1 1
uruboy02

Develop Celiac Disease At 35

Rate this topic

Recommended Posts

Diagnosed at 55, after 2 years sick and three doctors.

Am convinced the "trigger" was this chain of events:

1) Got bad cold.

2) Went to Doctor, got antibiotics.

3) Cold got better, but got major bad GI problems.

4) Went back to Doctor, diagnosed with C-Diff., got powerfull antibiotics to fight C-Diff.

5) C-Diff cured, but GI symptoms, albiet milder than C-Diff, started probably a few months later and continued 2 years until diagnosed with Celiac by blood tests, endoscopy, and biopsies. Got miraculously better same day went on gluten-free diet.

best regards, lm

  • Upvote 1

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I figured it out myself at 57. Had a horrible time last year. Super high blood pressure and all my teeth are gone. This happened all in a period of approx. 1 year. Avoiding gluten now for only about six weeks and have now stopped by high blood pressure medication. I am on the Gerson eating program. Dr. Gerson solved it all in the 1920's. It's all about diet. I wish I had known this earlier.

Share this post


Link to post
Share on other sites

Unfortunatly Celiac disease doesn't recognize or care about your age. Since it is a genetic disease it can lie dormant for many years until a "triggering event" sets it off. That is what happened to me and I am well past 35. The good news is you can manage it and it is getting better everyday with all of the many gluten free food companies that are popping up everywhere. Stay connected to this forum and ask your questions. There are a lot of knowledgable people on this forum that can help you get through this. Good Luck! :D

  • Upvote 1

Share this post


Link to post
Share on other sites

I was diagnosed finally at 52. I am having a really horrible time figuring out what I can and can't tolerate. I am at the point where I would rather feel hunger than the pain of eating something "bad". It is a real battle, as you all very well know. It started with a carb-free diet last June, (but I know I have had it for years looking back). I was trying to encourage my daughter, 21, to lose a few pounds, and I needed to lose a few anyway. After 20 pounds I weighed less than I had in years and was very happy. Went back to carbs, and wow, it was awful. I have lost another 30-35 since then, and am still losing. Even some foods that are gluten free seem to bother me. I also have RA, anxiety, depression (which I am on meds for), psorasis, and many other obvious Celiac symptoms. Exhaustion, and my hair is falling out. I'm sure these symptoms are nothing new to most of you, but I am really getting discouraged. I ended up in the ER in December for the most excruciating stomach pain I have ever had in my lifetime, and last night it was almost as bad. The Dr. gave me pain pills, but I really don't want to be taking any more meds than nescessary. Does anybody else have stomach "pain"? And if so, what has helped alleviate it? I will take any advice! Thanks for reading!

  • Upvote 1

Share this post


Link to post
Share on other sites

I started having severe symptoms at 36 but looking back I think I may have been some form of gluten sensitive since childhood.

Share this post


Link to post
Share on other sites

Thank you for the welcome! That is exactly what I am dealing with! I am taking liquid vitamins, liquid iron for severe anemia, and a high protein liquid supplement throughout the day to try to repair muscle damage. Also B12 injections.. I have been SO weak, depressed, and have very sore joints and muscles, so my lifestyle has taken a huge left turn over the last year. My guy friend was so disappointed that I didn't get a ski pass, but it isn't worth it! I bought one last year and skied one time. I need to get my body back! I sure thank you for the encouraging words.... I look forward to getting better and learning from this site..... Thank you!

I was wondering...do you have to lose weight in order to have gluten sensitivity or celiac disease?

Share this post


Link to post
Share on other sites

No, some gain quite a bit of weight because their bodies save everything, they are so starved of nutrients.

Share this post


Link to post
Share on other sites

I'm joining in--I find this thread rather reassuring. Good to know I'm not the only one wondering where the heck this came from.

I'm 23, graduated from college last May, got my first job this past September. New city, first apartment, first job (make that a super stressful job with a crazy boss) and a nervous stomach somehow landed me in serious pain for the few months leading up to my birthday. I had settled into work and figured it couldn't be nerves tearing my stomach to shreds every day like clockwork 20 minutes after I ate just about anything. Did a little research and went gluten-free the week before my birthday. I felt better within 24 hours. Hurrah! No way in heck am I ever going back to that way of life again.

