gone, but the achy body and drained feeling is persisting. It never used to be that way for me til I went gluten free.

I guess in a way, going gluten free screwed me in that sense, but I feel so much better overall, I'll take a few ran down and blah days, over a glutening ANY DAY.

Share this post


Link to post
Share on other sites

I, too, have fibro, and had great hopes for a complete 'cure' when I went gluten free several years ago. Eliminating gluten helped bring the fibro to more manageable levels, but it's not gone. :( I wish it was. So much I wish it was!!

I have thought about eliminating other foods, but haven't gotten the courage, or maybe haven't been desperate enough yet. I live with constant pain, as do many of you, so I can't remember what it's like to be pain free.

Weather changes, barometric pressure changes, changes in my routine, lack of sleep, extra stress, all of that can trigger the fibro, and often does.

Someone posted about nightshades and hand/wrist pain. I might try eliminating the nightshades, if it will bring back function to my hands and decrease the pain in them, which is beginning to affect my daily life and work. I've been eating a lot of tomatoes lately. Hmmmm.....

I am self diagnosed gluten intolerant, and lately have been questioning that, since the fibro is still with me. It's good to know gluten free didn't cure others, either. (Not good that it didn't cure, just that I'm not alone in this! :rolleyes: )

I'm not about to start eating gluten again. It DOES make a difference. If I get glutened, the joint and muscle pain returns in a quite evil manner, accompanied by fatigue and some GI additions.

Thank you all for being here and listening and sharing. All that really helps. A lot.

  • Upvote 1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Who's Online   13 Members, 2 Anonymous, 659 Guests (See full list)

  • Top Posters +

  • Recent Articles

    Jefferson Adams
    Celiac.com 04/23/2018 - A team of researchers recently set out to learn whether celiac disease patients commonly suffer cognitive impairment at the time they are diagnosed, and to compare their cognitive performance with non-celiac subjects with similar chronic symptoms and to a group of healthy control subjects.
    The research team included G Longarini, P Richly, MP Temprano, AF Costa, H Vázquez, ML Moreno, S Niveloni, P López, E Smecuol, R Mazure, A González, E Mauriño, and JC Bai. They are variously associated with the Small Bowel Section, Department of Medicine, Dr. C. Bonorino Udaondo Gastroenterology Hospital; Neurocience Cognitive and Traslational Institute (INECO), Favaloro Fundation, CONICET, Buenos Aires; the Brain Health Center (CESAL), Quilmes, Argentina; the Research Council, MSAL, CABA; and with the Research Institute, School of Medicine, Universidad del Salvador.
    The team enrolled fifty adults with symptoms and indications of celiac disease in a prospective cohort without regard to the final diagnosis.  At baseline, all individuals underwent cognitive functional and psychological evaluation. The team then compared celiac disease patients with subjects without celiac disease, and with healthy controls matched by sex, age, and education.
    Celiac disease patients had similar cognitive performance and anxiety, but no significant differences in depression scores compared with disease controls.
    A total of thirty-three subjects were diagnosed with celiac disease. Compared with the 26 healthy control subjects, the 17 celiac disease subjects, and the 17 disease control subjects, who mostly had irritable bowel syndrome, showed impaired cognitive performance (P=0.02 and P=0.04, respectively), functional impairment (P<0.01), and higher depression (P<0.01). 
    From their data, the team noted that any abnormal cognitive functions they saw in adults with newly diagnosed celiac disease did not seem not to be a result of the disease itself. 
    Their results indicate that cognitive dysfunction in celiac patients could be related to long-term symptoms from chronic disease, in general.
    Source:
    J Clin Gastroenterol. 2018 Mar 1. doi: 10.1097/MCG.0000000000001018.

    Connie Sarros
    Celiac.com 04/21/2018 - Dear Friends and Readers,
    I have been writing articles for Scott Adams since the 2002 Summer Issue of the Scott-Free Press. The Scott-Free Press evolved into the Journal of Gluten Sensitivity. I felt honored when Scott asked me ten years ago to contribute to his quarterly journal and it's been a privilege to write articles for his publication ever since.
    Due to personal health reasons and restrictions, I find that I need to retire. My husband and I can no longer travel the country speaking at conferences and to support groups (which we dearly loved to do) nor can I commit to writing more books, articles, or menus. Consequently, I will no longer be contributing articles to the Journal of Gluten Sensitivity. 
    My following books will still be available at Amazon.com:
    Gluten-free Cooking for Dummies Student's Vegetarian Cookbook for Dummies Wheat-free Gluten-free Dessert Cookbook Wheat-free Gluten-free Reduced Calorie Cookbook Wheat-free Gluten-free Cookbook for Kids and Busy Adults (revised version) My first book was published in 1996. My journey since then has been incredible. I have met so many in the celiac community and I feel blessed to be able to call you friends. Many of you have told me that I helped to change your life – let me assure you that your kind words, your phone calls, your thoughtful notes, and your feedback throughout the years have had a vital impact on my life, too. Thank you for all of your support through these years.