(Thanks to all of you, by the way, for sharing your stories and advice. It's ever so helpful to hear about other people's experiences and to realize you're not alone.)

  • Upvote 1

Share this post


Link to post
Share on other sites

Thank you for the welcome! That is exactly what I am dealing with! I am taking liquid vitamins, liquid iron for severe anemia, and a high protein liquid supplement throughout the day to try to repair muscle damage. Also B12 injections.. I have been SO weak, depressed, and have very sore joints and muscles, so my lifestyle has taken a huge left turn over the last year. My guy friend was so disappointed that I didn't get a ski pass, but it isn't worth it! I bought one last year and skied one time. I need to get my body back! I sure thank you for the encouraging words.... I look forward to getting better and learning from this site..... Thank you!

I think the vitamins and minerals will certainly help. I, too, have the sore muscles and joints and it doesn't help my piano playing at all because it's mostly in my shoulders and wrists. A bit of neuropathy, too. I'm a very active, multi organization volunteer person who was diagnosed with celiac only 4 years ago, when I was 73! Talk about surprise!! It was awful. I finally let go and went with the flow and tried to laugh about what symptoms would appear "tomorrow", I suffered from what I call "migratory" pains. Anyhow, that is slowly getting better but not being able to jump in and out of the car and get my work done is truly frustrating. Not eating various forbidden foods really doesn't bother me very much. Just my two cents worth. As you heal your gut, you will feel better!

Share this post


Link to post
Share on other sites

I got it at 28, my father at 68, my sister at 38, my niece at 1 and nephew at birth. Stress brought it on for me :(

Share this post


Link to post
Share on other sites

I was diagnosed with Celiac at age 28. I think it's a common misconception that Celiac only occurs in childhood, which is why so many people go un or mis diagnosed.

Share this post


Link to post
Share on other sites

It's funny, I am 46 and figured it out for myself after many years of being told I had IBS. So many different symptoms have disappeared or have improved I can't believe it. I don't even WANT my old favorites that have gluten.

But looking back, I also wonder how long I had this. I was very anemic starting when I was a child. And the IBS has been around for so long I forgot when I didn't have it. Now by eating no gluten I have not had diarrhea except a couple of times I ate things I didn't realize had gluten in them.

I don't even know what my trigger was.

Share this post


Link to post
Share on other sites

Ask your dr about iron IV. I was and currently am severly anemic and always tired. When my iron is low it feels like I have to use every ounce of energy to do ordinary tasks. With the iron IV my levels return to normal within two weeks. Much faster than the months oral iron can take. I am also on liquid iron to try to maintain a good level. It is amazing how my life can completely turn around within only to weeks. I literally felt like a new person!!!! Just got another IV today looking forward to feeling better. You may not need it more than once but I also have a bleeding disorder. My dr said it's a double whammy. Don't absorb it and can't keep it. Good luck and I hope you feel better soon!

Share this post


Link to post
Share on other sites

I turn 31 on Sunday, and just went gluten free. I'm 5 weeks in and feeling so much better. Looking back, there's been signs all the way back into my early teen years, but they were never an issue so I just overlooked it.

  • Upvote 1

Share this post


Link to post
Share on other sites

I was 31 when I was diagnosed. I was largely asymptomatic, or so I thought. It wasn't until after I went gluten free that certain things I thought were normal (regular headaches, frequent random nausea, joint pain, fatigue) actually weren't normal and were caused by celiac. Looking back I'm nearly positive I've had this since I was 21 and had a severe case of mono.

  • Upvote 1

Share this post


Link to post
Share on other sites

I'm pretty sure mine dates back to age 27 and the year 2001. I had two personal crisis surrounding the week of September 11th and I think the stress was too much for my body and activated the Celiac Disease. I had already had some issues (mostly migraines) but that was when I really got sick.

Share this post


Link to post
Share on other sites

I am 44, was diagnosed last August, I had symptoms for 5 years,but thought they were all realated to working nightshift and the stress of being a nurse. I think it would have been easier being diagnosed as a child. As an adult I miss so many things I used to eat.

Share this post


Link to post
Share on other sites

No, some gain quite a bit of weight because their bodies save everything, they are so starved of nutrients.

I am 35 as well and recently found out about my gluten intolerance...am hoping to get results back from endo this week regarding Celiacs. Anyways, I could not lose weight for the life of me, I gained 60 lbs after my daughter was born in 2006 and I couldnt understand why. I tried everything to lose it but it just didnt matter. Now, the weight is coming off like crazy. It is reassuring to know that some people do gain weight from this. I felt like such a failure because I was close to 250 lbs. I would explain to my doctor that I wasnt eating much and still gaining. She would look at me like I was lying and tell me to exercise more. It is so nice to finally have answers!!!

Share this post


Link to post
Share on other sites

Similar story here...

I've just turned 40 and pretty much that was when the celiac disease got triggered. I've always had symptoms I guess. I remember eating 4 slices of toast when I was a teenager after school and being unable to fight the urge to fall asleep. I've always had a troublesome stomach but just assumed everyone did and didn't complain as much as me :)

Then I got a massive infection, 5 months of antibiotics and BOOM I can't so much as look at gluten now. I'm fairly convinced it's the antibiotics wiping out my gut flora which did it for me. As is my neurologist. Annoyingly, my GP seems to think that my symptoms are unusual for celiac disease but from coming on this forum and doing a lot of research I know that it's very common. He put me on the wrong path for months imo.

Share this post


Link to post
Share on other sites

I am 33 and just diagnosed with celiac in July 2017. I am gluten free but still suffering from costocondritis and stomach acid issues. I am also dealing with some neurological things like pins and needles in my left shoulder blade that come and go. No deficiancies right now that we know of othwr than vitamin D which I have a prescription for. My symptoms were not bothersome until right after my first child and then everything fell apart. 

Edited by ldh84
typos

Share this post


Link to post
Share on other sites
10 hours ago, ldh84 said:

I am 33 and just diagnosed with celiac in July 2017. I am gluten free but still suffering from costocondritis and stomach acid issues. I am also dealing with some neurological things like pins and needles in my left shoulder blade that come and go. No deficiancies right now that we know of othwr than vitamin D which I have a prescription for. My symptoms were not bothersome until right after my first child and then everything fell apart. 

Your posting on a thread with a previous response from 2011, try starting a new thread. On your issues you mention no deficiency but I most attest that the pins and needles correlates to B-vitamins or magnesium both of which effect nerve response and can trigger this symptoms. It might not even show up as a deficiency on test but you will find supplementing to get rid of the symptoms. Everyone is different with different levels and needs of things. I would try a full spectrum B-vitamin making sure to have niacin in addition to it, I found Liquid Health Neurological Support and the Stress & Energy formula in combination 1 tbsp each 3 times a day to contain what I needed. Magnesium since you do not show issues of constipation and I assume you have a daily BM we might skip over the citrate version and go to the glycinate version as a first suggestion. Try Doctors Best powdered form 1 scoop in the evenings. You will notice very deep sleep with vivid dreams as a side effect, pins and needles and cramping/achey muscles should lessen. If your on PPIs they make it where you body can not use both b-vitamins, magnesium, and iron in the ways it is meant to. We have a fellow member who might be able to address getting you off them.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
1 1

  • Who's Online   21 Members, 1 Anonymous, 586 Guests (See full list)

  • Top Posters +

  • Recent Articles

    Jefferson Adams
    Celiac.com 06/21/2018 - Would you buy a house advertised as ‘gluten-free’? Yes, there really is such a house for sale. 
    It seems a Phoenix realtor Mike D’Elena is hoping that his trendy claim will catch the eye of a buyer hungry to avoid gluten, or, at least one with a sense of humor. D’Elena said he crafted the ads as a way to “be funny and to draw attention.” The idea, D’Elena said, is to “make it memorable.” 
    Though D’Elena’s marketing seeks to capitalizes on the gluten-free trend, he knows Celiac disease is a serious health issue for some people. “[W]e’re not here to offend anybody….this is just something we're just trying to do to draw attention and do what's best for our clients," he said. 
    Still, the signs seem to be working. D'elena had fielded six offers within a few days of listing the west Phoenix home.
    "Buying can sometimes be the most stressful thing you do in your entire life so why not have some fun with it," he said. 
    What do you think? Clever? Funny?
    Read more at Arizonafamily.com.