    Jefferson Adams
    Celiac.com 04/20/2018 - A digital media company and a label data company are teaming up to help major manufacturers target, reach and convert their desired shoppers based on dietary needs, such as gluten-free diet. The deal could bring synergy in emerging markets such as the gluten-free and allergen-free markets, which represent major growth sectors in the global food industry. 
    Under the deal, personalized digital media company Catalina will be joining forces with Label Insight. Catalina uses consumer purchases data to target shoppers on a personal base, while Label Insight works with major companies like Kellogg, Betty Crocker, and Pepsi to provide insight on food label data to government, retailers, manufacturers and app developers.
    "Brands with very specific product benefits, gluten-free for example, require precise targeting to efficiently reach and convert their desired shoppers,” says Todd Morris, President of Catalina's Go-to-Market organization, adding that “Catalina offers the only purchase-based targeting solution with this capability.” 
    Label Insight’s clients include food and beverage giants such as Unilever, Ben & Jerry's, Lipton and Hellman’s. Label Insight technology has helped the Food and Drug Administration (FDA) build the sector’s very first scientifically accurate database of food ingredients, health attributes and claims.
    Morris says the joint partnership will allow Catalina to “enhance our dataset and further increase our ability to target shoppers who are currently buying - or have shown intent to buy - in these emerging categories,” including gluten-free, allergen-free, and other free-from foods.
    The deal will likely make for easier, more precise targeting of goods to consumers, and thus provide benefits for manufacturers and retailers looking to better serve their retail food customers, especially in specialty areas like gluten-free and allergen-free foods.
    Source:
    fdfworld.com

    Jefferson Adams
    Celiac.com 04/19/2018 - Previous genome and linkage studies indicate the existence of a new disease triggering mechanism that involves amino acid metabolism and nutrient sensing signaling pathways. In an effort to determine if amino acids might play a role in the development of celiac disease, a team of researchers recently set out to investigate if plasma amino acid levels differed among children with celiac disease compared with a control group.
     
    The research team included Åsa Torinsson Naluai, Ladan Saadat Vafa, Audur H. Gudjonsdottir, Henrik Arnell, Lars Browaldh, and Daniel Agardh. They are variously affiliated with the Institute of Biomedicine, Department of Microbiology & Immunology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; the Institute of Clinical Sciences, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden; the Department of Pediatric Gastroenterology, Hepatology and Nutrition, Karolinska University Hospital and Division of Pediatrics, CLINTEC, Karolinska Institute, Stockholm, Sweden; the Department of Clinical Science and Education, Karolinska Institute, Sodersjukhuset, Stockholm, Sweden; the Department of Mathematical Sciences, Chalmers University of Technology, Gothenburg, Sweden; the Diabetes & Celiac Disease Unit, Department of Clinical Sciences, Lund University, Malmö, Sweden; and with the Nathan S Kline Institute in the U.S.A.
    First, the team used liquid chromatography-tandem mass spectrometry (LC/MS) to analyze amino acid levels in fasting plasma samples from 141 children with celiac disease and 129 non-celiac disease controls. They then crafted a general linear model using age and experimental effects as covariates to compare amino acid levels between children with celiac disease and non-celiac control subjects.
    Compared with the control group, seven out of twenty-three children with celiac disease showed elevated levels of the the following amino acids: tryptophan; taurine; glutamic acid; proline; ornithine; alanine; and methionine.
    The significance of the individual amino acids do not survive multiple correction, however, multivariate analyses of the amino acid profile showed significantly altered amino acid levels in children with celiac disease overall and after correction for age, sex and experimental effects.
    This study shows that amino acids can influence inflammation and may play a role in the development of celiac disease.
    Source:
    PLoS One. 2018; 13(3): e0193764. doi: & 10.1371/journal.pone.0193764

    Jefferson Adams
    Celiac.com 04/18/2018 - To the relief of many bewildered passengers and crew, no more comfort turkeys, geese, possums or other questionable pets will be flying on Delta or United without meeting the airlines' strict new requirements for service animals.
    If you’ve flown anywhere lately, you may have seen them. People flying with their designated “emotional support” animals. We’re not talking genuine service animals, like seeing eye dogs, or hearing ear dogs, or even the Belgian Malinois that alerts its owner when there is gluten in food that may trigger her celiac disease.
    Now, to be honest, some of those animals in question do perform a genuine service for those who need emotional support dogs, like veterans with PTSD.
    However, many of these animals are not service animals at all. Many of these animals perform no actual service to their owners, and are nothing more than thinly disguised pets. Many lack proper training, and some have caused serious problems for the airlines and for other passengers.
    Now the major airlines are taking note and introducing stringent requirements for service animals.
    Delta was the first to strike. As reported by the New York Times on January 19: “Effective March 1, Delta, the second largest US airline by passenger traffic, said it will require passengers seeking to fly with pets to present additional documents outlining the passenger’s need for the animal and proof of its training and vaccinations, 48 hours prior to the flight.… This comes in response to what the carrier said was a 150 percent increase in service and support animals — pets, often dogs, that accompany people with disabilities — carried onboard since 2015.… Delta said that it flies some 700 service animals a day. Among them, customers have attempted to fly with comfort turkeys, gliding possums, snakes, spiders, and other unusual pets.”
    Fresh from an unsavory incident with an “emotional support” peacock incident, United Airlines has followed Delta’s lead and set stricter rules for emotional support animals. United’s rules also took effect March 1, 2018.
    So, to the relief of many bewildered passengers and crew, no more comfort turkeys, geese, possums or other questionable pets will be flying on Delta or United without meeting the airlines' strict new requirements for service and emotional support animals.
    Source:
    cnbc.com