    Advertising Banner-Ads
    Bakery On Main started in the small bakery of a natural foods market on Main Street in Glastonbury, Connecticut. Founder Michael Smulders listened when his customers with Celiac Disease would mention the lack of good tasting, gluten-free options available to them. Upon learning this, he believed that nobody should have to suffer due to any kind of food allergy or dietary need. From then on, his mission became creating delicious and fearlessly unique gluten-free products that were clean and great tasting, while still being safe for his Celiac customers!
    Premium ingredients, bakeshop delicious recipes, and happy customers were our inspiration from the beginning— and are still the cornerstones of Bakery On Main today. We are a fiercely ethical company that believes in integrity and feels that happiness and wholesome, great tasting food should be harmonious. We strive for that in everything we bake in our dedicated gluten-free facility that is GFCO Certified and SQF Level 3 Certified. We use only natural, NON-GMO Project Verified ingredients and all of our products are certified Kosher Parve, dairy and casein free, and we have recently introduced certified Organic items as well! 
    Our passion is to bake the very best products while bringing happiness to our customers, each other, and all those we meet!
    We are available during normal business hours at: 1-888-533-8118 EST.
    To learn more about us at: visit our site.

    Jefferson Adams
    Celiac.com 06/20/2018 - Currently, the only way to manage celiac disease is to eliminate gluten from the diet. That could be set to change as clinical trials begin in Australia for a new vaccine that aims to switch off the immune response to gluten. 
    The trials are set to begin at Australia’s University of the Sunshine Coast Clinical Trials Centre. The vaccine is designed to allow people with celiac disease to consume gluten with no adverse effects. A successful vaccine could be the beginning of the end for the gluten-free diet as the only currently viable treatment for celiac disease. That could be a massive breakthrough for people with celiac disease.
    USC’s Clinical Trials Centre Director Lucas Litewka said trial participants would receive an injection of the vaccine twice a week for seven weeks. The trials will be conducted alongside gastroenterologist Dr. James Daveson, who called the vaccine “a very exciting potential new therapy that has been undergoing clinical trials for several years now.”
    Dr. Daveson said the investigational vaccine might potentially restore gluten tolerance to people with celiac disease.The trial is open to adults between the ages of 18 and 70 who have clinically diagnosed celiac disease, and have followed a strict gluten-free diet for at least 12 months. Anyone interested in participating can go to www.joinourtrials.com.
    Read more at the website for Australia’s University of the Sunshine Coast Clinical Trials Centre.

    Source:
    FoodProcessing.com.au

    Jefferson Adams
    Celiac.com 06/19/2018 - Could baking soda help reduce the inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease? Scientists at the Medical College of Georgia at Augusta University say that a daily dose of baking soda may in fact help reduce inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease.
    Those scientists recently gathered some of the first evidence to show that cheap, over-the-counter antacids can prompt the spleen to promote an anti-inflammatory environment that could be helpful in combating inflammatory disease.
    A type of cell called mesothelial cells line our body cavities, like the digestive tract. They have little fingers, called microvilli, that sense the environment, and warn the organs they cover that there is an invader and an immune response is needed.
    The team’s data shows that when rats or healthy people drink a solution of baking soda, the stomach makes more acid, which causes mesothelial cells on the outside of the spleen to tell the spleen to go easy on the immune response.  "It's most likely a hamburger not a bacterial infection," is basically the message, says Dr. Paul O'Connor, renal physiologist in the MCG Department of Physiology at Augusta University and the study's corresponding author.
    That message, which is transmitted with help from a chemical messenger called acetylcholine, seems to encourage the gut to shift against inflammation, say the scientists.
    In patients who drank water with baking soda for two weeks, immune cells called macrophages, shifted from primarily those that promote inflammation, called M1, to those that reduce it, called M2. "The shift from inflammatory to an anti-inflammatory profile is happening everywhere," O'Connor says. "We saw it in the kidneys, we saw it in the spleen, now we see it in the peripheral blood."
    O'Connor hopes drinking baking soda can one day produce similar results for people with autoimmune disease. "You are not really turning anything off or on, you are just pushing it toward one side by giving an anti-inflammatory stimulus," he says, in this case, away from harmful inflammation. "It's potentially a really safe way to treat inflammatory disease."
    The research was funded by the National Institutes of Health.
    Read more at: Sciencedaily.com

    Jefferson Adams
    Celiac.com 06/18/2018 - Celiac disease has been mainly associated with Caucasian populations in Northern Europe, and their descendants in other countries, but new scientific evidence is beginning to challenge that view. Still, the exact global prevalence of celiac disease remains unknown.  To get better data on that issue, a team of researchers recently conducted a comprehensive review and meta-analysis to get a reasonably accurate estimate the global prevalence of celiac disease. 
    The research team included P Singh, A Arora, TA Strand, DA Leffler, C Catassi, PH Green, CP Kelly, V Ahuja, and GK Makharia. They are variously affiliated with the Division of Gastroenterology and Hepatology, Beth Israel Deaconess Medical Center, Boston, Massachusetts; Lady Hardinge Medical College, New Delhi, India; Innlandet Hospital Trust, Lillehammer, Norway; Centre for International Health, University of Bergen, Bergen, Norway; Division of Gastroenterology and Hepatology, Beth Israel Deaconess Medical Center, Boston, Massachusetts; Gastroenterology Research and Development, Takeda Pharmaceuticals Inc, Cambridge, MA; Department of Pediatrics, Università Politecnica delle Marche, Ancona, Italy; Department of Medicine, Columbia University Medical Center, New York, New York; USA Celiac Disease Center, Columbia University Medical Center, New York, New York; and the Department of Gastroenterology and Human Nutrition, All India Institute of Medical Sciences, New Delhi, India.
    For their review, the team searched Medline, PubMed, and EMBASE for the keywords ‘celiac disease,’ ‘celiac,’ ‘tissue transglutaminase antibody,’ ‘anti-endomysium antibody,’ ‘endomysial antibody,’ and ‘prevalence’ for studies published from January 1991 through March 2016. 
    The team cross-referenced each article with the words ‘Asia,’ ‘Europe,’ ‘Africa,’ ‘South America,’ ‘North America,’ and ‘Australia.’ They defined celiac diagnosis based on European Society of Pediatric Gastroenterology, Hepatology, and Nutrition guidelines. The team used 96 articles of 3,843 articles in their final analysis.
    Overall global prevalence of celiac disease was 1.4% in 275,818 individuals, based on positive blood tests for anti-tissue transglutaminase and/or anti-endomysial antibodies. The pooled global prevalence of biopsy-confirmed celiac disease was 0.7% in 138,792 individuals. That means that numerous people with celiac disease potentially remain undiagnosed.
    Rates of celiac disease were 0.4% in South America, 0.5% in Africa and North America, 0.6% in Asia, and 0.8% in Europe and Oceania; the prevalence was 0.6% in female vs 0.4% males. Celiac disease was significantly more common in children than adults.
    This systematic review and meta-analysis showed celiac disease to be reported worldwide. Blood test data shows celiac disease rate of 1.4%, while biopsy data shows 0.7%. The prevalence of celiac disease varies with sex, age, and location. 
    This review demonstrates a need for more comprehensive population-based studies of celiac disease in numerous countries.  The 1.4% rate indicates that there are 91.2 million people worldwide with celiac disease, and 3.9 million are in the U.S.A.
    Source:
    Clin Gastroenterol Hepatol. 2018 Jun;16(6):823-836.e2. doi: 10.1016/j.cgh.2017.06.037.